| We participate in medicine supply committees. | HIV
> HIV | Parceria regulatória
> A trabalhar com organismos reguladores | 5000 | Local | Sometimes | 119013267866 |
| We maintain ongoing dialogue with Cofepris [Comisión Federal para la Protección contra Riesgos Sanitarios – Federal Commission for Protection against Sanitary Risks], the CSG [Consejo de Salubridad General – General Health Council], and the Ministry of Health [Mexico]. | Raro
> Doenças raras: a maioria dos tipos | Parceria regulatória
> A trabalhar com organismos reguladores | 1000 | National | Regularly | 119074943493 |
| 95% of the patients who comprise our target population access care through public health services. As an organisation, we have participated in the development of several clinical care guidelines. | Não especificado
> Não especificado | Parceria regulatória
> Envolvimento com organismos de definição de diretrizes clínicas | 100 | National | Regularly | 119063173812 |
| Meetings have taken place with authorities, primarily within the legislative sphere. | Transplantes
> Transplantes: maioria | Parceria regulatória
> Participar/facilitar reuniões com decisores políticos/reguladores | 100 | Regional | Rarely | 119037030189 |
| We participate in forums with authorities, representing the patient voice. | Raro
> Doenças raras: genética | Parceria regulatória
> Participar/facilitar reuniões com decisores políticos/reguladores | 100 | National | Sometimes | 119074314899 |
| We maintain ongoing dialogue with Cofepris [Comisión Federal para la Protección contra Riesgos Sanitarios – Federal Commission for Protection against Sanitary Risks], the CSG [Consejo de Salubridad General – General Health Council], and the Ministry of Health [Mexico]. | Raro
> Doenças raras: a maioria dos tipos | Parceria regulatória
> Participar/facilitar reuniões com decisores políticos/reguladores | 1000 | National | Regularly | 119074943493 |
| We maintain ongoing dialogue with Cofepris [Comisión Federal para la Protección contra Riesgos Sanitarios – Federal Commission for Protection against Sanitary Risks], the CSG [Consejo de Salubridad General – General Health Council], and the Ministry of Health [Mexico]. | Raro
> Doenças raras: a maioria dos tipos | Impacto nas políticas e legislação
> Influenciar a política e legislação de saúde | 1000 | National | Regularly | 119074943493 |
| Through forums and congresses. | Cancro
> Cancro: a maioria dos tipos | Impacto nas políticas e legislação
> Participar em audiências públicas e consultas | 1000 | National | Rarely | 119013346537 |
| … The Federation takes part in meetings, consultations, and collaborative projects aimed at strengthening timely access to medicines and innovative therapies for the community. | Sangramento
> Hemofilia | Impacto nas políticas e legislação
> Participar em audiências públicas e consultas | 1000 | National | Sometimes | 119076498939 |
| We have agreements in place with a number of pharmaceutical companies to provide our patients with preferential pricing. | Cardiovascular
> Doenças cardiovasculares & cardíacas | Defesa de preços e acessibilidade financeira
> Defender preços justos para medicamentos | 1000 | National | Sometimes | 119020507827 |
| Pharmaceutical manufacturers operated medication discount programmes, though these were discontinued in mid-2025. | Cancro
> Cancro: sangue | Defesa de preços e acessibilidade financeira
> Defender preços justos para medicamentos | 100 | National | Regularly | 119072892669 |
| We have agreements in place with a number of pharmaceutical companies to provide our patients with preferential pricing. | Cardiovascular
> Doenças cardiovasculares & cardíacas | Defesa de preços e acessibilidade financeira
> Monitorização e acompanhamento de preços de medicamentos/escassez de medicamentos | 1000 | National | Sometimes | 119020507827 |
| We participate in selection, procurement, and supply shortage monitoring processes, and submit requests for specific acquisitions. | Cancro
> Cancro: a maioria dos tipos | Defesa de preços e acessibilidade financeira
> Monitorização e acompanhamento de preços de medicamentos/escassez de medicamentos | 100 000 | Regional | Regularly | 119078608825 |
| We participate in medicine supply committees. | HIV
> HIV | Melhorar os caminhos de acesso
