| Written submissions and meetings with stakeholder organisations. | Cancer
> Cancer: most types | Regulatory partnership
> Working with regulatory bodies | We do not communicate with patients directly | National | Regularly | 115055433125 |
| The Hellenic League Against Rheumatism (ELEANA) regularly represents patient interests to national and European regulators through formal consultations, written submissions, participation in policy dialogues, and involvement in European patient advocacy platforms (e.g., EULAR [European Alliance of Associations for Rheumatology] PARE [People with Arthritis/Rheumatism in Europe], EPF [European Patients' Forum], GAfPA [Global Alliance for Patient Access]). | Rheumatic
> Rheumatic diseases: most types | Regulatory partnership
> Attend/facilitate meetings with policymakers/regulators | 100,000 | National | Regularly | 119025688550 |
| As a member of secondary and tertiary federations representing persons with disabilities and persons with multiple sclerosis, and through our direct engagement with the state, we advocate on behalf of our members. | Neurological
> Multiple sclerosis | Regulatory partnership
> With other healthcare advocates | 1,000 | Regional | Regularly | 115007075579 |
| Submits proposals to the collective "umbrella" body. | Rare
> Rare diseases: most types | Regulatory partnership
> With other healthcare advocates | 1,000 | National | Sometimes | 115019806061 |
| Through written submissions to the Ministry, engagement with local Members of Parliament, direct interpersonal contacts, and the Patient Association of Greece. | Neurodegenerative
> Alzheimer’s | Regulatory partnership
> With other healthcare advocates | 1,000 | Regional | Regularly | 115049818475 |
| Through ΕΛΟΔΙ [Ελληνική Ομοσπονδία για τον Διαβήτη - Hellenic Federation for Diabetes]. | Endocrine
> Diabetes (both types 1 and 2) | Regulatory partnership
> With other healthcare advocates | 100 | Regional | Sometimes | 115060878962 |
| The Hellenic League Against Rheumatism (ELEANA) regularly represents patient interests to national and European regulators through formal consultations, written submissions, participation in policy dialogues, and involvement in European patient advocacy platforms (e.g., EULAR [European Alliance of Associations for Rheumatology] PARE [People with Arthritis/Rheumatism in Europe], EPF [European Patients' Forum], GAfPA [Global Alliance for Patient Access]). | Rheumatic
> Rheumatic diseases: most types | Regulatory partnership
> With other healthcare advocates | 100,000 | National | Regularly | 119025688550 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Rheumatic
> Rheumatic diseases: most types | Regulatory partnership
> With other healthcare advocates | We do not communicate with patients directly | International | Rarely | 119025711207 |
| Advocacy for patient pharmacotherapy at the Ministry of Health. | Bone
> Osteoporosis | Impacting policy and legislation
> Influence healthcare policy and legislation | 10,000 | National | Sometimes | 114996725641 |
| National Strategic Plan for CVD [Cardiovascular Disease]. | Cardiovascular
> Cardiovascular: most types | Impacting policy and legislation
> Influence healthcare policy and legislation | 1,000 | National | Rarely | 115006858228 |
| As a member of secondary and tertiary federations representing persons with disabilities and persons with Multiple Sclerosis, and through direct engagement with public authorities, we advocate on behalf of our members by submitting requests for access to therapeutic treatments and therapies, as well as for the protection of their rights vis-à-vis the state. | Neurological
> Multiple sclerosis | Impacting policy and legislation
> Influence healthcare policy and legislation | 1,000 | Regional | Regularly | 115007075579 |
| We engage in lobbying activities to advance and protect the interests of patients. | Carers
> Carers, family, friends | Impacting policy and legislation
> Influence healthcare policy and legislation | 100 | National | Rarely | 115047040745 |
| Where consultation processes are available on the relevant websites, we submit our positions, and we also direct formal requests to the Ministries of Health and Labour [in Greece]. | Neurological
> Multiple sclerosis | Impacting policy and legislation
> Influence healthcare policy and legislation | 1,000 | Regional | Rarely | 115049438439 |
| Through written submissions to the Ministry, engagement with local Members of Parliament, direct interpersonal contacts, and the Patient Association of Greece. | Neurodegenerative
> Alzheimer’s | Impacting policy and legislation
> Influence healthcare policy and legislation | 1,000 | Regional | Regularly | 115049818475 |
| Wherever public consultations are hosted on the relevant websites, we submit our views. | Neurological
> Multiple sclerosis | Impacting policy and legislation
> Participate in public hearings and consultations | 1,000 | Regional | Rarely | 115049438439 |
| Where consultation processes are available on the relevant websites, we submit our positions, and we also direct formal requests to the Ministries of Health and Labour [in Greece]. | Neurological
> Multiple sclerosis | Impacting policy and legislation
> Participate in public hearings and consultations | 1,000 | Regional | Rarely | 115049438439 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Rheumatic
> Rheumatic diseases: most types | Impacting policy and legislation
> Participate in public hearings and consultations | We do not communicate with patients directly | International | Rarely | 119025711207 |
| Through written submissions to the Ministry, engagement with local Members of Parliament, direct interpersonal contacts, and the Patient Association of Greece. | Neurodegenerative
> Alzheimer’s | Impacting policy and legislation
> Mobilise parliamentarians and political leaders | 1,000 | Regional | Regularly | 115049818475 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Rheumatic
> Rheumatic diseases: most types | Pricing and affordability advocacy
> Advocate for fair medicine pricing | We do not communicate with patients directly | International | Rarely | 119025711207 |
| Advocacy for patient pharmacotherapy at the Ministry of Health. | Bone
