| Written submissions and meetings with stakeholder organisations. | Krebs
> Krebs: die meisten Arten | Regulatorische Partnerschaft
> Zusammenarbeit mit Regulierungsbehörden | We do not communicate with patients directly | National | Regularly | 115055433125 |
| The Hellenic League Against Rheumatism (ELEANA) regularly represents patient interests to national and European regulators through formal consultations, written submissions, participation in policy dialogues, and involvement in European patient advocacy platforms (e.g., EULAR [European Alliance of Associations for Rheumatology] PARE [People with Arthritis/Rheumatism in Europe], EPF [European Patients' Forum], GAfPA [Global Alliance for Patient Access]). | Rheumatisch
> Rheumatische Erkrankungen: die meisten Arten | Regulatorische Partnerschaft
> Teilnahme an/Durchführung von Treffen mit politischen Entscheidungsträgern/Regulierungsbehörden | 100.000 | National | Regularly | 119025688550 |
| As a member of secondary and tertiary federations representing persons with disabilities and persons with multiple sclerosis, and through our direct engagement with the state, we advocate on behalf of our members. | Neurologisch
> Multiple Sklerose | Regulatorische Partnerschaft
> Mit anderen Gesundheitsfürsprechern | 1.000 | Regional | Regularly | 115007075579 |
| Submits proposals to the collective "umbrella" body. | Selten
> Seltene Krankheiten: die meisten Typen | Regulatorische Partnerschaft
> Mit anderen Gesundheitsfürsprechern | 1.000 | National | Sometimes | 115019806061 |
| Through written submissions to the Ministry, engagement with local Members of Parliament, direct interpersonal contacts, and the Patient Association of Greece. | Neurodegenerativ
> Alzheimer | Regulatorische Partnerschaft
> Mit anderen Gesundheitsfürsprechern | 1.000 | Regional | Regularly | 115049818475 |
| Through ΕΛΟΔΙ [Ελληνική Ομοσπονδία για τον Διαβήτη - Hellenic Federation for Diabetes]. | Endokrin
> Diabetes (Typ 1 und Typ 2) | Regulatorische Partnerschaft
> Mit anderen Gesundheitsfürsprechern | 100 | Regional | Sometimes | 115060878962 |
| The Hellenic League Against Rheumatism (ELEANA) regularly represents patient interests to national and European regulators through formal consultations, written submissions, participation in policy dialogues, and involvement in European patient advocacy platforms (e.g., EULAR [European Alliance of Associations for Rheumatology] PARE [People with Arthritis/Rheumatism in Europe], EPF [European Patients' Forum], GAfPA [Global Alliance for Patient Access]). | Rheumatisch
> Rheumatische Erkrankungen: die meisten Arten | Regulatorische Partnerschaft
> Mit anderen Gesundheitsfürsprechern | 100.000 | National | Regularly | 119025688550 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Rheumatisch
> Rheumatische Erkrankungen: die meisten Arten | Regulatorische Partnerschaft
> Mit anderen Gesundheitsfürsprechern | We do not communicate with patients directly | International | Rarely | 119025711207 |
| Advocacy for patient pharmacotherapy at the Ministry of Health. | Knochen
> Osteoporose | Einfluss auf Politik und Gesetzgebung
> Gesundheitspolitik und Gesetzgebung beeinflussen | 10.000 | National | Sometimes | 114996725641 |
| National Strategic Plan for CVD [Cardiovascular Disease]. | Kardiovaskulär
> Herz-Kreislauf: die meisten Typen | Einfluss auf Politik und Gesetzgebung
> Gesundheitspolitik und Gesetzgebung beeinflussen | 1.000 | National | Rarely | 115006858228 |
| As a member of secondary and tertiary federations representing persons with disabilities and persons with Multiple Sclerosis, and through direct engagement with public authorities, we advocate on behalf of our members by submitting requests for access to therapeutic treatments and therapies, as well as for the protection of their rights vis-à-vis the state. | Neurologisch
> Multiple Sklerose | Einfluss auf Politik und Gesetzgebung
> Gesundheitspolitik und Gesetzgebung beeinflussen | 1.000 | Regional | Regularly | 115007075579 |
| We engage in lobbying activities to advance and protect the interests of patients. | Pflegepersonen
> Pflegepersonen, Familie, Freunde | Einfluss auf Politik und Gesetzgebung
> Gesundheitspolitik und Gesetzgebung beeinflussen | 100 | National | Rarely | 115047040745 |
