| WHO, FDA [Food and Drug Administration], EU Drug Authorities. | 内分泌
> 甲状腺の状態 | 規制上のパートナーシップ
> 規制機関との連携 | Over 100,000 | International | Regularly | 119052227880 |
| We are regularly consulted by the Commissie Wees [Commissie Weesgeneesmiddelen – Orphan Medicinal Products Committee] as well as by the Zorginstituut [Zorginstituut Nederland – National Health Care Institute]. | スキン
> 血管性浮腫 | 規制上のパートナーシップ
> 医療技術評価（HTA）および償還審査への参加 | 1,000 | National | Regularly | 114996612757 |
| Not regarding price — however, we do engage with the Zorginstituut [Zorginstituut Nederland – Netherlands Care Institute], for instance on matters such as the clinical necessity of medications. | がん
> がん：大腸がん | 規制上のパートナーシップ
> 医療技術評価（HTA）および償還審査への参加 | 1,000 | National | No | 114997734256 |
| As an organisation involved in HTA [Health Technology Assessment] procedures conducted by ZiN [Zorginstituut Nederland – Care Institute Netherlands]. | レア
> 希少疾患：ほとんどの種類 | 規制上のパートナーシップ
> 医療技術評価（HTA）および償還審査への参加 | 100 | National | Sometimes | 115012307788 |
| We are currently engaged in discussions regarding the potential reimbursement of a medicine — the first time in 50 years that our organisation has been involved in such a process. | 患者擁護
> 患者擁護 | 規制上のパートナーシップ
> 医療技術評価（HTA）および償還審査への参加 | 100 | National | Rarely | 115028420951 |
| We are involved in discussions regarding the reimbursement of a medicine — the first time in over 50 years that we have participated in such a process. | レア
> まれな疾患：遺伝性 | 規制上のパートナーシップ
> 医療技術評価（HTA）および償還審査への参加 | 100 | National | Rarely | 115028593759 |
| On an occasional basis, we are approached by ZiN [Zorginstituut Nederland – Dutch National Health Care Institute] to provide an opinion on the introduction of medicines. | 婦人科
> 子宮内膜症 | 規制上のパートナーシップ
> 医療技術評価（HTA）および償還審査への参加 | 1,000 | National | Rarely | 115035834547 |
| We participate in consultations within the infectious disease working group of the HorizonScan programme of the Zorginstituut [Zorginstituut Nederland – Dutch National Health Care Institute]. | HIV
> HIV | 規制上のパートナーシップ
> 医療技術評価（HTA）および償還審査への参加 | 5,000 | National | Sometimes | 115046925774 |
| We are regularly consulted by the Commissie Wees [Commissie Weesgeneesmiddelen – Orphan Medicinal Products Committee] as well as by the Zorginstituut [Zorginstituut Nederland – National Health Care Institute]. | スキン
> 血管性浮腫 | 規制上のパートナーシップ
> 政策立案者・規制当局との会議への出席・ファシリテーション | 1,000 | National | Regularly | 114996612757 |
| We participate in consultations within the infectious disease working group of the HorizonScan programme of the Zorginstituut [Zorginstituut Nederland – Dutch National Health Care Institute]. | HIV
> HIV | 規制上のパートナーシップ
> 政策立案者・規制当局との会議への出席・ファシリテーション | 5,000 | National | Sometimes | 115046925774 |
| We conduct this work under the umbrella of the NFK [Nederlandse Federatie van Kankerpatiëntenorganisaties – Dutch Federation of Cancer Patient Organisations]. | がん
> がん：頭部・頸部 | 規制上のパートナーシップ
> 他の医療擁護者と | 1,000 | National | Regularly | 115028445799 |
| Collaborate with ACN [Action Cancer Network], which is based in Brussels. | 全般的な健康状態
> 多様なコミュニティ | 規制上のパートナーシップ
> 他の医療擁護者と | 100 | International | Sometimes | 115049346221 |
| We work together with ACN [Cittadinanzattiva-Active Citizenship Network], as we are a small foundation. | 全般的な健康状態
