| Written submissions and meetings with stakeholder organisations. | Kræft
> Kræft: de fleste typer | Regulatorisk partnerskab
> Arbejde med regulerende myndigheder | We do not communicate with patients directly | National | Regularly | 115055433125 |
| The Hellenic League Against Rheumatism (ELEANA) regularly represents patient interests to national and European regulators through formal consultations, written submissions, participation in policy dialogues, and involvement in European patient advocacy platforms (e.g., EULAR [European Alliance of Associations for Rheumatology] PARE [People with Arthritis/Rheumatism in Europe], EPF [European Patients' Forum], GAfPA [Global Alliance for Patient Access]). | Reumatisk
> Reumatiske sygdomme: de fleste typer | Regulatorisk partnerskab
> Deltag i/faciliter møder med politiske beslutningstagere/regulatorer | 100.000 | National | Regularly | 119025688550 |
| As a member of secondary and tertiary federations representing persons with disabilities and persons with multiple sclerosis, and through our direct engagement with the state, we advocate on behalf of our members. | Neurologisk
> Multipel sklerose | Regulatorisk partnerskab
> Med andre sundhedsforkæmpere | 1.000 | Regional | Regularly | 115007075579 |
| Submits proposals to the collective "umbrella" body. | Sjælden
> Sjældne sygdomme: de fleste typer | Regulatorisk partnerskab
> Med andre sundhedsforkæmpere | 1.000 | National | Sometimes | 115019806061 |
| Through written submissions to the Ministry, engagement with local Members of Parliament, direct interpersonal contacts, and the Patient Association of Greece. | Neurodegenerativ
> Alzheimers | Regulatorisk partnerskab
> Med andre sundhedsforkæmpere | 1.000 | Regional | Regularly | 115049818475 |
| Through ΕΛΟΔΙ [Ελληνική Ομοσπονδία για τον Διαβήτη - Hellenic Federation for Diabetes]. | Endokrin
> Diabetes (både type 1 og type 2) | Regulatorisk partnerskab
> Med andre sundhedsforkæmpere | 100 | Regional | Sometimes | 115060878962 |
| The Hellenic League Against Rheumatism (ELEANA) regularly represents patient interests to national and European regulators through formal consultations, written submissions, participation in policy dialogues, and involvement in European patient advocacy platforms (e.g., EULAR [European Alliance of Associations for Rheumatology] PARE [People with Arthritis/Rheumatism in Europe], EPF [European Patients' Forum], GAfPA [Global Alliance for Patient Access]). | Reumatisk
> Reumatiske sygdomme: de fleste typer | Regulatorisk partnerskab
> Med andre sundhedsforkæmpere | 100.000 | National | Regularly | 119025688550 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Reumatisk
> Reumatiske sygdomme: de fleste typer | Regulatorisk partnerskab
> Med andre sundhedsforkæmpere | We do not communicate with patients directly | International | Rarely | 119025711207 |
| Advocacy for patient pharmacotherapy at the Ministry of Health. | Knogle
> Osteoporose | Indflydelse på politik og lovgivning
> Påvirk sundhedspolitik og lovgivning | 10.000 | National | Sometimes | 114996725641 |
| National Strategic Plan for CVD [Cardiovascular Disease]. | Kardiovaskulær
> Kardiovaskulær: de fleste typer | Indflydelse på politik og lovgivning
> Påvirk sundhedspolitik og lovgivning | 1.000 | National | Rarely | 115006858228 |
| As a member of secondary and tertiary federations representing persons with disabilities and persons with Multiple Sclerosis, and through direct engagement with public authorities, we advocate on behalf of our members by submitting requests for access to therapeutic treatments and therapies, as well as for the protection of their rights vis-à-vis the state. | Neurologisk
> Multipel sklerose | Indflydelse på politik og lovgivning
> Påvirk sundhedspolitik og lovgivning | 1.000 | Regional | Regularly | 115007075579 |
| We engage in lobbying activities to advance and protect the interests of patients. | Plejepersonale
> Plejere, familie, venner | Indflydelse på politik og lovgivning
> Påvirk sundhedspolitik og lovgivning | 100 | National | Rarely | 115047040745 |
