| We advocate on behalf of patients with mutual health insurance funds. | Investigação médica
> Investigação Médica | Parceria regulatória
> A trabalhar com organismos reguladores | 100 | National | Rarely | 115057856231 |
| Eligible to the EMA [European Medicines Agency] and invited to meetings and events, been part of regulatory evaluations. Member of EU HTA [Health Technology Assessment] stakeholder forum. | Neurodegenerativa
> Doença de Huntington | Parceria regulatória
> A trabalhar com organismos reguladores | Do not know | International | Sometimes | 119075658991 |
| Drug Reimbursement Committee [Commissie Terugbetaling Geneesmiddelen – Drug Reimbursement Committee] via VPP [Vlaams Patiëntenplatform - Flemish Patients’ Platform]. | Reumático
> Doenças reumáticas: a maioria dos tipos | Parceria regulatória
> Participar em avaliações de Avaliação de Tecnologias de Saúde (ATS) e de reembolso | 10 000 | Regional | Sometimes | 114996669704 |
| Providing information to the organisation that represents us in CTG [College Tarieven Gezondheidszorg - Healthcare Tariffs Board] reimbursement consultations concerning a new medicine. | Educação do doente
> Informações do paciente | Parceria regulatória
> Participar em avaliações de Avaliação de Tecnologias de Saúde (ATS) e de reembolso | 1000 | Regional | Sometimes | 115028426381 |
| Through the Luss [Ligue des Usagers des Services de Santé – League of Health Service Users], which brings together several patient associations and has a member sitting on the Drug Reimbursement Committee at the INAMI [Institut National d'Assurance Maladie-Invalidité – National Institute for Health and Disability Insurance]. | Sangue
> Doença das células falciformes | Parceria regulatória
> Participar em avaliações de Avaliação de Tecnologias de Saúde (ATS) e de reembolso | Do not know | National | Rarely | 115028443749 |
| FAGG [Federaal Agentschap voor Geneesmiddelen en Gezondheidsproducten – Federal Agency for Medicines and Health Products], KCE [Federaal Kenniscentrum voor de Gezondheidszorg – Belgian Health Care Knowledge Centre], and RIZIV [Rijksinstituut voor Ziekte- en Invaliditeitsverzekering – National Institute for Health and Disability Insurance]/CTG [Commissie Tegemoetkoming Geneesmiddelen – Drug Reimbursement Committee]. | Reumático
> Doenças reumáticas: a maioria dos tipos | Parceria regulatória
> Participar em avaliações de Avaliação de Tecnologias de Saúde (ATS) e de reembolso | We do not communicate with patients directly | Regional | Sometimes | 115034595480 |
| Completed several CTG [Commissie Toekenning Geneesmiddelen – Medicine Allocation Committee] dossiers. | Cancro
> Cancro: pulmão | Parceria regulatória
> Participar em avaliações de Avaliação de Tecnologias de Saúde (ATS) e de reembolso | 1000 | National | Sometimes | 115036954847 |
| Input from the patient organisation on reimbursement dossiers for new medications (via an extensive questionnaire). | Cancro
> Cancro: pulmão | Parceria regulatória
> Participar em avaliações de Avaliação de Tecnologias de Saúde (ATS) e de reembolso | 1000 | Regional | Sometimes | 115039053506 |
| Expert assessments in support of drug reimbursement decisions. | Neurodegenerativa
> Demência | Parceria regulatória
> Participar em avaliações de Avaliação de Tecnologias de Saúde (ATS) e de reembolso | Do not know | Regional | Sometimes | 115043013133 |
| We provide advisory input through VPP [Vlaams Patiëntenplatform – Flemish Patient Platform] and, on occasion, in response to questionnaires issued by RIZIV [Rijksinstituut voor Ziekte- en Invaliditeitsverzekering – National Institute for Health and Disability Insurance]. | Alergia
> Asma, alergia, dermatite atópica, eczema | Parceria regulatória
> Participar em avaliações de Avaliação de Tecnologias de Saúde (ATS) e de reembolso | Do not know | National | Sometimes | 115043032741 |
