| WHO, FDA [Food and Drug Administration], EU Drug Authorities. | Endokrin
> Skjoldbruskkirtelsygdomme | Regulatorisk partnerskab
> Arbejde med regulerende myndigheder | Over 100,000 | International | Regularly | 119052227880 |
| We are regularly consulted by the Commissie Wees [Commissie Weesgeneesmiddelen – Orphan Medicinal Products Committee] as well as by the Zorginstituut [Zorginstituut Nederland – National Health Care Institute]. | Hud
> Angioødem | Regulatorisk partnerskab
> Deltag i Health Technology Assessment (HTA) og refusionsgennemgange | 1.000 | National | Regularly | 114996612757 |
| Not regarding price — however, we do engage with the Zorginstituut [Zorginstituut Nederland – Netherlands Care Institute], for instance on matters such as the clinical necessity of medications. | Kræft
> Kræft: kolorektal | Regulatorisk partnerskab
> Deltag i Health Technology Assessment (HTA) og refusionsgennemgange | 1.000 | National | No | 114997734256 |
| As an organisation involved in HTA [Health Technology Assessment] procedures conducted by ZiN [Zorginstituut Nederland – Care Institute Netherlands]. | Sjælden
> Sjældne sygdomme: de fleste typer | Regulatorisk partnerskab
> Deltag i Health Technology Assessment (HTA) og refusionsgennemgange | 100 | National | Sometimes | 115012307788 |
| We are currently engaged in discussions regarding the potential reimbursement of a medicine — the first time in 50 years that our organisation has been involved in such a process. | Patientadvokatur
> Patientadvokatur | Regulatorisk partnerskab
> Deltag i Health Technology Assessment (HTA) og refusionsgennemgange | 100 | National | Rarely | 115028420951 |
| We are involved in discussions regarding the reimbursement of a medicine — the first time in over 50 years that we have participated in such a process. | Sjælden
> Sjældne sygdomme: genetisk | Regulatorisk partnerskab
> Deltag i Health Technology Assessment (HTA) og refusionsgennemgange | 100 | National | Rarely | 115028593759 |
| On an occasional basis, we are approached by ZiN [Zorginstituut Nederland – Dutch National Health Care Institute] to provide an opinion on the introduction of medicines. | Gynækologisk
> Endometriose | Regulatorisk partnerskab
> Deltag i Health Technology Assessment (HTA) og refusionsgennemgange | 1.000 | National | Rarely | 115035834547 |
| We participate in consultations within the infectious disease working group of the HorizonScan programme of the Zorginstituut [Zorginstituut Nederland – Dutch National Health Care Institute]. | HIV
> HIV | Regulatorisk partnerskab
> Deltag i Health Technology Assessment (HTA) og refusionsgennemgange | 5.000 | National | Sometimes | 115046925774 |
| We are regularly consulted by the Commissie Wees [Commissie Weesgeneesmiddelen – Orphan Medicinal Products Committee] as well as by the Zorginstituut [Zorginstituut Nederland – National Health Care Institute]. | Hud
> Angioødem | Regulatorisk partnerskab
> Deltag i/faciliter møder med politiske beslutningstagere/regulatorer | 1.000 | National | Regularly | 114996612757 |
| We participate in consultations within the infectious disease working group of the HorizonScan programme of the Zorginstituut [Zorginstituut Nederland – Dutch National Health Care Institute]. | HIV
> HIV | Regulatorisk partnerskab
> Deltag i/faciliter møder med politiske beslutningstagere/regulatorer | 5.000 | National | Sometimes | 115046925774 |
| We conduct this work under the umbrella of the NFK [Nederlandse Federatie van Kankerpatiëntenorganisaties – Dutch Federation of Cancer Patient Organisations]. | Kræft
> Cancer: hoved & hals | Regulatorisk partnerskab
> Med andre sundhedsforkæmpere | 1.000 | National | Regularly | 115028445799 |
| Collaborate with ACN [Action Cancer Network], which is based in Brussels. | Generelt helbred
> Forskellige fællesskaber | Regulatorisk partnerskab
> Med andre sundhedsforkæmpere | 100 | International | Sometimes | 115049346221 |
