| We advocate on behalf of patients with mutual health insurance funds. | Medisinsk forskning
> Medisinsk forskning | Regulatorisk partnerskap
> Samarbeid med regulatoriske myndigheter | 100 | National | Rarely | 115057856231 |
| Eligible to the EMA [European Medicines Agency] and invited to meetings and events, been part of regulatory evaluations. Member of EU HTA [Health Technology Assessment] stakeholder forum. | Nevrodegenerativ
> Huntingtons sykdom | Regulatorisk partnerskap
> Samarbeid med regulatoriske myndigheter | Do not know | International | Sometimes | 119075658991 |
| Drug Reimbursement Committee [Commissie Terugbetaling Geneesmiddelen – Drug Reimbursement Committee] via VPP [Vlaams Patiëntenplatform - Flemish Patients’ Platform]. | Reumatisk
> Revmatiske sykdommer: de fleste typer | Regulatorisk partnerskap
> Delta i vurderinger av medisinsk teknologi (HTA) og refusjonsgjennomganger | 10 000 | Regional | Sometimes | 114996669704 |
| Providing information to the organisation that represents us in CTG [College Tarieven Gezondheidszorg - Healthcare Tariffs Board] reimbursement consultations concerning a new medicine. | Pasientopplæring
> Pasientinformasjon | Regulatorisk partnerskap
> Delta i vurderinger av medisinsk teknologi (HTA) og refusjonsgjennomganger | 1 000 | Regional | Sometimes | 115028426381 |
| Through the Luss [Ligue des Usagers des Services de Santé – League of Health Service Users], which brings together several patient associations and has a member sitting on the Drug Reimbursement Committee at the INAMI [Institut National d'Assurance Maladie-Invalidité – National Institute for Health and Disability Insurance]. | Blod
> Sigdcelleanemi | Regulatorisk partnerskap
> Delta i vurderinger av medisinsk teknologi (HTA) og refusjonsgjennomganger | Do not know | National | Rarely | 115028443749 |
| FAGG [Federaal Agentschap voor Geneesmiddelen en Gezondheidsproducten – Federal Agency for Medicines and Health Products], KCE [Federaal Kenniscentrum voor de Gezondheidszorg – Belgian Health Care Knowledge Centre], and RIZIV [Rijksinstituut voor Ziekte- en Invaliditeitsverzekering – National Institute for Health and Disability Insurance]/CTG [Commissie Tegemoetkoming Geneesmiddelen – Drug Reimbursement Committee]. | Reumatisk
> Revmatiske sykdommer: de fleste typer | Regulatorisk partnerskap
> Delta i vurderinger av medisinsk teknologi (HTA) og refusjonsgjennomganger | We do not communicate with patients directly | Regional | Sometimes | 115034595480 |
| Completed several CTG [Commissie Toekenning Geneesmiddelen – Medicine Allocation Committee] dossiers. | Kreft
> Kreft: lunge | Regulatorisk partnerskap
> Delta i vurderinger av medisinsk teknologi (HTA) og refusjonsgjennomganger | 1 000 | National | Sometimes | 115036954847 |
| Input from the patient organisation on reimbursement dossiers for new medications (via an extensive questionnaire). | Kreft
> Kreft: lunge | Regulatorisk partnerskap
> Delta i vurderinger av medisinsk teknologi (HTA) og refusjonsgjennomganger | 1 000 | Regional | Sometimes | 115039053506 |
| Expert assessments in support of drug reimbursement decisions. | Nevrodegenerativ
> Demens | Regulatorisk partnerskap
> Delta i vurderinger av medisinsk teknologi (HTA) og refusjonsgjennomganger | Do not know | Regional | Sometimes | 115043013133 |
| We provide advisory input through VPP [Vlaams Patiëntenplatform – Flemish Patient Platform] and, on occasion, in response to questionnaires issued by RIZIV [Rijksinstituut voor Ziekte- en Invaliditeitsverzekering – National Institute for Health and Disability Insurance]. | Allergi
> Astma, allergi, atopisk dermatitt, eksem | Regulatorisk partnerskap
> Delta i vurderinger av medisinsk teknologi (HTA) og refusjonsgjennomganger | Do not know | National | Sometimes | 115043032741 |
