| We participate in medicine supply committees. | HIV
> HIV | Partenariato normativo
> Collaborazione con gli organismi di regolamentazione | 5000 | Local | Sometimes | 119013267866 |
| We maintain ongoing dialogue with Cofepris [Comisión Federal para la Protección contra Riesgos Sanitarios – Federal Commission for Protection against Sanitary Risks], the CSG [Consejo de Salubridad General – General Health Council], and the Ministry of Health [Mexico]. | Raro
> Malattie rare: la maggior parte dei tipi | Partenariato normativo
> Collaborazione con gli organismi di regolamentazione | 1000 | National | Regularly | 119074943493 |
| 95% of the patients who comprise our target population access care through public health services. As an organisation, we have participated in the development of several clinical care guidelines. | Non specificato
> Non specificato | Partenariato normativo
> Coinvolgimento con organismi di definizione delle linee guida cliniche | 100 | National | Regularly | 119063173812 |
| Meetings have taken place with authorities, primarily within the legislative sphere. | Trapianti
> Trapianti: maggior parte | Partenariato normativo
> Partecipare/facilitare riunioni con responsabili politici/regolatori | 100 | Regional | Rarely | 119037030189 |
| We participate in forums with authorities, representing the patient voice. | Raro
> Malattie rare: genetiche | Partenariato normativo
> Partecipare/facilitare riunioni con responsabili politici/regolatori | 100 | National | Sometimes | 119074314899 |
| We maintain ongoing dialogue with Cofepris [Comisión Federal para la Protección contra Riesgos Sanitarios – Federal Commission for Protection against Sanitary Risks], the CSG [Consejo de Salubridad General – General Health Council], and the Ministry of Health [Mexico]. | Raro
> Malattie rare: la maggior parte dei tipi | Partenariato normativo
> Partecipare/facilitare riunioni con responsabili politici/regolatori | 1000 | National | Regularly | 119074943493 |
| We maintain ongoing dialogue with Cofepris [Comisión Federal para la Protección contra Riesgos Sanitarios – Federal Commission for Protection against Sanitary Risks], the CSG [Consejo de Salubridad General – General Health Council], and the Ministry of Health [Mexico]. | Raro
> Malattie rare: la maggior parte dei tipi | Influenzare le politiche e la legislazione
> Influenzare le politiche sanitarie e la legislazione | 1000 | National | Regularly | 119074943493 |
| Through forums and congresses. | Cancro
> Cancro: la maggior parte dei tipi | Influenzare le politiche e la legislazione
> Partecipa alle audizioni pubbliche e alle consultazioni | 1000 | National | Rarely | 119013346537 |
| … The Federation takes part in meetings, consultations, and collaborative projects aimed at strengthening timely access to medicines and innovative therapies for the community. | Sanguinamento
> Emofilia | Influenzare le politiche e la legislazione
> Partecipa alle audizioni pubbliche e alle consultazioni | 1000 | National | Sometimes | 119076498939 |
| We have agreements in place with a number of pharmaceutical companies to provide our patients with preferential pricing. | Cardiovascolare
> Condizioni cardiovascolari e cardiache | Advocacy per prezzi e accessibilità economica
> Sostenere prezzi equi dei farmaci | 1000 | National | Sometimes | 119020507827 |
| Pharmaceutical manufacturers operated medication discount programmes, though these were discontinued in mid-2025. | Cancro
> Cancro: sangue | Advocacy per prezzi e accessibilità economica
> Sostenere prezzi equi dei farmaci | 100 | National | Regularly | 119072892669 |
| We have agreements in place with a number of pharmaceutical companies to provide our patients with preferential pricing. | Cardiovascolare
> Condizioni cardiovascolari e cardiache | Advocacy per prezzi e accessibilità economica
> Monitoraggio e tracciamento dei prezzi dei farmaci/carenze di farmaci | 1000 | National | Sometimes | 119020507827 |
| We participate in selection, procurement, and supply shortage monitoring processes, and submit requests for specific acquisitions. | Cancro
> Cancro: la maggior parte dei tipi | Advocacy per prezzi e accessibilità economica
> Monitoraggio e tracciamento dei prezzi dei farmaci/carenze di farmaci | 100.000 | Regional | Regularly | 119078608825 |
| We participate in medicine supply committees. | HIV
