| Written submissions and meetings with stakeholder organisations. | Câncer
> Câncer: a maioria dos tipos | Parceria regulatória
> Trabalhando com órgãos reguladores | We do not communicate with patients directly | National | Regularly | 115055433125 |
| The Hellenic League Against Rheumatism (ELEANA) regularly represents patient interests to national and European regulators through formal consultations, written submissions, participation in policy dialogues, and involvement in European patient advocacy platforms (e.g., EULAR [European Alliance of Associations for Rheumatology] PARE [People with Arthritis/Rheumatism in Europe], EPF [European Patients' Forum], GAfPA [Global Alliance for Patient Access]). | Reumático
> Doenças reumáticas: maioria dos tipos | Parceria regulatória
> Participar/facilitar reuniões com formuladores de políticas/reguladores | 100.000 | National | Regularly | 119025688550 |
| As a member of secondary and tertiary federations representing persons with disabilities and persons with multiple sclerosis, and through our direct engagement with the state, we advocate on behalf of our members. | Neurológico
> Esclerose múltipla | Parceria regulatória
> Com outros defensores da saúde | 1.000 | Regional | Regularly | 115007075579 |
| Submits proposals to the collective "umbrella" body. | Raro
> Doenças raras: maioria dos tipos | Parceria regulatória
> Com outros defensores da saúde | 1.000 | National | Sometimes | 115019806061 |
| Through written submissions to the Ministry, engagement with local Members of Parliament, direct interpersonal contacts, and the Patient Association of Greece. | Neurodegenerativa
> Alzheimer's | Parceria regulatória
> Com outros defensores da saúde | 1.000 | Regional | Regularly | 115049818475 |
| Through ΕΛΟΔΙ [Ελληνική Ομοσπονδία για τον Διαβήτη - Hellenic Federation for Diabetes]. | Endócrino
> Diabetes (tipos 1 e 2) | Parceria regulatória
> Com outros defensores da saúde | 100 | Regional | Sometimes | 115060878962 |
| The Hellenic League Against Rheumatism (ELEANA) regularly represents patient interests to national and European regulators through formal consultations, written submissions, participation in policy dialogues, and involvement in European patient advocacy platforms (e.g., EULAR [European Alliance of Associations for Rheumatology] PARE [People with Arthritis/Rheumatism in Europe], EPF [European Patients' Forum], GAfPA [Global Alliance for Patient Access]). | Reumático
> Doenças reumáticas: maioria dos tipos | Parceria regulatória
> Com outros defensores da saúde | 100.000 | National | Regularly | 119025688550 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Reumático
> Doenças reumáticas: maioria dos tipos | Parceria regulatória
> Com outros defensores da saúde | We do not communicate with patients directly | International | Rarely | 119025711207 |
| Advocacy for patient pharmacotherapy at the Ministry of Health. | Osso
> Osteoporose | Impactando políticas e legislação
> Influenciar políticas e legislações de saúde | 10.000 | National | Sometimes | 114996725641 |
| National Strategic Plan for CVD [Cardiovascular Disease]. | Cardiovascular
> Cardiovascular: maioria dos tipos | Impactando políticas e legislação
> Influenciar políticas e legislações de saúde | 1.000 | National | Rarely | 115006858228 |
| As a member of secondary and tertiary federations representing persons with disabilities and persons with Multiple Sclerosis, and through direct engagement with public authorities, we advocate on behalf of our members by submitting requests for access to therapeutic treatments and therapies, as well as for the protection of their rights vis-à-vis the state. | Neurológico
> Esclerose múltipla | Impactando políticas e legislação
> Influenciar políticas e legislações de saúde | 1.000 | Regional | Regularly | 115007075579 |
| We engage in lobbying activities to advance and protect the interests of patients. | Cuidadores
> Cuidadores, família, amigos | Impactando políticas e legislação
> Influenciar políticas e legislações de saúde | 100 | National | Rarely | 115047040745 |
| Where consultation processes are available on the relevant websites, we submit our positions, and we also direct formal requests to the Ministries of Health and Labour [in Greece]. | Neurológico
