| We participate in medicine supply committees. | HIV
> HIV | Regulatorisk partnerskab
> Arbejde med regulerende myndigheder | 5.000 | Local | Sometimes | 119013267866 |
| We maintain ongoing dialogue with Cofepris [Comisión Federal para la Protección contra Riesgos Sanitarios – Federal Commission for Protection against Sanitary Risks], the CSG [Consejo de Salubridad General – General Health Council], and the Ministry of Health [Mexico]. | Sjælden
> Sjældne sygdomme: de fleste typer | Regulatorisk partnerskab
> Arbejde med regulerende myndigheder | 1.000 | National | Regularly | 119074943493 |
| 95% of the patients who comprise our target population access care through public health services. As an organisation, we have participated in the development of several clinical care guidelines. | Ikke angivet
> Ikke angivet | Regulatorisk partnerskab
> Involvering med organer for kliniske retningslinjer | 100 | National | Regularly | 119063173812 |
| Meetings have taken place with authorities, primarily within the legislative sphere. | Transplantationer
> Transplantationer: flest | Regulatorisk partnerskab
> Deltag i/faciliter møder med politiske beslutningstagere/regulatorer | 100 | Regional | Rarely | 119037030189 |
| We participate in forums with authorities, representing the patient voice. | Sjælden
> Sjældne sygdomme: genetisk | Regulatorisk partnerskab
> Deltag i/faciliter møder med politiske beslutningstagere/regulatorer | 100 | National | Sometimes | 119074314899 |
| We maintain ongoing dialogue with Cofepris [Comisión Federal para la Protección contra Riesgos Sanitarios – Federal Commission for Protection against Sanitary Risks], the CSG [Consejo de Salubridad General – General Health Council], and the Ministry of Health [Mexico]. | Sjælden
> Sjældne sygdomme: de fleste typer | Regulatorisk partnerskab
> Deltag i/faciliter møder med politiske beslutningstagere/regulatorer | 1.000 | National | Regularly | 119074943493 |
| We maintain ongoing dialogue with Cofepris [Comisión Federal para la Protección contra Riesgos Sanitarios – Federal Commission for Protection against Sanitary Risks], the CSG [Consejo de Salubridad General – General Health Council], and the Ministry of Health [Mexico]. | Sjælden
> Sjældne sygdomme: de fleste typer | Indflydelse på politik og lovgivning
> Påvirk sundhedspolitik og lovgivning | 1.000 | National | Regularly | 119074943493 |
| Through forums and congresses. | Kræft
> Kræft: de fleste typer | Indflydelse på politik og lovgivning
> Deltag i offentlige høringer og konsultationer | 1.000 | National | Rarely | 119013346537 |
| … The Federation takes part in meetings, consultations, and collaborative projects aimed at strengthening timely access to medicines and innovative therapies for the community. | Blødning
> Hæmofili | Indflydelse på politik og lovgivning
> Deltag i offentlige høringer og konsultationer | 1.000 | National | Sometimes | 119076498939 |
| We have agreements in place with a number of pharmaceutical companies to provide our patients with preferential pricing. | Kardiovaskulær
> Hjerte-kar-sygdomme & hjertetilstande | Prisfastsættelse og overkommelighed
> Fortaler for retfærdig medicinprissætning | 1.000 | National | Sometimes | 119020507827 |
| Pharmaceutical manufacturers operated medication discount programmes, though these were discontinued in mid-2025. | Kræft
> Kræft: blod | Prisfastsættelse og overkommelighed
> Fortaler for retfærdig medicinprissætning | 100 | National | Regularly | 119072892669 |
| We have agreements in place with a number of pharmaceutical companies to provide our patients with preferential pricing. | Kardiovaskulær
> Hjerte-kar-sygdomme & hjertetilstande | Prisfastsættelse og overkommelighed
> Sporing og overvågning af lægemiddelpriser/lægemiddelmangler | 1.000 | National | Sometimes | 119020507827 |
| We participate in selection, procurement, and supply shortage monitoring processes, and submit requests for specific acquisitions. | Kræft
> Kræft: de fleste typer | Prisfastsættelse og overkommelighed
> Sporing og overvågning af lægemiddelpriser/lægemiddelmangler | 100.000 | Regional | Regularly | 119078608825 |
