| Written submissions and meetings with stakeholder organisations. | Kreft
> Kreft: de fleste typer | Regulatorisk partnerskap
> Samarbeid med regulatoriske myndigheter | We do not communicate with patients directly | National | Regularly | 115055433125 |
| The Hellenic League Against Rheumatism (ELEANA) regularly represents patient interests to national and European regulators through formal consultations, written submissions, participation in policy dialogues, and involvement in European patient advocacy platforms (e.g., EULAR [European Alliance of Associations for Rheumatology] PARE [People with Arthritis/Rheumatism in Europe], EPF [European Patients' Forum], GAfPA [Global Alliance for Patient Access]). | Reumatisk
> Revmatiske sykdommer: de fleste typer | Regulatorisk partnerskap
> Delta/fasilitere møter med beslutningstakere/regulatorer | 100 000 | National | Regularly | 119025688550 |
| As a member of secondary and tertiary federations representing persons with disabilities and persons with multiple sclerosis, and through our direct engagement with the state, we advocate on behalf of our members. | Nevrologisk
> Multippel sklerose | Regulatorisk partnerskap
> Med andre helseadvokater | 1 000 | Regional | Regularly | 115007075579 |
| Submits proposals to the collective "umbrella" body. | Sjelden
> Sjeldne sykdommer: de fleste typer | Regulatorisk partnerskap
> Med andre helseadvokater | 1 000 | National | Sometimes | 115019806061 |
| Through written submissions to the Ministry, engagement with local Members of Parliament, direct interpersonal contacts, and the Patient Association of Greece. | Nevrodegenerativ
> Alzheimers | Regulatorisk partnerskap
> Med andre helseadvokater | 1 000 | Regional | Regularly | 115049818475 |
| Through ΕΛΟΔΙ [Ελληνική Ομοσπονδία για τον Διαβήτη - Hellenic Federation for Diabetes]. | Endokrin
> Diabetes (både type 1 og type 2) | Regulatorisk partnerskap
> Med andre helseadvokater | 100 | Regional | Sometimes | 115060878962 |
| The Hellenic League Against Rheumatism (ELEANA) regularly represents patient interests to national and European regulators through formal consultations, written submissions, participation in policy dialogues, and involvement in European patient advocacy platforms (e.g., EULAR [European Alliance of Associations for Rheumatology] PARE [People with Arthritis/Rheumatism in Europe], EPF [European Patients' Forum], GAfPA [Global Alliance for Patient Access]). | Reumatisk
> Revmatiske sykdommer: de fleste typer | Regulatorisk partnerskap
> Med andre helseadvokater | 100 000 | National | Regularly | 119025688550 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Reumatisk
> Revmatiske sykdommer: de fleste typer | Regulatorisk partnerskap
> Med andre helseadvokater | We do not communicate with patients directly | International | Rarely | 119025711207 |
| Advocacy for patient pharmacotherapy at the Ministry of Health. | Bein
> Osteoporose | Påvirkning av politikk og lovgivning
> Påvirk helsepolitikk og lovgivning | 10 000 | National | Sometimes | 114996725641 |
| National Strategic Plan for CVD [Cardiovascular Disease]. | Kardiovaskulær
> Kardiovaskulær: de fleste typer | Påvirkning av politikk og lovgivning
> Påvirk helsepolitikk og lovgivning | 1 000 | National | Rarely | 115006858228 |
| As a member of secondary and tertiary federations representing persons with disabilities and persons with Multiple Sclerosis, and through direct engagement with public authorities, we advocate on behalf of our members by submitting requests for access to therapeutic treatments and therapies, as well as for the protection of their rights vis-à-vis the state. | Nevrologisk
> Multippel sklerose | Påvirkning av politikk og lovgivning
> Påvirk helsepolitikk og lovgivning | 1 000 | Regional | Regularly | 115007075579 |
| We engage in lobbying activities to advance and protect the interests of patients. | Omsorgspersoner
> Omsorgspersoner, familie, venner | Påvirkning av politikk og lovgivning
> Påvirk helsepolitikk og lovgivning | 100 | National | Rarely | 115047040745 |
