| We advocate on behalf of patients with mutual health insurance funds. | Ricerca medica
> Ricerca Medica | Partenariato normativo
> Collaborazione con gli organismi di regolamentazione | 100 | National | Rarely | 115057856231 |
| Eligible to the EMA [European Medicines Agency] and invited to meetings and events, been part of regulatory evaluations. Member of EU HTA [Health Technology Assessment] stakeholder forum. | Neurodegenerativo
> Malattia di Huntington | Partenariato normativo
> Collaborazione con gli organismi di regolamentazione | Do not know | International | Sometimes | 119075658991 |
| Drug Reimbursement Committee [Commissie Terugbetaling Geneesmiddelen – Drug Reimbursement Committee] via VPP [Vlaams Patiëntenplatform - Flemish Patients’ Platform]. | Reumatico
> Malattie reumatiche: la maggior parte dei tipi | Partenariato normativo
> Partecipare alle valutazioni di Health Technology Assessment (HTA) e alle revisioni dei rimborsi | 10.000 | Regional | Sometimes | 114996669704 |
| Providing information to the organisation that represents us in CTG [College Tarieven Gezondheidszorg - Healthcare Tariffs Board] reimbursement consultations concerning a new medicine. | Educazione del paziente
> Informazioni sul paziente | Partenariato normativo
> Partecipare alle valutazioni di Health Technology Assessment (HTA) e alle revisioni dei rimborsi | 1000 | Regional | Sometimes | 115028426381 |
| Through the Luss [Ligue des Usagers des Services de Santé – League of Health Service Users], which brings together several patient associations and has a member sitting on the Drug Reimbursement Committee at the INAMI [Institut National d'Assurance Maladie-Invalidité – National Institute for Health and Disability Insurance]. | Sangue
> Malattia falciforme | Partenariato normativo
> Partecipare alle valutazioni di Health Technology Assessment (HTA) e alle revisioni dei rimborsi | Do not know | National | Rarely | 115028443749 |
| FAGG [Federaal Agentschap voor Geneesmiddelen en Gezondheidsproducten – Federal Agency for Medicines and Health Products], KCE [Federaal Kenniscentrum voor de Gezondheidszorg – Belgian Health Care Knowledge Centre], and RIZIV [Rijksinstituut voor Ziekte- en Invaliditeitsverzekering – National Institute for Health and Disability Insurance]/CTG [Commissie Tegemoetkoming Geneesmiddelen – Drug Reimbursement Committee]. | Reumatico
> Malattie reumatiche: la maggior parte dei tipi | Partenariato normativo
> Partecipare alle valutazioni di Health Technology Assessment (HTA) e alle revisioni dei rimborsi | We do not communicate with patients directly | Regional | Sometimes | 115034595480 |
| Completed several CTG [Commissie Toekenning Geneesmiddelen – Medicine Allocation Committee] dossiers. | Cancro
> Cancro: polmone | Partenariato normativo
> Partecipare alle valutazioni di Health Technology Assessment (HTA) e alle revisioni dei rimborsi | 1000 | National | Sometimes | 115036954847 |
| Input from the patient organisation on reimbursement dossiers for new medications (via an extensive questionnaire). | Cancro
> Cancro: polmone | Partenariato normativo
> Partecipare alle valutazioni di Health Technology Assessment (HTA) e alle revisioni dei rimborsi | 1000 | Regional | Sometimes | 115039053506 |
| Expert assessments in support of drug reimbursement decisions. | Neurodegenerativo
> Demenza | Partenariato normativo
> Partecipare alle valutazioni di Health Technology Assessment (HTA) e alle revisioni dei rimborsi | Do not know | Regional | Sometimes | 115043013133 |
| We provide advisory input through VPP [Vlaams Patiëntenplatform – Flemish Patient Platform] and, on occasion, in response to questionnaires issued by RIZIV [Rijksinstituut voor Ziekte- en Invaliditeitsverzekering – National Institute for Health and Disability Insurance]. | Allergia
> Asma, allergia, dermatite atopica, eczema | Partenariato normativo
> Partecipare alle valutazioni di Health Technology Assessment (HTA) e alle revisioni dei rimborsi | Do not know | National | Sometimes | 115043032741 |
| Advisory board of RIZIV [Rijksinstituut voor Ziekte- en Invaliditeitsverzekering – National Institute for Health and Disability Insurance] in connection with applications for reimbursement modalities for new medicines. | Sanguinamento
> Disturbi emorragici: la maggior parte dei tipi | Partenariato normativo
> Partecipare alle valutazioni di Health Technology Assessment (HTA) e alle revisioni dei rimborsi | 5000 | National | Rarely | 115049435993 |
