| Participation in European-level policy and regulatory discussions affecting access to medicines for rare and systemic autoimmune diseases. Patient input and advocacy in consultations related to HTA, reimbursement frameworks, and access pathways. Collaboration with European patient platforms and alliances to convey patient perspectives on unmet needs, access delays, and equity in pricing and reimbursement decisions. | 風濕性
> 修格蘭氏症候群 | 監管合作關係
> 參與健康技術評估（HTA）及給付審查 | We do not communicate with patients directly | International | Regularly | 119025245981 |
| For the authorisation of medicinal products for rare diseases. | 內分泌
> 腎上腺與腦垂體疾病 | 監管合作關係
> 貢獻至行銷授權申請 | 100 | National | Rarely | 119052076100 |
| We are engaged in formal consultation processes. | 內分泌
> 糖尿病（1型和2型） | 監管合作關係
> 出席/主持與政策制定者/監管機構的會議 | Do not know | National | Rarely | 119035824614 |
| Advisory board of Swissmedic. | 巨蟹座
> 癌症：肺 | 監管合作關係
> 出席/主持與政策制定者/監管機構的會議 | 1,000 | National | Sometimes | 119061399060 |
| Participation in European-level policy and regulatory discussions affecting access to medicines for rare and systemic autoimmune diseases. Patient input and advocacy in consultations related to HTA, reimbursement frameworks, and access pathways. Collaboration with European patient platforms and alliances to convey patient perspectives on unmet needs, access delays, and equity in pricing and reimbursement decisions. | 風濕性
> 修格蘭氏症候群 | 監管合作關係
> 與其他醫療倡導者 | We do not communicate with patients directly | International | Regularly | 119025245981 |
| This has been achieved, for example, through the submission of concerns regarding access to therapies via umbrella organisations such as ProRaris, as well as through targeted engagement and formal submissions to relevant healthcare stakeholders. | 皮膚
> 血管性水腫 | 監管合作關係
> 與其他醫療倡導者 | 100 | National | Sometimes | 119052980204 |
| Via our umbrella organisation HOPOS [Hemato-Onkologische Patientenorganisationen Schweiz - Swiss Umbrella Organisation of Haemato-Oncological Patient Organisations]. | 巨蟹座
> 癌症：血液 | 監管合作關係
> 與其他醫療倡導者 | 1,000 | National | Rarely | 119077844806 |
| To advocate for the establishment of an information policy directed at local authorities. | 巨蟹座
> 癌症：攝護腺 | 影響政策與立法
> 影響醫療保健政策與法規 | 100 | Regional | Sometimes | 115056429435 |
| Participation in European-level policy and regulatory discussions affecting access to medicines for rare and systemic autoimmune diseases. | 風濕性
> 修格蘭氏症候群 | 影響政策與立法
> 影響醫療保健政策與法規 | We do not communicate with patients directly | International | Regularly | 119025245981 |
| Legislative adaptation through ongoing communication. | 稀有
> 罕見疾病：兒童／青少年 | 影響政策與立法
> 影響醫療保健政策與法規 | 1,000 | National | Sometimes | 119035891744 |
| Consultation on legislative drafts, and specific requests for assistance — whether material, structural, or socio-economic in nature. | 病患教育
> 病患教育 | 影響政策與立法
> 影響醫療保健政策與法規 | 100 | National | Sometimes | 119035955624 |
| The Swiss Cancer Plan, in collaboration with Oncosuisse and the BAG [Bundesamt für Gesundheit – Federal Office of Public Health]. | 巨蟹座
> 癌症：攝護腺 | 影響政策與立法
> 影響醫療保健政策與法規 | 1,000 | National | Regularly | 119044110604 |
| Advocacy representation in relation to the new care legislation. | 神經退化性
> 阿茲海默症 | 影響政策與立法
> 影響醫療保健政策與法規 | 100,000 | National | Regularly | 119044141359 |
| Consultation on legislative drafts, and specific requests for assistance — whether material, structural, or socio-economic in nature. | 病患教育
> 病患教育 | 影響政策與立法
> 參與公共衛生法規的起草工作 | 100 | National | Sometimes | 119035955624 |
| Advocacy representation in relation to the new care legislation. | 神經退化性
> 阿茲海默症 | 影響政策與立法
> 參與公共衛生法規的起草工作 | 100,000 | National | Regularly | 119044141359 |
| Support with formal cost-approval (reimbursement authorisation) applications and with newly introduced restrictions on treatment options. | 心血管
> 家族性高膽固醇血症（FH） | 影響政策與立法
> 解決醫療照護中的障礙/異常問題 | 100 | National | Sometimes | 119072887138 |
| Participation in European-level policy and regulatory discussions affecting access to medicines for rare and systemic autoimmune diseases. Patient input and advocacy in consultations related to HTA, reimbursement frameworks, and access pathways. Collaboration with European patient platforms and alliances to convey patient perspectives on unmet needs, access delays, and equity in pricing and reimbursement decisions. | 風濕性
> 修格蘭氏症候群 | 定價與可負擔性倡議
> 倡導公平的藥品定價 | We do not communicate with patients directly | International | Regularly | 119025245981 |