| Where consultation processes are available on the relevant websites, we submit our positions, and we also direct formal requests to the Ministries of Health and Labour [in Greece]. | Neurologisk
> Multipel sklerose | Indflydelse på politik og lovgivning
> Påvirk sundhedspolitik og lovgivning | 1.000 | Regional | Rarely | 115049438439 |
| Through written submissions to the Ministry, engagement with local Members of Parliament, direct interpersonal contacts, and the Patient Association of Greece. | Neurodegenerativ
> Alzheimers | Indflydelse på politik og lovgivning
> Påvirk sundhedspolitik og lovgivning | 1.000 | Regional | Regularly | 115049818475 |
| Wherever public consultations are hosted on the relevant websites, we submit our views. | Neurologisk
> Multipel sklerose | Indflydelse på politik og lovgivning
> Deltag i offentlige høringer og konsultationer | 1.000 | Regional | Rarely | 115049438439 |
| Where consultation processes are available on the relevant websites, we submit our positions, and we also direct formal requests to the Ministries of Health and Labour [in Greece]. | Neurologisk
> Multipel sklerose | Indflydelse på politik og lovgivning
> Deltag i offentlige høringer og konsultationer | 1.000 | Regional | Rarely | 115049438439 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Reumatisk
> Reumatiske sygdomme: de fleste typer | Indflydelse på politik og lovgivning
> Deltag i offentlige høringer og konsultationer | We do not communicate with patients directly | International | Rarely | 119025711207 |
| Through written submissions to the Ministry, engagement with local Members of Parliament, direct interpersonal contacts, and the Patient Association of Greece. | Neurodegenerativ
> Alzheimers | Indflydelse på politik og lovgivning
> Mobiliser parlamentarikere og politiske ledere | 1.000 | Regional | Regularly | 115049818475 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Reumatisk
> Reumatiske sygdomme: de fleste typer | Prisfastsættelse og overkommelighed
> Fortaler for retfærdig medicinprissætning | We do not communicate with patients directly | International | Rarely | 119025711207 |
| Advocacy for patient pharmacotherapy at the Ministry of Health. | Knogle
> Osteoporose | Forbedring af adgangsveje
> Fremme retfærdig adgang til medicin/sundhedspleje | 10.000 | National | Sometimes | 114996725641 |
| Advocacy for access to medicines, diagnostic tests, and related services. | Sjælden
> Von Hippel-Lindaus syndrom | Forbedring af adgangsveje
> Fremme retfærdig adgang til medicin/sundhedspleje | 100 | National | Regularly | 115006788497 |
| Advocacy for access to medicines, diagnostic tests, and related services. | Sjælden
> Von Hippel-Lindaus syndrom | Forbedring af adgangsveje
> Fremme retfærdig adgang til medicin/sundhedspleje | 100 | National | Regularly | 115006788497 |
| As a member of secondary and tertiary federations representing persons with disabilities and persons with multiple sclerosis, and through direct engagement with public authorities, we advocate on behalf of our members by submitting requests for access to therapeutic treatments and therapies, as well as for the protection of their rights vis-à-vis the state. | Neurologisk
> Multipel sklerose | Forbedring af adgangsveje
> Fremme retfærdig adgang til medicin/sundhedspleje | 1.000 | Regional | Regularly | 115007075579 |
| Issues relating to employment, accessibility, health inequalities, and the management of treatment options. | Kræft
> Kræft: de fleste typer | Forbedring af adgangsveje
> Fremme retfærdig adgang til medicin/sundhedspleje | 1.000 | National | Regularly | 115058727551 |
| … The Hellenic League Against Rheumatism (ELEANA) contributes patient perspectives on access to treatments, reimbursement, unmet needs, and quality of life in autoimmune rheumatic diseases, both at national level (Greece) and at EU level. | Reumatisk
> Reumatiske sygdomme: de fleste typer | Forbedring af adgangsveje
> Fremme retfærdig adgang til medicin/sundhedspleje | 100.000 | National | Regularly | 119025688550 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Reumatisk
