| Written submissions and meetings with stakeholder organisations. | Cancro
> Cancro: a maioria dos tipos | Parceria regulatória
> A trabalhar com organismos reguladores | We do not communicate with patients directly | National | Regularly | 115055433125 |
| The Hellenic League Against Rheumatism (ELEANA) regularly represents patient interests to national and European regulators through formal consultations, written submissions, participation in policy dialogues, and involvement in European patient advocacy platforms (e.g., EULAR [European Alliance of Associations for Rheumatology] PARE [People with Arthritis/Rheumatism in Europe], EPF [European Patients' Forum], GAfPA [Global Alliance for Patient Access]). | Reumático
> Doenças reumáticas: a maioria dos tipos | Parceria regulatória
> Participar/facilitar reuniões com decisores políticos/reguladores | 100 000 | National | Regularly | 119025688550 |
| As a member of secondary and tertiary federations representing persons with disabilities and persons with multiple sclerosis, and through our direct engagement with the state, we advocate on behalf of our members. | Neurológico
> Esclerose múltipla | Parceria regulatória
> Com outros defensores de saúde | 1000 | Regional | Regularly | 115007075579 |
| Submits proposals to the collective "umbrella" body. | Raro
> Doenças raras: a maioria dos tipos | Parceria regulatória
> Com outros defensores de saúde | 1000 | National | Sometimes | 115019806061 |
| Through written submissions to the Ministry, engagement with local Members of Parliament, direct interpersonal contacts, and the Patient Association of Greece. | Neurodegenerativa
> Alzheimer | Parceria regulatória
> Com outros defensores de saúde | 1000 | Regional | Regularly | 115049818475 |
| Through ΕΛΟΔΙ [Ελληνική Ομοσπονδία για τον Διαβήτη - Hellenic Federation for Diabetes]. | Endócrino
> Diabetes (tipos 1 e 2) | Parceria regulatória
> Com outros defensores de saúde | 100 | Regional | Sometimes | 115060878962 |
| The Hellenic League Against Rheumatism (ELEANA) regularly represents patient interests to national and European regulators through formal consultations, written submissions, participation in policy dialogues, and involvement in European patient advocacy platforms (e.g., EULAR [European Alliance of Associations for Rheumatology] PARE [People with Arthritis/Rheumatism in Europe], EPF [European Patients' Forum], GAfPA [Global Alliance for Patient Access]). | Reumático
> Doenças reumáticas: a maioria dos tipos | Parceria regulatória
> Com outros defensores de saúde | 100 000 | National | Regularly | 119025688550 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Reumático
> Doenças reumáticas: a maioria dos tipos | Parceria regulatória
> Com outros defensores de saúde | We do not communicate with patients directly | International | Rarely | 119025711207 |
| Advocacy for patient pharmacotherapy at the Ministry of Health. | Osso
> Osteoporose | Impacto nas políticas e legislação
> Influenciar a política e legislação de saúde | 10 000 | National | Sometimes | 114996725641 |
| National Strategic Plan for CVD [Cardiovascular Disease]. | Cardiovascular
> Cardiovascular: a maioria dos tipos | Impacto nas políticas e legislação
> Influenciar a política e legislação de saúde | 1000 | National | Rarely | 115006858228 |
| As a member of secondary and tertiary federations representing persons with disabilities and persons with Multiple Sclerosis, and through direct engagement with public authorities, we advocate on behalf of our members by submitting requests for access to therapeutic treatments and therapies, as well as for the protection of their rights vis-à-vis the state. | Neurológico
> Esclerose múltipla | Impacto nas políticas e legislação
> Influenciar a política e legislação de saúde | 1000 | Regional | Regularly | 115007075579 |
| We engage in lobbying activities to advance and protect the interests of patients. | Cuidadores
> Cuidadores, família, amigos | Impacto nas políticas e legislação
> Influenciar a política e legislação de saúde | 100 | National | Rarely | 115047040745 |
| Where consultation processes are available on the relevant websites, we submit our positions, and we also direct formal requests to the Ministries of Health and Labour [in Greece]. | Neurológico
