| We participate in medicine supply committees. | HIV
> HIV | Regulatorisk partnerskap
> Samarbeid med regulatoriske myndigheter | 5 000 | Local | Sometimes | 119013267866 |
| We maintain ongoing dialogue with Cofepris [Comisión Federal para la Protección contra Riesgos Sanitarios – Federal Commission for Protection against Sanitary Risks], the CSG [Consejo de Salubridad General – General Health Council], and the Ministry of Health [Mexico]. | Sjelden
> Sjeldne sykdommer: de fleste typer | Regulatorisk partnerskap
> Samarbeid med regulatoriske myndigheter | 1 000 | National | Regularly | 119074943493 |
| 95% of the patients who comprise our target population access care through public health services. As an organisation, we have participated in the development of several clinical care guidelines. | Ikke spesifisert
> Ikke spesifisert | Regulatorisk partnerskap
> Involvering med organer for utarbeidelse av kliniske retningslinjer | 100 | National | Regularly | 119063173812 |
| Meetings have taken place with authorities, primarily within the legislative sphere. | Transplantasjoner
> Transplantasjoner: flest | Regulatorisk partnerskap
> Delta/fasilitere møter med beslutningstakere/regulatorer | 100 | Regional | Rarely | 119037030189 |
| We participate in forums with authorities, representing the patient voice. | Sjelden
> Sjeldne lidelser: genetisk | Regulatorisk partnerskap
> Delta/fasilitere møter med beslutningstakere/regulatorer | 100 | National | Sometimes | 119074314899 |
| We maintain ongoing dialogue with Cofepris [Comisión Federal para la Protección contra Riesgos Sanitarios – Federal Commission for Protection against Sanitary Risks], the CSG [Consejo de Salubridad General – General Health Council], and the Ministry of Health [Mexico]. | Sjelden
> Sjeldne sykdommer: de fleste typer | Regulatorisk partnerskap
> Delta/fasilitere møter med beslutningstakere/regulatorer | 1 000 | National | Regularly | 119074943493 |
| We maintain ongoing dialogue with Cofepris [Comisión Federal para la Protección contra Riesgos Sanitarios – Federal Commission for Protection against Sanitary Risks], the CSG [Consejo de Salubridad General – General Health Council], and the Ministry of Health [Mexico]. | Sjelden
> Sjeldne sykdommer: de fleste typer | Påvirkning av politikk og lovgivning
> Påvirk helsepolitikk og lovgivning | 1 000 | National | Regularly | 119074943493 |
| Through forums and congresses. | Kreft
> Kreft: de fleste typer | Påvirkning av politikk og lovgivning
> Delta i offentlige høringer og konsultasjoner | 1 000 | National | Rarely | 119013346537 |
| … The Federation takes part in meetings, consultations, and collaborative projects aimed at strengthening timely access to medicines and innovative therapies for the community. | Blødning
> Hemofili | Påvirkning av politikk og lovgivning
> Delta i offentlige høringer og konsultasjoner | 1 000 | National | Sometimes | 119076498939 |
| We have agreements in place with a number of pharmaceutical companies to provide our patients with preferential pricing. | Kardiovaskulær
> Kardiovaskulære & hjertetilstander | Prising og tilgjengelighetsadvokatur
> Gå inn for rettferdig medisinprising | 1 000 | National | Sometimes | 119020507827 |
| Pharmaceutical manufacturers operated medication discount programmes, though these were discontinued in mid-2025. | Kreft
> Kreft: blod | Prising og tilgjengelighetsadvokatur
> Gå inn for rettferdig medisinprising | 100 | National | Regularly | 119072892669 |
| We have agreements in place with a number of pharmaceutical companies to provide our patients with preferential pricing. | Kardiovaskulær
> Kardiovaskulære & hjertetilstander | Prising og tilgjengelighetsadvokatur
> Sporing og overvåking av legemiddelpriser/legemiddelmangel | 1 000 | National | Sometimes | 119020507827 |
| We participate in selection, procurement, and supply shortage monitoring processes, and submit requests for specific acquisitions. | Kreft
> Kreft: de fleste typer | Prising og tilgjengelighetsadvokatur
> Sporing og overvåking av legemiddelpriser/legemiddelmangel | 100 000 | Regional | Regularly | 119078608825 |
| We participate in medicine supply committees. | HIV
> HIV | Forbedrer tilgangsveier