> Reumatiske sygdomme: de fleste typer | Forbedring af adgangsveje
> Fremme retfærdig adgang til medicin/sundhedspleje | We do not communicate with patients directly | International | Rarely | 119025711207 |
| … The Hellenic League Against Rheumatism (ELEANA) contributes patient perspectives on access to treatments, reimbursement, unmet needs, and quality of life in autoimmune rheumatic diseases, both at national level (Greece) and at EU level. | Reumatisk
> Reumatiske sygdomme: de fleste typer | Evidensbaseret patientinput
> Brug patientindsigt til at informere beslutninger | 100.000 | National | Regularly | 119025688550 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Reumatisk
> Reumatiske sygdomme: de fleste typer | Evidensbaseret patientinput
> Brug patientindsigt til at informere beslutninger | We do not communicate with patients directly | International | Rarely | 119025711207 |
| Patient interests only [to drug regulatory authorities]. | Immun
> Primære immundefekter | Evidensbaseret patientinput
> Udnyt patienthistorier og fortællinger om levede erfaringer | 100 | Regional | Sometimes | 115055418373 |
| Advocacy for access to medicines, diagnostic tests, and related services. | Sjælden
> Von Hippel-Lindaus syndrom | Diagnose og medicinlevering
> Støtte til screening og tidlig opdagelse | 100 | National | Regularly | 115006788497 |
| Participation in Ministry committees addressing chronic disease patients, medicinal products, patient rights. | Ikke angivet
> Ikke angivet | Institutionel styring
> Sikre repræsentation i statslige rådgivende organer | 1.000 | National | Rarely | 115060548215 |
| As a member of secondary and tertiary federations representing persons with disabilities and persons with Multiple Sclerosis, and through direct engagement with public authorities, we advocate on behalf of our members by submitting requests for access to therapeutic treatments and therapies, as well as for the protection of their rights vis-à-vis the state. | Neurologisk
> Multipel sklerose | Opretholdelse af patientrettigheder/forbedring af livskvalitet
> Beskyttelse/forbedring af patientoplevelsen | 1.000 | Regional | Regularly | 115007075579 |
| As a member of secondary and tertiary federations representing persons with disabilities and persons with multiple sclerosis, and through direct engagement with public authorities, we advocate on behalf of our members by submitting requests for access to therapeutic treatments and therapies, as well as for the protection of their rights vis-à-vis the state. | Neurologisk
> Multipel sklerose | Opretholdelse af patientrettigheder/forbedring af livskvalitet
> Beskyttelse/forbedring af patientoplevelsen | 1.000 | Regional | Regularly | 115007075579 |
| Issues relating to employment, accessibility, health inequalities, and the management of treatment options. | Kræft
> Kræft: de fleste typer | Opretholdelse af patientrettigheder/forbedring af livskvalitet
> Beskyttelse/forbedring af patientoplevelsen | 1.000 | National | Regularly | 115058727551 |
| Advocating for quality of care and quality of life for patients. | Kræft
> Kræft: bryst | Opretholdelse af patientrettigheder/forbedring af livskvalitet
> Fremme af fokus på livskvalitet | 5.000 | National | Regularly | 115019649379 |
| Advocating for quality of care and quality of life for patients. | Kræft
> Kræft: bryst | Opretholdelse af patientrettigheder/forbedring af livskvalitet
> Fremme af fokus på livskvalitet | 5.000 | National | Regularly | 115019649379 |
| Issues relating to employment, accessibility, health inequalities, and the management of treatment options. | Kræft
> Kræft: de fleste typer | Opretholdelse af patientrettigheder/forbedring af livskvalitet
> Fremme af fokus på livskvalitet | 1.000 | National | Regularly | 115058727551 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Reumatisk
> Reumatiske sygdomme: de fleste typer | Opretholdelse af patientrettigheder/forbedring af livskvalitet
> Fremme af fokus på livskvalitet | We do not communicate with patients directly | International | Rarely | 119025711207 |
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