| Advisory board of RIZIV [Rijksinstituut voor Ziekte- en Invaliditeitsverzekering – National Institute for Health and Disability Insurance] in connection with applications for reimbursement modalities for new medicines. | Sangramento
> Perturbações hemorrágicas: a maioria dos tipos | Parceria regulatória
> Participar em avaliações de Avaliação de Tecnologias de Saúde (ATS) e de reembolso | 5000 | National | Rarely | 115049435993 |
| We participate in stakeholder engagement sessions organised by Pharma.be and FAGG [Federaal Agentschap voor Geneesmiddelen en Gezondheidsproducten – Federal Agency for Medicines and Health Products]. | Sangue
> Doenças do sangue: PTI | Parceria regulatória
> Participar/facilitar reuniões com decisores políticos/reguladores | 100 | National | Sometimes | 115021567311 |
| FAGG [Federaal Agentschap voor Geneesmiddelen en Gezondheidsproducten – Federal Agency for Medicines and Health Products], KCE [Federaal Kenniscentrum voor de Gezondheidszorg – Belgian Health Care Knowledge Centre], and RIZIV [Rijksinstituut voor Ziekte- en Invaliditeitsverzekering – National Institute for Health and Disability Insurance]/CTG [Commissie Tegemoetkoming Geneesmiddelen – Drug Reimbursement Committee]. | Reumático
> Doenças reumáticas: a maioria dos tipos | Parceria regulatória
> Participar/facilitar reuniões com decisores políticos/reguladores | We do not communicate with patients directly | Regional | Sometimes | 115034595480 |
| INAMI [Institut National d'Assurance Maladie-Invalidité – National Institute for Health and Disability Insurance], Minister of Health. | Cancro
> Cancro: sangue | Parceria regulatória
> Participar/facilitar reuniões com decisores políticos/reguladores | 1000 | National | Regularly | 115043127768 |
| EMA [European Medicines Agency] PCWP [Patients' and Consumers' Working Party] Forum at EU Parliament activities in our members' countries. | Imune
> Imunocomprometido | Parceria regulatória
> Participar/facilitar reuniões com decisores políticos/reguladores | Over 100,000 | International | Regularly | 119074504996 |
| Eligible to the EMA [European Medicines Agency] and invited to meetings and events, been part of regulatory evaluations. Member of EU HTA [Health Technology Assessment] stakeholder forum. | Neurodegenerativa
> Doença de Huntington | Parceria regulatória
> Participar/facilitar reuniões com decisores políticos/reguladores | Do not know | International | Sometimes | 119075658991 |
| Drug Reimbursement Committee [Commissie Terugbetaling Geneesmiddelen – Drug Reimbursement Committee] via VPP [Vlaams Patiëntenplatform - Flemish Patients’ Platform]. | Reumático
> Doenças reumáticas: a maioria dos tipos | Parceria regulatória
> Com outros defensores de saúde | 10 000 | Regional | Sometimes | 114996669704 |
| Via the VPP [Vlaams Patiënten Platform – Flemish Patients' Platform] on behalf of Alnylam Pharmaceuticals. | Neurodegenerativa
> Amiloidose | Parceria regulatória
> Com outros defensores de saúde | 1000 | National | Sometimes | 114996917912 |
| In its newsletter No. 71 of November 2024, BCC [Belgian Brain Council - Conseil Belge du Cerveau] expressed its support for the statement issued by the Alzheimer Europe association in response to the EMA [European Medicines Agency]'s refusal to grant a marketing authorisation for Leqembi (lecanemab) for the treatment of mild cognitive impairment (memory and thinking disorders). | Saúde mental
> Saúde mental: a maioria das condições | Parceria regulatória
> Com outros defensores de saúde | 1000 | International | Sometimes | 115006691079 |
| Providing information to the organisation that represents us in CTG [College Tarieven Gezondheidszorg - Healthcare Tariffs Board] reimbursement consultations concerning a new medicine. | Educação do doente
> Informações do paciente | Parceria regulatória
> Com outros defensores de saúde | 1000 | Regional | Sometimes | 115028426381 |
| By being a member of umbrella organisations. | Reumático
> Esclerodermia | Parceria regulatória