| Where consultation processes are available on the relevant websites, we submit our positions, and we also direct formal requests to the Ministries of Health and Labour [in Greece]. | Nevrologisk
> Multippel sklerose | Påvirkning av politikk og lovgivning
> Påvirk helsepolitikk og lovgivning | 1 000 | Regional | Rarely | 115049438439 |
| Through written submissions to the Ministry, engagement with local Members of Parliament, direct interpersonal contacts, and the Patient Association of Greece. | Nevrodegenerativ
> Alzheimers | Påvirkning av politikk og lovgivning
> Påvirk helsepolitikk og lovgivning | 1 000 | Regional | Regularly | 115049818475 |
| Wherever public consultations are hosted on the relevant websites, we submit our views. | Nevrologisk
> Multippel sklerose | Påvirkning av politikk og lovgivning
> Delta i offentlige høringer og konsultasjoner | 1 000 | Regional | Rarely | 115049438439 |
| Where consultation processes are available on the relevant websites, we submit our positions, and we also direct formal requests to the Ministries of Health and Labour [in Greece]. | Nevrologisk
> Multippel sklerose | Påvirkning av politikk og lovgivning
> Delta i offentlige høringer og konsultasjoner | 1 000 | Regional | Rarely | 115049438439 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Reumatisk
> Revmatiske sykdommer: de fleste typer | Påvirkning av politikk og lovgivning
> Delta i offentlige høringer og konsultasjoner | We do not communicate with patients directly | International | Rarely | 119025711207 |
| Through written submissions to the Ministry, engagement with local Members of Parliament, direct interpersonal contacts, and the Patient Association of Greece. | Nevrodegenerativ
> Alzheimers | Påvirkning av politikk og lovgivning
> Mobiliser parlamentarikere og politiske ledere | 1 000 | Regional | Regularly | 115049818475 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Reumatisk
> Revmatiske sykdommer: de fleste typer | Prising og tilgjengelighetsadvokatur
> Gå inn for rettferdig medisinprising | We do not communicate with patients directly | International | Rarely | 119025711207 |
| Advocacy for patient pharmacotherapy at the Ministry of Health. | Bein
> Osteoporose | Forbedrer tilgangsveier
> Legge til rette for rettferdig tilgang til medisiner/helsetjenester | 10 000 | National | Sometimes | 114996725641 |
| Advocacy for access to medicines, diagnostic tests, and related services. | Sjelden
> Von Hippel-Lindaus syndrom | Forbedrer tilgangsveier
> Legge til rette for rettferdig tilgang til medisiner/helsetjenester | 100 | National | Regularly | 115006788497 |
| Advocacy for access to medicines, diagnostic tests, and related services. | Sjelden
> Von Hippel-Lindaus syndrom | Forbedrer tilgangsveier
> Legge til rette for rettferdig tilgang til medisiner/helsetjenester | 100 | National | Regularly | 115006788497 |
| As a member of secondary and tertiary federations representing persons with disabilities and persons with multiple sclerosis, and through direct engagement with public authorities, we advocate on behalf of our members by submitting requests for access to therapeutic treatments and therapies, as well as for the protection of their rights vis-à-vis the state. | Nevrologisk
> Multippel sklerose | Forbedrer tilgangsveier
> Legge til rette for rettferdig tilgang til medisiner/helsetjenester | 1 000 | Regional | Regularly | 115007075579 |
| Issues relating to employment, accessibility, health inequalities, and the management of treatment options. | Kreft
> Kreft: de fleste typer | Forbedrer tilgangsveier
> Legge til rette for rettferdig tilgang til medisiner/helsetjenester | 1 000 | National | Regularly | 115058727551 |
| … The Hellenic League Against Rheumatism (ELEANA) contributes patient perspectives on access to treatments, reimbursement, unmet needs, and quality of life in autoimmune rheumatic diseases, both at national level (Greece) and at EU level. | Reumatisk
> Revmatiske sykdommer: de fleste typer | Forbedrer tilgangsveier
> Legge til rette for rettferdig tilgang til medisiner/helsetjenester | 100 000 | National | Regularly | 119025688550 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Reumatisk
