| WHO, FDA [Food and Drug Administration], EU Drug Authorities. | Endócrino
> Condições da tireoide | Parceria regulatória
> Trabalhando com órgãos reguladores | Over 100,000 | International | Regularly | 119052227880 |
| We are regularly consulted by the Commissie Wees [Commissie Weesgeneesmiddelen – Orphan Medicinal Products Committee] as well as by the Zorginstituut [Zorginstituut Nederland – National Health Care Institute]. | Pele
> Angioedema | Parceria regulatória
> Participar em avaliações de Avaliação de Tecnologia em Saúde (ATS) e reembolso | 1.000 | National | Regularly | 114996612757 |
| Not regarding price — however, we do engage with the Zorginstituut [Zorginstituut Nederland – Netherlands Care Institute], for instance on matters such as the clinical necessity of medications. | Câncer
> Câncer: colorretal | Parceria regulatória
> Participar em avaliações de Avaliação de Tecnologia em Saúde (ATS) e reembolso | 1.000 | National | No | 114997734256 |
| As an organisation involved in HTA [Health Technology Assessment] procedures conducted by ZiN [Zorginstituut Nederland – Care Institute Netherlands]. | Raro
> Doenças raras: maioria dos tipos | Parceria regulatória
> Participar em avaliações de Avaliação de Tecnologia em Saúde (ATS) e reembolso | 100 | National | Sometimes | 115012307788 |
| We are currently engaged in discussions regarding the potential reimbursement of a medicine — the first time in 50 years that our organisation has been involved in such a process. | Defesa do paciente
> Defesa do paciente | Parceria regulatória
> Participar em avaliações de Avaliação de Tecnologia em Saúde (ATS) e reembolso | 100 | National | Rarely | 115028420951 |
| We are involved in discussions regarding the reimbursement of a medicine — the first time in over 50 years that we have participated in such a process. | Raro
> Doenças raras: genéticas | Parceria regulatória
> Participar em avaliações de Avaliação de Tecnologia em Saúde (ATS) e reembolso | 100 | National | Rarely | 115028593759 |
| On an occasional basis, we are approached by ZiN [Zorginstituut Nederland – Dutch National Health Care Institute] to provide an opinion on the introduction of medicines. | Ginecológico
> Endometriose | Parceria regulatória
> Participar em avaliações de Avaliação de Tecnologia em Saúde (ATS) e reembolso | 1.000 | National | Rarely | 115035834547 |
| We participate in consultations within the infectious disease working group of the HorizonScan programme of the Zorginstituut [Zorginstituut Nederland – Dutch National Health Care Institute]. | HIV
> HIV | Parceria regulatória
> Participar em avaliações de Avaliação de Tecnologia em Saúde (ATS) e reembolso | 5.000 | National | Sometimes | 115046925774 |
| We are regularly consulted by the Commissie Wees [Commissie Weesgeneesmiddelen – Orphan Medicinal Products Committee] as well as by the Zorginstituut [Zorginstituut Nederland – National Health Care Institute]. | Pele
> Angioedema | Parceria regulatória
> Participar/facilitar reuniões com formuladores de políticas/reguladores | 1.000 | National | Regularly | 114996612757 |
| We participate in consultations within the infectious disease working group of the HorizonScan programme of the Zorginstituut [Zorginstituut Nederland – Dutch National Health Care Institute]. | HIV
> HIV | Parceria regulatória
> Participar/facilitar reuniões com formuladores de políticas/reguladores | 5.000 | National | Sometimes | 115046925774 |
| We conduct this work under the umbrella of the NFK [Nederlandse Federatie van Kankerpatiëntenorganisaties – Dutch Federation of Cancer Patient Organisations]. | Câncer
> Câncer: cabeça & pescoço | Parceria regulatória
> Com outros defensores da saúde | 1.000 | National | Regularly | 115028445799 |
| Collaborate with ACN [Action Cancer Network], which is based in Brussels. | Saúde geral
> Comunidades diversas | Parceria regulatória
> Com outros defensores da saúde | 100 | International | Sometimes | 115049346221 |
| We work together with ACN [Cittadinanzattiva-Active Citizenship Network], as we are a small foundation. | Saúde geral
