| We work in collaboration with the Ministry of Health and INVIMA [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance] to improve access to medicines for patients with EH [Enfermedad de Huntington - Huntington’s disease]. | 稀有
> 罕见病：大多数类型 | 监管合作伙伴关系
> 与监管机构合作 | 5,000 | National | Regularly | 119063359405 |
| Meetings of the UPC [Unidad de Pago por Capitación – Capitation Payment Unit], INVIMA [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance], Superintendencia [Superintendencia Nacional de Salud – National Health Superintendency], Ministry, IETS [Instituto de Evaluación Tecnológica en Salud – Institute for Health Technology Assessment], and related bodies. | 总体健康
> 公共卫生 | 监管合作伙伴关系
> 参与卫生技术评估（HTA）和报销审查 | 1,000 | International | Sometimes | 119064660391 |
| Meetings of the UPC [Unidad de Pago por Capitación – Capitation Payment Unit], INVIMA [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance], Superintendencia [Superintendencia Nacional de Salud – National Health Superintendency], Ministry, IETS [Instituto de Evaluación Tecnológica en Salud – Institute for Health Technology Assessment], and related bodies. | 总体健康
> 公共卫生 | 监管合作伙伴关系
> 参加/主持与政策制定者/监管机构的会议 | 1,000 | International | Sometimes | 119064660391 |
| Meetings with the Ministry of Health. | 癌症
> 癌症：乳腺癌 | 监管合作伙伴关系
> 参加/主持与政策制定者/监管机构的会议 | 1,000 | National | Sometimes | 119074600945 |
| In situations of drug supply shortages, direct consultations are conducted with manufacturers and legal action is pursued involving the EPS [Entidades Promotoras de Salud – Health-Promoting Entities], the Ministry of Health, and Invima [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance]. | 神经系统
> 多发性硬化症和其他脱髓鞘疾病 | 监管合作伙伴关系
> 参加/主持与政策制定者/监管机构的会议 | 100 | Regional | Rarely | 119079339064 |
| We advocate for the comprehensive rights of people of short stature under Law 1275 of 5 January 2009, with a particular focus on health rights and those pertaining to the growth stage of individuals with short stature. | 稀有
> 罕见病：遗传性 | 影响政策和立法
> 倡导患者保护法案和权利 | 100 | International | Regularly | 119074161189 |
| We were convened by the Cuenta de Alto Costo [High-Cost Disease Fund] to assess patient requirements and support the inclusion of multiple sclerosis as a high-cost disease in Colombia. | 神经系统
> 多发性硬化症 | 定价与可负担性倡导
> 参与价格审查委员会谈判 | 100 | Local | Regularly | 119036936031 |
| In situations of drug supply shortages, direct consultations are conducted with manufacturers and legal action is pursued involving the EPS [Entidades Promotoras de Salud – Health-Promoting Entities], the Ministry of Health, and Invima [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance]. | 神经系统
> 多发性硬化症和其他脱髓鞘疾病 | 定价与可负担性倡导
> 呼吁制造商降低销售价格 | 100 | Regional | Rarely | 119079339064 |
| In situations of drug supply shortages, direct consultations are conducted with manufacturers and legal action is pursued involving the EPS [Entidades Promotoras de Salud – Health-Promoting Entities], the Ministry of Health, and Invima [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance]. | 神经系统
> 多发性硬化症和其他脱髓鞘疾病 | 定价与可负担性倡导
> 跟踪和监控药品定价/药品短缺 | 100 | Regional | Rarely | 119079339064 |
| We were convened by the Cuenta de Alto Costo [High-Cost Disease Fund] to assess patient requirements and support the inclusion of multiple sclerosis as a high-cost disease in Colombia. | 神经系统
> 多发性硬化症 | 定价与可负担性倡导
> 倡导将产品纳入报销目录/国家处方集 | 100 | Local | Regularly | 119036936031 |
| We work in collaboration with the Ministry of Health and INVIMA [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance] to improve access to medicines for patients with EH [Enfermedad de Huntington - Huntington’s disease]. | 稀有
> 罕见病：大多数类型 | 改善访问路径
> 促进公平获取药品/医疗保健 | 5,000 | National | Regularly | 119063359405 |
| There are no issues regarding prices, but there are issues concerning the supply and delivery of medications to patients. | 稀有
> 马凡综合征 | 改善访问路径
> 促进公平获取药品/医疗保健 | 100 | National | Regularly | 119072874250 |
| We assist in resolving barriers with insurance providers. | 癌症
> 癌症：妇科 | 改善访问路径
> 促进公平获取药品/医疗保健 | 10,000 | National | Regularly | 119073787924 |
| We were convened by the Cuenta de Alto Costo [High-Cost Disease Fund] to assess patient requirements and support for the inclusion of multiple sclerosis as a high-cost disease in Colombia. | 神经系统
> 多发性硬化症 | 循证患者意见
> 利用患者洞察来指导决策 | 100 | Local | Regularly | 119036936031 |
| On some occasions, we have been invited by the government to engage with and work alongside the patient population. | 稀有
> 罕见病：大多数类型 | 机构治理
> 确保在政府咨询机构中的代表性 | 1,000 | National | Rarely | 119040724879 |
| We help to address barriers with insurers and provide legal guidance on formal petitions and constitutional protection writs (tutelas), and we participate in the working groups of the Ministry of Health and Social Protection [in Colombia]. | 癌症
> 癌症：妇科 | 机构治理
> 确保在政府咨询机构中的代表性 | 10,000 | National | Regularly | 119073787924 |
| I have been invited to participate in various roundtables at which this has been the subject under discussion. | 癌症
> 癌症：大多数类型 | 机构治理
> 在多利益相关方网络中高效协作 | 5,000 | International | Rarely | 119064285058 |
| We assist in resolving barriers with insurance providers. | 癌症
> 癌症：妇科 | 维护患者权益/提高生活质量
> 保护/改善患者体验 | 10,000 | National | Regularly | 119073787924 |
| We advocate for the comprehensive rights of people of short stature under Law 1275 of 5 January 2009, with a particular focus on health rights and those pertaining to the growth stage of individuals with short stature. | 稀有
> 罕见病：遗传性 | 维护患者权益/提高生活质量
> 保护/改善患者体验 | 100 | International | Regularly | 119074161189 |
| We help to address barriers with insurers and provide legal guidance on formal petitions and constitutional protection writs (tutelas), and we participate in the working groups of the Ministry of Health and Social Protection [in Colombia]. | 癌症
> 癌症：妇科 | 维护患者权益/提高生活质量
> 支持与治疗相关的法律行动 | 10,000 | National | Regularly | 119073787924 |
| We provide support through legal advisory services. | 神经系统
> 多发性硬化症 | 维护患者权益/提高生活质量
> 支持与治疗相关的法律行动 | 1,000 | International | Sometimes | 119075928280 |
互动
行动与倡导
5 提及