> Esclerose múltipla | Impacto nas políticas e legislação
> Influenciar a política e legislação de saúde | 1000 | Regional | Rarely | 115049438439 |
| Through written submissions to the Ministry, engagement with local Members of Parliament, direct interpersonal contacts, and the Patient Association of Greece. | Neurodegenerativa
> Alzheimer | Impacto nas políticas e legislação
> Influenciar a política e legislação de saúde | 1000 | Regional | Regularly | 115049818475 |
| Wherever public consultations are hosted on the relevant websites, we submit our views. | Neurológico
> Esclerose múltipla | Impacto nas políticas e legislação
> Participar em audiências públicas e consultas | 1000 | Regional | Rarely | 115049438439 |
| Where consultation processes are available on the relevant websites, we submit our positions, and we also direct formal requests to the Ministries of Health and Labour [in Greece]. | Neurológico
> Esclerose múltipla | Impacto nas políticas e legislação
> Participar em audiências públicas e consultas | 1000 | Regional | Rarely | 115049438439 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Reumático
> Doenças reumáticas: a maioria dos tipos | Impacto nas políticas e legislação
> Participar em audiências públicas e consultas | We do not communicate with patients directly | International | Rarely | 119025711207 |
| Through written submissions to the Ministry, engagement with local Members of Parliament, direct interpersonal contacts, and the Patient Association of Greece. | Neurodegenerativa
> Alzheimer | Impacto nas políticas e legislação
> Mobilizar parlamentares e líderes políticos | 1000 | Regional | Regularly | 115049818475 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Reumático
> Doenças reumáticas: a maioria dos tipos | Defesa de preços e acessibilidade financeira
> Defender preços justos para medicamentos | We do not communicate with patients directly | International | Rarely | 119025711207 |
| Advocacy for patient pharmacotherapy at the Ministry of Health. | Osso
> Osteoporose | Melhorar os caminhos de acesso
> Facilitar o acesso equitativo a medicamentos/cuidados de saúde | 10 000 | National | Sometimes | 114996725641 |
| Advocacy for access to medicines, diagnostic tests, and related services. | Raro
> Síndrome de Von Hippel-Lindau | Melhorar os caminhos de acesso
> Facilitar o acesso equitativo a medicamentos/cuidados de saúde | 100 | National | Regularly | 115006788497 |
| Advocacy for access to medicines, diagnostic tests, and related services. | Raro
> Síndrome de Von Hippel-Lindau | Melhorar os caminhos de acesso
> Facilitar o acesso equitativo a medicamentos/cuidados de saúde | 100 | National | Regularly | 115006788497 |
| As a member of secondary and tertiary federations representing persons with disabilities and persons with multiple sclerosis, and through direct engagement with public authorities, we advocate on behalf of our members by submitting requests for access to therapeutic treatments and therapies, as well as for the protection of their rights vis-à-vis the state. | Neurológico
> Esclerose múltipla | Melhorar os caminhos de acesso
> Facilitar o acesso equitativo a medicamentos/cuidados de saúde | 1000 | Regional | Regularly | 115007075579 |
| Issues relating to employment, accessibility, health inequalities, and the management of treatment options. | Cancro
> Cancro: a maioria dos tipos | Melhorar os caminhos de acesso
> Facilitar o acesso equitativo a medicamentos/cuidados de saúde | 1000 | National | Regularly | 115058727551 |
| … The Hellenic League Against Rheumatism (ELEANA) contributes patient perspectives on access to treatments, reimbursement, unmet needs, and quality of life in autoimmune rheumatic diseases, both at national level (Greece) and at EU level. | Reumático
> Doenças reumáticas: a maioria dos tipos | Melhorar os caminhos de acesso
> Facilitar o acesso equitativo a medicamentos/cuidados de saúde | 100 000 | National | Regularly | 119025688550 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Reumático
> Doenças reumáticas: a maioria dos tipos | Melhorar os caminhos de acesso