> 多様なコミュニティ | 規制上のパートナーシップ
> 他の医療擁護者と | We do not communicate with patients directly | International | Sometimes | 119069882547 |
| We are engaged in discussions with, for example, VWS [Ministerie van Volksgezondheid, Welzijn en Sport – Ministry of Health, Welfare and Sport] and pharmaceutical manufacturers with regard to medicines subject to the sluice procedure. | レア
> 希少疾患：血液 | 政策と法律への影響
> 医療政策と法律に影響を与える | 100 | National | Sometimes | 115020760936 |
| We are engaged in discussions with, for example, VWS [Ministerie van Volksgezondheid, Welzijn en Sport – Ministry of Health, Welfare and Sport] and pharmaceutical manufacturers with regard to medicines subject to the sluice procedure [expensive specialist medicines that are placed in the "geneesmiddelensluis" (medicine lock or gateway procedure) before they can be routinely reimbursed by the Dutch healthcare system. The idea is that expensive medicines do not automatically flow into the reimbursement system. They first pass through a "gate" where their value and price are evaluated.] | レア
> 希少疾患：血液 | 価格設定と手頃な価格の擁護
> 価格審査委員会の交渉に参加する | 100 | National | Sometimes | 115020760936 |
| We are currently engaged in discussions regarding the potential reimbursement of a medicine — the first time in 50 years that our organisation has been involved in such a process. | 患者擁護
> 患者擁護 | 価格設定と手頃な価格の擁護
> 価格審査委員会の交渉に参加する | 100 | National | Rarely | 115028420951 |
| EPECS [European Patients Empowerment for Customised Solutions] collaborates with ACN [Cittadinanzattiva-Active Citizenship Network], which is based in Brussels. Together, we address issues such as vaccination policy, the associated costs, and access for individuals in vulnerable circumstances. | 全般的な健康状態
> 多様なコミュニティ | 価格設定と手頃な価格の擁護
> 低所得者や脆弱な立場にある人々のコスト面での障壁に対処する | 100 | International | Sometimes | 115049346221 |
| We work together with Active Citizen Network, as we are a small foundation. Vaccination issues, access for all, ostomy issues [in the Netherlands]. | 全般的な健康状態
> 多様なコミュニティ | アクセス経路の改善
> 医薬品・医療への公平なアクセスを促進する | We do not communicate with patients directly | International | Sometimes | 119069882547 |
| EPECS [European Patients Empowerment for Customised Solutions] collaborates with ACN [Cittadinanzattiva-Active Citizenship Network], which is based in Brussels. Together, we address issues such as vaccination policy, the associated costs, and access for individuals in vulnerable circumstances. | 全般的な健康状態
> 多様なコミュニティ | アクセス経路の改善
> より広いワクチンアクセスを推進する | 100 | International | Sometimes | 115049346221 |
| We work together with Active Citizen Network, as we are a small foundation. Vaccination issues, access for all, ostomy issues [in the Netherlands]. | 全般的な健康状態
> 多様なコミュニティ | アクセス経路の改善
> より広いワクチンアクセスを推進する | We do not communicate with patients directly | International | Sometimes | 119069882547 |
| Introduction of a new (orphan) medicine. | 患者擁護
> 患者擁護 | アクセス経路の改善
> 希少・超希少疾患治療へのアクセス改善 | 5,000 | National | Sometimes | 115029242573 |
| ERS [European Respiratory Society] EMA [European Medicines Agency] ELF [European Lung Foundation] EURORDIS [European Organisation for Rare Diseases]. | 免疫
> サルコイドーシス | 機関ガバナンス
> マルチステークホルダーネットワーク内での効果的な協働 | 5,000 | National | Regularly | 114996748265 |
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