| Written submissions and meetings with stakeholder organisations. | Cancer
> Cancer : la plupart des types | Partenariat réglementaire
> Travailler avec les organismes de réglementation | We do not communicate with patients directly | National | Regularly | 115055433125 |
| The Hellenic League Against Rheumatism (ELEANA) regularly represents patient interests to national and European regulators through formal consultations, written submissions, participation in policy dialogues, and involvement in European patient advocacy platforms (e.g., EULAR [European Alliance of Associations for Rheumatology] PARE [People with Arthritis/Rheumatism in Europe], EPF [European Patients' Forum], GAfPA [Global Alliance for Patient Access]). | Rhumatismal
> Maladies rhumatismales : la plupart des types | Partenariat réglementaire
> Assister/faciliter des réunions avec des décideurs politiques/régulateurs | 100 000 | National | Regularly | 119025688550 |
| As a member of secondary and tertiary federations representing persons with disabilities and persons with multiple sclerosis, and through our direct engagement with the state, we advocate on behalf of our members. | Neurologique
> Sclérose en plaques | Partenariat réglementaire
> Avec d'autres défenseurs des soins de santé | 1 000 | Regional | Regularly | 115007075579 |
| Submits proposals to the collective "umbrella" body. | Rare
> Maladies rares : la plupart des types | Partenariat réglementaire
> Avec d'autres défenseurs des soins de santé | 1 000 | National | Sometimes | 115019806061 |
| Through written submissions to the Ministry, engagement with local Members of Parliament, direct interpersonal contacts, and the Patient Association of Greece. | Neurodégénératif
> Alzheimer | Partenariat réglementaire
> Avec d'autres défenseurs des soins de santé | 1 000 | Regional | Regularly | 115049818475 |
| Through ΕΛΟΔΙ [Ελληνική Ομοσπονδία για τον Διαβήτη - Hellenic Federation for Diabetes]. | Endocrinien
> Diabète (types 1 et 2) | Partenariat réglementaire
> Avec d'autres défenseurs des soins de santé | 100 | Regional | Sometimes | 115060878962 |
| The Hellenic League Against Rheumatism (ELEANA) regularly represents patient interests to national and European regulators through formal consultations, written submissions, participation in policy dialogues, and involvement in European patient advocacy platforms (e.g., EULAR [European Alliance of Associations for Rheumatology] PARE [People with Arthritis/Rheumatism in Europe], EPF [European Patients' Forum], GAfPA [Global Alliance for Patient Access]). | Rhumatismal
> Maladies rhumatismales : la plupart des types | Partenariat réglementaire
> Avec d'autres défenseurs des soins de santé | 100 000 | National | Regularly | 119025688550 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Rhumatismal
> Maladies rhumatismales : la plupart des types | Partenariat réglementaire
> Avec d'autres défenseurs des soins de santé | We do not communicate with patients directly | International | Rarely | 119025711207 |
| Advocacy for patient pharmacotherapy at the Ministry of Health. | Os
> Ostéoporose | Influencer les politiques et la législation
> Influencer les politiques et la législation en matière de santé | 10 000 | National | Sometimes | 114996725641 |
| National Strategic Plan for CVD [Cardiovascular Disease]. | Cardiovasculaire
> Cardiovasculaire : la plupart des types | Influencer les politiques et la législation
> Influencer les politiques et la législation en matière de santé | 1 000 | National | Rarely | 115006858228 |
| As a member of secondary and tertiary federations representing persons with disabilities and persons with Multiple Sclerosis, and through direct engagement with public authorities, we advocate on behalf of our members by submitting requests for access to therapeutic treatments and therapies, as well as for the protection of their rights vis-à-vis the state. | Neurologique
> Sclérose en plaques | Influencer les politiques et la législation
> Influencer les politiques et la législation en matière de santé | 1 000 | Regional | Regularly | 115007075579 |
| We engage in lobbying activities to advance and protect the interests of patients. | Aidants
> Aidants, famille, amis | Influencer les politiques et la législation
> Influencer les politiques et la législation en matière de santé | 100 | National | Rarely | 115047040745 |