> Com outros defensores de saúde | 100 | National | Sometimes | 115033503861 |
| By being a member of umbrella organisations. | Reumático
> Esclerodermia | Parceria regulatória
> Com outros defensores de saúde | 100 | National | Sometimes | 115033503861 |
| Via VPP [Vlaams Patiëntenplatform – Flemish Patients' Platform]. | Cancro
> Cancro: raro | Parceria regulatória
> Com outros defensores de saúde | 100 | Regional | Rarely | 115043019020 |
| We provide advisory input through VPP [Vlaams Patiëntenplatform – Flemish Patient Platform]. | Alergia
> Asma, alergia, dermatite atópica, eczema | Parceria regulatória
> Com outros defensores de saúde | Do not know | National | Sometimes | 115043032741 |
| We provide advisory input through VPP [Vlaams Patiëntenplatform – Flemish Patient Platform]. | Alergia
> Asma, alergia, dermatite atópica, eczema | Parceria regulatória
> Com outros defensores de saúde | Do not know | National | Sometimes | 115043032741 |
| Through our association OntmoetPijn, we are members of the Vlaamse Pijnliga [Flemish Pain League] and use that platform to advocate on behalf of people living with chronic pain. | Neurológico
> Dor | Parceria regulatória
> Com outros defensores de saúde | 100 | Regional | Sometimes | 115046494165 |
| We are a member of VPP [Vlaams Patiëntenplatform – Flemish Patients' Platform]. They advocate on our behalf. | Neuromuscular
> Doenças neuromusculares: a maioria dos tipos | Parceria regulatória
> Com outros defensores de saúde | 1000 | Regional | No | 115055397447 |
| EMA [European Medicines Agency] PCWP [Patients' and Consumers' Working Party] Forum at EU Parliament activities in our members' countries. | Imune
> Imunocomprometido | Parceria regulatória
> Com outros defensores de saúde | Over 100,000 | International | Regularly | 119074504996 |
| Affiliated with the Vlaams Patiëntenplatform [Flemish Patients' Platform] and Kom op Tegen Kanker [Stand Up to Cancer]. | Cancro
> Cancro: mama | Parceria regulatória
> Com outros defensores de saúde | 1000 | Regional | Rarely | 115020713219 |
| Advisory board member at Kom op tegen Kanker [Kom op tegen Kanker – Fight Against Cancer]. | Cancro
> Cancro: mama | Parceria regulatória
> Com outros defensores de saúde | 100 | Regional | Rarely | 115036847346 |
| Providing advisory input on legislative work concerning involuntary psychiatric admissions [Belgium]. | Saúde mental
> Saúde mental: cuidadores, família, amigos | Impacto nas políticas e legislação
> Influenciar a política e legislação de saúde | 1000 | Regional | Regularly | 115056630689 |
| Regional discussion on the cardiovascular prevention plan, with outreach to municipalities and CPAS [Centre Public d'Action Sociale – Public Centre for Social Welfare]. | Cardiovascular
> Cardiovascular: a maioria dos tipos | Impacto nas políticas e legislação
> Participar em audiências públicas e consultas | 100 000 | National | Regularly | 115042996911 |
| Roundtable discussions in parliament and visits to ministers’ offices. | Cancro
> Cancro: ginecológico | Impacto nas políticas e legislação
> Participar em audiências públicas e consultas | 1000 | National | Rarely | 115045208576 |
| EMA [European Medicines Agency] PCWP [Patients' and Consumers' Working Party] Forum at EU Parliament activities in our members' countries. | Imune
> Imunocomprometido | Impacto nas políticas e legislação
> Participar em audiências públicas e consultas | Over 100,000 | International | Regularly | 119074504996 |
| Hearing before the Belgian Senate – 24 November 2023. | Sangue
> Doença das células falciformes | Impacto nas políticas e legislação
> Mobilizar parlamentares e líderes políticos | Do not know | National | Sometimes | 115035784218 |
| Providing advisory input on legislative work concerning involuntary psychiatric admissions. | Saúde mental
> Saúde mental: cuidadores, família, amigos | Impacto nas políticas e legislação
> Defender projetos de lei e direitos de proteção dos doentes | 1000 | Regional | Regularly | 115056630689 |
