| We work in collaboration with the Ministry of Health and INVIMA [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance] to improve access to medicines for patients with EH [Enfermedad de Huntington - Huntington’s disease]. | Rare
> Rare diseases: most types | Regulatory partnership
> Working with regulatory bodies | 5,000 | National | Regularly | 119063359405 |
| Meetings of the UPC [Unidad de Pago por Capitación – Capitation Payment Unit], INVIMA [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance], Superintendencia [Superintendencia Nacional de Salud – National Health Superintendency], Ministry, IETS [Instituto de Evaluación Tecnológica en Salud – Institute for Health Technology Assessment], and related bodies. | General health
> Public health | Regulatory partnership
> Participate in Health Technology Assessment (HTA) and reimbursement reviews | 1,000 | International | Sometimes | 119064660391 |
| Meetings of the UPC [Unidad de Pago por Capitación – Capitation Payment Unit], INVIMA [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance], Superintendencia [Superintendencia Nacional de Salud – National Health Superintendency], Ministry, IETS [Instituto de Evaluación Tecnológica en Salud – Institute for Health Technology Assessment], and related bodies. | General health
> Public health | Regulatory partnership
> Attend/facilitate meetings with policymakers/regulators | 1,000 | International | Sometimes | 119064660391 |
| Meetings with the Ministry of Health. | Cancer
> Cancer: breast | Regulatory partnership
> Attend/facilitate meetings with policymakers/regulators | 1,000 | National | Sometimes | 119074600945 |
| In situations of drug supply shortages, direct consultations are conducted with manufacturers and legal action is pursued involving the EPS [Entidades Promotoras de Salud – Health-Promoting Entities], the Ministry of Health, and Invima [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance]. | Neurological
> Multiple sclerosis and other demyelinating diseases | Regulatory partnership
> Attend/facilitate meetings with policymakers/regulators | 100 | Regional | Rarely | 119079339064 |
| We advocate for the comprehensive rights of people of short stature under Law 1275 of 5 January 2009, with a particular focus on health rights and those pertaining to the growth stage of individuals with short stature. | Rare
> Rare disorders: genetic | Impacting policy and legislation
> Advocate for patient protection bills and rights | 100 | International | Regularly | 119074161189 |
| We were convened by the Cuenta de Alto Costo [High-Cost Disease Fund] to assess patient requirements and support the inclusion of multiple sclerosis as a high-cost disease in Colombia. | Neurological
> Multiple sclerosis | Pricing and affordability advocacy
> Engage in price-review board negotiations | 100 | Local | Regularly | 119036936031 |
| In situations of drug supply shortages, direct consultations are conducted with manufacturers and legal action is pursued involving the EPS [Entidades Promotoras de Salud – Health-Promoting Entities], the Ministry of Health, and Invima [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance]. | Neurological
> Multiple sclerosis and other demyelinating diseases | Pricing and affordability advocacy
> Call for reduced selling prices from manufacturers | 100 | Regional | Rarely | 119079339064 |
| In situations of drug supply shortages, direct consultations are conducted with manufacturers and legal action is pursued involving the EPS [Entidades Promotoras de Salud – Health-Promoting Entities], the Ministry of Health, and Invima [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance]. | Neurological
> Multiple sclerosis and other demyelinating diseases | Pricing and affordability advocacy
> Tracking and monitoring drug pricing/drug shortages | 100 | Regional | Rarely | 119079339064 |
| We were convened by the Cuenta de Alto Costo [High-Cost Disease Fund] to assess patient requirements and support the inclusion of multiple sclerosis as a high-cost disease in Colombia. | Neurological
> Multiple sclerosis | Pricing and affordability advocacy
> Advocating for inclusion of product in reimbursement lists/national formularies | 100 | Local | Regularly | 119036936031 |
| We work in collaboration with the Ministry of Health and INVIMA [Instituto Nacional de Vigilancia de Medicamentos y Alimentos – National Institute for Food and Drug Surveillance] to improve access to medicines for patients with EH [Enfermedad de Huntington - Huntington’s disease]. | Rare
> Rare diseases: most types | Improving access pathways
> Facilitate equitable access to medicines/healthcare | 5,000 | National | Regularly | 119063359405 |
| There are no issues regarding prices, but there are issues concerning the supply and delivery of medications to patients. | Rare
> Marfan syndrome | Improving access pathways
> Facilitate equitable access to medicines/healthcare | 100 | National | Regularly | 119072874250 |
| We assist in resolving barriers with insurance providers. | Cancer
> Cancer: gynaecological | Improving access pathways
> Facilitate equitable access to medicines/healthcare | 10,000 | National | Regularly | 119073787924 |
| We were convened by the Cuenta de Alto Costo [High-Cost Disease Fund] to assess patient requirements and support for the inclusion of multiple sclerosis as a high-cost disease in Colombia. | Neurological
> Multiple sclerosis | Evidence-based patient input
> Use patient insights to inform decisions | 100 | Local | Regularly | 119036936031 |
| On some occasions, we have been invited by the government to engage with and work alongside the patient population. | Rare
> Rare diseases: most types | Institutional governance
> Ensure representation within governmental advisory bodies | 1,000 | National | Rarely | 119040724879 |
| We help to address barriers with insurers and provide legal guidance on formal petitions and constitutional protection writs (tutelas), and we participate in the working groups of the Ministry of Health and Social Protection [in Colombia]. | Cancer
> Cancer: gynaecological | Institutional governance
> Ensure representation within governmental advisory bodies | 10,000 | National | Regularly | 119073787924 |
| I have been invited to participate in various roundtables at which this has been the subject under discussion. | Cancer
> Cancer: most types | Institutional governance
> Working effectively within multi-stakeholder networks | 5,000 | International | Rarely | 119064285058 |
| We assist in resolving barriers with insurance providers. | Cancer
> Cancer: gynaecological | Upholding patient rights/improving quality of life
> Protecting/improving the patient experience | 10,000 | National | Regularly | 119073787924 |
| We advocate for the comprehensive rights of people of short stature under Law 1275 of 5 January 2009, with a particular focus on health rights and those pertaining to the growth stage of individuals with short stature. | Rare
> Rare disorders: genetic | Upholding patient rights/improving quality of life
> Protecting/improving the patient experience | 100 | International | Regularly | 119074161189 |
| We help to address barriers with insurers and provide legal guidance on formal petitions and constitutional protection writs (tutelas), and we participate in the working groups of the Ministry of Health and Social Protection [in Colombia]. | Cancer
> Cancer: gynaecological | Upholding patient rights/improving quality of life
> Support in treatment-related legal actions | 10,000 | National | Regularly | 119073787924 |
| We provide support through legal advisory services. | Neurological
> Multiple sclerosis | Upholding patient rights/improving quality of life
> Support in treatment-related legal actions | 1,000 | International | Sometimes | 119075928280 |
interactions
actions & advocacy
5 mentions
