| We work in collaboration with the Ministry of Health and INVIMA [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance] to improve access to medicines for patients with EH [Enfermedad de Huntington - Huntington’s disease]. | Raro
> Enfermedades raras: la mayoría de los tipos | Asociación regulatoria
> Trabajando con organismos reguladores | 5000 | National | Regularly | 119063359405 |
| Meetings of the UPC [Unidad de Pago por Capitación – Capitation Payment Unit], INVIMA [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance], Superintendencia [Superintendencia Nacional de Salud – National Health Superintendency], Ministry, IETS [Instituto de Evaluación Tecnológica en Salud – Institute for Health Technology Assessment], and related bodies. | Salud general
> Salud pública | Asociación regulatoria
> Participar en evaluaciones de Evaluación de Tecnologías Sanitarias (ETS) y reembolso | 1000 | International | Sometimes | 119064660391 |
| Meetings of the UPC [Unidad de Pago por Capitación – Capitation Payment Unit], INVIMA [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance], Superintendencia [Superintendencia Nacional de Salud – National Health Superintendency], Ministry, IETS [Instituto de Evaluación Tecnológica en Salud – Institute for Health Technology Assessment], and related bodies. | Salud general
> Salud pública | Asociación regulatoria
> Asistir/facilitar reuniones con responsables políticos/reguladores | 1000 | International | Sometimes | 119064660391 |
| Meetings with the Ministry of Health. | Cáncer
> Cáncer: mama | Asociación regulatoria
> Asistir/facilitar reuniones con responsables políticos/reguladores | 1000 | National | Sometimes | 119074600945 |
| In situations of drug supply shortages, direct consultations are conducted with manufacturers and legal action is pursued involving the EPS [Entidades Promotoras de Salud – Health-Promoting Entities], the Ministry of Health, and Invima [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance]. | Neurológico
> Esclerosis múltiple y otras enfermedades desmielinizantes | Asociación regulatoria
> Asistir/facilitar reuniones con responsables políticos/reguladores | 100 | Regional | Rarely | 119079339064 |
| We advocate for the comprehensive rights of people of short stature under Law 1275 of 5 January 2009, with a particular focus on health rights and those pertaining to the growth stage of individuals with short stature. | Raro
> Enfermedades raras: genéticas | Impactando en políticas y legislación
> Abogar por proyectos de ley y derechos de protección del paciente | 100 | International | Regularly | 119074161189 |
| We were convened by the Cuenta de Alto Costo [High-Cost Disease Fund] to assess patient requirements and support the inclusion of multiple sclerosis as a high-cost disease in Colombia. | Neurológico
> Esclerosis múltiple | Defensa de precios y asequibilidad
> Participar en negociaciones con el comité de revisión de precios | 100 | Local | Regularly | 119036936031 |
| In situations of drug supply shortages, direct consultations are conducted with manufacturers and legal action is pursued involving the EPS [Entidades Promotoras de Salud – Health-Promoting Entities], the Ministry of Health, and Invima [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance]. | Neurológico
> Esclerosis múltiple y otras enfermedades desmielinizantes | Defensa de precios y asequibilidad
> Llamada para precios de venta reducidos de los fabricantes | 100 | Regional | Rarely | 119079339064 |
| In situations of drug supply shortages, direct consultations are conducted with manufacturers and legal action is pursued involving the EPS [Entidades Promotoras de Salud – Health-Promoting Entities], the Ministry of Health, and Invima [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance]. | Neurológico
> Esclerosis múltiple y otras enfermedades desmielinizantes | Defensa de precios y asequibilidad
> Seguimiento y monitorización de precios de medicamentos/escasez de medicamentos | 100 | Regional | Rarely | 119079339064 |
| We were convened by the Cuenta de Alto Costo [High-Cost Disease Fund] to assess patient requirements and support the inclusion of multiple sclerosis as a high-cost disease in Colombia. | Neurológico
> Esclerosis múltiple | Defensa de precios y asequibilidad
> Abogando por la inclusión del producto en listas de reembolso/formularios nacionales | 100 | Local | Regularly | 119036936031 |
| We work in collaboration with the Ministry of Health and INVIMA [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance] to improve access to medicines for patients with EH [Enfermedad de Huntington - Huntington’s disease]. | Raro
> Enfermedades raras: la mayoría de los tipos | Mejora de las vías de acceso
> Facilitar el acceso equitativo a medicamentos/atención sanitaria | 5000 | National | Regularly | 119063359405 |
| There are no issues regarding prices, but there are issues concerning the supply and delivery of medications to patients. | Raro
> Síndrome de Marfan | Mejora de las vías de acceso
> Facilitar el acceso equitativo a medicamentos/atención sanitaria | 100 | National | Regularly | 119072874250 |
| We assist in resolving barriers with insurance providers. | Cáncer
> Cáncer: ginecológico | Mejora de las vías de acceso
> Facilitar el acceso equitativo a medicamentos/atención sanitaria | 10.000 | National | Regularly | 119073787924 |
| We were convened by the Cuenta de Alto Costo [High-Cost Disease Fund] to assess patient requirements and support for the inclusion of multiple sclerosis as a high-cost disease in Colombia. | Neurológico
> Esclerosis múltiple | Aportaciones del paciente basadas en evidencia
> Utiliza los conocimientos del paciente para tomar decisiones | 100 | Local | Regularly | 119036936031 |
| On some occasions, we have been invited by the government to engage with and work alongside the patient population. | Raro
> Enfermedades raras: la mayoría de los tipos | Gobernanza institucional
> Garantizar la representación en los órganos consultivos gubernamentales | 1000 | National | Rarely | 119040724879 |
| We help to address barriers with insurers and provide legal guidance on formal petitions and constitutional protection writs (tutelas), and we participate in the working groups of the Ministry of Health and Social Protection [in Colombia]. | Cáncer
> Cáncer: ginecológico | Gobernanza institucional
> Garantizar la representación en los órganos consultivos gubernamentales | 10.000 | National | Regularly | 119073787924 |
| I have been invited to participate in various roundtables at which this has been the subject under discussion. | Cáncer
> Cáncer: la mayoría de los tipos | Gobernanza institucional
> Trabajar de manera efectiva dentro de redes con múltiples partes interesadas | 5000 | International | Rarely | 119064285058 |
| We assist in resolving barriers with insurance providers. | Cáncer
> Cáncer: ginecológico | Defender los derechos del paciente/mejorar la calidad de vida
> Proteger/mejorar la experiencia del paciente | 10.000 | National | Regularly | 119073787924 |
| We advocate for the comprehensive rights of people of short stature under Law 1275 of 5 January 2009, with a particular focus on health rights and those pertaining to the growth stage of individuals with short stature. | Raro
> Enfermedades raras: genéticas | Defender los derechos del paciente/mejorar la calidad de vida
> Proteger/mejorar la experiencia del paciente | 100 | International | Regularly | 119074161189 |
| We help to address barriers with insurers and provide legal guidance on formal petitions and constitutional protection writs (tutelas), and we participate in the working groups of the Ministry of Health and Social Protection [in Colombia]. | Cáncer
> Cáncer: ginecológico | Defender los derechos del paciente/mejorar la calidad de vida
> Apoyo en acciones legales relacionadas con el tratamiento | 10.000 | National | Regularly | 119073787924 |
| We provide support through legal advisory services. | Neurológico
> Esclerosis múltiple | Defender los derechos del paciente/mejorar la calidad de vida
> Apoyo en acciones legales relacionadas con el tratamiento | 1000 | International | Sometimes | 119075928280 |
interacciones
acciones y defensa
5 menciones