| Advisory board of RIZIV [Rijksinstituut voor Ziekte- en Invaliditeitsverzekering – National Institute for Health and Disability Insurance] in connection with applications for reimbursement modalities for new medicines. | Blødning
> Blødningsforstyrrelser: de fleste typer | Regulatorisk partnerskap
> Delta i vurderinger av medisinsk teknologi (HTA) og refusjonsgjennomganger | 5 000 | National | Rarely | 115049435993 |
| We participate in stakeholder engagement sessions organised by Pharma.be and FAGG [Federaal Agentschap voor Geneesmiddelen en Gezondheidsproducten – Federal Agency for Medicines and Health Products]. | Blod
> Blodsykdommer: ITP | Regulatorisk partnerskap
> Delta/fasilitere møter med beslutningstakere/regulatorer | 100 | National | Sometimes | 115021567311 |
| FAGG [Federaal Agentschap voor Geneesmiddelen en Gezondheidsproducten – Federal Agency for Medicines and Health Products], KCE [Federaal Kenniscentrum voor de Gezondheidszorg – Belgian Health Care Knowledge Centre], and RIZIV [Rijksinstituut voor Ziekte- en Invaliditeitsverzekering – National Institute for Health and Disability Insurance]/CTG [Commissie Tegemoetkoming Geneesmiddelen – Drug Reimbursement Committee]. | Reumatisk
> Revmatiske sykdommer: de fleste typer | Regulatorisk partnerskap
> Delta/fasilitere møter med beslutningstakere/regulatorer | We do not communicate with patients directly | Regional | Sometimes | 115034595480 |
| INAMI [Institut National d'Assurance Maladie-Invalidité – National Institute for Health and Disability Insurance], Minister of Health. | Kreft
> Kreft: blod | Regulatorisk partnerskap
> Delta/fasilitere møter med beslutningstakere/regulatorer | 1 000 | National | Regularly | 115043127768 |
| EMA [European Medicines Agency] PCWP [Patients' and Consumers' Working Party] Forum at EU Parliament activities in our members' countries. | Immun
> Immunsupprimert | Regulatorisk partnerskap
> Delta/fasilitere møter med beslutningstakere/regulatorer | Over 100,000 | International | Regularly | 119074504996 |
| Eligible to the EMA [European Medicines Agency] and invited to meetings and events, been part of regulatory evaluations. Member of EU HTA [Health Technology Assessment] stakeholder forum. | Nevrodegenerativ
> Huntingtons sykdom | Regulatorisk partnerskap
> Delta/fasilitere møter med beslutningstakere/regulatorer | Do not know | International | Sometimes | 119075658991 |
| Drug Reimbursement Committee [Commissie Terugbetaling Geneesmiddelen – Drug Reimbursement Committee] via VPP [Vlaams Patiëntenplatform - Flemish Patients’ Platform]. | Reumatisk
> Revmatiske sykdommer: de fleste typer | Regulatorisk partnerskap
> Med andre helseadvokater | 10 000 | Regional | Sometimes | 114996669704 |
| Via the VPP [Vlaams Patiënten Platform – Flemish Patients' Platform] on behalf of Alnylam Pharmaceuticals. | Nevrodegenerativ
> Amyloidose | Regulatorisk partnerskap
> Med andre helseadvokater | 1 000 | National | Sometimes | 114996917912 |
| In its newsletter No. 71 of November 2024, BCC [Belgian Brain Council - Conseil Belge du Cerveau] expressed its support for the statement issued by the Alzheimer Europe association in response to the EMA [European Medicines Agency]'s refusal to grant a marketing authorisation for Leqembi (lecanemab) for the treatment of mild cognitive impairment (memory and thinking disorders). | Psykisk helse
> Psykisk helse: de fleste tilstander | Regulatorisk partnerskap
> Med andre helseadvokater | 1 000 | International | Sometimes | 115006691079 |
| Providing information to the organisation that represents us in CTG [College Tarieven Gezondheidszorg - Healthcare Tariffs Board] reimbursement consultations concerning a new medicine. | Pasientopplæring
> Pasientinformasjon | Regulatorisk partnerskap
> Med andre helseadvokater | 1 000 | Regional | Sometimes | 115028426381 |
| By being a member of umbrella organisations. | Reumatisk
