| Written submissions and meetings with stakeholder organisations. | Cáncer
> Cáncer: la mayoría de los tipos | Asociación regulatoria
> Trabajando con organismos reguladores | We do not communicate with patients directly | National | Regularly | 115055433125 |
| The Hellenic League Against Rheumatism (ELEANA) regularly represents patient interests to national and European regulators through formal consultations, written submissions, participation in policy dialogues, and involvement in European patient advocacy platforms (e.g., EULAR [European Alliance of Associations for Rheumatology] PARE [People with Arthritis/Rheumatism in Europe], EPF [European Patients' Forum], GAfPA [Global Alliance for Patient Access]). | Reumático
> Enfermedades reumáticas: la mayoría de los tipos | Asociación regulatoria
> Asistir/facilitar reuniones con responsables de políticas/reguladores | 100,000 | National | Regularly | 119025688550 |
| As a member of secondary and tertiary federations representing persons with disabilities and persons with multiple sclerosis, and through our direct engagement with the state, we advocate on behalf of our members. | Neurológico
> Esclerosis múltiple | Asociación regulatoria
> Con otros defensores de la salud | 1,000 | Regional | Regularly | 115007075579 |
| Submits proposals to the collective "umbrella" body. | Raro
> Enfermedades raras: la mayoría de los tipos | Asociación regulatoria
> Con otros defensores de la salud | 1,000 | National | Sometimes | 115019806061 |
| Through written submissions to the Ministry, engagement with local Members of Parliament, direct interpersonal contacts, and the Patient Association of Greece. | Neurodegenerativa
> Alzheimer's | Asociación regulatoria
> Con otros defensores de la salud | 1,000 | Regional | Regularly | 115049818475 |
| Through ΕΛΟΔΙ [Ελληνική Ομοσπονδία για τον Διαβήτη - Hellenic Federation for Diabetes]. | Endocrino
> Diabetes (tipos 1 y 2) | Asociación regulatoria
> Con otros defensores de la salud | 100 | Regional | Sometimes | 115060878962 |
| The Hellenic League Against Rheumatism (ELEANA) regularly represents patient interests to national and European regulators through formal consultations, written submissions, participation in policy dialogues, and involvement in European patient advocacy platforms (e.g., EULAR [European Alliance of Associations for Rheumatology] PARE [People with Arthritis/Rheumatism in Europe], EPF [European Patients' Forum], GAfPA [Global Alliance for Patient Access]). | Reumático
> Enfermedades reumáticas: la mayoría de los tipos | Asociación regulatoria
> Con otros defensores de la salud | 100,000 | National | Regularly | 119025688550 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Reumático
> Enfermedades reumáticas: la mayoría de los tipos | Asociación regulatoria
> Con otros defensores de la salud | We do not communicate with patients directly | International | Rarely | 119025711207 |
| Advocacy for patient pharmacotherapy at the Ministry of Health. | Hueso
> Osteoporosis | Impactando políticas y legislación
> Influir en la política y legislación de salud | 10,000 | National | Sometimes | 114996725641 |
| National Strategic Plan for CVD [Cardiovascular Disease]. | Cardiovascular
> Cardiovascular: la mayoría de los tipos | Impactando políticas y legislación
> Influir en la política y legislación de salud | 1,000 | National | Rarely | 115006858228 |
| As a member of secondary and tertiary federations representing persons with disabilities and persons with Multiple Sclerosis, and through direct engagement with public authorities, we advocate on behalf of our members by submitting requests for access to therapeutic treatments and therapies, as well as for the protection of their rights vis-à-vis the state. | Neurológico
> Esclerosis múltiple | Impactando políticas y legislación
> Influir en la política y legislación de salud | 1,000 | Regional | Regularly | 115007075579 |
| We engage in lobbying activities to advance and protect the interests of patients. | Cuidadores
> Cuidadores, familia, amigos | Impactando políticas y legislación
> Influir en la política y legislación de salud | 100 | National | Rarely | 115047040745 |