> Esclerose múltipla | Impactando políticas e legislação
> Influenciar políticas e legislações de saúde | 1.000 | Regional | Rarely | 115049438439 |
| Through written submissions to the Ministry, engagement with local Members of Parliament, direct interpersonal contacts, and the Patient Association of Greece. | Neurodegenerativa
> Alzheimer's | Impactando políticas e legislação
> Influenciar políticas e legislações de saúde | 1.000 | Regional | Regularly | 115049818475 |
| Wherever public consultations are hosted on the relevant websites, we submit our views. | Neurológico
> Esclerose múltipla | Impactando políticas e legislação
> Participar de audiências públicas e consultas | 1.000 | Regional | Rarely | 115049438439 |
| Where consultation processes are available on the relevant websites, we submit our positions, and we also direct formal requests to the Ministries of Health and Labour [in Greece]. | Neurológico
> Esclerose múltipla | Impactando políticas e legislação
> Participar de audiências públicas e consultas | 1.000 | Regional | Rarely | 115049438439 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Reumático
> Doenças reumáticas: maioria dos tipos | Impactando políticas e legislação
> Participar de audiências públicas e consultas | We do not communicate with patients directly | International | Rarely | 119025711207 |
| Through written submissions to the Ministry, engagement with local Members of Parliament, direct interpersonal contacts, and the Patient Association of Greece. | Neurodegenerativa
> Alzheimer's | Impactando políticas e legislação
> Mobilizar parlamentares e líderes políticos | 1.000 | Regional | Regularly | 115049818475 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Reumático
> Doenças reumáticas: maioria dos tipos | Defesa de preços e acessibilidade financeira
> Defenda preços justos para medicamentos | We do not communicate with patients directly | International | Rarely | 119025711207 |
| Advocacy for patient pharmacotherapy at the Ministry of Health. | Osso
> Osteoporose | Melhorando os caminhos de acesso
> Facilitar o acesso equitativo a medicamentos/cuidados de saúde | 10.000 | National | Sometimes | 114996725641 |
| Advocacy for access to medicines, diagnostic tests, and related services. | Raro
> Síndrome de Von Hippel-Lindau | Melhorando os caminhos de acesso
> Facilitar o acesso equitativo a medicamentos/cuidados de saúde | 100 | National | Regularly | 115006788497 |
| Advocacy for access to medicines, diagnostic tests, and related services. | Raro
> Síndrome de Von Hippel-Lindau | Melhorando os caminhos de acesso
> Facilitar o acesso equitativo a medicamentos/cuidados de saúde | 100 | National | Regularly | 115006788497 |
| As a member of secondary and tertiary federations representing persons with disabilities and persons with multiple sclerosis, and through direct engagement with public authorities, we advocate on behalf of our members by submitting requests for access to therapeutic treatments and therapies, as well as for the protection of their rights vis-à-vis the state. | Neurológico
> Esclerose múltipla | Melhorando os caminhos de acesso
> Facilitar o acesso equitativo a medicamentos/cuidados de saúde | 1.000 | Regional | Regularly | 115007075579 |
| Issues relating to employment, accessibility, health inequalities, and the management of treatment options. | Câncer
> Câncer: a maioria dos tipos | Melhorando os caminhos de acesso
> Facilitar o acesso equitativo a medicamentos/cuidados de saúde | 1.000 | National | Regularly | 115058727551 |
| … The Hellenic League Against Rheumatism (ELEANA) contributes patient perspectives on access to treatments, reimbursement, unmet needs, and quality of life in autoimmune rheumatic diseases, both at national level (Greece) and at EU level. | Reumático
> Doenças reumáticas: maioria dos tipos | Melhorando os caminhos de acesso
> Facilitar o acesso equitativo a medicamentos/cuidados de saúde | 100.000 | National | Regularly | 119025688550 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Reumático
> Doenças reumáticas: maioria dos tipos | Melhorando os caminhos de acesso