> Facilitar o acesso equitativo a medicamentos/cuidados de saúde | 5000 | Local | Sometimes | 119013267866 |
| Some 95% of the patients who comprise of our target population rely on public health services. | Não especificado
> Não especificado | Melhorar os caminhos de acesso
> Facilitar o acesso equitativo a medicamentos/cuidados de saúde | 100 | National | Regularly | 119063173812 |
| We work to ensure that patients receive the treatment they require. | Raro
> Doenças raras: metabólicas/lisossomais | Melhorar os caminhos de acesso
> Facilitar o acesso equitativo a medicamentos/cuidados de saúde | 1000 | National | Sometimes | 119074171364 |
| … The Federation takes part in meetings, consultations, and collaborative projects aimed at strengthening timely access to medicines and innovative therapies for the community. | Sangramento
> Hemofilia | Melhorar os caminhos de acesso
> Facilitar o acesso equitativo a medicamentos/cuidados de saúde | 1000 | National | Sometimes | 119076498939 |
| We support public health sector hospitals in Mexico when they lack access to medicines, diagnostic services, or prostheses. | Cancro
> Cancro: crianças / jovens | Melhorar os caminhos de acesso
> Facilitar o acesso equitativo a medicamentos/cuidados de saúde | 5000 | Regional | Sometimes | 119078492059 |
| We support public health sector hospitals in Mexico when they lack access to medicines, diagnostic services, or prostheses. | Cancro
> Cancro: crianças / jovens | Melhorar os caminhos de acesso
> Facilitar o acesso equitativo a medicamentos/cuidados de saúde | 5000 | Regional | Sometimes | 119078492059 |
| The Federation participates in dialogue and collaboration forums with institutions within Mexico's healthcare system — including IMSS [Instituto Mexicano del Seguro Social – Mexican Social Security Institute], ISSSTE [Instituto de Seguridad y Servicios Sociales de los Trabajadores del Estado – Institute for Social Security and Services for State Workers], and other health authorities — to give voice to the needs of people living with coagulation disorders.Through these collaborative efforts, patient experiences are shared, barriers to treatment access are identified, and improvements to care models are promoted. | Sangramento
> Hemofilia | Contribuição do doente baseada em evidências
> Aproveite histórias de pacientes e narrativas de experiências vividas | 1000 | National | Sometimes | 119076498939 |
| We participate in forums with authorities, representing the patient voice. | Raro
> Doenças raras: genética | Governação institucional
> Garantir representação nos órgãos consultivos governamentais | 100 | National | Sometimes | 119074314899 |
| The Federation participates in dialogue and collaboration forums with institutions within Mexico's healthcare system — including IMSS [Instituto Mexicano del Seguro Social – Mexican Social Security Institute], ISSSTE [Instituto de Seguridad y Servicios Sociales de los Trabajadores del Estado – Institute for Social Security and Services for State Workers], and other health authorities — to give voice to the needs of people living with coagulation disorders. | Sangramento
> Hemofilia | Governação institucional
> Garantir representação nos órgãos consultivos governamentais | 1000 | National | Sometimes | 119076498939 |
| We participate in forums with authorities, representing the patient voice, and we also convene stakeholders to engage in these discussions. | Raro
> Doenças raras: genética | Governação institucional
> Trabalhar eficazmente em redes com múltiplos intervenientes | 100 | National | Sometimes | 119074314899 |
| The Federation participates in dialogue and collaboration forums with institutions within Mexico's healthcare system — including IMSS [Instituto Mexicano del Seguro Social – Mexican Social Security Institute], ISSSTE [Instituto de Seguridad y Servicios Sociales de los Trabajadores del Estado – Institute for Social Security and Services for State Workers], and other health authorities — to give voice to the needs of people living with coagulation disorders. | Sangramento
> Hemofilia | Governação institucional
> Trabalhar eficazmente em redes com múltiplos intervenientes | 1000 | National | Sometimes | 119076498939 |
interações
ações & defesa
6 menções
