| WHO, FDA [Food and Drug Administration], EU Drug Authorities. | 内分泌
> 甲状腺疾病 | 监管合作伙伴关系
> 与监管机构合作 | Over 100,000 | International | Regularly | 119052227880 |
| We are regularly consulted by the Commissie Wees [Commissie Weesgeneesmiddelen – Orphan Medicinal Products Committee] as well as by the Zorginstituut [Zorginstituut Nederland – National Health Care Institute]. | 皮肤
> 血管性水肿 | 监管合作伙伴关系
> 参与卫生技术评估（HTA）和报销审查 | 1,000 | National | Regularly | 114996612757 |
| Not regarding price — however, we do engage with the Zorginstituut [Zorginstituut Nederland – Netherlands Care Institute], for instance on matters such as the clinical necessity of medications. | 癌症
> 癌症：结直肠癌 | 监管合作伙伴关系
> 参与卫生技术评估（HTA）和报销审查 | 1,000 | National | No | 114997734256 |
| As an organisation involved in HTA [Health Technology Assessment] procedures conducted by ZiN [Zorginstituut Nederland – Care Institute Netherlands]. | 稀有
> 罕见病：大多数类型 | 监管合作伙伴关系
> 参与卫生技术评估（HTA）和报销审查 | 100 | National | Sometimes | 115012307788 |
| We are currently engaged in discussions regarding the potential reimbursement of a medicine — the first time in 50 years that our organisation has been involved in such a process. | 患者权益倡导
> 患者权益倡导 | 监管合作伙伴关系
> 参与卫生技术评估（HTA）和报销审查 | 100 | National | Rarely | 115028420951 |
| We are involved in discussions regarding the reimbursement of a medicine — the first time in over 50 years that we have participated in such a process. | 稀有
> 罕见病：遗传性 | 监管合作伙伴关系
> 参与卫生技术评估（HTA）和报销审查 | 100 | National | Rarely | 115028593759 |
| On an occasional basis, we are approached by ZiN [Zorginstituut Nederland – Dutch National Health Care Institute] to provide an opinion on the introduction of medicines. | 妇科
> 子宫内膜异位症 | 监管合作伙伴关系
> 参与卫生技术评估（HTA）和报销审查 | 1,000 | National | Rarely | 115035834547 |
| We participate in consultations within the infectious disease working group of the HorizonScan programme of the Zorginstituut [Zorginstituut Nederland – Dutch National Health Care Institute]. | HIV
> HIV | 监管合作伙伴关系
> 参与卫生技术评估（HTA）和报销审查 | 5,000 | National | Sometimes | 115046925774 |
| We are regularly consulted by the Commissie Wees [Commissie Weesgeneesmiddelen – Orphan Medicinal Products Committee] as well as by the Zorginstituut [Zorginstituut Nederland – National Health Care Institute]. | 皮肤
> 血管性水肿 | 监管合作伙伴关系
> 参加/主持与政策制定者/监管机构的会议 | 1,000 | National | Regularly | 114996612757 |
| We participate in consultations within the infectious disease working group of the HorizonScan programme of the Zorginstituut [Zorginstituut Nederland – Dutch National Health Care Institute]. | HIV
> HIV | 监管合作伙伴关系
> 参加/主持与政策制定者/监管机构的会议 | 5,000 | National | Sometimes | 115046925774 |
| We conduct this work under the umbrella of the NFK [Nederlandse Federatie van Kankerpatiëntenorganisaties – Dutch Federation of Cancer Patient Organisations]. | 癌症
> 癌症：头颈部 | 监管合作伙伴关系
> 与其他医疗保健倡导者 | 1,000 | National | Regularly | 115028445799 |
| Collaborate with ACN [Action Cancer Network], which is based in Brussels. | 总体健康
> 多元化社区 | 监管合作伙伴关系
> 与其他医疗保健倡导者 | 100 | International | Sometimes | 115049346221 |
| We work together with ACN [Cittadinanzattiva-Active Citizenship Network], as we are a small foundation. | 总体健康
> 多元化社区 | 监管合作伙伴关系
> 与其他医疗保健倡导者 | We do not communicate with patients directly | International | Sometimes | 119069882547 |
| We are engaged in discussions with, for example, VWS [Ministerie van Volksgezondheid, Welzijn en Sport – Ministry of Health, Welfare and Sport] and pharmaceutical manufacturers with regard to medicines subject to the sluice procedure. | 稀有
> 罕见病：血液 | 影响政策和立法
> 影响医疗保健政策和立法 | 100 | National | Sometimes | 115020760936 |
| We are engaged in discussions with, for example, VWS [Ministerie van Volksgezondheid, Welzijn en Sport – Ministry of Health, Welfare and Sport] and pharmaceutical manufacturers with regard to medicines subject to the sluice procedure [expensive specialist medicines that are placed in the "geneesmiddelensluis" (medicine lock or gateway procedure) before they can be routinely reimbursed by the Dutch healthcare system. The idea is that expensive medicines do not automatically flow into the reimbursement system. They first pass through a "gate" where their value and price are evaluated.] | 稀有
> 罕见病：血液 | 定价与可负担性倡导
> 参与价格审查委员会谈判 | 100 | National | Sometimes | 115020760936 |
| We are currently engaged in discussions regarding the potential reimbursement of a medicine — the first time in 50 years that our organisation has been involved in such a process. | 患者权益倡导
> 患者权益倡导 | 定价与可负担性倡导
> 参与价格审查委员会谈判 | 100 | National | Rarely | 115028420951 |
| EPECS [European Patients Empowerment for Customised Solutions] collaborates with ACN [Cittadinanzattiva-Active Citizenship Network], which is based in Brussels. Together, we address issues such as vaccination policy, the associated costs, and access for individuals in vulnerable circumstances. | 总体健康
> 多元化社区 | 定价与可负担性倡导
> 解决低收入和弱势群体面临的费用障碍 | 100 | International | Sometimes | 115049346221 |
| We work together with Active Citizen Network, as we are a small foundation. Vaccination issues, access for all, ostomy issues [in the Netherlands]. | 总体健康
> 多元化社区 | 改善访问路径
> 促进公平获取药品/医疗保健 | We do not communicate with patients directly | International | Sometimes | 119069882547 |
| EPECS [European Patients Empowerment for Customised Solutions] collaborates with ACN [Cittadinanzattiva-Active Citizenship Network], which is based in Brussels. Together, we address issues such as vaccination policy, the associated costs, and access for individuals in vulnerable circumstances. | 总体健康
> 多元化社区 | 改善访问路径
> 倡导更广泛的疫苗获取渠道 | 100 | International | Sometimes | 115049346221 |
| We work together with Active Citizen Network, as we are a small foundation. Vaccination issues, access for all, ostomy issues [in the Netherlands]. | 总体健康
> 多元化社区 | 改善访问路径
> 倡导更广泛的疫苗获取渠道 | We do not communicate with patients directly | International | Sometimes | 119069882547 |
| Introduction of a new (orphan) medicine. | 患者权益倡导
> 患者权益倡导 | 改善访问路径
> 改善罕见/超罕见疗法的获取途径 | 5,000 | National | Sometimes | 115029242573 |
| ERS [European Respiratory Society] EMA [European Medicines Agency] ELF [European Lung Foundation] EURORDIS [European Organisation for Rare Diseases]. | 免疫
> 结节病 | 机构治理
> 在多利益相关方网络中高效协作 | 5,000 | National | Regularly | 114996748265 |
互动
行动与倡导
13 提及
