| We work in collaboration with the Ministry of Health and INVIMA [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance] to improve access to medicines for patients with EH [Enfermedad de Huntington - Huntington’s disease]. | Raro
> Doenças raras: a maioria dos tipos | Parceria regulatória
> A trabalhar com organismos reguladores | 5000 | National | Regularly | 119063359405 |
| Meetings of the UPC [Unidad de Pago por Capitación – Capitation Payment Unit], INVIMA [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance], Superintendencia [Superintendencia Nacional de Salud – National Health Superintendency], Ministry, IETS [Instituto de Evaluación Tecnológica en Salud – Institute for Health Technology Assessment], and related bodies. | Saúde geral
> Saúde pública | Parceria regulatória
> Participar em avaliações de Avaliação de Tecnologias de Saúde (ATS) e de reembolso | 1000 | International | Sometimes | 119064660391 |
| Meetings of the UPC [Unidad de Pago por Capitación – Capitation Payment Unit], INVIMA [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance], Superintendencia [Superintendencia Nacional de Salud – National Health Superintendency], Ministry, IETS [Instituto de Evaluación Tecnológica en Salud – Institute for Health Technology Assessment], and related bodies. | Saúde geral
> Saúde pública | Parceria regulatória
> Participar/facilitar reuniões com decisores políticos/reguladores | 1000 | International | Sometimes | 119064660391 |
| Meetings with the Ministry of Health. | Cancro
> Cancro: mama | Parceria regulatória
> Participar/facilitar reuniões com decisores políticos/reguladores | 1000 | National | Sometimes | 119074600945 |
| In situations of drug supply shortages, direct consultations are conducted with manufacturers and legal action is pursued involving the EPS [Entidades Promotoras de Salud – Health-Promoting Entities], the Ministry of Health, and Invima [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance]. | Neurológico
> Esclerose múltipla e outras doenças desmielinizantes | Parceria regulatória
> Participar/facilitar reuniões com decisores políticos/reguladores | 100 | Regional | Rarely | 119079339064 |
| We advocate for the comprehensive rights of people of short stature under Law 1275 of 5 January 2009, with a particular focus on health rights and those pertaining to the growth stage of individuals with short stature. | Raro
> Doenças raras: genética | Impacto nas políticas e legislação
> Defender projetos de lei e direitos de proteção dos doentes | 100 | International | Regularly | 119074161189 |
| We were convened by the Cuenta de Alto Costo [High-Cost Disease Fund] to assess patient requirements and support the inclusion of multiple sclerosis as a high-cost disease in Colombia. | Neurológico
> Esclerose múltipla | Defesa de preços e acessibilidade financeira
> Participar em negociações do conselho de revisão de preços | 100 | Local | Regularly | 119036936031 |
| In situations of drug supply shortages, direct consultations are conducted with manufacturers and legal action is pursued involving the EPS [Entidades Promotoras de Salud – Health-Promoting Entities], the Ministry of Health, and Invima [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance]. | Neurológico
> Esclerose múltipla e outras doenças desmielinizantes | Defesa de preços e acessibilidade financeira
> Solicitar preços de venda reduzidos aos fabricantes | 100 | Regional | Rarely | 119079339064 |
| In situations of drug supply shortages, direct consultations are conducted with manufacturers and legal action is pursued involving the EPS [Entidades Promotoras de Salud – Health-Promoting Entities], the Ministry of Health, and Invima [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance]. | Neurológico
> Esclerose múltipla e outras doenças desmielinizantes | Defesa de preços e acessibilidade financeira
> Monitorização e acompanhamento de preços de medicamentos/escassez de medicamentos | 100 | Regional | Rarely | 119079339064 |
| We were convened by the Cuenta de Alto Costo [High-Cost Disease Fund] to assess patient requirements and support the inclusion of multiple sclerosis as a high-cost disease in Colombia. | Neurológico
> Esclerose múltipla | Defesa de preços e acessibilidade financeira
> Defender a inclusão do produto em listas de reembolso/formulários nacionais | 100 | Local | Regularly | 119036936031 |
| We work in collaboration with the Ministry of Health and INVIMA [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance] to improve access to medicines for patients with EH [Enfermedad de Huntington - Huntington’s disease]. | Raro
> Doenças raras: a maioria dos tipos | Melhorar os caminhos de acesso
> Facilitar o acesso equitativo a medicamentos/cuidados de saúde | 5000 | National | Regularly | 119063359405 |
| There are no issues regarding prices, but there are issues concerning the supply and delivery of medications to patients. | Raro
> Síndrome de Marfan | Melhorar os caminhos de acesso
> Facilitar o acesso equitativo a medicamentos/cuidados de saúde | 100 | National | Regularly | 119072874250 |
| We assist in resolving barriers with insurance providers. | Cancro
> Cancro: ginecológico | Melhorar os caminhos de acesso
> Facilitar o acesso equitativo a medicamentos/cuidados de saúde | 10 000 | National | Regularly | 119073787924 |
| We were convened by the Cuenta de Alto Costo [High-Cost Disease Fund] to assess patient requirements and support for the inclusion of multiple sclerosis as a high-cost disease in Colombia. | Neurológico
> Esclerose múltipla | Contribuição do doente baseada em evidências
> Utilize os insights dos pacientes para informar decisões | 100 | Local | Regularly | 119036936031 |
| On some occasions, we have been invited by the government to engage with and work alongside the patient population. | Raro
> Doenças raras: a maioria dos tipos | Governação institucional
> Garantir representação nos órgãos consultivos governamentais | 1000 | National | Rarely | 119040724879 |
| We help to address barriers with insurers and provide legal guidance on formal petitions and constitutional protection writs (tutelas), and we participate in the working groups of the Ministry of Health and Social Protection [in Colombia]. | Cancro
> Cancro: ginecológico | Governação institucional
> Garantir representação nos órgãos consultivos governamentais | 10 000 | National | Regularly | 119073787924 |
| I have been invited to participate in various roundtables at which this has been the subject under discussion. | Cancro
> Cancro: a maioria dos tipos | Governação institucional
> Trabalhar eficazmente em redes com múltiplos intervenientes | 5000 | International | Rarely | 119064285058 |
| We assist in resolving barriers with insurance providers. | Cancro
> Cancro: ginecológico | Defender os direitos dos doentes/melhorar a qualidade de vida
> Proteger/melhorar a experiência do doente | 10 000 | National | Regularly | 119073787924 |
| We advocate for the comprehensive rights of people of short stature under Law 1275 of 5 January 2009, with a particular focus on health rights and those pertaining to the growth stage of individuals with short stature. | Raro
> Doenças raras: genética | Defender os direitos dos doentes/melhorar a qualidade de vida
> Proteger/melhorar a experiência do doente | 100 | International | Regularly | 119074161189 |
| We help to address barriers with insurers and provide legal guidance on formal petitions and constitutional protection writs (tutelas), and we participate in the working groups of the Ministry of Health and Social Protection [in Colombia]. | Cancro
> Cancro: ginecológico | Defender os direitos dos doentes/melhorar a qualidade de vida
> Apoio em ações legais relacionadas com o tratamento | 10 000 | National | Regularly | 119073787924 |
| We provide support through legal advisory services. | Neurológico
> Esclerose múltipla | Defender os direitos dos doentes/melhorar a qualidade de vida
> Apoio em ações legais relacionadas com o tratamento | 1000 | International | Sometimes | 119075928280 |
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