> Sklerodermi | Regulatorisk partnerskap
> Med andre helseadvokater | 100 | National | Sometimes | 115033503861 |
| By being a member of umbrella organisations. | Reumatisk
> Sklerodermi | Regulatorisk partnerskap
> Med andre helseadvokater | 100 | National | Sometimes | 115033503861 |
| Via VPP [Vlaams Patiëntenplatform – Flemish Patients' Platform]. | Kreft
> Kreft: sjelden | Regulatorisk partnerskap
> Med andre helseadvokater | 100 | Regional | Rarely | 115043019020 |
| We provide advisory input through VPP [Vlaams Patiëntenplatform – Flemish Patient Platform]. | Allergi
> Astma, allergi, atopisk dermatitt, eksem | Regulatorisk partnerskap
> Med andre helseadvokater | Do not know | National | Sometimes | 115043032741 |
| We provide advisory input through VPP [Vlaams Patiëntenplatform – Flemish Patient Platform]. | Allergi
> Astma, allergi, atopisk dermatitt, eksem | Regulatorisk partnerskap
> Med andre helseadvokater | Do not know | National | Sometimes | 115043032741 |
| Through our association OntmoetPijn, we are members of the Vlaamse Pijnliga [Flemish Pain League] and use that platform to advocate on behalf of people living with chronic pain. | Nevrologisk
> Smerte | Regulatorisk partnerskap
> Med andre helseadvokater | 100 | Regional | Sometimes | 115046494165 |
| We are a member of VPP [Vlaams Patiëntenplatform – Flemish Patients' Platform]. They advocate on our behalf. | Nevromuskulær
> Nevromuskulære sykdommer: de fleste typer | Regulatorisk partnerskap
> Med andre helseadvokater | 1 000 | Regional | No | 115055397447 |
| EMA [European Medicines Agency] PCWP [Patients' and Consumers' Working Party] Forum at EU Parliament activities in our members' countries. | Immun
> Immunsupprimert | Regulatorisk partnerskap
> Med andre helseadvokater | Over 100,000 | International | Regularly | 119074504996 |
| Affiliated with the Vlaams Patiëntenplatform [Flemish Patients' Platform] and Kom op Tegen Kanker [Stand Up to Cancer]. | Kreft
> Kreft: bryst | Regulatorisk partnerskap
> Med andre helseadvokater | 1 000 | Regional | Rarely | 115020713219 |
| Advisory board member at Kom op tegen Kanker [Kom op tegen Kanker – Fight Against Cancer]. | Kreft
> Kreft: bryst | Regulatorisk partnerskap
> Med andre helseadvokater | 100 | Regional | Rarely | 115036847346 |
| Providing advisory input on legislative work concerning involuntary psychiatric admissions [Belgium]. | Psykisk helse
> Psykisk helse: omsorgspersoner, familie, venner | Påvirkning av politikk og lovgivning
> Påvirk helsepolitikk og lovgivning | 1 000 | Regional | Regularly | 115056630689 |
| Regional discussion on the cardiovascular prevention plan, with outreach to municipalities and CPAS [Centre Public d'Action Sociale – Public Centre for Social Welfare]. | Kardiovaskulær
> Kardiovaskulær: de fleste typer | Påvirkning av politikk og lovgivning
> Delta i offentlige høringer og konsultasjoner | 100 000 | National | Regularly | 115042996911 |
| Roundtable discussions in parliament and visits to ministers’ offices. | Kreft
> Kreft: gynekologisk | Påvirkning av politikk og lovgivning
> Delta i offentlige høringer og konsultasjoner | 1 000 | National | Rarely | 115045208576 |
| EMA [European Medicines Agency] PCWP [Patients' and Consumers' Working Party] Forum at EU Parliament activities in our members' countries. | Immun
> Immunsupprimert | Påvirkning av politikk og lovgivning
> Delta i offentlige høringer og konsultasjoner | Over 100,000 | International | Regularly | 119074504996 |
| Hearing before the Belgian Senate – 24 November 2023. | Blod
> Sigdcelleanemi | Påvirkning av politikk og lovgivning
> Mobiliser parlamentarikere og politiske ledere | Do not know | National | Sometimes | 115035784218 |
| Providing advisory input on legislative work concerning involuntary psychiatric admissions. | Psykisk helse
