| WHO, FDA [Food and Drug Administration], EU Drug Authorities. | 內分泌
> 甲狀腺疾病 | 監管合作關係
> 與監管機構合作 | Over 100,000 | International | Regularly | 119052227880 |
| We are regularly consulted by the Commissie Wees [Commissie Weesgeneesmiddelen – Orphan Medicinal Products Committee] as well as by the Zorginstituut [Zorginstituut Nederland – National Health Care Institute]. | 皮膚
> 血管性水腫 | 監管合作關係
> 參與健康技術評估（HTA）及給付審查 | 1,000 | National | Regularly | 114996612757 |
| Not regarding price — however, we do engage with the Zorginstituut [Zorginstituut Nederland – Netherlands Care Institute], for instance on matters such as the clinical necessity of medications. | 巨蟹座
> 癌症：大腸直腸癌 | 監管合作關係
> 參與健康技術評估（HTA）及給付審查 | 1,000 | National | No | 114997734256 |
| As an organisation involved in HTA [Health Technology Assessment] procedures conducted by ZiN [Zorginstituut Nederland – Care Institute Netherlands]. | 稀有
> 罕見疾病：大多數類型 | 監管合作關係
> 參與健康技術評估（HTA）及給付審查 | 100 | National | Sometimes | 115012307788 |
| We are currently engaged in discussions regarding the potential reimbursement of a medicine — the first time in 50 years that our organisation has been involved in such a process. | 病患倡導
> 病患倡導 | 監管合作關係
> 參與健康技術評估（HTA）及給付審查 | 100 | National | Rarely | 115028420951 |
| We are involved in discussions regarding the reimbursement of a medicine — the first time in over 50 years that we have participated in such a process. | 稀有
> 罕見疾病：遺傳性 | 監管合作關係
> 參與健康技術評估（HTA）及給付審查 | 100 | National | Rarely | 115028593759 |
| On an occasional basis, we are approached by ZiN [Zorginstituut Nederland – Dutch National Health Care Institute] to provide an opinion on the introduction of medicines. | 婦科
> 子宮內膜異位症 | 監管合作關係
> 參與健康技術評估（HTA）及給付審查 | 1,000 | National | Rarely | 115035834547 |
| We participate in consultations within the infectious disease working group of the HorizonScan programme of the Zorginstituut [Zorginstituut Nederland – Dutch National Health Care Institute]. | HIV
> HIV | 監管合作關係
> 參與健康技術評估（HTA）及給付審查 | 5,000 | National | Sometimes | 115046925774 |
| We are regularly consulted by the Commissie Wees [Commissie Weesgeneesmiddelen – Orphan Medicinal Products Committee] as well as by the Zorginstituut [Zorginstituut Nederland – National Health Care Institute]. | 皮膚
> 血管性水腫 | 監管合作關係
> 出席/主持與政策制定者/監管機構的會議 | 1,000 | National | Regularly | 114996612757 |
| We participate in consultations within the infectious disease working group of the HorizonScan programme of the Zorginstituut [Zorginstituut Nederland – Dutch National Health Care Institute]. | HIV
> HIV | 監管合作關係
> 出席/主持與政策制定者/監管機構的會議 | 5,000 | National | Sometimes | 115046925774 |
| We conduct this work under the umbrella of the NFK [Nederlandse Federatie van Kankerpatiëntenorganisaties – Dutch Federation of Cancer Patient Organisations]. | 巨蟹座
> 癌症：頭頸部 | 監管合作關係
> 與其他醫療倡導者 | 1,000 | National | Regularly | 115028445799 |
| Collaborate with ACN [Action Cancer Network], which is based in Brussels. | 一般健康
> 多元社群 | 監管合作關係
> 與其他醫療倡導者 | 100 | International | Sometimes | 115049346221 |
| We work together with ACN [Cittadinanzattiva-Active Citizenship Network], as we are a small foundation. | 一般健康
> 多元社群 | 監管合作關係
> 與其他醫療倡導者 | We do not communicate with patients directly | International | Sometimes | 119069882547 |
| We are engaged in discussions with, for example, VWS [Ministerie van Volksgezondheid, Welzijn en Sport – Ministry of Health, Welfare and Sport] and pharmaceutical manufacturers with regard to medicines subject to the sluice procedure. | 稀有
> 罕見疾病：血液 | 影響政策與立法
> 影響醫療保健政策與法規 | 100 | National | Sometimes | 115020760936 |
| We are engaged in discussions with, for example, VWS [Ministerie van Volksgezondheid, Welzijn en Sport – Ministry of Health, Welfare and Sport] and pharmaceutical manufacturers with regard to medicines subject to the sluice procedure [expensive specialist medicines that are placed in the "geneesmiddelensluis" (medicine lock or gateway procedure) before they can be routinely reimbursed by the Dutch healthcare system. The idea is that expensive medicines do not automatically flow into the reimbursement system. They first pass through a "gate" where their value and price are evaluated.] | 稀有
> 罕見疾病：血液 | 定價與可負擔性倡議
> 參與價格審查委員會談判 | 100 | National | Sometimes | 115020760936 |
| We are currently engaged in discussions regarding the potential reimbursement of a medicine — the first time in 50 years that our organisation has been involved in such a process. | 病患倡導
> 病患倡導 | 定價與可負擔性倡議
> 參與價格審查委員會談判 | 100 | National | Rarely | 115028420951 |
| EPECS [European Patients Empowerment for Customised Solutions] collaborates with ACN [Cittadinanzattiva-Active Citizenship Network], which is based in Brussels. Together, we address issues such as vaccination policy, the associated costs, and access for individuals in vulnerable circumstances. | 一般健康
> 多元社群 | 定價與可負擔性倡議
> 解決低收入及弱勢族群的費用負擔問題 | 100 | International | Sometimes | 115049346221 |
| We work together with Active Citizen Network, as we are a small foundation. Vaccination issues, access for all, ostomy issues [in the Netherlands]. | 一般健康
> 多元社群 | 改善存取路徑
> 促進藥品/醫療保健的公平取得 | We do not communicate with patients directly | International | Sometimes | 119069882547 |
| EPECS [European Patients Empowerment for Customised Solutions] collaborates with ACN [Cittadinanzattiva-Active Citizenship Network], which is based in Brussels. Together, we address issues such as vaccination policy, the associated costs, and access for individuals in vulnerable circumstances. | 一般健康
> 多元社群 | 改善存取路徑
> 倡導更廣泛的疫苗取得管道 | 100 | International | Sometimes | 115049346221 |
| We work together with Active Citizen Network, as we are a small foundation. Vaccination issues, access for all, ostomy issues [in the Netherlands]. | 一般健康
> 多元社群 | 改善存取路徑
> 倡導更廣泛的疫苗取得管道 | We do not communicate with patients directly | International | Sometimes | 119069882547 |
| Introduction of a new (orphan) medicine. | 病患倡導
> 病患倡導 | 改善存取路徑
> 改善罕見/極罕見療法的取得管道 | 5,000 | National | Sometimes | 115029242573 |
| ERS [European Respiratory Society] EMA [European Medicines Agency] ELF [European Lung Foundation] EURORDIS [European Organisation for Rare Diseases]. | 免疫
> 結節病 | 機構治理
> 在多方利害關係人網絡中有效運作 | 5,000 | National | Regularly | 114996748265 |
互動
行動與倡議
13 提及