| Where consultation processes are available on the relevant websites, we submit our positions, and we also direct formal requests to the Ministries of Health and Labour [in Greece]. | Neurologique
> Sclérose en plaques | Influencer les politiques et la législation
> Influencer les politiques et la législation en matière de santé | 1 000 | Regional | Rarely | 115049438439 |
| Through written submissions to the Ministry, engagement with local Members of Parliament, direct interpersonal contacts, and the Patient Association of Greece. | Neurodégénératif
> Alzheimer | Influencer les politiques et la législation
> Influencer les politiques et la législation en matière de santé | 1 000 | Regional | Regularly | 115049818475 |
| Wherever public consultations are hosted on the relevant websites, we submit our views. | Neurologique
> Sclérose en plaques | Influencer les politiques et la législation
> Participer aux audiences publiques et aux consultations | 1 000 | Regional | Rarely | 115049438439 |
| Where consultation processes are available on the relevant websites, we submit our positions, and we also direct formal requests to the Ministries of Health and Labour [in Greece]. | Neurologique
> Sclérose en plaques | Influencer les politiques et la législation
> Participer aux audiences publiques et aux consultations | 1 000 | Regional | Rarely | 115049438439 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Rhumatismal
> Maladies rhumatismales : la plupart des types | Influencer les politiques et la législation
> Participer aux audiences publiques et aux consultations | We do not communicate with patients directly | International | Rarely | 119025711207 |
| Through written submissions to the Ministry, engagement with local Members of Parliament, direct interpersonal contacts, and the Patient Association of Greece. | Neurodégénératif
> Alzheimer | Influencer les politiques et la législation
> Mobiliser les parlementaires et les dirigeants politiques | 1 000 | Regional | Regularly | 115049818475 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Rhumatismal
> Maladies rhumatismales : la plupart des types | Plaidoyer pour la tarification et l'accessibilité financière
> Plaider pour une tarification équitable des médicaments | We do not communicate with patients directly | International | Rarely | 119025711207 |
| Advocacy for patient pharmacotherapy at the Ministry of Health. | Os
> Ostéoporose | Amélioration des voies d'accès
> Faciliter l'accès équitable aux médicaments/soins de santé | 10 000 | National | Sometimes | 114996725641 |
| Advocacy for access to medicines, diagnostic tests, and related services. | Rare
> Syndrome de Von Hippel-Lindau | Amélioration des voies d'accès
> Faciliter l'accès équitable aux médicaments/soins de santé | 100 | National | Regularly | 115006788497 |
| Advocacy for access to medicines, diagnostic tests, and related services. | Rare
> Syndrome de Von Hippel-Lindau | Amélioration des voies d'accès
> Faciliter l'accès équitable aux médicaments/soins de santé | 100 | National | Regularly | 115006788497 |
| As a member of secondary and tertiary federations representing persons with disabilities and persons with multiple sclerosis, and through direct engagement with public authorities, we advocate on behalf of our members by submitting requests for access to therapeutic treatments and therapies, as well as for the protection of their rights vis-à-vis the state. | Neurologique
> Sclérose en plaques | Amélioration des voies d'accès
> Faciliter l'accès équitable aux médicaments/soins de santé | 1 000 | Regional | Regularly | 115007075579 |
| Issues relating to employment, accessibility, health inequalities, and the management of treatment options. | Cancer
> Cancer : la plupart des types | Amélioration des voies d'accès
> Faciliter l'accès équitable aux médicaments/soins de santé | 1 000 | National | Regularly | 115058727551 |
| … The Hellenic League Against Rheumatism (ELEANA) contributes patient perspectives on access to treatments, reimbursement, unmet needs, and quality of life in autoimmune rheumatic diseases, both at national level (Greece) and at EU level. | Rhumatismal
> Maladies rhumatismales : la plupart des types | Amélioration des voies d'accès
> Faciliter l'accès équitable aux médicaments/soins de santé | 100 000 | National | Regularly | 119025688550 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Rhumatismal
> Maladies rhumatismales : la plupart des types | Amélioration des voies d'accès