| Where consultation processes are available on the relevant websites, we submit our positions, and we also direct formal requests to the Ministries of Health and Labour [in Greece]. | Neurologisch
> Multiple Sklerose | Einfluss auf Politik und Gesetzgebung
> Gesundheitspolitik und Gesetzgebung beeinflussen | 1.000 | Regional | Rarely | 115049438439 |
| Through written submissions to the Ministry, engagement with local Members of Parliament, direct interpersonal contacts, and the Patient Association of Greece. | Neurodegenerativ
> Alzheimer | Einfluss auf Politik und Gesetzgebung
> Gesundheitspolitik und Gesetzgebung beeinflussen | 1.000 | Regional | Regularly | 115049818475 |
| Wherever public consultations are hosted on the relevant websites, we submit our views. | Neurologisch
> Multiple Sklerose | Einfluss auf Politik und Gesetzgebung
> An öffentlichen Anhörungen und Konsultationen teilnehmen | 1.000 | Regional | Rarely | 115049438439 |
| Where consultation processes are available on the relevant websites, we submit our positions, and we also direct formal requests to the Ministries of Health and Labour [in Greece]. | Neurologisch
> Multiple Sklerose | Einfluss auf Politik und Gesetzgebung
> An öffentlichen Anhörungen und Konsultationen teilnehmen | 1.000 | Regional | Rarely | 115049438439 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Rheumatisch
> Rheumatische Erkrankungen: die meisten Arten | Einfluss auf Politik und Gesetzgebung
> An öffentlichen Anhörungen und Konsultationen teilnehmen | We do not communicate with patients directly | International | Rarely | 119025711207 |
| Through written submissions to the Ministry, engagement with local Members of Parliament, direct interpersonal contacts, and the Patient Association of Greece. | Neurodegenerativ
> Alzheimer | Einfluss auf Politik und Gesetzgebung
> Parlamentarier und politische Führungspersönlichkeiten mobilisieren | 1.000 | Regional | Regularly | 115049818475 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Rheumatisch
> Rheumatische Erkrankungen: die meisten Arten | Preisgestaltung und Erschwinglichkeitsförderung
> Für faire Medikamentenpreise eintreten | We do not communicate with patients directly | International | Rarely | 119025711207 |
| Advocacy for patient pharmacotherapy at the Ministry of Health. | Knochen
> Osteoporose | Verbesserung der Zugangswege
> Gleichberechtigten Zugang zu Medikamenten/Gesundheitsversorgung fördern | 10.000 | National | Sometimes | 114996725641 |
| Advocacy for access to medicines, diagnostic tests, and related services. | Selten
> Von-Hippel-Lindau-Syndrom | Verbesserung der Zugangswege
> Gleichberechtigten Zugang zu Medikamenten/Gesundheitsversorgung fördern | 100 | National | Regularly | 115006788497 |
| Advocacy for access to medicines, diagnostic tests, and related services. | Selten
> Von-Hippel-Lindau-Syndrom | Verbesserung der Zugangswege
> Gleichberechtigten Zugang zu Medikamenten/Gesundheitsversorgung fördern | 100 | National | Regularly | 115006788497 |
| As a member of secondary and tertiary federations representing persons with disabilities and persons with multiple sclerosis, and through direct engagement with public authorities, we advocate on behalf of our members by submitting requests for access to therapeutic treatments and therapies, as well as for the protection of their rights vis-à-vis the state. | Neurologisch
> Multiple Sklerose | Verbesserung der Zugangswege
> Gleichberechtigten Zugang zu Medikamenten/Gesundheitsversorgung fördern | 1.000 | Regional | Regularly | 115007075579 |
| Issues relating to employment, accessibility, health inequalities, and the management of treatment options. | Krebs
> Krebs: die meisten Arten | Verbesserung der Zugangswege
> Gleichberechtigten Zugang zu Medikamenten/Gesundheitsversorgung fördern | 1.000 | National | Regularly | 115058727551 |
| … The Hellenic League Against Rheumatism (ELEANA) contributes patient perspectives on access to treatments, reimbursement, unmet needs, and quality of life in autoimmune rheumatic diseases, both at national level (Greece) and at EU level. | Rheumatisch
> Rheumatische Erkrankungen: die meisten Arten | Verbesserung der Zugangswege
