| We participate in medicine supply committees. | VIH
> VIH | Asociación regulatoria
> Trabajando con organismos reguladores | 5,000 | Local | Sometimes | 119013267866 |
| We maintain ongoing dialogue with Cofepris [Comisión Federal para la Protección contra Riesgos Sanitarios – Federal Commission for Protection against Sanitary Risks], the CSG [Consejo de Salubridad General – General Health Council], and the Ministry of Health [Mexico]. | Raro
> Enfermedades raras: la mayoría de los tipos | Asociación regulatoria
> Trabajando con organismos reguladores | 1,000 | National | Regularly | 119074943493 |
| 95% of the patients who comprise our target population access care through public health services. As an organisation, we have participated in the development of several clinical care guidelines. | No especificado
> No especificado | Asociación regulatoria
> Participación en organismos de elaboración de guías clínicas | 100 | National | Regularly | 119063173812 |
| Meetings have taken place with authorities, primarily within the legislative sphere. | Trasplantes
> Trasplantes: la mayoría | Asociación regulatoria
> Asistir/facilitar reuniones con responsables de políticas/reguladores | 100 | Regional | Rarely | 119037030189 |
| We participate in forums with authorities, representing the patient voice. | Raro
> Trastornos raros: genéticos | Asociación regulatoria
> Asistir/facilitar reuniones con responsables de políticas/reguladores | 100 | National | Sometimes | 119074314899 |
| We maintain ongoing dialogue with Cofepris [Comisión Federal para la Protección contra Riesgos Sanitarios – Federal Commission for Protection against Sanitary Risks], the CSG [Consejo de Salubridad General – General Health Council], and the Ministry of Health [Mexico]. | Raro
> Enfermedades raras: la mayoría de los tipos | Asociación regulatoria
> Asistir/facilitar reuniones con responsables de políticas/reguladores | 1,000 | National | Regularly | 119074943493 |
| We maintain ongoing dialogue with Cofepris [Comisión Federal para la Protección contra Riesgos Sanitarios – Federal Commission for Protection against Sanitary Risks], the CSG [Consejo de Salubridad General – General Health Council], and the Ministry of Health [Mexico]. | Raro
> Enfermedades raras: la mayoría de los tipos | Impactando políticas y legislación
> Influir en la política y legislación de salud | 1,000 | National | Regularly | 119074943493 |
| Through forums and congresses. | Cáncer
> Cáncer: la mayoría de los tipos | Impactando políticas y legislación
> Participar en audiencias públicas y consultas | 1,000 | National | Rarely | 119013346537 |
| … The Federation takes part in meetings, consultations, and collaborative projects aimed at strengthening timely access to medicines and innovative therapies for the community. | Sangrado
> Hemofilia | Impactando políticas y legislación
> Participar en audiencias públicas y consultas | 1,000 | National | Sometimes | 119076498939 |
| We have agreements in place with a number of pharmaceutical companies to provide our patients with preferential pricing. | Cardiovascular
> Condiciones cardiovasculares y del corazón | Defensa de precios y asequibilidad
> Abogar por precios justos de medicamentos | 1,000 | National | Sometimes | 119020507827 |
| Pharmaceutical manufacturers operated medication discount programmes, though these were discontinued in mid-2025. | Cáncer
> Cáncer: sangre | Defensa de precios y asequibilidad
> Abogar por precios justos de medicamentos | 100 | National | Regularly | 119072892669 |
| We have agreements in place with a number of pharmaceutical companies to provide our patients with preferential pricing. | Cardiovascular
> Condiciones cardiovasculares y del corazón | Defensa de precios y asequibilidad
> Seguimiento y monitoreo de precios de medicamentos/escasez de medicamentos | 1,000 | National | Sometimes | 119020507827 |
| We participate in selection, procurement, and supply shortage monitoring processes, and submit requests for specific acquisitions. | Cáncer
> Cáncer: la mayoría de los tipos | Defensa de precios y asequibilidad
> Seguimiento y monitoreo de precios de medicamentos/escasez de medicamentos | 100,000 | Regional | Regularly | 119078608825 |
| We participate in medicine supply committees. | VIH
> VIH | Mejorando las vías de acceso
