| We work in collaboration with the Ministry of Health and INVIMA [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance] to improve access to medicines for patients with EH [Enfermedad de Huntington - Huntington’s disease]. | Rare
> Maladies rares : la plupart des types | Partenariat réglementaire
> Travailler avec les organismes de réglementation | 5 000 | National | Regularly | 119063359405 |
| Meetings of the UPC [Unidad de Pago por Capitación – Capitation Payment Unit], INVIMA [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance], Superintendencia [Superintendencia Nacional de Salud – National Health Superintendency], Ministry, IETS [Instituto de Evaluación Tecnológica en Salud – Institute for Health Technology Assessment], and related bodies. | Santé générale
> Santé publique | Partenariat réglementaire
> Participer aux évaluations des technologies de santé (ETS) et aux examens de remboursement | 1 000 | International | Sometimes | 119064660391 |
| Meetings of the UPC [Unidad de Pago por Capitación – Capitation Payment Unit], INVIMA [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance], Superintendencia [Superintendencia Nacional de Salud – National Health Superintendency], Ministry, IETS [Instituto de Evaluación Tecnológica en Salud – Institute for Health Technology Assessment], and related bodies. | Santé générale
> Santé publique | Partenariat réglementaire
> Assister/faciliter des réunions avec des décideurs politiques/régulateurs | 1 000 | International | Sometimes | 119064660391 |
| Meetings with the Ministry of Health. | Cancer
> Cancer : sein | Partenariat réglementaire
> Assister/faciliter des réunions avec des décideurs politiques/régulateurs | 1 000 | National | Sometimes | 119074600945 |
| In situations of drug supply shortages, direct consultations are conducted with manufacturers and legal action is pursued involving the EPS [Entidades Promotoras de Salud – Health-Promoting Entities], the Ministry of Health, and Invima [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance]. | Neurologique
> Sclérose en plaques et autres maladies démyélinisantes | Partenariat réglementaire
> Assister/faciliter des réunions avec des décideurs politiques/régulateurs | 100 | Regional | Rarely | 119079339064 |
| We advocate for the comprehensive rights of people of short stature under Law 1275 of 5 January 2009, with a particular focus on health rights and those pertaining to the growth stage of individuals with short stature. | Rare
> Maladies rares : génétiques | Influencer les politiques et la législation
> Plaider pour des projets de loi et des droits de protection des patients | 100 | International | Regularly | 119074161189 |
| We were convened by the Cuenta de Alto Costo [High-Cost Disease Fund] to assess patient requirements and support the inclusion of multiple sclerosis as a high-cost disease in Colombia. | Neurologique
> Sclérose en plaques | Plaidoyer pour la tarification et l'accessibilité financière
> Participer aux négociations du comité d'examen des prix | 100 | Local | Regularly | 119036936031 |
| In situations of drug supply shortages, direct consultations are conducted with manufacturers and legal action is pursued involving the EPS [Entidades Promotoras de Salud – Health-Promoting Entities], the Ministry of Health, and Invima [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance]. | Neurologique
> Sclérose en plaques et autres maladies démyélinisantes | Plaidoyer pour la tarification et l'accessibilité financière
> Appel à la réduction des prix de vente des fabricants | 100 | Regional | Rarely | 119079339064 |
| In situations of drug supply shortages, direct consultations are conducted with manufacturers and legal action is pursued involving the EPS [Entidades Promotoras de Salud – Health-Promoting Entities], the Ministry of Health, and Invima [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance]. | Neurologique
> Sclérose en plaques et autres maladies démyélinisantes | Plaidoyer pour la tarification et l'accessibilité financière
> Suivi et surveillance des prix des médicaments/pénuries de médicaments | 100 | Regional | Rarely | 119079339064 |
| We were convened by the Cuenta de Alto Costo [High-Cost Disease Fund] to assess patient requirements and support the inclusion of multiple sclerosis as a high-cost disease in Colombia. | Neurologique
> Sclérose en plaques | Plaidoyer pour la tarification et l'accessibilité financière
> Plaidoyer pour l'inclusion du produit dans les listes de remboursement/formulaires nationaux | 100 | Local | Regularly | 119036936031 |
| We work in collaboration with the Ministry of Health and INVIMA [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance] to improve access to medicines for patients with EH [Enfermedad de Huntington - Huntington’s disease]. | Rare
> Maladies rares : la plupart des types | Amélioration des voies d'accès
> Faciliter l'accès équitable aux médicaments/soins de santé | 5 000 | National | Regularly | 119063359405 |
| There are no issues regarding prices, but there are issues concerning the supply and delivery of medications to patients. | Rare
> Syndrome de Marfan | Amélioration des voies d'accès
> Faciliter l'accès équitable aux médicaments/soins de santé | 100 | National | Regularly | 119072874250 |
| We assist in resolving barriers with insurance providers. | Cancer
> Cancer : gynécologique | Amélioration des voies d'accès
> Faciliter l'accès équitable aux médicaments/soins de santé | 10 000 | National | Regularly | 119073787924 |
| We were convened by the Cuenta de Alto Costo [High-Cost Disease Fund] to assess patient requirements and support for the inclusion of multiple sclerosis as a high-cost disease in Colombia. | Neurologique
> Sclérose en plaques | Contribution des patients fondée sur des données probantes
> Utilisez les informations sur les patients pour éclairer les décisions | 100 | Local | Regularly | 119036936031 |
| On some occasions, we have been invited by the government to engage with and work alongside the patient population. | Rare
> Maladies rares : la plupart des types | Gouvernance institutionnelle
> Assurer la représentation au sein des organes consultatifs gouvernementaux | 1 000 | National | Rarely | 119040724879 |
| We help to address barriers with insurers and provide legal guidance on formal petitions and constitutional protection writs (tutelas), and we participate in the working groups of the Ministry of Health and Social Protection [in Colombia]. | Cancer
> Cancer : gynécologique | Gouvernance institutionnelle
> Assurer la représentation au sein des organes consultatifs gouvernementaux | 10 000 | National | Regularly | 119073787924 |
| I have been invited to participate in various roundtables at which this has been the subject under discussion. | Cancer
> Cancer : la plupart des types | Gouvernance institutionnelle
> Travailler efficacement au sein de réseaux multi-parties prenantes | 5 000 | International | Rarely | 119064285058 |
| We assist in resolving barriers with insurance providers. | Cancer
> Cancer : gynécologique | Défense des droits des patients/amélioration de la qualité de vie
> Protéger/améliorer l'expérience du patient | 10 000 | National | Regularly | 119073787924 |
| We advocate for the comprehensive rights of people of short stature under Law 1275 of 5 January 2009, with a particular focus on health rights and those pertaining to the growth stage of individuals with short stature. | Rare
> Maladies rares : génétiques | Défense des droits des patients/amélioration de la qualité de vie
> Protéger/améliorer l'expérience du patient | 100 | International | Regularly | 119074161189 |
| We help to address barriers with insurers and provide legal guidance on formal petitions and constitutional protection writs (tutelas), and we participate in the working groups of the Ministry of Health and Social Protection [in Colombia]. | Cancer
> Cancer : gynécologique | Défense des droits des patients/amélioration de la qualité de vie
> Soutien dans les actions juridiques liées au traitement | 10 000 | National | Regularly | 119073787924 |
| We provide support through legal advisory services. | Neurologique
> Sclérose en plaques | Défense des droits des patients/amélioration de la qualité de vie
> Soutien dans les actions juridiques liées au traitement | 1 000 | International | Sometimes | 119075928280 |
interactions
actions et plaidoyer
5 mentions