> Psykisk helse: omsorgspersoner, familie, venner | Påvirkning av politikk og lovgivning
> Tal pasientvernlovforslag og rettigheter | 1 000 | Regional | Regularly | 115056630689 |
| In its newsletter No. 71 of November 2024, BCC [Belgian Brain Council - Conseil Belge du Cerveau] expressed its support for the statement issued by the Alzheimer Europe association in response to the EMA [European Medicines Agency]'s refusal to grant a marketing authorisation for Leqembi (lecanemab) for the treatment of mild cognitive impairment (memory and thinking disorders). | Psykisk helse
> Psykisk helse: de fleste tilstander | Påvirkning av politikk og lovgivning
> Håndtering av barrierer/anomalier i medisinsk behandling | 1 000 | International | Sometimes | 115006691079 |
| A legislative anomaly exists with regard to the funding of self-catheterisation for individuals residing in a residential care facility. | Nevrologisk
> Multippel sklerose | Påvirkning av politikk og lovgivning
> Håndtering av barrierer/anomalier i medisinsk behandling | 5 000 | Regional | Rarely | 115028407747 |
| … certain medications are reimbursed for women with breast cancer but not for men with the same condition. | Kreft
> Kreft (mann): bryst | Påvirkning av politikk og lovgivning
> Håndtering av barrierer/anomalier i medisinsk behandling | 100 | Regional | Sometimes | 115031895194 |
| We are calling for improved reimbursement of our medications. | Gastrointestinal
> IBD | Prising og tilgjengelighetsadvokatur
> Gå inn for rettferdig medisinprising | 100 000 | Regional | Sometimes | 115020038862 |
| Ensuring reimbursement for specific medicines. | Respiratorisk
> KOLS | Prising og tilgjengelighetsadvokatur
> Gå inn for rettferdig medisinprising | 5 000 | Regional | Sometimes | 115029939063 |
| Through our association OntmoetPijn, we are a member of the Flemish Pain League, where we actively advocate on behalf of people living with chronic pain — including, for example, issues relating to the cost of medication. | Nevrologisk
> Smerte | Prising og tilgjengelighetsadvokatur
> Gå inn for rettferdig medisinprising | 100 | Regional | Sometimes | 115046494165 |
| VPP [Vlaams Patiëntenplatform - Flemish Patients’ Platform] participates as a patient organisation in consultative platforms addressing key bottlenecks, such as reimbursement and temporary unavailability of medicines. Pricing policy is also covered within this remit. Through the ELZ [Eerstelijnszone – Primary Care Zone] P-Zon [Personen met een Zorg- en OndersteuningsNood - People with a Care and Support Need], we additionally ensure the patient voice is represented within the P-Zon cluster. | Nyre
> Nyresykdommer | Prising og tilgjengelighetsadvokatur
> Gå inn for rettferdig medisinprising | 100 | Regional | Sometimes | 115055534359 |
| Request for medication reimbursement. | Kreft
> Kreft: blod | Prising og tilgjengelighetsadvokatur
> Gå inn for rettferdig medisinprising | 1 000 | Regional | Sometimes | 115057073683 |
| Completing the RIZIV [Rijksinstituut voor ziekte- en invaliditeitsverzekering – National Institute for Health and Disability Insurance] questionnaire in order to obtain reimbursement for medicines. | Respiratorisk
> KOLS | Prising og tilgjengelighetsadvokatur
> Delta i forhandlinger med prisrevisjonsnemnd | 5 000 | Regional | Sometimes | 114997831407 |
| An intervention was made in 2015 through the mutual health insurers at INAMI [Institut national d'assurance maladie-invalidité – National Institute for Health and Disability Insurance] to amend the reimbursement conditions for Imitrex SC [subcutaneous injection - used to quickly treat acute migraine attacks and cluster headaches in adults]. | Nevrologisk
> Migrene | Prising og tilgjengelighetsadvokatur
> Delta i forhandlinger med prisrevisjonsnemnd | 100 | National | Rarely | 115006822909 |