> Legge til rette for rettferdig tilgang til medisiner/helsetjenester | 5 000 | Local | Sometimes | 119013267866 |
| Some 95% of the patients who comprise of our target population rely on public health services. | Ikke spesifisert
> Ikke spesifisert | Forbedrer tilgangsveier
> Legge til rette for rettferdig tilgang til medisiner/helsetjenester | 100 | National | Regularly | 119063173812 |
| We work to ensure that patients receive the treatment they require. | Sjelden
> Sjeldne sykdommer: metabolske/lysosomale | Forbedrer tilgangsveier
> Legge til rette for rettferdig tilgang til medisiner/helsetjenester | 1 000 | National | Sometimes | 119074171364 |
| … The Federation takes part in meetings, consultations, and collaborative projects aimed at strengthening timely access to medicines and innovative therapies for the community. | Blødning
> Hemofili | Forbedrer tilgangsveier
> Legge til rette for rettferdig tilgang til medisiner/helsetjenester | 1 000 | National | Sometimes | 119076498939 |
| We support public health sector hospitals in Mexico when they lack access to medicines, diagnostic services, or prostheses. | Kreft
> Kreft: barn / unge | Forbedrer tilgangsveier
> Legge til rette for rettferdig tilgang til medisiner/helsetjenester | 5 000 | Regional | Sometimes | 119078492059 |
| We support public health sector hospitals in Mexico when they lack access to medicines, diagnostic services, or prostheses. | Kreft
> Kreft: barn / unge | Forbedrer tilgangsveier
> Legge til rette for rettferdig tilgang til medisiner/helsetjenester | 5 000 | Regional | Sometimes | 119078492059 |
| The Federation participates in dialogue and collaboration forums with institutions within Mexico's healthcare system — including IMSS [Instituto Mexicano del Seguro Social – Mexican Social Security Institute], ISSSTE [Instituto de Seguridad y Servicios Sociales de los Trabajadores del Estado – Institute for Social Security and Services for State Workers], and other health authorities — to give voice to the needs of people living with coagulation disorders.Through these collaborative efforts, patient experiences are shared, barriers to treatment access are identified, and improvements to care models are promoted. | Blødning
> Hemofili | Evidensbasert pasientinnspill
> Bruk pasienthistorier og fortellinger fra levd erfaring | 1 000 | National | Sometimes | 119076498939 |
| We participate in forums with authorities, representing the patient voice. | Sjelden
> Sjeldne lidelser: genetisk | Institusjonell styring
> Sikre representasjon i statlige rådgivende organer | 100 | National | Sometimes | 119074314899 |
| The Federation participates in dialogue and collaboration forums with institutions within Mexico's healthcare system — including IMSS [Instituto Mexicano del Seguro Social – Mexican Social Security Institute], ISSSTE [Instituto de Seguridad y Servicios Sociales de los Trabajadores del Estado – Institute for Social Security and Services for State Workers], and other health authorities — to give voice to the needs of people living with coagulation disorders. | Blødning
> Hemofili | Institusjonell styring
> Sikre representasjon i statlige rådgivende organer | 1 000 | National | Sometimes | 119076498939 |
| We participate in forums with authorities, representing the patient voice, and we also convene stakeholders to engage in these discussions. | Sjelden
> Sjeldne lidelser: genetisk | Institusjonell styring
> Arbeide effektivt i nettverk med flere interessenter | 100 | National | Sometimes | 119074314899 |
| The Federation participates in dialogue and collaboration forums with institutions within Mexico's healthcare system — including IMSS [Instituto Mexicano del Seguro Social – Mexican Social Security Institute], ISSSTE [Instituto de Seguridad y Servicios Sociales de los Trabajadores del Estado – Institute for Social Security and Services for State Workers], and other health authorities — to give voice to the needs of people living with coagulation disorders. | Blødning
> Hemofili | Institusjonell styring
> Arbeide effektivt i nettverk med flere interessenter | 1 000 | National | Sometimes | 119076498939 |
interaksjoner
handlinger & påvirkning
6 omtaler