| In its newsletter No. 71 of November 2024, BCC [Belgian Brain Council - Conseil Belge du Cerveau] expressed its support for the statement issued by the Alzheimer Europe association in response to the EMA [European Medicines Agency]'s refusal to grant a marketing authorisation for Leqembi (lecanemab) for the treatment of mild cognitive impairment (memory and thinking disorders). | Saúde mental
> Saúde mental: a maioria das condições | Impacto nas políticas e legislação
> Abordar barreiras/anomalias nos cuidados médicos | 1000 | International | Sometimes | 115006691079 |
| A legislative anomaly exists with regard to the funding of self-catheterisation for individuals residing in a residential care facility. | Neurológico
> Esclerose múltipla | Impacto nas políticas e legislação
> Abordar barreiras/anomalias nos cuidados médicos | 5000 | Regional | Rarely | 115028407747 |
| … certain medications are reimbursed for women with breast cancer but not for men with the same condition. | Cancro
> Cancro (masculino): mama | Impacto nas políticas e legislação
> Abordar barreiras/anomalias nos cuidados médicos | 100 | Regional | Sometimes | 115031895194 |
| We are calling for improved reimbursement of our medications. | Gastrointestinal
> IBD | Defesa de preços e acessibilidade financeira
> Defender preços justos para medicamentos | 100 000 | Regional | Sometimes | 115020038862 |
| Ensuring reimbursement for specific medicines. | Respiratório
> DPOC | Defesa de preços e acessibilidade financeira
> Defender preços justos para medicamentos | 5000 | Regional | Sometimes | 115029939063 |
| Through our association OntmoetPijn, we are a member of the Flemish Pain League, where we actively advocate on behalf of people living with chronic pain — including, for example, issues relating to the cost of medication. | Neurológico
> Dor | Defesa de preços e acessibilidade financeira
> Defender preços justos para medicamentos | 100 | Regional | Sometimes | 115046494165 |
| VPP [Vlaams Patiëntenplatform - Flemish Patients’ Platform] participates as a patient organisation in consultative platforms addressing key bottlenecks, such as reimbursement and temporary unavailability of medicines. Pricing policy is also covered within this remit. Through the ELZ [Eerstelijnszone – Primary Care Zone] P-Zon [Personen met een Zorg- en OndersteuningsNood - People with a Care and Support Need], we additionally ensure the patient voice is represented within the P-Zon cluster. | Rim
> Doenças renais | Defesa de preços e acessibilidade financeira
> Defender preços justos para medicamentos | 100 | Regional | Sometimes | 115055534359 |
| Request for medication reimbursement. | Cancro
> Cancro: sangue | Defesa de preços e acessibilidade financeira
> Defender preços justos para medicamentos | 1000 | Regional | Sometimes | 115057073683 |
| Completing the RIZIV [Rijksinstituut voor ziekte- en invaliditeitsverzekering – National Institute for Health and Disability Insurance] questionnaire in order to obtain reimbursement for medicines. | Respiratório
> DPOC | Defesa de preços e acessibilidade financeira
> Participar em negociações do conselho de revisão de preços | 5000 | Regional | Sometimes | 114997831407 |
| An intervention was made in 2015 through the mutual health insurers at INAMI [Institut national d'assurance maladie-invalidité – National Institute for Health and Disability Insurance] to amend the reimbursement conditions for Imitrex SC [subcutaneous injection - used to quickly treat acute migraine attacks and cluster headaches in adults]. | Neurológico
> Enxaqueca | Defesa de preços e acessibilidade financeira
> Participar em negociações do conselho de revisão de preços | 100 | National | Rarely | 115006822909 |
| Reimbursement applications for certain medicines through INAMI [Institut National d'Assurance Maladie-Invalidité – National Institute for Health and Disability Insurance]. | Reumático
> Lúpus | Defesa de preços e acessibilidade financeira