| We work to ensure that effective medicines are available to patients in a fair and timely way, and we explain how pricing and reimbursement decisions directly affect patients and their families in real life. | 巨蟹座
> 癌症：肺 | 定價與可負擔性倡議
> 倡導公平的藥品定價 | We do not communicate with patients directly | International | Sometimes | 119058458189 |
| Support with reimbursement approvals. | 心血管
> 家族性高膽固醇血症（FH） | 定價與可負擔性倡議
> 倡導將產品納入給付清單/國家藥品目錄 | 100 | National | Sometimes | 119072887138 |
| Primarily through public appeals, media coverage, and similar channels [on issues of drug pricing]. | HIV
> HIV | 定價與可負擔性倡議
> 參與宣傳活動 | 5,000 | National | Rarely | 119035314201 |
| Assisting a family in accessing a medication covered by their insurance. | 神經系統
> 神經纖維瘤病（NF） | 改善存取路徑
> 促進藥品/醫療保健的公平取得 | 100 | Regional | Rarely | 115023088362 |
| This has been achieved, for example, through the submission of concerns regarding access to therapies via umbrella organisations such as ProRaris, as well as through targeted engagement and formal submissions to relevant healthcare stakeholders. | 皮膚
> 血管性水腫 | 改善存取路徑
> 促進藥品/醫療保健的公平取得 | 100 | National | Sometimes | 119052980204 |
| We work to ensure that effective medicines are available to patients in a fair and timely way, and we explain how pricing and reimbursement decisions directly affect patients and their families in real life. | 巨蟹座
> 癌症：肺 | 改善存取路徑
> 促進藥品/醫療保健的公平取得 | We do not communicate with patients directly | International | Sometimes | 119058458189 |
| Participation in European-level policy and regulatory discussions affecting access to medicines for rare and systemic autoimmune diseases. Patient input and advocacy in consultations related to HTA, reimbursement frameworks, and access pathways. Collaboration with European patient platforms and alliances to convey patient perspectives on unmet needs, access delays, and equity in pricing and reimbursement decisions. | 風濕性
> 修格蘭氏症候群 | 改善存取路徑
> 改善罕見/極罕見療法的取得管道 | We do not communicate with patients directly | International | Regularly | 119025245981 |
| For the authorisation of medicinal products for rare diseases. | 內分泌
> 腎上腺與腦垂體疾病 | 改善存取路徑
> 改善罕見/極罕見療法的取得管道 | 100 | National | Rarely | 119052076100 |
| ... Collaboration with European patient platforms and alliances to convey patient perspectives on unmet needs, access delays, and equity in pricing and reimbursement decisions. | 風濕性
> 修格蘭氏症候群 | 以實證為基礎的病患意見
> 運用患者洞察來輔助決策 | We do not communicate with patients directly | International | Regularly | 119025245981 |
| We speak up to make sure patients' views are properly taken into account when decisions are made about access to new treatments, their cost, and their value. | 巨蟹座
> 癌症：肺 | 以實證為基礎的病患意見
> 運用患者洞察來輔助決策 | We do not communicate with patients directly | International | Sometimes | 119058458189 |
| We speak up to make sure patients' views are properly taken into account when decisions are made about access to new treatments, their cost, and their value. | 巨蟹座
> 癌症：肺 | 以實證為基礎的病患意見
> 運用患者洞察來輔助決策 | We do not communicate with patients directly | International | Sometimes | 119058458189 |
| This has been achieved, for example, through the submission of concerns regarding access to therapies via umbrella organisations such as ProRaris, as well as through targeted engagement and formal submissions to relevant healthcare stakeholders. | 皮膚
> 血管性水腫 | 以實證為基礎的病患意見
> 將證據與洞察轉化為政策建議 | 100 | National | Sometimes | 119052980204 |
| Participation in the RDA [Research Data Alliance]-Forum / CTA [Clinical Trial Authorisation] activities. | 風濕性
> 硬皮病 | 診斷與藥品配送
> 協作臨床試驗設計 | 100 | National | Rarely | 119056569513 |
| Through physicians, hospitals, and participation in PPI [Patient and Public Involvement] meetings. | 巨蟹座
> 癌症：兒童／青少年 | 機構治理
> 在多方利害關係人網絡中有效運作 | 100 | National | Sometimes | 115032067078 |
| The Swiss Cancer Plan, in collaboration with Oncosuisse and the BAG [Bundesamt für Gesundheit – Federal Office of Public Health]. | 巨蟹座
> 癌症：攝護腺 | 機構治理
> 在多方利害關係人網絡中有效運作 | 1,000 | National | Regularly | 119044110604 |
| We are a non-profit (ZEWO [Zentralstelle für Wohlfahrtsunternehmen - Central Office for Welfare Organisations]-certified) organisation. | 心理健康
> 憂鬱症 | 機構治理
> 維持公益或慈善機構的正式法律地位 | 1,000 | Regional | No | 119063159875 |
| Support for obtaining AI [Assurance Invalidité – Disability Insurance]. | 視覺障礙
> 視覺障礙 | 維護病患權益／提升生活品質
> 保護/改善病患體驗 | 100 | Regional | Sometimes | 114996630534 |
互動
行動與倡議
7 提及