> Facilitar o acesso equitativo a medicamentos/cuidados de saúde | We do not communicate with patients directly | International | Rarely | 119025711207 |
| … The Hellenic League Against Rheumatism (ELEANA) contributes patient perspectives on access to treatments, reimbursement, unmet needs, and quality of life in autoimmune rheumatic diseases, both at national level (Greece) and at EU level. | Reumático
> Doenças reumáticas: maioria dos tipos | Contribuição do paciente baseada em evidências
> Use insights do paciente para embasar decisões | 100.000 | National | Regularly | 119025688550 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Reumático
> Doenças reumáticas: maioria dos tipos | Contribuição do paciente baseada em evidências
> Use insights do paciente para embasar decisões | We do not communicate with patients directly | International | Rarely | 119025711207 |
| Patient interests only [to drug regulatory authorities]. | Imune
> Imunodeficiências primárias | Contribuição do paciente baseada em evidências
> Aproveite histórias de pacientes e narrativas de experiências vividas | 100 | Regional | Sometimes | 115055418373 |
| Advocacy for access to medicines, diagnostic tests, and related services. | Raro
> Síndrome de Von Hippel-Lindau | Diagnóstico e entrega de medicamentos
> Apoiar triagem e detecção precoce | 100 | National | Regularly | 115006788497 |
| Participation in Ministry committees addressing chronic disease patients, medicinal products, patient rights. | Não Especificado
> Não especificado | Governança institucional
> Garantir representação em órgãos consultivos governamentais | 1.000 | National | Rarely | 115060548215 |
| As a member of secondary and tertiary federations representing persons with disabilities and persons with Multiple Sclerosis, and through direct engagement with public authorities, we advocate on behalf of our members by submitting requests for access to therapeutic treatments and therapies, as well as for the protection of their rights vis-à-vis the state. | Neurológico
> Esclerose múltipla | Defendendo os direitos dos pacientes/melhorando a qualidade de vida
> Protegendo/melhorando a experiência do paciente | 1.000 | Regional | Regularly | 115007075579 |
| As a member of secondary and tertiary federations representing persons with disabilities and persons with multiple sclerosis, and through direct engagement with public authorities, we advocate on behalf of our members by submitting requests for access to therapeutic treatments and therapies, as well as for the protection of their rights vis-à-vis the state. | Neurológico
> Esclerose múltipla | Defendendo os direitos dos pacientes/melhorando a qualidade de vida
> Protegendo/melhorando a experiência do paciente | 1.000 | Regional | Regularly | 115007075579 |
| Issues relating to employment, accessibility, health inequalities, and the management of treatment options. | Câncer
> Câncer: a maioria dos tipos | Defendendo os direitos dos pacientes/melhorando a qualidade de vida
> Protegendo/melhorando a experiência do paciente | 1.000 | National | Regularly | 115058727551 |
| Advocating for quality of care and quality of life for patients. | Câncer
> Câncer: mama | Defendendo os direitos dos pacientes/melhorando a qualidade de vida
> Promovendo ênfase na qualidade de vida | 5.000 | National | Regularly | 115019649379 |
| Advocating for quality of care and quality of life for patients. | Câncer
> Câncer: mama | Defendendo os direitos dos pacientes/melhorando a qualidade de vida
> Promovendo ênfase na qualidade de vida | 5.000 | National | Regularly | 115019649379 |
| Issues relating to employment, accessibility, health inequalities, and the management of treatment options. | Câncer
> Câncer: a maioria dos tipos | Defendendo os direitos dos pacientes/melhorando a qualidade de vida
> Promovendo ênfase na qualidade de vida | 1.000 | National | Regularly | 115058727551 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Reumático
> Doenças reumáticas: maioria dos tipos | Defendendo os direitos dos pacientes/melhorando a qualidade de vida
> Promovendo ênfase na qualidade de vida | We do not communicate with patients directly | International | Rarely | 119025711207 |
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