> Participar em negociações do conselho de revisão de preços | 100 | National | Regularly | 115029783188 |
| Advisory board of RIZIV [Rijksinstituut voor Ziekte- en Invaliditeitsverzekering – National Institute for Health and Disability Insurance] in connection with applications for reimbursement modalities for new medicines. | Sangramento
> Perturbações hemorrágicas: a maioria dos tipos | Defesa de preços e acessibilidade financeira
> Participar em negociações do conselho de revisão de preços | 5000 | National | Rarely | 115049435993 |
| VPP [Vlaams Patiëntenplatform - Flemish Patients’ Platform] participates as a patient organisation in consultative platforms addressing key bottlenecks, such as reimbursement and temporary unavailability of medicines. Pricing policy is also covered within this remit. Through the ELZ [Eerstelijnszone – Primary Care Zone] P-Zon [Personen met een Zorg- en OndersteuningsNood - People with a Care and Support Need], we additionally ensure the patient voice is represented within the P-Zon cluster [atient participation cluster within a Flemish primary-care network]. | Rim
> Doenças renais | Defesa de preços e acessibilidade financeira
> Participar em negociações do conselho de revisão de preços | 100 | Regional | Sometimes | 115055534359 |
| Recommendation submitted to the CTG [Commissie Tegemoetkoming Geneesmiddelen – Drug Reimbursement Committee] via a completed questionnaire: reimbursement of Buccolam for individuals with epilepsy aged 18 years and over. | Neurológico
> Epilepsia | Defesa de preços e acessibilidade financeira
> Participar em negociações do conselho de revisão de preços | 1000 | Regional | Sometimes | 115057861541 |
| Completing the RIZIV [Rijksinstituut voor ziekte- en invaliditeitsverzekering – National Institute for Health and Disability Insurance] questionnaire in order to obtain reimbursement for medicines. | Respiratório
> DPOC | Defesa de preços e acessibilidade financeira
> Defender a inclusão do produto em listas de reembolso/formulários nacionais | 5000 | Regional | Sometimes | 114997831407 |
| Medications that are essential for the provision of quality palliative care are reviewed by us and designated for mandatory availability in local pharmacies. | Crónico
> Paliativo | Defesa de preços e acessibilidade financeira
> Defender a inclusão do produto em listas de reembolso/formulários nacionais | 1000 | Regional | Sometimes | 115002049927 |
| Reimbursement applications for certain medicines through INAMI [Institut National d'Assurance Maladie-Invalidité – National Institute for Health and Disability Insurance]. | Reumático
> Lúpus | Defesa de preços e acessibilidade financeira
> Defender a inclusão do produto em listas de reembolso/formulários nacionais | 100 | National | Regularly | 115029783188 |
| Ensuring reimbursement for specific medicines. | Respiratório
> DPOC | Defesa de preços e acessibilidade financeira
> Defender a inclusão do produto em listas de reembolso/formulários nacionais | 5000 | Regional | Sometimes | 115029939063 |
| Equal treatment for women and men with breast cancer. Certain medications are reimbursed for women with breast cancer but not for men with the same condition. | Cancro
> Cancro (masculino): mama | Defesa de preços e acessibilidade financeira
> Defender a inclusão do produto em listas de reembolso/formulários nacionais | 100 | Regional | Sometimes | 115031895194 |
| HPV [Human Papillomavirus] vaccination reimbursed for boys up to the age of 18. | Cancro
> Cancro: HPV | Defesa de preços e acessibilidade financeira
> Defender a inclusão do produto em listas de reembolso/formulários nacionais | 1000 | National | Sometimes | 115051943511 |
| VPP [Vlaams Patiëntenplatform - Flemish Patients’ Platform] participates as a patient organisation in consultative platforms addressing key bottlenecks, such as reimbursement and temporary unavailability of medicines. Pricing policy is also covered within this remit. Through the ELZ [Eerstelijnszone – Primary Care Zone] P-Zon [Personen met een Zorg- en OndersteuningsNood - People with a Care and Support Need], we additionally ensure the patient voice is represented within the P-Zon cluster. | Rim