> Gleichberechtigten Zugang zu Medikamenten/Gesundheitsversorgung fördern | 100.000 | National | Regularly | 119025688550 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Rheumatisch
> Rheumatische Erkrankungen: die meisten Arten | Verbesserung der Zugangswege
> Gleichberechtigten Zugang zu Medikamenten/Gesundheitsversorgung fördern | We do not communicate with patients directly | International | Rarely | 119025711207 |
| … The Hellenic League Against Rheumatism (ELEANA) contributes patient perspectives on access to treatments, reimbursement, unmet needs, and quality of life in autoimmune rheumatic diseases, both at national level (Greece) and at EU level. | Rheumatisch
> Rheumatische Erkrankungen: die meisten Arten | Evidenzbasierter Patientenbeitrag
> Nutzen Sie Patienteneinblicke, um Entscheidungen zu treffen | 100.000 | National | Regularly | 119025688550 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Rheumatisch
> Rheumatische Erkrankungen: die meisten Arten | Evidenzbasierter Patientenbeitrag
> Nutzen Sie Patienteneinblicke, um Entscheidungen zu treffen | We do not communicate with patients directly | International | Rarely | 119025711207 |
| Patient interests only [to drug regulatory authorities]. | Immun
> Primäre Immundefekte | Evidenzbasierter Patientenbeitrag
> Nutzen Sie Patientengeschichten und Erfahrungsberichte aus erster Hand | 100 | Regional | Sometimes | 115055418373 |
| Advocacy for access to medicines, diagnostic tests, and related services. | Selten
> Von-Hippel-Lindau-Syndrom | Diagnose und Medikamentenlieferung
> Screening und Früherkennung unterstützen | 100 | National | Regularly | 115006788497 |
| Participation in Ministry committees addressing chronic disease patients, medicinal products, patient rights. | Nicht angegeben
> Nicht angegeben | Institutionelle Governance
> Sicherstellen der Vertretung in staatlichen Beratungsgremien | 1.000 | National | Rarely | 115060548215 |
| As a member of secondary and tertiary federations representing persons with disabilities and persons with Multiple Sclerosis, and through direct engagement with public authorities, we advocate on behalf of our members by submitting requests for access to therapeutic treatments and therapies, as well as for the protection of their rights vis-à-vis the state. | Neurologisch
> Multiple Sklerose | Patientenrechte wahren/Lebensqualität verbessern
> Schutz/Verbesserung der Patientenerfahrung | 1.000 | Regional | Regularly | 115007075579 |
| As a member of secondary and tertiary federations representing persons with disabilities and persons with multiple sclerosis, and through direct engagement with public authorities, we advocate on behalf of our members by submitting requests for access to therapeutic treatments and therapies, as well as for the protection of their rights vis-à-vis the state. | Neurologisch
> Multiple Sklerose | Patientenrechte wahren/Lebensqualität verbessern
> Schutz/Verbesserung der Patientenerfahrung | 1.000 | Regional | Regularly | 115007075579 |
| Issues relating to employment, accessibility, health inequalities, and the management of treatment options. | Krebs
> Krebs: die meisten Arten | Patientenrechte wahren/Lebensqualität verbessern
> Schutz/Verbesserung der Patientenerfahrung | 1.000 | National | Regularly | 115058727551 |
| Advocating for quality of care and quality of life for patients. | Krebs
> Krebs: Brust | Patientenrechte wahren/Lebensqualität verbessern
> Betonung der Lebensqualität fördern | 5.000 | National | Regularly | 115019649379 |
| Advocating for quality of care and quality of life for patients. | Krebs
> Krebs: Brust | Patientenrechte wahren/Lebensqualität verbessern
> Betonung der Lebensqualität fördern | 5.000 | National | Regularly | 115019649379 |
| Issues relating to employment, accessibility, health inequalities, and the management of treatment options. | Krebs
> Krebs: die meisten Arten | Patientenrechte wahren/Lebensqualität verbessern
> Betonung der Lebensqualität fördern | 1.000 | National | Regularly | 115058727551 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Rheumatisch
> Rheumatische Erkrankungen: die meisten Arten | Patientenrechte wahren/Lebensqualität verbessern
> Betonung der Lebensqualität fördern | We do not communicate with patients directly | International | Rarely | 119025711207 |
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