| We work in collaboration with the Ministry of Health and INVIMA [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance] to improve access to medicines for patients with EH [Enfermedad de Huntington - Huntington’s disease]. | 罕見
> 罕見疾病：大多數類型 | 監管合作夥伴關係
> 與監管機構合作 | 5,000 | National | Regularly | 119063359405 |
| Meetings of the UPC [Unidad de Pago por Capitación – Capitation Payment Unit], INVIMA [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance], Superintendencia [Superintendencia Nacional de Salud – National Health Superintendency], Ministry, IETS [Instituto de Evaluación Tecnológica en Salud – Institute for Health Technology Assessment], and related bodies. | 一般健康
> 公共衛生 | 監管合作夥伴關係
> 參與健康技術評估（HTA）及報銷審查 | 1,000 | International | Sometimes | 119064660391 |
| Meetings of the UPC [Unidad de Pago por Capitación – Capitation Payment Unit], INVIMA [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance], Superintendencia [Superintendencia Nacional de Salud – National Health Superintendency], Ministry, IETS [Instituto de Evaluación Tecnológica en Salud – Institute for Health Technology Assessment], and related bodies. | 一般健康
> 公共衛生 | 監管合作夥伴關係
> 出席/主持與政策制定者/監管機構的會議 | 1,000 | International | Sometimes | 119064660391 |
| Meetings with the Ministry of Health. | 癌症
> 癌症：乳腺癌 | 監管合作夥伴關係
> 出席/主持與政策制定者/監管機構的會議 | 1,000 | National | Sometimes | 119074600945 |
| In situations of drug supply shortages, direct consultations are conducted with manufacturers and legal action is pursued involving the EPS [Entidades Promotoras de Salud – Health-Promoting Entities], the Ministry of Health, and Invima [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance]. | 神經系統
> 多發性硬化症及其他脫髓鞘疾病 | 監管合作夥伴關係
> 出席/主持與政策制定者/監管機構的會議 | 100 | Regional | Rarely | 119079339064 |
| We advocate for the comprehensive rights of people of short stature under Law 1275 of 5 January 2009, with a particular focus on health rights and those pertaining to the growth stage of individuals with short stature. | 罕見
> 罕見疾病：遺傳性 | 影響政策及立法
> 倡導患者保護法案及權益 | 100 | International | Regularly | 119074161189 |
| We were convened by the Cuenta de Alto Costo [High-Cost Disease Fund] to assess patient requirements and support the inclusion of multiple sclerosis as a high-cost disease in Colombia. | 神經系統
> 多發性硬化症 | 定價及可負擔性倡議
> 參與價格審查委員會談判 | 100 | Local | Regularly | 119036936031 |
| In situations of drug supply shortages, direct consultations are conducted with manufacturers and legal action is pursued involving the EPS [Entidades Promotoras de Salud – Health-Promoting Entities], the Ministry of Health, and Invima [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance]. | 神經系統
> 多發性硬化症及其他脫髓鞘疾病 | 定價及可負擔性倡議
> 要求製造商降低銷售價格 | 100 | Regional | Rarely | 119079339064 |
| In situations of drug supply shortages, direct consultations are conducted with manufacturers and legal action is pursued involving the EPS [Entidades Promotoras de Salud – Health-Promoting Entities], the Ministry of Health, and Invima [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance]. | 神經系統
> 多發性硬化症及其他脫髓鞘疾病 | 定價及可負擔性倡議
> 追蹤及監測藥品定價／藥品短缺情況 | 100 | Regional | Rarely | 119079339064 |
| We were convened by the Cuenta de Alto Costo [High-Cost Disease Fund] to assess patient requirements and support the inclusion of multiple sclerosis as a high-cost disease in Colombia. | 神經系統
> 多發性硬化症 | 定價及可負擔性倡議
> 倡導將產品納入報銷清單／國家藥品目錄 | 100 | Local | Regularly | 119036936031 |
| We work in collaboration with the Ministry of Health and INVIMA [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance] to improve access to medicines for patients with EH [Enfermedad de Huntington - Huntington’s disease]. | 罕見
> 罕見疾病：大多數類型 | 改善存取途徑
> 促進公平獲取藥物／醫療保健 | 5,000 | National | Regularly | 119063359405 |
| There are no issues regarding prices, but there are issues concerning the supply and delivery of medications to patients. | 罕見
> 馬凡氏症候群 | 改善存取途徑
> 促進公平獲取藥物／醫療保健 | 100 | National | Regularly | 119072874250 |
| We assist in resolving barriers with insurance providers. | 癌症
> 癌症：婦科 | 改善存取途徑
> 促進公平獲取藥物／醫療保健 | 10,000 | National | Regularly | 119073787924 |
| We were convened by the Cuenta de Alto Costo [High-Cost Disease Fund] to assess patient requirements and support for the inclusion of multiple sclerosis as a high-cost disease in Colombia. | 神經系統
> 多發性硬化症 | 以實證為基礎的患者意見
> 利用患者洞察來輔助決策 | 100 | Local | Regularly | 119036936031 |
| On some occasions, we have been invited by the government to engage with and work alongside the patient population. | 罕見
> 罕見疾病：大多數類型 | 機構管治
> 確保在政府諮詢機構中獲得代表席位 | 1,000 | National | Rarely | 119040724879 |
| We help to address barriers with insurers and provide legal guidance on formal petitions and constitutional protection writs (tutelas), and we participate in the working groups of the Ministry of Health and Social Protection [in Colombia]. | 癌症
> 癌症：婦科 | 機構管治
> 確保在政府諮詢機構中獲得代表席位 | 10,000 | National | Regularly | 119073787924 |
| I have been invited to participate in various roundtables at which this has been the subject under discussion. | 癌症
> 癌症：大多數類型 | 機構管治
> 在多方持份者網絡中有效運作 | 5,000 | International | Rarely | 119064285058 |
| We assist in resolving barriers with insurance providers. | 癌症
> 癌症：婦科 | 維護病人權益／提升生活質素
> 保護/改善患者體驗 | 10,000 | National | Regularly | 119073787924 |
| We advocate for the comprehensive rights of people of short stature under Law 1275 of 5 January 2009, with a particular focus on health rights and those pertaining to the growth stage of individuals with short stature. | 罕見
> 罕見疾病：遺傳性 | 維護病人權益／提升生活質素
> 保護/改善患者體驗 | 100 | International | Regularly | 119074161189 |
| We help to address barriers with insurers and provide legal guidance on formal petitions and constitutional protection writs (tutelas), and we participate in the working groups of the Ministry of Health and Social Protection [in Colombia]. | 癌症
> 癌症：婦科 | 維護病人權益／提升生活質素
> 支援與治療相關的法律行動 | 10,000 | National | Regularly | 119073787924 |
| We provide support through legal advisory services. | 神經系統
> 多發性硬化症 | 維護病人權益／提升生活質素
> 支援與治療相關的法律行動 | 1,000 | International | Sometimes | 119075928280 |
互動
行動與倡議
5 提及