| We work together with ACN [Cittadinanzattiva-Active Citizenship Network], as we are a small foundation. | Generelt helbred
> Forskellige fællesskaber | Regulatorisk partnerskab
> Med andre sundhedsforkæmpere | We do not communicate with patients directly | International | Sometimes | 119069882547 |
| We are engaged in discussions with, for example, VWS [Ministerie van Volksgezondheid, Welzijn en Sport – Ministry of Health, Welfare and Sport] and pharmaceutical manufacturers with regard to medicines subject to the sluice procedure. | Sjælden
> Sjældne sygdomme: blod | Indflydelse på politik og lovgivning
> Påvirk sundhedspolitik og lovgivning | 100 | National | Sometimes | 115020760936 |
| We are engaged in discussions with, for example, VWS [Ministerie van Volksgezondheid, Welzijn en Sport – Ministry of Health, Welfare and Sport] and pharmaceutical manufacturers with regard to medicines subject to the sluice procedure [expensive specialist medicines that are placed in the "geneesmiddelensluis" (medicine lock or gateway procedure) before they can be routinely reimbursed by the Dutch healthcare system. The idea is that expensive medicines do not automatically flow into the reimbursement system. They first pass through a "gate" where their value and price are evaluated.] | Sjælden
> Sjældne sygdomme: blod | Prisfastsættelse og overkommelighed
> Deltag i forhandlinger med prisrevisionsnævnet | 100 | National | Sometimes | 115020760936 |
| We are currently engaged in discussions regarding the potential reimbursement of a medicine — the first time in 50 years that our organisation has been involved in such a process. | Patientadvokatur
> Patientadvokatur | Prisfastsættelse og overkommelighed
> Deltag i forhandlinger med prisrevisionsnævnet | 100 | National | Rarely | 115028420951 |
| EPECS [European Patients Empowerment for Customised Solutions] collaborates with ACN [Cittadinanzattiva-Active Citizenship Network], which is based in Brussels. Together, we address issues such as vaccination policy, the associated costs, and access for individuals in vulnerable circumstances. | Generelt helbred
> Forskellige fællesskaber | Prisfastsættelse og overkommelighed
> Adresser omkostningsbarrierer for lavindkomst- og sårbare personer | 100 | International | Sometimes | 115049346221 |
| We work together with Active Citizen Network, as we are a small foundation. Vaccination issues, access for all, ostomy issues [in the Netherlands]. | Generelt helbred
> Forskellige fællesskaber | Forbedring af adgangsveje
> Fremme retfærdig adgang til medicin/sundhedspleje | We do not communicate with patients directly | International | Sometimes | 119069882547 |
| EPECS [European Patients Empowerment for Customised Solutions] collaborates with ACN [Cittadinanzattiva-Active Citizenship Network], which is based in Brussels. Together, we address issues such as vaccination policy, the associated costs, and access for individuals in vulnerable circumstances. | Generelt helbred
> Forskellige fællesskaber | Forbedring af adgangsveje
> Fortaler for bredere vaccinationsadgang | 100 | International | Sometimes | 115049346221 |
| We work together with Active Citizen Network, as we are a small foundation. Vaccination issues, access for all, ostomy issues [in the Netherlands]. | Generelt helbred
> Forskellige fællesskaber | Forbedring af adgangsveje
> Fortaler for bredere vaccinationsadgang | We do not communicate with patients directly | International | Sometimes | 119069882547 |
| Introduction of a new (orphan) medicine. | Patientadvokatur
> Patientadvokatur | Forbedring af adgangsveje
> Forbedring af adgangen til sjældne/ultrasjældne behandlinger | 5.000 | National | Sometimes | 115029242573 |
| ERS [European Respiratory Society] EMA [European Medicines Agency] ELF [European Lung Foundation] EURORDIS [European Organisation for Rare Diseases]. | Immun
> Sarkoidose | Institutionel styring
> Effektivt arbejde i netværk med flere interessenter | 5.000 | National | Regularly | 114996748265 |
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