| We participate in medicine supply committees. | HIV
> HIV | Forbedring af adgangsveje
> Fremme retfærdig adgang til medicin/sundhedspleje | 5.000 | Local | Sometimes | 119013267866 |
| Some 95% of the patients who comprise of our target population rely on public health services. | Ikke angivet
> Ikke angivet | Forbedring af adgangsveje
> Fremme retfærdig adgang til medicin/sundhedspleje | 100 | National | Regularly | 119063173812 |
| We work to ensure that patients receive the treatment they require. | Sjælden
> Sjældne sygdomme: metaboliske/lysosomale | Forbedring af adgangsveje
> Fremme retfærdig adgang til medicin/sundhedspleje | 1.000 | National | Sometimes | 119074171364 |
| … The Federation takes part in meetings, consultations, and collaborative projects aimed at strengthening timely access to medicines and innovative therapies for the community. | Blødning
> Hæmofili | Forbedring af adgangsveje
> Fremme retfærdig adgang til medicin/sundhedspleje | 1.000 | National | Sometimes | 119076498939 |
| We support public health sector hospitals in Mexico when they lack access to medicines, diagnostic services, or prostheses. | Kræft
> Kræft: børn/unge | Forbedring af adgangsveje
> Fremme retfærdig adgang til medicin/sundhedspleje | 5.000 | Regional | Sometimes | 119078492059 |
| We support public health sector hospitals in Mexico when they lack access to medicines, diagnostic services, or prostheses. | Kræft
> Kræft: børn/unge | Forbedring af adgangsveje
> Fremme retfærdig adgang til medicin/sundhedspleje | 5.000 | Regional | Sometimes | 119078492059 |
| The Federation participates in dialogue and collaboration forums with institutions within Mexico's healthcare system — including IMSS [Instituto Mexicano del Seguro Social – Mexican Social Security Institute], ISSSTE [Instituto de Seguridad y Servicios Sociales de los Trabajadores del Estado – Institute for Social Security and Services for State Workers], and other health authorities — to give voice to the needs of people living with coagulation disorders.Through these collaborative efforts, patient experiences are shared, barriers to treatment access are identified, and improvements to care models are promoted. | Blødning
> Hæmofili | Evidensbaseret patientinput
> Udnyt patienthistorier og fortællinger om levede erfaringer | 1.000 | National | Sometimes | 119076498939 |
| We participate in forums with authorities, representing the patient voice. | Sjælden
> Sjældne sygdomme: genetisk | Institutionel styring
> Sikre repræsentation i statslige rådgivende organer | 100 | National | Sometimes | 119074314899 |
| The Federation participates in dialogue and collaboration forums with institutions within Mexico's healthcare system — including IMSS [Instituto Mexicano del Seguro Social – Mexican Social Security Institute], ISSSTE [Instituto de Seguridad y Servicios Sociales de los Trabajadores del Estado – Institute for Social Security and Services for State Workers], and other health authorities — to give voice to the needs of people living with coagulation disorders. | Blødning
> Hæmofili | Institutionel styring
> Sikre repræsentation i statslige rådgivende organer | 1.000 | National | Sometimes | 119076498939 |
| We participate in forums with authorities, representing the patient voice, and we also convene stakeholders to engage in these discussions. | Sjælden
> Sjældne sygdomme: genetisk | Institutionel styring
> Effektivt arbejde i netværk med flere interessenter | 100 | National | Sometimes | 119074314899 |
| The Federation participates in dialogue and collaboration forums with institutions within Mexico's healthcare system — including IMSS [Instituto Mexicano del Seguro Social – Mexican Social Security Institute], ISSSTE [Instituto de Seguridad y Servicios Sociales de los Trabajadores del Estado – Institute for Social Security and Services for State Workers], and other health authorities — to give voice to the needs of people living with coagulation disorders. | Blødning
> Hæmofili | Institutionel styring
> Effektivt arbejde i netværk med flere interessenter | 1.000 | National | Sometimes | 119076498939 |
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