> Facilitar el acceso equitativo a medicamentos/atención médica | 5,000 | Local | Sometimes | 119013267866 |
| Some 95% of the patients who comprise of our target population rely on public health services. | No especificado
> No especificado | Mejorando las vías de acceso
> Facilitar el acceso equitativo a medicamentos/atención médica | 100 | National | Regularly | 119063173812 |
| We work to ensure that patients receive the treatment they require. | Raro
> Enfermedades raras: metabólicas/lisosomales | Mejorando las vías de acceso
> Facilitar el acceso equitativo a medicamentos/atención médica | 1,000 | National | Sometimes | 119074171364 |
| … The Federation takes part in meetings, consultations, and collaborative projects aimed at strengthening timely access to medicines and innovative therapies for the community. | Sangrado
> Hemofilia | Mejorando las vías de acceso
> Facilitar el acceso equitativo a medicamentos/atención médica | 1,000 | National | Sometimes | 119076498939 |
| We support public health sector hospitals in Mexico when they lack access to medicines, diagnostic services, or prostheses. | Cáncer
> Cáncer: niños/jóvenes | Mejorando las vías de acceso
> Facilitar el acceso equitativo a medicamentos/atención médica | 5,000 | Regional | Sometimes | 119078492059 |
| We support public health sector hospitals in Mexico when they lack access to medicines, diagnostic services, or prostheses. | Cáncer
> Cáncer: niños/jóvenes | Mejorando las vías de acceso
> Facilitar el acceso equitativo a medicamentos/atención médica | 5,000 | Regional | Sometimes | 119078492059 |
| The Federation participates in dialogue and collaboration forums with institutions within Mexico's healthcare system — including IMSS [Instituto Mexicano del Seguro Social – Mexican Social Security Institute], ISSSTE [Instituto de Seguridad y Servicios Sociales de los Trabajadores del Estado – Institute for Social Security and Services for State Workers], and other health authorities — to give voice to the needs of people living with coagulation disorders.Through these collaborative efforts, patient experiences are shared, barriers to treatment access are identified, and improvements to care models are promoted. | Sangrado
> Hemofilia | Aportaciones del paciente basadas en evidencia
> Aproveche las historias de pacientes y narrativas de experiencias vividas | 1,000 | National | Sometimes | 119076498939 |
| We participate in forums with authorities, representing the patient voice. | Raro
> Trastornos raros: genéticos | Gobernanza institucional
> Garantizar la representación en los organismos asesores gubernamentales | 100 | National | Sometimes | 119074314899 |
| The Federation participates in dialogue and collaboration forums with institutions within Mexico's healthcare system — including IMSS [Instituto Mexicano del Seguro Social – Mexican Social Security Institute], ISSSTE [Instituto de Seguridad y Servicios Sociales de los Trabajadores del Estado – Institute for Social Security and Services for State Workers], and other health authorities — to give voice to the needs of people living with coagulation disorders. | Sangrado
> Hemofilia | Gobernanza institucional
> Garantizar la representación en los organismos asesores gubernamentales | 1,000 | National | Sometimes | 119076498939 |
| We participate in forums with authorities, representing the patient voice, and we also convene stakeholders to engage in these discussions. | Raro
> Trastornos raros: genéticos | Gobernanza institucional
> Trabajando eficazmente dentro de redes de múltiples partes interesadas | 100 | National | Sometimes | 119074314899 |
| The Federation participates in dialogue and collaboration forums with institutions within Mexico's healthcare system — including IMSS [Instituto Mexicano del Seguro Social – Mexican Social Security Institute], ISSSTE [Instituto de Seguridad y Servicios Sociales de los Trabajadores del Estado – Institute for Social Security and Services for State Workers], and other health authorities — to give voice to the needs of people living with coagulation disorders. | Sangrado
> Hemofilia | Gobernanza institucional
> Trabajando eficazmente dentro de redes de múltiples partes interesadas | 1,000 | National | Sometimes | 119076498939 |
interacciones
acciones y defensa
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