| Written submissions and meetings with stakeholder organisations. | Cancro
> Cancro: la maggior parte dei tipi | Partenariato normativo
> Collaborazione con gli organismi di regolamentazione | We do not communicate with patients directly | National | Regularly | 115055433125 |
| The Hellenic League Against Rheumatism (ELEANA) regularly represents patient interests to national and European regulators through formal consultations, written submissions, participation in policy dialogues, and involvement in European patient advocacy platforms (e.g., EULAR [European Alliance of Associations for Rheumatology] PARE [People with Arthritis/Rheumatism in Europe], EPF [European Patients' Forum], GAfPA [Global Alliance for Patient Access]). | Reumatico
> Malattie reumatiche: la maggior parte dei tipi | Partenariato normativo
> Partecipare/facilitare riunioni con responsabili politici/regolatori | 100.000 | National | Regularly | 119025688550 |
| As a member of secondary and tertiary federations representing persons with disabilities and persons with multiple sclerosis, and through our direct engagement with the state, we advocate on behalf of our members. | Neurologico
> Sclerosi multipla | Partenariato normativo
> Con altri sostenitori della salute | 1000 | Regional | Regularly | 115007075579 |
| Submits proposals to the collective "umbrella" body. | Raro
> Malattie rare: la maggior parte dei tipi | Partenariato normativo
> Con altri sostenitori della salute | 1000 | National | Sometimes | 115019806061 |
| Through written submissions to the Ministry, engagement with local Members of Parliament, direct interpersonal contacts, and the Patient Association of Greece. | Neurodegenerativo
> Alzheimer | Partenariato normativo
> Con altri sostenitori della salute | 1000 | Regional | Regularly | 115049818475 |
| Through ΕΛΟΔΙ [Ελληνική Ομοσπονδία για τον Διαβήτη - Hellenic Federation for Diabetes]. | Endocrino
> Diabete (sia di tipo 1 che di tipo 2) | Partenariato normativo
> Con altri sostenitori della salute | 100 | Regional | Sometimes | 115060878962 |
| The Hellenic League Against Rheumatism (ELEANA) regularly represents patient interests to national and European regulators through formal consultations, written submissions, participation in policy dialogues, and involvement in European patient advocacy platforms (e.g., EULAR [European Alliance of Associations for Rheumatology] PARE [People with Arthritis/Rheumatism in Europe], EPF [European Patients' Forum], GAfPA [Global Alliance for Patient Access]). | Reumatico
> Malattie reumatiche: la maggior parte dei tipi | Partenariato normativo
> Con altri sostenitori della salute | 100.000 | National | Regularly | 119025688550 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Reumatico
> Malattie reumatiche: la maggior parte dei tipi | Partenariato normativo
> Con altri sostenitori della salute | We do not communicate with patients directly | International | Rarely | 119025711207 |
| Advocacy for patient pharmacotherapy at the Ministry of Health. | Osso
> Osteoporosi | Influenzare le politiche e la legislazione
> Influenzare le politiche sanitarie e la legislazione | 10.000 | National | Sometimes | 114996725641 |
| National Strategic Plan for CVD [Cardiovascular Disease]. | Cardiovascolare
> Cardiovascolare: la maggior parte dei tipi | Influenzare le politiche e la legislazione
> Influenzare le politiche sanitarie e la legislazione | 1000 | National | Rarely | 115006858228 |
| As a member of secondary and tertiary federations representing persons with disabilities and persons with Multiple Sclerosis, and through direct engagement with public authorities, we advocate on behalf of our members by submitting requests for access to therapeutic treatments and therapies, as well as for the protection of their rights vis-à-vis the state. | Neurologico
> Sclerosi multipla | Influenzare le politiche e la legislazione
> Influenzare le politiche sanitarie e la legislazione | 1000 | Regional | Regularly | 115007075579 |
| We engage in lobbying activities to advance and protect the interests of patients. | Assistenti
> Assistenti, familiari, amici | Influenzare le politiche e la legislazione
> Influenzare le politiche sanitarie e la legislazione | 100 | National | Rarely | 115047040745 |
| Where consultation processes are available on the relevant websites, we submit our positions, and we also direct formal requests to the Ministries of Health and Labour [in Greece]. | Neurologico
