| We work in collaboration with the Ministry of Health and INVIMA [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance] to improve access to medicines for patients with EH [Enfermedad de Huntington - Huntington’s disease]. | 희귀
> 희귀 질환: 대부분의 유형 | 규제 파트너십
> 규제 기관과의 협력 | 5,000 | National | Regularly | 119063359405 |
| Meetings of the UPC [Unidad de Pago por Capitación – Capitation Payment Unit], INVIMA [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance], Superintendencia [Superintendencia Nacional de Salud – National Health Superintendency], Ministry, IETS [Instituto de Evaluación Tecnológica en Salud – Institute for Health Technology Assessment], and related bodies. | 일반 건강
> 공중 보건 | 규제 파트너십
> 건강기술평가(HTA) 및 급여 검토에 참여 | 1,000 | International | Sometimes | 119064660391 |
| Meetings of the UPC [Unidad de Pago por Capitación – Capitation Payment Unit], INVIMA [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance], Superintendencia [Superintendencia Nacional de Salud – National Health Superintendency], Ministry, IETS [Instituto de Evaluación Tecnológica en Salud – Institute for Health Technology Assessment], and related bodies. | 일반 건강
> 공중 보건 | 규제 파트너십
> 정책 입안자/규제 기관과의 회의 참석/진행 | 1,000 | International | Sometimes | 119064660391 |
| Meetings with the Ministry of Health. | 암
> 암: 유방 | 규제 파트너십
> 정책 입안자/규제 기관과의 회의 참석/진행 | 1,000 | National | Sometimes | 119074600945 |
| In situations of drug supply shortages, direct consultations are conducted with manufacturers and legal action is pursued involving the EPS [Entidades Promotoras de Salud – Health-Promoting Entities], the Ministry of Health, and Invima [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance]. | 신경학적
> 다발성 경화증 및 기타 탈수초성 질환 | 규제 파트너십
> 정책 입안자/규제 기관과의 회의 참석/진행 | 100 | Regional | Rarely | 119079339064 |
| We advocate for the comprehensive rights of people of short stature under Law 1275 of 5 January 2009, with a particular focus on health rights and those pertaining to the growth stage of individuals with short stature. | 희귀
> 희귀 질환: 유전성 | 정책 및 법률에 영향 미치기
> 환자 보호 법안 및 권리 옹호 | 100 | International | Regularly | 119074161189 |
| We were convened by the Cuenta de Alto Costo [High-Cost Disease Fund] to assess patient requirements and support the inclusion of multiple sclerosis as a high-cost disease in Colombia. | 신경학적
> 다발성 경화증 | 가격 책정 및 affordability 옹호
> 가격 검토 위원회 협상에 참여 | 100 | Local | Regularly | 119036936031 |
| In situations of drug supply shortages, direct consultations are conducted with manufacturers and legal action is pursued involving the EPS [Entidades Promotoras de Salud – Health-Promoting Entities], the Ministry of Health, and Invima [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance]. | 신경학적
> 다발성 경화증 및 기타 탈수초성 질환 | 가격 책정 및 affordability 옹호
> 제조업체의 판매 가격 인하 요청 | 100 | Regional | Rarely | 119079339064 |
| In situations of drug supply shortages, direct consultations are conducted with manufacturers and legal action is pursued involving the EPS [Entidades Promotoras de Salud – Health-Promoting Entities], the Ministry of Health, and Invima [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance]. | 신경학적
> 다발성 경화증 및 기타 탈수초성 질환 | 가격 책정 및 affordability 옹호
> 의약품 가격/의약품 부족 현황 추적 및 모니터링 | 100 | Regional | Rarely | 119079339064 |
| We were convened by the Cuenta de Alto Costo [High-Cost Disease Fund] to assess patient requirements and support the inclusion of multiple sclerosis as a high-cost disease in Colombia. | 신경학적
> 다발성 경화증 | 가격 책정 및 affordability 옹호
> 제품의 급여 목록/국가 처방집 등재 옹호 | 100 | Local | Regularly | 119036936031 |
| We work in collaboration with the Ministry of Health and INVIMA [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance] to improve access to medicines for patients with EH [Enfermedad de Huntington - Huntington’s disease]. | 희귀
> 희귀 질환: 대부분의 유형 | 접근 경로 개선
> 의약품/의료서비스에 대한 공평한 접근 촉진 | 5,000 | National | Regularly | 119063359405 |
| There are no issues regarding prices, but there are issues concerning the supply and delivery of medications to patients. | 희귀
> 마르판 증후군 | 접근 경로 개선
> 의약품/의료서비스에 대한 공평한 접근 촉진 | 100 | National | Regularly | 119072874250 |
| We assist in resolving barriers with insurance providers. | 암
> 암: 부인과 | 접근 경로 개선
> 의약품/의료서비스에 대한 공평한 접근 촉진 | 10,000 | National | Regularly | 119073787924 |
| We were convened by the Cuenta de Alto Costo [High-Cost Disease Fund] to assess patient requirements and support for the inclusion of multiple sclerosis as a high-cost disease in Colombia. | 신경학적
> 다발성 경화증 | 근거 기반 환자 의견
> 환자 인사이트를 활용하여 의사 결정에 반영하세요 | 100 | Local | Regularly | 119036936031 |
| On some occasions, we have been invited by the government to engage with and work alongside the patient population. | 희귀
> 희귀 질환: 대부분의 유형 | 기관 거버넌스
> 정부 자문 기구 내 대표성 확보 | 1,000 | National | Rarely | 119040724879 |
| We help to address barriers with insurers and provide legal guidance on formal petitions and constitutional protection writs (tutelas), and we participate in the working groups of the Ministry of Health and Social Protection [in Colombia]. | 암
> 암: 부인과 | 기관 거버넌스
> 정부 자문 기구 내 대표성 확보 | 10,000 | National | Regularly | 119073787924 |
| I have been invited to participate in various roundtables at which this has been the subject under discussion. | 암
> 암: 대부분의 유형 | 기관 거버넌스
> 다중 이해관계자 네트워크 내에서 효과적으로 협력하기 | 5,000 | International | Rarely | 119064285058 |
| We assist in resolving barriers with insurance providers. | 암
> 암: 부인과 | 환자 권리 보호/삶의 질 향상
> 환자 경험 보호/개선 | 10,000 | National | Regularly | 119073787924 |
| We advocate for the comprehensive rights of people of short stature under Law 1275 of 5 January 2009, with a particular focus on health rights and those pertaining to the growth stage of individuals with short stature. | 희귀
> 희귀 질환: 유전성 | 환자 권리 보호/삶의 질 향상
> 환자 경험 보호/개선 | 100 | International | Regularly | 119074161189 |
| We help to address barriers with insurers and provide legal guidance on formal petitions and constitutional protection writs (tutelas), and we participate in the working groups of the Ministry of Health and Social Protection [in Colombia]. | 암
> 암: 부인과 | 환자 권리 보호/삶의 질 향상
> 치료 관련 법적 조치 지원 | 10,000 | National | Regularly | 119073787924 |
| We provide support through legal advisory services. | 신경학적
> 다발성 경화증 | 환자 권리 보호/삶의 질 향상
> 치료 관련 법적 조치 지원 | 1,000 | International | Sometimes | 119075928280 |
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