> Doenças renais | Defesa de preços e acessibilidade financeira
> Defender a inclusão do produto em listas de reembolso/formulários nacionais | 100 | Regional | Sometimes | 115055534359 |
| Request for medication reimbursement. | Cancro
> Cancro: sangue | Defesa de preços e acessibilidade financeira
> Defender a inclusão do produto em listas de reembolso/formulários nacionais | 1000 | Regional | Sometimes | 115057073683 |
| Recommendation submitted to the CTG [Commissie Tegemoetkoming Geneesmiddelen – Drug Reimbursement Committee] via a completed questionnaire: reimbursement of Buccolam for individuals with epilepsy aged 18 years and over. | Neurológico
> Epilepsia | Defesa de preços e acessibilidade financeira
> Defender a inclusão do produto em listas de reembolso/formulários nacionais | 1000 | Regional | Sometimes | 115057861541 |
| [Advocate] for greater availability of well-maintained public restroom facilities, and for the establishment of a national Inflammatory Bowel Disease (IBD) awareness day. | Gastrointestinal
> IBD | Defesa de preços e acessibilidade financeira
> Participar em campanhas de sensibilização | 100 000 | Regional | Sometimes | 115020038862 |
| Medications that are essential for the provision of quality palliative care are reviewed by us and designated for mandatory availability in local pharmacies. | Crónico
> Paliativo | Melhorar os caminhos de acesso
> Facilitar o acesso equitativo a medicamentos/cuidados de saúde | 1000 | Regional | Sometimes | 115002049927 |
| [Advocate] for greater availability of well-maintained public restroom facilities, and for the establishment of a national Inflammatory Bowel Disease (IBD) awareness day. | Gastrointestinal
> IBD | Melhorar os caminhos de acesso
> Facilitar o acesso equitativo a medicamentos/cuidados de saúde | 100 000 | Regional | Sometimes | 115020038862 |
| Reimbursement of PrEP [Pre-Exposure Prophylaxis] for community-based organisations. | Saúde geral
> Saúde sexual: outro | Melhorar os caminhos de acesso
> Facilitar o acesso equitativo a medicamentos/cuidados de saúde | 100 | Regional | Sometimes | 115046432045 |
| HPV [Human Papillomavirus] vaccination reimbursed for boys up to the age of 18. | Cancro
> Cancro: HPV | Melhorar os caminhos de acesso
> Defender um acesso mais amplo às vacinas | 1000 | National | Sometimes | 115051943511 |
| Our association is an active member of various associations and organisations that regularly participate in advisory committees on this topic [drug pricing] (e.g. RaDiOrg, Rare Disorders Belgium & ERN [European Reference Network] Transplantchild). | Raro
> Doenças raras: crianças/jovens | Melhorar os caminhos de acesso
> Melhorar o acesso a terapias raras/ultra-raras | 100 | International | Sometimes | 115037392949 |
| Since the introduction of a patient advisory process for the CTG [College Tarieven Gezondheidszorg - Healthcare Tariffs Authority] procedure in early 2025, we have compiled a submission dossier on two occasions. | Raro
> Fibrose quística | Contribuição do doente baseada em evidências
> Utilize os insights dos pacientes para informar decisões | 1000 | National | Sometimes | 115005093988 |
| [Patient] expert assessments in support of drug reimbursement decisions. | Neurodegenerativa
> Demência | Contribuição do doente baseada em evidências
> Utilize os insights dos pacientes para informar decisões | Do not know | Regional | Sometimes | 115043013133 |
| We represent the patient voice to mutual health insurance funds and within European consortia. | Investigação médica
> Investigação Médica | Contribuição do doente baseada em evidências
> Utilize os insights dos pacientes para informar decisões | 100 | National | Rarely | 115057856231 |