> Sclerosi multipla | Influenzare le politiche e la legislazione
> Influenzare le politiche sanitarie e la legislazione | 1000 | Regional | Rarely | 115049438439 |
| Through written submissions to the Ministry, engagement with local Members of Parliament, direct interpersonal contacts, and the Patient Association of Greece. | Neurodegenerativo
> Alzheimer | Influenzare le politiche e la legislazione
> Influenzare le politiche sanitarie e la legislazione | 1000 | Regional | Regularly | 115049818475 |
| Wherever public consultations are hosted on the relevant websites, we submit our views. | Neurologico
> Sclerosi multipla | Influenzare le politiche e la legislazione
> Partecipa alle audizioni pubbliche e alle consultazioni | 1000 | Regional | Rarely | 115049438439 |
| Where consultation processes are available on the relevant websites, we submit our positions, and we also direct formal requests to the Ministries of Health and Labour [in Greece]. | Neurologico
> Sclerosi multipla | Influenzare le politiche e la legislazione
> Partecipa alle audizioni pubbliche e alle consultazioni | 1000 | Regional | Rarely | 115049438439 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Reumatico
> Malattie reumatiche: la maggior parte dei tipi | Influenzare le politiche e la legislazione
> Partecipa alle audizioni pubbliche e alle consultazioni | We do not communicate with patients directly | International | Rarely | 119025711207 |
| Through written submissions to the Ministry, engagement with local Members of Parliament, direct interpersonal contacts, and the Patient Association of Greece. | Neurodegenerativo
> Alzheimer | Influenzare le politiche e la legislazione
> Mobilitare parlamentari e leader politici | 1000 | Regional | Regularly | 115049818475 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Reumatico
> Malattie reumatiche: la maggior parte dei tipi | Advocacy per prezzi e accessibilità economica
> Sostenere prezzi equi dei farmaci | We do not communicate with patients directly | International | Rarely | 119025711207 |
| Advocacy for patient pharmacotherapy at the Ministry of Health. | Osso
> Osteoporosi | Miglioramento dei percorsi di accesso
> Facilitare l'accesso equo ai medicinali/all'assistenza sanitaria | 10.000 | National | Sometimes | 114996725641 |
| Advocacy for access to medicines, diagnostic tests, and related services. | Raro
> Sindrome di Von Hippel-Lindau | Miglioramento dei percorsi di accesso
> Facilitare l'accesso equo ai medicinali/all'assistenza sanitaria | 100 | National | Regularly | 115006788497 |
| Advocacy for access to medicines, diagnostic tests, and related services. | Raro
> Sindrome di Von Hippel-Lindau | Miglioramento dei percorsi di accesso
> Facilitare l'accesso equo ai medicinali/all'assistenza sanitaria | 100 | National | Regularly | 115006788497 |
| As a member of secondary and tertiary federations representing persons with disabilities and persons with multiple sclerosis, and through direct engagement with public authorities, we advocate on behalf of our members by submitting requests for access to therapeutic treatments and therapies, as well as for the protection of their rights vis-à-vis the state. | Neurologico
> Sclerosi multipla | Miglioramento dei percorsi di accesso
> Facilitare l'accesso equo ai medicinali/all'assistenza sanitaria | 1000 | Regional | Regularly | 115007075579 |
| Issues relating to employment, accessibility, health inequalities, and the management of treatment options. | Cancro
> Cancro: la maggior parte dei tipi | Miglioramento dei percorsi di accesso
> Facilitare l'accesso equo ai medicinali/all'assistenza sanitaria | 1000 | National | Regularly | 115058727551 |
| … The Hellenic League Against Rheumatism (ELEANA) contributes patient perspectives on access to treatments, reimbursement, unmet needs, and quality of life in autoimmune rheumatic diseases, both at national level (Greece) and at EU level. | Reumatico
> Malattie reumatiche: la maggior parte dei tipi | Miglioramento dei percorsi di accesso
> Facilitare l'accesso equo ai medicinali/all'assistenza sanitaria | 100.000 | National | Regularly | 119025688550 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Reumatico
> Malattie reumatiche: la maggior parte dei tipi | Miglioramento dei percorsi di accesso