> Faciliter l'accès équitable aux médicaments/soins de santé | We do not communicate with patients directly | International | Rarely | 119025711207 |
| … The Hellenic League Against Rheumatism (ELEANA) contributes patient perspectives on access to treatments, reimbursement, unmet needs, and quality of life in autoimmune rheumatic diseases, both at national level (Greece) and at EU level. | Rhumatismal
> Maladies rhumatismales : la plupart des types | Contribution des patients fondée sur des données probantes
> Utilisez les informations sur les patients pour éclairer les décisions | 100 000 | National | Regularly | 119025688550 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Rhumatismal
> Maladies rhumatismales : la plupart des types | Contribution des patients fondée sur des données probantes
> Utilisez les informations sur les patients pour éclairer les décisions | We do not communicate with patients directly | International | Rarely | 119025711207 |
| Patient interests only [to drug regulatory authorities]. | Immunisé
> Déficits immunitaires primaires | Contribution des patients fondée sur des données probantes
> Exploiter les témoignages de patients et les récits d'expériences vécues | 100 | Regional | Sometimes | 115055418373 |
| Advocacy for access to medicines, diagnostic tests, and related services. | Rare
> Syndrome de Von Hippel-Lindau | Diagnostic et livraison de médicaments
> Soutenir le dépistage et la détection précoce | 100 | National | Regularly | 115006788497 |
| Participation in Ministry committees addressing chronic disease patients, medicinal products, patient rights. | Non spécifié
> Non spécifié | Gouvernance institutionnelle
> Assurer la représentation au sein des organes consultatifs gouvernementaux | 1 000 | National | Rarely | 115060548215 |
| As a member of secondary and tertiary federations representing persons with disabilities and persons with Multiple Sclerosis, and through direct engagement with public authorities, we advocate on behalf of our members by submitting requests for access to therapeutic treatments and therapies, as well as for the protection of their rights vis-à-vis the state. | Neurologique
> Sclérose en plaques | Défense des droits des patients/amélioration de la qualité de vie
> Protéger/améliorer l'expérience du patient | 1 000 | Regional | Regularly | 115007075579 |
| As a member of secondary and tertiary federations representing persons with disabilities and persons with multiple sclerosis, and through direct engagement with public authorities, we advocate on behalf of our members by submitting requests for access to therapeutic treatments and therapies, as well as for the protection of their rights vis-à-vis the state. | Neurologique
> Sclérose en plaques | Défense des droits des patients/amélioration de la qualité de vie
> Protéger/améliorer l'expérience du patient | 1 000 | Regional | Regularly | 115007075579 |
| Issues relating to employment, accessibility, health inequalities, and the management of treatment options. | Cancer
> Cancer : la plupart des types | Défense des droits des patients/amélioration de la qualité de vie
> Protéger/améliorer l'expérience du patient | 1 000 | National | Regularly | 115058727551 |
| Advocating for quality of care and quality of life for patients. | Cancer
> Cancer : sein | Défense des droits des patients/amélioration de la qualité de vie
> Promouvoir l'accent mis sur la qualité de vie | 5 000 | National | Regularly | 115019649379 |
| Advocating for quality of care and quality of life for patients. | Cancer
> Cancer : sein | Défense des droits des patients/amélioration de la qualité de vie
> Promouvoir l'accent mis sur la qualité de vie | 5 000 | National | Regularly | 115019649379 |
| Issues relating to employment, accessibility, health inequalities, and the management of treatment options. | Cancer
> Cancer : la plupart des types | Défense des droits des patients/amélioration de la qualité de vie
> Promouvoir l'accent mis sur la qualité de vie | 1 000 | National | Regularly | 115058727551 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Rhumatismal
> Maladies rhumatismales : la plupart des types | Défense des droits des patients/amélioration de la qualité de vie
> Promouvoir l'accent mis sur la qualité de vie | We do not communicate with patients directly | International | Rarely | 119025711207 |
interactions
actions et plaidoyer
8 mentions