| Input from the patient organisation on reimbursement dossiers for new medications (via an extensive questionnaire). | Cancro
> Cancro: pulmão | Contribuição do doente baseada em evidências
> Realizar inquéritos/pesquisas para gerar dados | 1000 | Regional | Sometimes | 115039053506 |
| Since the introduction of a patient advisory process for the CTG [College Tarieven Gezondheidszorg - Healthcare Tariffs Authority] procedure in early 2025, we have compiled a submission dossier on two occasions. | Raro
> Fibrose quística | Contribuição do doente baseada em evidências
> Traduzir evidências e conhecimentos em contributos para políticas | 1000 | National | Sometimes | 115005093988 |
| Regional discussion on the cardiovascular prevention plan, with outreach to municipalities and CPAS [Centre Public d'Action Sociale – Public Centre for Social Welfare]. | Cardiovascular
> Cardiovascular: a maioria dos tipos | Diagnóstico e entrega de medicamentos
> Apoiar o rastreio e a deteção precoce | 100 000 | National | Regularly | 115042996911 |
| Working group on the new rare diseases plan, and various other working groups, committees, and similar bodies. | Raro
> Doenças raras: a maioria dos tipos | Governação institucional
> Garantir representação nos órgãos consultivos governamentais | We do not communicate with patients directly | National | Regularly | 115005882213 |
| At RIZIV [Rijksinstituut voor Ziekte- en Invaliditeitsverzekering – National Institute for Health and Disability Insurance], among other bodies. | Cancro
> Cancro: sangue | Governação institucional
> Garantir representação nos órgãos consultivos governamentais | 1000 | Regional | Regularly | 115010762888 |
| Through the Luss [Ligue des Usagers des Services de Santé – League of Health Service Users], which brings together several patient associations and has a member sitting on the Drug Reimbursement Committee at the INAMI [Institut National d'Assurance Maladie-Invalidité – National Institute for Health and Disability Insurance]. | Sangue
> Doença das células falciformes | Governação institucional
> Garantir representação nos órgãos consultivos governamentais | Do not know | National | Rarely | 115028443749 |
| Our association is an active member of various associations and organisations that regularly participate in advisory committees on this topic [drug pricing] (e.g. RaDiOrg, Rare Disorders Belgium & ERN [European Reference Network] Transplantchild). | Raro
> Doenças raras: crianças/jovens | Governação institucional
> Garantir representação nos órgãos consultivos governamentais | 100 | International | Sometimes | 115037392949 |
| Member of the steering committee for the national and regional plan. | HIV
> VIH e saúde sexual | Governação institucional
> Garantir representação nos órgãos consultivos governamentais | 100 000 | Regional | Sometimes | 115048515283 |
| On occasion, a subject-matter expert contributes through our overarching collaborative platform. | Reumático
> Artrite reumatoide | Governação institucional
> Trabalhar eficazmente em redes com múltiplos intervenientes | 1000 | Regional | Sometimes | 114998593281 |
| Working group on the new rare diseases plan, and various other working groups, committees, and similar bodies. | Raro
> Doenças raras: a maioria dos tipos | Governação institucional
> Trabalhar eficazmente em redes com múltiplos intervenientes | We do not communicate with patients directly | National | Regularly | 115005882213 |
| I participate in the Observatoire des Maladies Chroniques [Observatory for Chronic Diseases] and in the work of the LUSS [Ligue des Usagers des Services de Santé – League of Health Service Users] (the umbrella body for patient associations), both of which address these subject areas. | Neurodegenerativa
> Doença de Huntington | Governação institucional
> Trabalhar eficazmente em redes com múltiplos intervenientes | 1000 | National | Regularly | 115007525885 |