| Reimbursement applications for certain medicines through INAMI [Institut National d'Assurance Maladie-Invalidité – National Institute for Health and Disability Insurance]. | Reumatisk
> Lupus | Prising og tilgjengelighetsadvokatur
> Delta i forhandlinger med prisrevisjonsnemnd | 100 | National | Regularly | 115029783188 |
| Advisory board of RIZIV [Rijksinstituut voor Ziekte- en Invaliditeitsverzekering – National Institute for Health and Disability Insurance] in connection with applications for reimbursement modalities for new medicines. | Blødning
> Blødningsforstyrrelser: de fleste typer | Prising og tilgjengelighetsadvokatur
> Delta i forhandlinger med prisrevisjonsnemnd | 5 000 | National | Rarely | 115049435993 |
| VPP [Vlaams Patiëntenplatform - Flemish Patients’ Platform] participates as a patient organisation in consultative platforms addressing key bottlenecks, such as reimbursement and temporary unavailability of medicines. Pricing policy is also covered within this remit. Through the ELZ [Eerstelijnszone – Primary Care Zone] P-Zon [Personen met een Zorg- en OndersteuningsNood - People with a Care and Support Need], we additionally ensure the patient voice is represented within the P-Zon cluster [atient participation cluster within a Flemish primary-care network]. | Nyre
> Nyresykdommer | Prising og tilgjengelighetsadvokatur
> Delta i forhandlinger med prisrevisjonsnemnd | 100 | Regional | Sometimes | 115055534359 |
| Recommendation submitted to the CTG [Commissie Tegemoetkoming Geneesmiddelen – Drug Reimbursement Committee] via a completed questionnaire: reimbursement of Buccolam for individuals with epilepsy aged 18 years and over. | Nevrologisk
> Epilepsi | Prising og tilgjengelighetsadvokatur
> Delta i forhandlinger med prisrevisjonsnemnd | 1 000 | Regional | Sometimes | 115057861541 |
| Completing the RIZIV [Rijksinstituut voor ziekte- en invaliditeitsverzekering – National Institute for Health and Disability Insurance] questionnaire in order to obtain reimbursement for medicines. | Respiratorisk
> KOLS | Prising og tilgjengelighetsadvokatur
> Arbeide for inkludering av produkt i refusjonslister/nasjonale formularer | 5 000 | Regional | Sometimes | 114997831407 |
| Medications that are essential for the provision of quality palliative care are reviewed by us and designated for mandatory availability in local pharmacies. | Kronisk
> Palliativ | Prising og tilgjengelighetsadvokatur
> Arbeide for inkludering av produkt i refusjonslister/nasjonale formularer | 1 000 | Regional | Sometimes | 115002049927 |
| Reimbursement applications for certain medicines through INAMI [Institut National d'Assurance Maladie-Invalidité – National Institute for Health and Disability Insurance]. | Reumatisk
> Lupus | Prising og tilgjengelighetsadvokatur
> Arbeide for inkludering av produkt i refusjonslister/nasjonale formularer | 100 | National | Regularly | 115029783188 |
| Ensuring reimbursement for specific medicines. | Respiratorisk
> KOLS | Prising og tilgjengelighetsadvokatur
> Arbeide for inkludering av produkt i refusjonslister/nasjonale formularer | 5 000 | Regional | Sometimes | 115029939063 |
| Equal treatment for women and men with breast cancer. Certain medications are reimbursed for women with breast cancer but not for men with the same condition. | Kreft
> Kreft (mann): bryst | Prising og tilgjengelighetsadvokatur
> Arbeide for inkludering av produkt i refusjonslister/nasjonale formularer | 100 | Regional | Sometimes | 115031895194 |
| HPV [Human Papillomavirus] vaccination reimbursed for boys up to the age of 18. | Kreft
> Kreft: HPV | Prising og tilgjengelighetsadvokatur
> Arbeide for inkludering av produkt i refusjonslister/nasjonale formularer | 1 000 | National | Sometimes | 115051943511 |