| Where consultation processes are available on the relevant websites, we submit our positions, and we also direct formal requests to the Ministries of Health and Labour [in Greece]. | Neurológico
> Esclerosis múltiple | Impactando políticas y legislación
> Influir en la política y legislación de salud | 1,000 | Regional | Rarely | 115049438439 |
| Through written submissions to the Ministry, engagement with local Members of Parliament, direct interpersonal contacts, and the Patient Association of Greece. | Neurodegenerativa
> Alzheimer's | Impactando políticas y legislación
> Influir en la política y legislación de salud | 1,000 | Regional | Regularly | 115049818475 |
| Wherever public consultations are hosted on the relevant websites, we submit our views. | Neurológico
> Esclerosis múltiple | Impactando políticas y legislación
> Participar en audiencias públicas y consultas | 1,000 | Regional | Rarely | 115049438439 |
| Where consultation processes are available on the relevant websites, we submit our positions, and we also direct formal requests to the Ministries of Health and Labour [in Greece]. | Neurológico
> Esclerosis múltiple | Impactando políticas y legislación
> Participar en audiencias públicas y consultas | 1,000 | Regional | Rarely | 115049438439 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Reumático
> Enfermedades reumáticas: la mayoría de los tipos | Impactando políticas y legislación
> Participar en audiencias públicas y consultas | We do not communicate with patients directly | International | Rarely | 119025711207 |
| Through written submissions to the Ministry, engagement with local Members of Parliament, direct interpersonal contacts, and the Patient Association of Greece. | Neurodegenerativa
> Alzheimer's | Impactando políticas y legislación
> Movilizar parlamentarios y líderes políticos | 1,000 | Regional | Regularly | 115049818475 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Reumático
> Enfermedades reumáticas: la mayoría de los tipos | Defensa de precios y asequibilidad
> Abogar por precios justos de medicamentos | We do not communicate with patients directly | International | Rarely | 119025711207 |
| Advocacy for patient pharmacotherapy at the Ministry of Health. | Hueso
> Osteoporosis | Mejorando las vías de acceso
> Facilitar el acceso equitativo a medicamentos/atención médica | 10,000 | National | Sometimes | 114996725641 |
| Advocacy for access to medicines, diagnostic tests, and related services. | Raro
> Síndrome de Von Hippel-Lindau | Mejorando las vías de acceso
> Facilitar el acceso equitativo a medicamentos/atención médica | 100 | National | Regularly | 115006788497 |
| Advocacy for access to medicines, diagnostic tests, and related services. | Raro
> Síndrome de Von Hippel-Lindau | Mejorando las vías de acceso
> Facilitar el acceso equitativo a medicamentos/atención médica | 100 | National | Regularly | 115006788497 |
| As a member of secondary and tertiary federations representing persons with disabilities and persons with multiple sclerosis, and through direct engagement with public authorities, we advocate on behalf of our members by submitting requests for access to therapeutic treatments and therapies, as well as for the protection of their rights vis-à-vis the state. | Neurológico
> Esclerosis múltiple | Mejorando las vías de acceso
> Facilitar el acceso equitativo a medicamentos/atención médica | 1,000 | Regional | Regularly | 115007075579 |
| Issues relating to employment, accessibility, health inequalities, and the management of treatment options. | Cáncer
> Cáncer: la mayoría de los tipos | Mejorando las vías de acceso
> Facilitar el acceso equitativo a medicamentos/atención médica | 1,000 | National | Regularly | 115058727551 |
| … The Hellenic League Against Rheumatism (ELEANA) contributes patient perspectives on access to treatments, reimbursement, unmet needs, and quality of life in autoimmune rheumatic diseases, both at national level (Greece) and at EU level. | Reumático
> Enfermedades reumáticas: la mayoría de los tipos | Mejorando las vías de acceso
> Facilitar el acceso equitativo a medicamentos/atención médica | 100,000 | National | Regularly | 119025688550 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Reumático
> Enfermedades reumáticas: la mayoría de los tipos | Mejorando las vías de acceso