> Facilitar o acesso equitativo a medicamentos/cuidados de saúde | We do not communicate with patients directly | International | Rarely | 119025711207 |
| … The Hellenic League Against Rheumatism (ELEANA) contributes patient perspectives on access to treatments, reimbursement, unmet needs, and quality of life in autoimmune rheumatic diseases, both at national level (Greece) and at EU level. | Reumático
> Doenças reumáticas: a maioria dos tipos | Contribuição do doente baseada em evidências
> Utilize os insights dos pacientes para informar decisões | 100 000 | National | Regularly | 119025688550 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Reumático
> Doenças reumáticas: a maioria dos tipos | Contribuição do doente baseada em evidências
> Utilize os insights dos pacientes para informar decisões | We do not communicate with patients directly | International | Rarely | 119025711207 |
| Patient interests only [to drug regulatory authorities]. | Imune
> Imunodeficiências primárias | Contribuição do doente baseada em evidências
> Aproveite histórias de pacientes e narrativas de experiências vividas | 100 | Regional | Sometimes | 115055418373 |
| Advocacy for access to medicines, diagnostic tests, and related services. | Raro
> Síndrome de Von Hippel-Lindau | Diagnóstico e entrega de medicamentos
> Apoiar o rastreio e a deteção precoce | 100 | National | Regularly | 115006788497 |
| Participation in Ministry committees addressing chronic disease patients, medicinal products, patient rights. | Não Especificado
> Não especificado | Governação institucional
> Garantir representação nos órgãos consultivos governamentais | 1000 | National | Rarely | 115060548215 |
| As a member of secondary and tertiary federations representing persons with disabilities and persons with Multiple Sclerosis, and through direct engagement with public authorities, we advocate on behalf of our members by submitting requests for access to therapeutic treatments and therapies, as well as for the protection of their rights vis-à-vis the state. | Neurológico
> Esclerose múltipla | Defender os direitos dos doentes/melhorar a qualidade de vida
> Proteger/melhorar a experiência do doente | 1000 | Regional | Regularly | 115007075579 |
| As a member of secondary and tertiary federations representing persons with disabilities and persons with multiple sclerosis, and through direct engagement with public authorities, we advocate on behalf of our members by submitting requests for access to therapeutic treatments and therapies, as well as for the protection of their rights vis-à-vis the state. | Neurológico
> Esclerose múltipla | Defender os direitos dos doentes/melhorar a qualidade de vida
> Proteger/melhorar a experiência do doente | 1000 | Regional | Regularly | 115007075579 |
| Issues relating to employment, accessibility, health inequalities, and the management of treatment options. | Cancro
> Cancro: a maioria dos tipos | Defender os direitos dos doentes/melhorar a qualidade de vida
> Proteger/melhorar a experiência do doente | 1000 | National | Regularly | 115058727551 |
| Advocating for quality of care and quality of life for patients. | Cancro
> Cancro: mama | Defender os direitos dos doentes/melhorar a qualidade de vida
> Promover uma ênfase na qualidade de vida | 5000 | National | Regularly | 115019649379 |
| Advocating for quality of care and quality of life for patients. | Cancro
> Cancro: mama | Defender os direitos dos doentes/melhorar a qualidade de vida
> Promover uma ênfase na qualidade de vida | 5000 | National | Regularly | 115019649379 |
| Issues relating to employment, accessibility, health inequalities, and the management of treatment options. | Cancro
> Cancro: a maioria dos tipos | Defender os direitos dos doentes/melhorar a qualidade de vida
> Promover uma ênfase na qualidade de vida | 1000 | National | Regularly | 115058727551 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Reumático
> Doenças reumáticas: a maioria dos tipos | Defender os direitos dos doentes/melhorar a qualidade de vida
> Promover uma ênfase na qualidade de vida | We do not communicate with patients directly | International | Rarely | 119025711207 |
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