> HIV | Miglioramento dei percorsi di accesso
> Facilitare l'accesso equo ai medicinali/all'assistenza sanitaria | 5000 | Local | Sometimes | 119013267866 |
| Some 95% of the patients who comprise of our target population rely on public health services. | Non specificato
> Non specificato | Miglioramento dei percorsi di accesso
> Facilitare l'accesso equo ai medicinali/all'assistenza sanitaria | 100 | National | Regularly | 119063173812 |
| We work to ensure that patients receive the treatment they require. | Raro
> Malattie rare: metaboliche/lisosomiali | Miglioramento dei percorsi di accesso
> Facilitare l'accesso equo ai medicinali/all'assistenza sanitaria | 1000 | National | Sometimes | 119074171364 |
| … The Federation takes part in meetings, consultations, and collaborative projects aimed at strengthening timely access to medicines and innovative therapies for the community. | Sanguinamento
> Emofilia | Miglioramento dei percorsi di accesso
> Facilitare l'accesso equo ai medicinali/all'assistenza sanitaria | 1000 | National | Sometimes | 119076498939 |
| We support public health sector hospitals in Mexico when they lack access to medicines, diagnostic services, or prostheses. | Cancro
> Cancro: bambini/giovani | Miglioramento dei percorsi di accesso
> Facilitare l'accesso equo ai medicinali/all'assistenza sanitaria | 5000 | Regional | Sometimes | 119078492059 |
| We support public health sector hospitals in Mexico when they lack access to medicines, diagnostic services, or prostheses. | Cancro
> Cancro: bambini/giovani | Miglioramento dei percorsi di accesso
> Facilitare l'accesso equo ai medicinali/all'assistenza sanitaria | 5000 | Regional | Sometimes | 119078492059 |
| The Federation participates in dialogue and collaboration forums with institutions within Mexico's healthcare system — including IMSS [Instituto Mexicano del Seguro Social – Mexican Social Security Institute], ISSSTE [Instituto de Seguridad y Servicios Sociales de los Trabajadores del Estado – Institute for Social Security and Services for State Workers], and other health authorities — to give voice to the needs of people living with coagulation disorders.Through these collaborative efforts, patient experiences are shared, barriers to treatment access are identified, and improvements to care models are promoted. | Sanguinamento
> Emofilia | Contributo del paziente basato sull'evidenza
> Sfrutta le storie dei pazienti e le narrazioni basate sull'esperienza vissuta | 1000 | National | Sometimes | 119076498939 |
| We participate in forums with authorities, representing the patient voice. | Raro
> Malattie rare: genetiche | Governance istituzionale
> Garantire la rappresentanza negli organi consultivi governativi | 100 | National | Sometimes | 119074314899 |
| The Federation participates in dialogue and collaboration forums with institutions within Mexico's healthcare system — including IMSS [Instituto Mexicano del Seguro Social – Mexican Social Security Institute], ISSSTE [Instituto de Seguridad y Servicios Sociales de los Trabajadores del Estado – Institute for Social Security and Services for State Workers], and other health authorities — to give voice to the needs of people living with coagulation disorders. | Sanguinamento
> Emofilia | Governance istituzionale
> Garantire la rappresentanza negli organi consultivi governativi | 1000 | National | Sometimes | 119076498939 |
| We participate in forums with authorities, representing the patient voice, and we also convene stakeholders to engage in these discussions. | Raro
> Malattie rare: genetiche | Governance istituzionale
> Lavorare efficacemente all'interno di reti multi-stakeholder | 100 | National | Sometimes | 119074314899 |
| The Federation participates in dialogue and collaboration forums with institutions within Mexico's healthcare system — including IMSS [Instituto Mexicano del Seguro Social – Mexican Social Security Institute], ISSSTE [Instituto de Seguridad y Servicios Sociales de los Trabajadores del Estado – Institute for Social Security and Services for State Workers], and other health authorities — to give voice to the needs of people living with coagulation disorders. | Sanguinamento
> Emofilia | Governance istituzionale
> Lavorare efficacemente all'interno di reti multi-stakeholder | 1000 | National | Sometimes | 119076498939 |