| We work in collaboration with the Ministry of Health and INVIMA [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance] to improve access to medicines for patients with EH [Enfermedad de Huntington - Huntington’s disease]. | レア
> 希少疾患:ほとんどの種類 | 規制上のパートナーシップ
> 規制機関との連携 | 5,000 | National | Regularly | 119063359405 |
| Meetings of the UPC [Unidad de Pago por Capitación – Capitation Payment Unit], INVIMA [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance], Superintendencia [Superintendencia Nacional de Salud – National Health Superintendency], Ministry, IETS [Instituto de Evaluación Tecnológica en Salud – Institute for Health Technology Assessment], and related bodies. | 全般的な健康状態
> 公衆衛生 | 規制上のパートナーシップ
> 医療技術評価(HTA)および償還審査への参加 | 1,000 | International | Sometimes | 119064660391 |
| Meetings of the UPC [Unidad de Pago por Capitación – Capitation Payment Unit], INVIMA [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance], Superintendencia [Superintendencia Nacional de Salud – National Health Superintendency], Ministry, IETS [Instituto de Evaluación Tecnológica en Salud – Institute for Health Technology Assessment], and related bodies. | 全般的な健康状態
> 公衆衛生 | 規制上のパートナーシップ
> 政策立案者・規制当局との会議への出席・ファシリテーション | 1,000 | International | Sometimes | 119064660391 |
| Meetings with the Ministry of Health. | がん
> がん:乳房 | 規制上のパートナーシップ
> 政策立案者・規制当局との会議への出席・ファシリテーション | 1,000 | National | Sometimes | 119074600945 |
| In situations of drug supply shortages, direct consultations are conducted with manufacturers and legal action is pursued involving the EPS [Entidades Promotoras de Salud – Health-Promoting Entities], the Ministry of Health, and Invima [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance]. | 神経学的
> 多発性硬化症およびその他の脱髄疾患 | 規制上のパートナーシップ
> 政策立案者・規制当局との会議への出席・ファシリテーション | 100 | Regional | Rarely | 119079339064 |
| We advocate for the comprehensive rights of people of short stature under Law 1275 of 5 January 2009, with a particular focus on health rights and those pertaining to the growth stage of individuals with short stature. | レア
> まれな疾患:遺伝性 | 政策と法律への影響
> 患者保護法案と権利のための擁護活動 | 100 | International | Regularly | 119074161189 |
| We were convened by the Cuenta de Alto Costo [High-Cost Disease Fund] to assess patient requirements and support the inclusion of multiple sclerosis as a high-cost disease in Colombia. | 神経学的
> 多発性硬化症 | 価格設定と手頃な価格の擁護
> 価格審査委員会の交渉に参加する | 100 | Local | Regularly | 119036936031 |
| In situations of drug supply shortages, direct consultations are conducted with manufacturers and legal action is pursued involving the EPS [Entidades Promotoras de Salud – Health-Promoting Entities], the Ministry of Health, and Invima [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance]. | 神経学的
> 多発性硬化症およびその他の脱髄疾患 | 価格設定と手頃な価格の擁護
> メーカーからの販売価格引き下げの要請 | 100 | Regional | Rarely | 119079339064 |
| In situations of drug supply shortages, direct consultations are conducted with manufacturers and legal action is pursued involving the EPS [Entidades Promotoras de Salud – Health-Promoting Entities], the Ministry of Health, and Invima [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance]. | 神経学的
> 多発性硬化症およびその他の脱髄疾患 | 価格設定と手頃な価格の擁護
> 薬価の追跡・監視/医薬品不足 | 100 | Regional | Rarely | 119079339064 |
| We were convened by the Cuenta de Alto Costo [High-Cost Disease Fund] to assess patient requirements and support the inclusion of multiple sclerosis as a high-cost disease in Colombia. | 神経学的
> 多発性硬化症 | 価格設定と手頃な価格の擁護
> 製品の償還リスト/国家医薬品集への収載推進 | 100 | Local | Regularly | 119036936031 |
| We work in collaboration with the Ministry of Health and INVIMA [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance] to improve access to medicines for patients with EH [Enfermedad de Huntington - Huntington’s disease]. | レア
> 希少疾患:ほとんどの種類 | アクセス経路の改善
> 医薬品・医療への公平なアクセスを促進する | 5,000 | National | Regularly | 119063359405 |
| There are no issues regarding prices, but there are issues concerning the supply and delivery of medications to patients. | レア
> マルファン症候群 | アクセス経路の改善
> 医薬品・医療への公平なアクセスを促進する | 100 | National | Regularly | 119072874250 |
| We assist in resolving barriers with insurance providers. | がん
> がん:婦人科系 | アクセス経路の改善
> 医薬品・医療への公平なアクセスを促進する | 10,000 | National | Regularly | 119073787924 |
| We were convened by the Cuenta de Alto Costo [High-Cost Disease Fund] to assess patient requirements and support for the inclusion of multiple sclerosis as a high-cost disease in Colombia. | 神経学的
> 多発性硬化症 | エビデンスに基づく患者の意見
> 患者のインサイトを活用して意思決定に役立てる | 100 | Local | Regularly | 119036936031 |
| On some occasions, we have been invited by the government to engage with and work alongside the patient population. | レア
> 希少疾患:ほとんどの種類 | 機関ガバナンス
> 政府の諮問機関における代表性を確保する | 1,000 | National | Rarely | 119040724879 |
| We help to address barriers with insurers and provide legal guidance on formal petitions and constitutional protection writs (tutelas), and we participate in the working groups of the Ministry of Health and Social Protection [in Colombia]. | がん
> がん:婦人科系 | 機関ガバナンス
> 政府の諮問機関における代表性を確保する | 10,000 | National | Regularly | 119073787924 |
| I have been invited to participate in various roundtables at which this has been the subject under discussion. | がん
> がん:ほとんどの種類 | 機関ガバナンス
> マルチステークホルダーネットワーク内での効果的な協働 | 5,000 | International | Rarely | 119064285058 |
| We assist in resolving barriers with insurance providers. | がん
> がん:婦人科系 | 患者の権利の擁護/生活の質の向上
> 患者体験の保護・改善 | 10,000 | National | Regularly | 119073787924 |
| We advocate for the comprehensive rights of people of short stature under Law 1275 of 5 January 2009, with a particular focus on health rights and those pertaining to the growth stage of individuals with short stature. | レア
> まれな疾患:遺伝性 | 患者の権利の擁護/生活の質の向上
> 患者体験の保護・改善 | 100 | International | Regularly | 119074161189 |
| We help to address barriers with insurers and provide legal guidance on formal petitions and constitutional protection writs (tutelas), and we participate in the working groups of the Ministry of Health and Social Protection [in Colombia]. | がん
> がん:婦人科系 | 患者の権利の擁護/生活の質の向上
> 治療関連の法的措置におけるサポート | 10,000 | National | Regularly | 119073787924 |
| We provide support through legal advisory services. | 神経学的
> 多発性硬化症 | 患者の権利の擁護/生活の質の向上
> 治療関連の法的措置におけるサポート | 1,000 | International | Sometimes | 119075928280 |