> Facilitare l'accesso equo ai medicinali/all'assistenza sanitaria | We do not communicate with patients directly | International | Rarely | 119025711207 |
| … The Hellenic League Against Rheumatism (ELEANA) contributes patient perspectives on access to treatments, reimbursement, unmet needs, and quality of life in autoimmune rheumatic diseases, both at national level (Greece) and at EU level. | Reumatico
> Malattie reumatiche: la maggior parte dei tipi | Contributo del paziente basato sull'evidenza
> Utilizza le informazioni sui pazienti per prendere decisioni informate | 100.000 | National | Regularly | 119025688550 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Reumatico
> Malattie reumatiche: la maggior parte dei tipi | Contributo del paziente basato sull'evidenza
> Utilizza le informazioni sui pazienti per prendere decisioni informate | We do not communicate with patients directly | International | Rarely | 119025711207 |
| Patient interests only [to drug regulatory authorities]. | Immune
> Immunodeficienze primarie | Contributo del paziente basato sull'evidenza
> Sfrutta le storie dei pazienti e le narrazioni basate sull'esperienza vissuta | 100 | Regional | Sometimes | 115055418373 |
| Advocacy for access to medicines, diagnostic tests, and related services. | Raro
> Sindrome di Von Hippel-Lindau | Diagnosi e consegna dei medicinali
> Supporto allo screening e alla diagnosi precoce | 100 | National | Regularly | 115006788497 |
| Participation in Ministry committees addressing chronic disease patients, medicinal products, patient rights. | Non Specificato
> Non specificato | Governance istituzionale
> Garantire la rappresentanza negli organi consultivi governativi | 1000 | National | Rarely | 115060548215 |
| As a member of secondary and tertiary federations representing persons with disabilities and persons with Multiple Sclerosis, and through direct engagement with public authorities, we advocate on behalf of our members by submitting requests for access to therapeutic treatments and therapies, as well as for the protection of their rights vis-à-vis the state. | Neurologico
> Sclerosi multipla | Tutela dei diritti dei pazienti/miglioramento della qualità della vita
> Proteggere/migliorare l'esperienza del paziente | 1000 | Regional | Regularly | 115007075579 |
| As a member of secondary and tertiary federations representing persons with disabilities and persons with multiple sclerosis, and through direct engagement with public authorities, we advocate on behalf of our members by submitting requests for access to therapeutic treatments and therapies, as well as for the protection of their rights vis-à-vis the state. | Neurologico
> Sclerosi multipla | Tutela dei diritti dei pazienti/miglioramento della qualità della vita
> Proteggere/migliorare l'esperienza del paziente | 1000 | Regional | Regularly | 115007075579 |
| Issues relating to employment, accessibility, health inequalities, and the management of treatment options. | Cancro
> Cancro: la maggior parte dei tipi | Tutela dei diritti dei pazienti/miglioramento della qualità della vita
> Proteggere/migliorare l'esperienza del paziente | 1000 | National | Regularly | 115058727551 |
| Advocating for quality of care and quality of life for patients. | Cancro
> Cancro: seno | Tutela dei diritti dei pazienti/miglioramento della qualità della vita
> Promuovere un'enfasi sulla qualità della vita | 5000 | National | Regularly | 115019649379 |
| Advocating for quality of care and quality of life for patients. | Cancro
> Cancro: seno | Tutela dei diritti dei pazienti/miglioramento della qualità della vita
> Promuovere un'enfasi sulla qualità della vita | 5000 | National | Regularly | 115019649379 |
| Issues relating to employment, accessibility, health inequalities, and the management of treatment options. | Cancro
> Cancro: la maggior parte dei tipi | Tutela dei diritti dei pazienti/miglioramento della qualità della vita
> Promuovere un'enfasi sulla qualità della vita | 1000 | National | Regularly | 115058727551 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Reumatico
> Malattie reumatiche: la maggior parte dei tipi | Tutela dei diritti dei pazienti/miglioramento della qualità della vita
> Promuovere un'enfasi sulla qualità della vita | We do not communicate with patients directly | International | Rarely | 119025711207 |
interazioni
azioni e advocacy
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