> Comunidades diversas | Parceria regulatória
> Com outros defensores da saúde | We do not communicate with patients directly | International | Sometimes | 119069882547 |
| We are engaged in discussions with, for example, VWS [Ministerie van Volksgezondheid, Welzijn en Sport – Ministry of Health, Welfare and Sport] and pharmaceutical manufacturers with regard to medicines subject to the sluice procedure. | Raro
> Doenças raras: sangue | Impactando políticas e legislação
> Influenciar políticas e legislações de saúde | 100 | National | Sometimes | 115020760936 |
| We are engaged in discussions with, for example, VWS [Ministerie van Volksgezondheid, Welzijn en Sport – Ministry of Health, Welfare and Sport] and pharmaceutical manufacturers with regard to medicines subject to the sluice procedure [expensive specialist medicines that are placed in the "geneesmiddelensluis" (medicine lock or gateway procedure) before they can be routinely reimbursed by the Dutch healthcare system. The idea is that expensive medicines do not automatically flow into the reimbursement system. They first pass through a "gate" where their value and price are evaluated.] | Raro
> Doenças raras: sangue | Defesa de preços e acessibilidade financeira
> Participar de negociações com o conselho de revisão de preços | 100 | National | Sometimes | 115020760936 |
| We are currently engaged in discussions regarding the potential reimbursement of a medicine — the first time in 50 years that our organisation has been involved in such a process. | Defesa do paciente
> Defesa do paciente | Defesa de preços e acessibilidade financeira
> Participar de negociações com o conselho de revisão de preços | 100 | National | Rarely | 115028420951 |
| EPECS [European Patients Empowerment for Customised Solutions] collaborates with ACN [Cittadinanzattiva-Active Citizenship Network], which is based in Brussels. Together, we address issues such as vaccination policy, the associated costs, and access for individuals in vulnerable circumstances. | Saúde geral
> Comunidades diversas | Defesa de preços e acessibilidade financeira
> Abordar barreiras de custo para pessoas de baixa renda e vulneráveis | 100 | International | Sometimes | 115049346221 |
| We work together with Active Citizen Network, as we are a small foundation. Vaccination issues, access for all, ostomy issues [in the Netherlands]. | Saúde geral
> Comunidades diversas | Melhorando os caminhos de acesso
> Facilitar o acesso equitativo a medicamentos/cuidados de saúde | We do not communicate with patients directly | International | Sometimes | 119069882547 |
| EPECS [European Patients Empowerment for Customised Solutions] collaborates with ACN [Cittadinanzattiva-Active Citizenship Network], which is based in Brussels. Together, we address issues such as vaccination policy, the associated costs, and access for individuals in vulnerable circumstances. | Saúde geral
> Comunidades diversas | Melhorando os caminhos de acesso
> Defenda o acesso mais amplo a vacinas | 100 | International | Sometimes | 115049346221 |
| We work together with Active Citizen Network, as we are a small foundation. Vaccination issues, access for all, ostomy issues [in the Netherlands]. | Saúde geral
> Comunidades diversas | Melhorando os caminhos de acesso
> Defenda o acesso mais amplo a vacinas | We do not communicate with patients directly | International | Sometimes | 119069882547 |
| Introduction of a new (orphan) medicine. | Defesa do paciente
> Defesa do paciente | Melhorando os caminhos de acesso
> Melhorando o acesso a terapias raras/ultrarraras | 5.000 | National | Sometimes | 115029242573 |
| ERS [European Respiratory Society] EMA [European Medicines Agency] ELF [European Lung Foundation] EURORDIS [European Organisation for Rare Diseases]. | Imune
> Sarcoidose | Governança institucional
> Trabalhando de forma eficaz em redes com múltiplos stakeholders | 5.000 | National | Regularly | 114996748265 |
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