| VPP [Vlaams Patiëntenplatform - Flemish Patients’ Platform] participates as a patient organisation in consultative platforms addressing key bottlenecks, such as reimbursement and temporary unavailability of medicines. Pricing policy is also covered within this remit. Through the ELZ [Eerstelijnszone – Primary Care Zone] P-Zon [Personen met een Zorg- en OndersteuningsNood - People with a Care and Support Need], we additionally ensure the patient voice is represented within the P-Zon cluster. | Nyre
> Nyresykdommer | Prising og tilgjengelighetsadvokatur
> Arbeide for inkludering av produkt i refusjonslister/nasjonale formularer | 100 | Regional | Sometimes | 115055534359 |
| Request for medication reimbursement. | Kreft
> Kreft: blod | Prising og tilgjengelighetsadvokatur
> Arbeide for inkludering av produkt i refusjonslister/nasjonale formularer | 1 000 | Regional | Sometimes | 115057073683 |
| Recommendation submitted to the CTG [Commissie Tegemoetkoming Geneesmiddelen – Drug Reimbursement Committee] via a completed questionnaire: reimbursement of Buccolam for individuals with epilepsy aged 18 years and over. | Nevrologisk
> Epilepsi | Prising og tilgjengelighetsadvokatur
> Arbeide for inkludering av produkt i refusjonslister/nasjonale formularer | 1 000 | Regional | Sometimes | 115057861541 |
| [Advocate] for greater availability of well-maintained public restroom facilities, and for the establishment of a national Inflammatory Bowel Disease (IBD) awareness day. | Gastrointestinal
> IBD | Prising og tilgjengelighetsadvokatur
> Engasjere seg i bevissthetskampanjer | 100 000 | Regional | Sometimes | 115020038862 |
| Medications that are essential for the provision of quality palliative care are reviewed by us and designated for mandatory availability in local pharmacies. | Kronisk
> Palliativ | Forbedrer tilgangsveier
> Legge til rette for rettferdig tilgang til medisiner/helsetjenester | 1 000 | Regional | Sometimes | 115002049927 |
| [Advocate] for greater availability of well-maintained public restroom facilities, and for the establishment of a national Inflammatory Bowel Disease (IBD) awareness day. | Gastrointestinal
> IBD | Forbedrer tilgangsveier
> Legge til rette for rettferdig tilgang til medisiner/helsetjenester | 100 000 | Regional | Sometimes | 115020038862 |
| Reimbursement of PrEP [Pre-Exposure Prophylaxis] for community-based organisations. | Generell helse
> Seksuell helse: annet | Forbedrer tilgangsveier
> Legge til rette for rettferdig tilgang til medisiner/helsetjenester | 100 | Regional | Sometimes | 115046432045 |
| HPV [Human Papillomavirus] vaccination reimbursed for boys up to the age of 18. | Kreft
> Kreft: HPV | Forbedrer tilgangsveier
> Gå inn for bredere vaksinetilgang | 1 000 | National | Sometimes | 115051943511 |
| Our association is an active member of various associations and organisations that regularly participate in advisory committees on this topic [drug pricing] (e.g. RaDiOrg, Rare Disorders Belgium & ERN [European Reference Network] Transplantchild). | Sjelden
> Sjeldne sykdommer: barn/unge | Forbedrer tilgangsveier
> Forbedring av tilgang til sjeldne/ultrasjelne terapier | 100 | International | Sometimes | 115037392949 |
| Since the introduction of a patient advisory process for the CTG [College Tarieven Gezondheidszorg - Healthcare Tariffs Authority] procedure in early 2025, we have compiled a submission dossier on two occasions. | Sjelden
> Cystisk fibrose | Evidensbasert pasientinnspill
> Bruk pasientinnsikt til å informere beslutninger | 1 000 | National | Sometimes | 115005093988 |
| [Patient] expert assessments in support of drug reimbursement decisions. | Nevrodegenerativ
> Demens | Evidensbasert pasientinnspill
> Bruk pasientinnsikt til å informere beslutninger | Do not know | Regional | Sometimes | 115043013133 |
| We represent the patient voice to mutual health insurance funds and within European consortia. | Medisinsk forskning
> Medisinsk forskning | Evidensbasert pasientinnspill