> Facilitar el acceso equitativo a medicamentos/atención médica | We do not communicate with patients directly | International | Rarely | 119025711207 |
| … The Hellenic League Against Rheumatism (ELEANA) contributes patient perspectives on access to treatments, reimbursement, unmet needs, and quality of life in autoimmune rheumatic diseases, both at national level (Greece) and at EU level. | Reumático
> Enfermedades reumáticas: la mayoría de los tipos | Aportaciones del paciente basadas en evidencia
> Usa los conocimientos del paciente para tomar decisiones | 100,000 | National | Regularly | 119025688550 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Reumático
> Enfermedades reumáticas: la mayoría de los tipos | Aportaciones del paciente basadas en evidencia
> Usa los conocimientos del paciente para tomar decisiones | We do not communicate with patients directly | International | Rarely | 119025711207 |
| Patient interests only [to drug regulatory authorities]. | Inmune
> Inmunodeficiencias primarias | Aportaciones del paciente basadas en evidencia
> Aproveche las historias de pacientes y narrativas de experiencias vividas | 100 | Regional | Sometimes | 115055418373 |
| Advocacy for access to medicines, diagnostic tests, and related services. | Raro
> Síndrome de Von Hippel-Lindau | Diagnóstico y entrega de medicamentos
> Apoyo al tamizaje y detección temprana | 100 | National | Regularly | 115006788497 |
| Participation in Ministry committees addressing chronic disease patients, medicinal products, patient rights. | No especificado
> No especificado | Gobernanza institucional
> Garantizar la representación en los organismos asesores gubernamentales | 1,000 | National | Rarely | 115060548215 |
| As a member of secondary and tertiary federations representing persons with disabilities and persons with Multiple Sclerosis, and through direct engagement with public authorities, we advocate on behalf of our members by submitting requests for access to therapeutic treatments and therapies, as well as for the protection of their rights vis-à-vis the state. | Neurológico
> Esclerosis múltiple | Defender los derechos del paciente/mejorar la calidad de vida
> Proteger/mejorar la experiencia del paciente | 1,000 | Regional | Regularly | 115007075579 |
| As a member of secondary and tertiary federations representing persons with disabilities and persons with multiple sclerosis, and through direct engagement with public authorities, we advocate on behalf of our members by submitting requests for access to therapeutic treatments and therapies, as well as for the protection of their rights vis-à-vis the state. | Neurológico
> Esclerosis múltiple | Defender los derechos del paciente/mejorar la calidad de vida
> Proteger/mejorar la experiencia del paciente | 1,000 | Regional | Regularly | 115007075579 |
| Issues relating to employment, accessibility, health inequalities, and the management of treatment options. | Cáncer
> Cáncer: la mayoría de los tipos | Defender los derechos del paciente/mejorar la calidad de vida
> Proteger/mejorar la experiencia del paciente | 1,000 | National | Regularly | 115058727551 |
| Advocating for quality of care and quality of life for patients. | Cáncer
> Cáncer: mama | Defender los derechos del paciente/mejorar la calidad de vida
> Promoviendo un énfasis en la calidad de vida | 5,000 | National | Regularly | 115019649379 |
| Advocating for quality of care and quality of life for patients. | Cáncer
> Cáncer: mama | Defender los derechos del paciente/mejorar la calidad de vida
> Promoviendo un énfasis en la calidad de vida | 5,000 | National | Regularly | 115019649379 |
| Issues relating to employment, accessibility, health inequalities, and the management of treatment options. | Cáncer
> Cáncer: la mayoría de los tipos | Defender los derechos del paciente/mejorar la calidad de vida
> Promoviendo un énfasis en la calidad de vida | 1,000 | National | Regularly | 115058727551 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Reumático
> Enfermedades reumáticas: la mayoría de los tipos | Defender los derechos del paciente/mejorar la calidad de vida
> Promoviendo un énfasis en la calidad de vida | We do not communicate with patients directly | International | Rarely | 119025711207 |
interacciones
acciones y defensa
8 menciones