> Osteoporosis | Improving access pathways
> Facilitate equitable access to medicines/healthcare | 10,000 | National | Sometimes | 114996725641 |
| Advocacy for access to medicines, diagnostic tests, and related services. | Rare
> Von Hippel-Lindau syndrome | Improving access pathways
> Facilitate equitable access to medicines/healthcare | 100 | National | Regularly | 115006788497 |
| Advocacy for access to medicines, diagnostic tests, and related services. | Rare
> Von Hippel-Lindau syndrome | Improving access pathways
> Facilitate equitable access to medicines/healthcare | 100 | National | Regularly | 115006788497 |
| As a member of secondary and tertiary federations representing persons with disabilities and persons with multiple sclerosis, and through direct engagement with public authorities, we advocate on behalf of our members by submitting requests for access to therapeutic treatments and therapies, as well as for the protection of their rights vis-à-vis the state. | Neurological
> Multiple sclerosis | Improving access pathways
> Facilitate equitable access to medicines/healthcare | 1,000 | Regional | Regularly | 115007075579 |
| Issues relating to employment, accessibility, health inequalities, and the management of treatment options. | Cancer
> Cancer: most types | Improving access pathways
> Facilitate equitable access to medicines/healthcare | 1,000 | National | Regularly | 115058727551 |
| … The Hellenic League Against Rheumatism (ELEANA) contributes patient perspectives on access to treatments, reimbursement, unmet needs, and quality of life in autoimmune rheumatic diseases, both at national level (Greece) and at EU level. | Rheumatic
> Rheumatic diseases: most types | Improving access pathways
> Facilitate equitable access to medicines/healthcare | 100,000 | National | Regularly | 119025688550 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Rheumatic
> Rheumatic diseases: most types | Improving access pathways
> Facilitate equitable access to medicines/healthcare | We do not communicate with patients directly | International | Rarely | 119025711207 |
| … The Hellenic League Against Rheumatism (ELEANA) contributes patient perspectives on access to treatments, reimbursement, unmet needs, and quality of life in autoimmune rheumatic diseases, both at national level (Greece) and at EU level. | Rheumatic
> Rheumatic diseases: most types | Evidence-based patient input
> Use patient insights to inform decisions | 100,000 | National | Regularly | 119025688550 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Rheumatic
> Rheumatic diseases: most types | Evidence-based patient input
> Use patient insights to inform decisions | We do not communicate with patients directly | International | Rarely | 119025711207 |
| Patient interests only [to drug regulatory authorities]. | Immune
> Primary immunodeficiencies | Evidence-based patient input
> Leverage patient stories and lived-experience narratives | 100 | Regional | Sometimes | 115055418373 |
| Advocacy for access to medicines, diagnostic tests, and related services. | Rare
> Von Hippel-Lindau syndrome | Diagnosis and medicines delivery
> Support screening and early detection | 100 | National | Regularly | 115006788497 |
| Participation in Ministry committees addressing chronic disease patients, medicinal products, patient rights. | Not Specified
> Not specified | Institutional governance
> Ensure representation within governmental advisory bodies | 1,000 | National | Rarely | 115060548215 |
| As a member of secondary and tertiary federations representing persons with disabilities and persons with Multiple Sclerosis, and through direct engagement with public authorities, we advocate on behalf of our members by submitting requests for access to therapeutic treatments and therapies, as well as for the protection of their rights vis-à-vis the state. | Neurological
> Multiple sclerosis | Upholding patient rights/improving quality of life
> Protecting/improving the patient experience | 1,000 | Regional | Regularly | 115007075579 |
| As a member of secondary and tertiary federations representing persons with disabilities and persons with multiple sclerosis, and through direct engagement with public authorities, we advocate on behalf of our members by submitting requests for access to therapeutic treatments and therapies, as well as for the protection of their rights vis-à-vis the state. | Neurological
> Multiple sclerosis | Upholding patient rights/improving quality of life
> Protecting/improving the patient experience | 1,000 | Regional | Regularly | 115007075579 |
| Issues relating to employment, accessibility, health inequalities, and the management of treatment options. | Cancer
> Cancer: most types | Upholding patient rights/improving quality of life
> Protecting/improving the patient experience | 1,000 | National | Regularly | 115058727551 |
| Advocating for quality of care and quality of life for patients. | Cancer
> Cancer: breast | Upholding patient rights/improving quality of life
> Promoting an emphasis on quality of life | 5,000 | National | Regularly | 115019649379 |
| Advocating for quality of care and quality of life for patients. | Cancer
> Cancer: breast | Upholding patient rights/improving quality of life
> Promoting an emphasis on quality of life | 5,000 | National | Regularly | 115019649379 |
| Issues relating to employment, accessibility, health inequalities, and the management of treatment options. | Cancer
> Cancer: most types | Upholding patient rights/improving quality of life
> Promoting an emphasis on quality of life | 1,000 | National | Regularly | 115058727551 |
| AGORA Federation represents patient perspectives through EU-level policy dialogues and consultations, and via participation in European patient advocacy platforms. We contribute input on access, reimbursement, unmet needs, and quality of life across rheumatic and musculoskeletal diseases from a cross-country (Southern Europe) perspective. | Rheumatic
> Rheumatic diseases: most types | Upholding patient rights/improving quality of life
> Promoting an emphasis on quality of life | We do not communicate with patients directly | International | Rarely | 119025711207 |
interactions
actions & advocacy
8 mentions