> Bruk pasientinnsikt til å informere beslutninger | 100 | National | Rarely | 115057856231 |
| Input from the patient organisation on reimbursement dossiers for new medications (via an extensive questionnaire). | Kreft
> Kreft: lunge | Evidensbasert pasientinnspill
> Gjennomfør undersøkelser/forskning for å generere data | 1 000 | Regional | Sometimes | 115039053506 |
| Since the introduction of a patient advisory process for the CTG [College Tarieven Gezondheidszorg - Healthcare Tariffs Authority] procedure in early 2025, we have compiled a submission dossier on two occasions. | Sjelden
> Cystisk fibrose | Evidensbasert pasientinnspill
> Oversett bevis og innsikt til politikkinnspill | 1 000 | National | Sometimes | 115005093988 |
| Regional discussion on the cardiovascular prevention plan, with outreach to municipalities and CPAS [Centre Public d'Action Sociale – Public Centre for Social Welfare]. | Kardiovaskulær
> Kardiovaskulær: de fleste typer | Diagnose og medisinlevering
> Støtte til screening og tidlig oppdagelse | 100 000 | National | Regularly | 115042996911 |
| Working group on the new rare diseases plan, and various other working groups, committees, and similar bodies. | Sjelden
> Sjeldne sykdommer: de fleste typer | Institusjonell styring
> Sikre representasjon i statlige rådgivende organer | We do not communicate with patients directly | National | Regularly | 115005882213 |
| At RIZIV [Rijksinstituut voor Ziekte- en Invaliditeitsverzekering – National Institute for Health and Disability Insurance], among other bodies. | Kreft
> Kreft: blod | Institusjonell styring
> Sikre representasjon i statlige rådgivende organer | 1 000 | Regional | Regularly | 115010762888 |
| Through the Luss [Ligue des Usagers des Services de Santé – League of Health Service Users], which brings together several patient associations and has a member sitting on the Drug Reimbursement Committee at the INAMI [Institut National d'Assurance Maladie-Invalidité – National Institute for Health and Disability Insurance]. | Blod
> Sigdcelleanemi | Institusjonell styring
> Sikre representasjon i statlige rådgivende organer | Do not know | National | Rarely | 115028443749 |
| Our association is an active member of various associations and organisations that regularly participate in advisory committees on this topic [drug pricing] (e.g. RaDiOrg, Rare Disorders Belgium & ERN [European Reference Network] Transplantchild). | Sjelden
> Sjeldne sykdommer: barn/unge | Institusjonell styring
> Sikre representasjon i statlige rådgivende organer | 100 | International | Sometimes | 115037392949 |
| Member of the steering committee for the national and regional plan. | HIV
> HIV og seksuell helse | Institusjonell styring
> Sikre representasjon i statlige rådgivende organer | 100 000 | Regional | Sometimes | 115048515283 |
| On occasion, a subject-matter expert contributes through our overarching collaborative platform. | Reumatisk
> Revmatoid artritt | Institusjonell styring
> Arbeide effektivt i nettverk med flere interessenter | 1 000 | Regional | Sometimes | 114998593281 |
| Working group on the new rare diseases plan, and various other working groups, committees, and similar bodies. | Sjelden
> Sjeldne sykdommer: de fleste typer | Institusjonell styring
> Arbeide effektivt i nettverk med flere interessenter | We do not communicate with patients directly | National | Regularly | 115005882213 |
| I participate in the Observatoire des Maladies Chroniques [Observatory for Chronic Diseases] and in the work of the LUSS [Ligue des Usagers des Services de Santé – League of Health Service Users] (the umbrella body for patient associations), both of which address these subject areas. | Nevrodegenerativ
> Huntingtons sykdom | Institusjonell styring
> Arbeide effektivt i nettverk med flere interessenter | 1 000 | National | Regularly | 115007525885 |