| We participate in stakeholder engagement sessions organised by Pharma.be and FAGG [Federaal Agentschap voor Geneesmiddelen en Gezondheidsproducten – Federal Agency for Medicines and Health Products]. | Sangue
> Doenças do sangue: PTI | Governação institucional
> Trabalhar eficazmente em redes com múltiplos intervenientes | 100 | National | Sometimes | 115021567311 |
| Through the Luss [Ligue des Usagers des Services de Santé – League of Health Service Users], which brings together several patient associations and has a member sitting on the Drug Reimbursement Committee at the INAMI [Institut National d'Assurance Maladie-Invalidité – National Institute for Health and Disability Insurance]. | Sangue
> Doença das células falciformes | Governação institucional
> Trabalhar eficazmente em redes com múltiplos intervenientes | Do not know | National | Rarely | 115028443749 |
| [Working with] LUSS [Ligue des usagers des services de santé – League of Healthcare Service Users]. | Neurológico
> Fibromialgia | Governação institucional
> Trabalhar eficazmente em redes com múltiplos intervenientes | 100 | National | Sometimes | 115028484320 |
| Patient expert for rare diseases, pharmaceutical companies, and other associations. | Raro
> Doenças raras: rim | Governação institucional
> Trabalhar eficazmente em redes com múltiplos intervenientes | 100 | National | Regularly | 115028704257 |
| Our association is an active member of various associations and organisations that regularly participate in advisory committees on this topic (e.g. RaDiOrg, Rare Disorders Belgium & ERN [European Reference Network] Transplantchild). | Raro
> Doenças raras: crianças/jovens | Governação institucional
> Trabalhar eficazmente em redes com múltiplos intervenientes | 100 | International | Sometimes | 115037392949 |
| VPP [Vlaams Patiëntenplatform - Flemish Patients’ Platform] participates as a patient organisation in consultative platforms addressing key bottlenecks, such as reimbursement and temporary unavailability of medicines. Pricing policy is also covered within this remit. Through the ELZ [Eerstelijnszone – Primary Care Zone] P-Zon [Personen met een Zorg- en OndersteuningsNood - People with a Care and Support Need], we additionally ensure the patient voice is represented within the P-Zon cluster. | Rim
> Doenças renais | Governação institucional
> Trabalhar eficazmente em redes com múltiplos intervenientes | 100 | Regional | Sometimes | 115055534359 |
| Patient consultation at AstraZeneca. | Cancro
> Cancro (masculino): mama | Governação institucional
> Trabalhar eficazmente em redes com múltiplos intervenientes | 100 | Regional | Rarely | 115058978325 |
| Eligible to the EMA [European Medicines Agency] and invited to meetings and events, been part of regulatory evaluations. Member of EU HTA [Health Technology Assessment] stakeholder forum. | Neurodegenerativa
> Doença de Huntington | Governação institucional
> Trabalhar eficazmente em redes com múltiplos intervenientes | Do not know | International | Sometimes | 119075658991 |
| I am currently in the process of re-establishing the association, and once it is fully operational, that is the objective. | Pele
> Angioedema | Governação institucional
> Manter o estatuto formal de entidade de interesse público ou de caráter beneficente | 100 | National | Sometimes | 115043847394 |
| Equal treatment for women and men with breast cancer. | Cancro
> Cancro (masculino): mama | Defender os direitos dos doentes/melhorar a qualidade de vida
> Proteger/melhorar a experiência do doente | 100 | Regional | Sometimes | 115031895194 |
| Medications that are essential for the provision of quality palliative care are reviewed by us and designated for mandatory availability in local pharmacies. | Crónico
> Paliativo | Defender os direitos dos doentes/melhorar a qualidade de vida
> Promover uma ênfase na qualidade de vida | 1000 | Regional | Sometimes | 115002049927 |
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