> Revmatiske sykdommer: de fleste typer | Forbedrer tilgangsveier
> Legge til rette for rettferdig tilgang til medisiner/helsetjenester | We do not communicate with patients directly | International | Rarely | 119025711207 |
| … The Hellenic League Against Rheumatism (ELEANA) contributes patient perspectives on access to treatments, reimbursement, unmet needs, and quality of life in autoimmune rheumatic diseases, both at national level (Greece) and at EU level. | Reumatisk
> Revmatiske sykdommer: de fleste typer | Evidensbasert pasientinnspill
> Bruk pasientinnsikt til å informere beslutninger | 100 000 | National | Regularly | 119025688550 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Reumatisk
> Revmatiske sykdommer: de fleste typer | Evidensbasert pasientinnspill
> Bruk pasientinnsikt til å informere beslutninger | We do not communicate with patients directly | International | Rarely | 119025711207 |
| Patient interests only [to drug regulatory authorities]. | Immun
> Primære immundefekter | Evidensbasert pasientinnspill
> Bruk pasienthistorier og fortellinger fra levd erfaring | 100 | Regional | Sometimes | 115055418373 |
| Advocacy for access to medicines, diagnostic tests, and related services. | Sjelden
> Von Hippel-Lindaus syndrom | Diagnose og medisinlevering
> Støtte til screening og tidlig oppdagelse | 100 | National | Regularly | 115006788497 |
| Participation in Ministry committees addressing chronic disease patients, medicinal products, patient rights. | Ikke spesifisert
> Ikke spesifisert | Institusjonell styring
> Sikre representasjon i statlige rådgivende organer | 1 000 | National | Rarely | 115060548215 |
| As a member of secondary and tertiary federations representing persons with disabilities and persons with Multiple Sclerosis, and through direct engagement with public authorities, we advocate on behalf of our members by submitting requests for access to therapeutic treatments and therapies, as well as for the protection of their rights vis-à-vis the state. | Nevrologisk
> Multippel sklerose | Ivaretakelse av pasientrettigheter/forbedring av livskvalitet
> Beskytte/forbedre pasientopplevelsen | 1 000 | Regional | Regularly | 115007075579 |
| As a member of secondary and tertiary federations representing persons with disabilities and persons with multiple sclerosis, and through direct engagement with public authorities, we advocate on behalf of our members by submitting requests for access to therapeutic treatments and therapies, as well as for the protection of their rights vis-à-vis the state. | Nevrologisk
> Multippel sklerose | Ivaretakelse av pasientrettigheter/forbedring av livskvalitet
> Beskytte/forbedre pasientopplevelsen | 1 000 | Regional | Regularly | 115007075579 |
| Issues relating to employment, accessibility, health inequalities, and the management of treatment options. | Kreft
> Kreft: de fleste typer | Ivaretakelse av pasientrettigheter/forbedring av livskvalitet
> Beskytte/forbedre pasientopplevelsen | 1 000 | National | Regularly | 115058727551 |
| Advocating for quality of care and quality of life for patients. | Kreft
> Kreft: bryst | Ivaretakelse av pasientrettigheter/forbedring av livskvalitet
> Fremme av vekt på livskvalitet | 5 000 | National | Regularly | 115019649379 |
| Advocating for quality of care and quality of life for patients. | Kreft
> Kreft: bryst | Ivaretakelse av pasientrettigheter/forbedring av livskvalitet
> Fremme av vekt på livskvalitet | 5 000 | National | Regularly | 115019649379 |
| Issues relating to employment, accessibility, health inequalities, and the management of treatment options. | Kreft
> Kreft: de fleste typer | Ivaretakelse av pasientrettigheter/forbedring av livskvalitet
> Fremme av vekt på livskvalitet | 1 000 | National | Regularly | 115058727551 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Reumatisk
> Revmatiske sykdommer: de fleste typer | Ivaretakelse av pasientrettigheter/forbedring av livskvalitet
> Fremme av vekt på livskvalitet | We do not communicate with patients directly | International | Rarely | 119025711207 |
interaksjoner
handlinger & påvirkning
8 omtaler