| We participate in stakeholder engagement sessions organised by Pharma.be and FAGG [Federaal Agentschap voor Geneesmiddelen en Gezondheidsproducten – Federal Agency for Medicines and Health Products]. | Blod
> Blodsykdommer: ITP | Institusjonell styring
> Arbeide effektivt i nettverk med flere interessenter | 100 | National | Sometimes | 115021567311 |
| Through the Luss [Ligue des Usagers des Services de Santé – League of Health Service Users], which brings together several patient associations and has a member sitting on the Drug Reimbursement Committee at the INAMI [Institut National d'Assurance Maladie-Invalidité – National Institute for Health and Disability Insurance]. | Blod
> Sigdcelleanemi | Institusjonell styring
> Arbeide effektivt i nettverk med flere interessenter | Do not know | National | Rarely | 115028443749 |
| [Working with] LUSS [Ligue des usagers des services de santé – League of Healthcare Service Users]. | Nevrologisk
> Fibromyalgi | Institusjonell styring
> Arbeide effektivt i nettverk med flere interessenter | 100 | National | Sometimes | 115028484320 |
| Patient expert for rare diseases, pharmaceutical companies, and other associations. | Sjelden
> Sjeldne sykdommer: nyre | Institusjonell styring
> Arbeide effektivt i nettverk med flere interessenter | 100 | National | Regularly | 115028704257 |
| Our association is an active member of various associations and organisations that regularly participate in advisory committees on this topic (e.g. RaDiOrg, Rare Disorders Belgium & ERN [European Reference Network] Transplantchild). | Sjelden
> Sjeldne sykdommer: barn/unge | Institusjonell styring
> Arbeide effektivt i nettverk med flere interessenter | 100 | International | Sometimes | 115037392949 |
| VPP [Vlaams Patiëntenplatform - Flemish Patients’ Platform] participates as a patient organisation in consultative platforms addressing key bottlenecks, such as reimbursement and temporary unavailability of medicines. Pricing policy is also covered within this remit. Through the ELZ [Eerstelijnszone – Primary Care Zone] P-Zon [Personen met een Zorg- en OndersteuningsNood - People with a Care and Support Need], we additionally ensure the patient voice is represented within the P-Zon cluster. | Nyre
> Nyresykdommer | Institusjonell styring
> Arbeide effektivt i nettverk med flere interessenter | 100 | Regional | Sometimes | 115055534359 |
| Patient consultation at AstraZeneca. | Kreft
> Kreft (mann): bryst | Institusjonell styring
> Arbeide effektivt i nettverk med flere interessenter | 100 | Regional | Rarely | 115058978325 |
| Eligible to the EMA [European Medicines Agency] and invited to meetings and events, been part of regulatory evaluations. Member of EU HTA [Health Technology Assessment] stakeholder forum. | Nevrodegenerativ
> Huntingtons sykdom | Institusjonell styring
> Arbeide effektivt i nettverk med flere interessenter | Do not know | International | Sometimes | 119075658991 |
| I am currently in the process of re-establishing the association, and once it is fully operational, that is the objective. | Hud
> Angioødem | Institusjonell styring
> Opprettholde formell status som allmennyttig eller veldedig enhet | 100 | National | Sometimes | 115043847394 |
| Equal treatment for women and men with breast cancer. | Kreft
> Kreft (mann): bryst | Ivaretakelse av pasientrettigheter/forbedring av livskvalitet
> Beskytte/forbedre pasientopplevelsen | 100 | Regional | Sometimes | 115031895194 |
| Medications that are essential for the provision of quality palliative care are reviewed by us and designated for mandatory availability in local pharmacies. | Kronisk
> Palliativ | Ivaretakelse av pasientrettigheter/forbedring av livskvalitet
> Fremme av vekt på livskvalitet | 1 000 | Regional | Sometimes | 115002049927 |
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