| We participate in stakeholder engagement sessions organised by Pharma.be and FAGG [Federaal Agentschap voor Geneesmiddelen en Gezondheidsproducten – Federal Agency for Medicines and Health Products]. | Sangue
> Disturbi del sangue: PTI | Partenariato normativo
> Partecipare/facilitare riunioni con responsabili politici/regolatori | 100 | National | Sometimes | 115021567311 |
| FAGG [Federaal Agentschap voor Geneesmiddelen en Gezondheidsproducten – Federal Agency for Medicines and Health Products], KCE [Federaal Kenniscentrum voor de Gezondheidszorg – Belgian Health Care Knowledge Centre], and RIZIV [Rijksinstituut voor Ziekte- en Invaliditeitsverzekering – National Institute for Health and Disability Insurance]/CTG [Commissie Tegemoetkoming Geneesmiddelen – Drug Reimbursement Committee]. | Reumatico
> Malattie reumatiche: la maggior parte dei tipi | Partenariato normativo
> Partecipare/facilitare riunioni con responsabili politici/regolatori | We do not communicate with patients directly | Regional | Sometimes | 115034595480 |
| INAMI [Institut National d'Assurance Maladie-Invalidité – National Institute for Health and Disability Insurance], Minister of Health. | Cancro
> Cancro: sangue | Partenariato normativo
> Partecipare/facilitare riunioni con responsabili politici/regolatori | 1000 | National | Regularly | 115043127768 |
| EMA [European Medicines Agency] PCWP [Patients' and Consumers' Working Party] Forum at EU Parliament activities in our members' countries. | Immune
> Immunocompromesso | Partenariato normativo
> Partecipare/facilitare riunioni con responsabili politici/regolatori | Over 100,000 | International | Regularly | 119074504996 |
| Eligible to the EMA [European Medicines Agency] and invited to meetings and events, been part of regulatory evaluations. Member of EU HTA [Health Technology Assessment] stakeholder forum. | Neurodegenerativo
> Malattia di Huntington | Partenariato normativo
> Partecipare/facilitare riunioni con responsabili politici/regolatori | Do not know | International | Sometimes | 119075658991 |
| Drug Reimbursement Committee [Commissie Terugbetaling Geneesmiddelen – Drug Reimbursement Committee] via VPP [Vlaams Patiëntenplatform - Flemish Patients’ Platform]. | Reumatico
> Malattie reumatiche: la maggior parte dei tipi | Partenariato normativo
> Con altri sostenitori della salute | 10.000 | Regional | Sometimes | 114996669704 |
| Via the VPP [Vlaams Patiënten Platform – Flemish Patients' Platform] on behalf of Alnylam Pharmaceuticals. | Neurodegenerativo
> Amiloidosi | Partenariato normativo
> Con altri sostenitori della salute | 1000 | National | Sometimes | 114996917912 |
| In its newsletter No. 71 of November 2024, BCC [Belgian Brain Council - Conseil Belge du Cerveau] expressed its support for the statement issued by the Alzheimer Europe association in response to the EMA [European Medicines Agency]'s refusal to grant a marketing authorisation for Leqembi (lecanemab) for the treatment of mild cognitive impairment (memory and thinking disorders). | Salute mentale
> Salute mentale: la maggior parte delle condizioni | Partenariato normativo
> Con altri sostenitori della salute | 1000 | International | Sometimes | 115006691079 |
| Providing information to the organisation that represents us in CTG [College Tarieven Gezondheidszorg - Healthcare Tariffs Board] reimbursement consultations concerning a new medicine. | Educazione del paziente
> Informazioni sul paziente | Partenariato normativo
> Con altri sostenitori della salute | 1000 | Regional | Sometimes | 115028426381 |
| By being a member of umbrella organisations. | Reumatico
> Sclerodermia | Partenariato normativo
> Con altri sostenitori della salute | 100 | National | Sometimes | 115033503861 |
| By being a member of umbrella organisations. | Reumatico
> Sclerodermia | Partenariato normativo
> Con altri sostenitori della salute | 100 | National | Sometimes | 115033503861 |
| Via VPP [Vlaams Patiëntenplatform – Flemish Patients' Platform]. | Cancro
> Cancro: raro | Partenariato normativo
> Con altri sostenitori della salute | 100 | Regional | Rarely | 115043019020 |
| We provide advisory input through VPP [Vlaams Patiëntenplatform – Flemish Patient Platform]. | Allergia
> Asma, allergia, dermatite atopica, eczema | Partenariato normativo
> Con altri sostenitori della salute | Do not know | National | Sometimes | 115043032741 |
| We provide advisory input through VPP [Vlaams Patiëntenplatform – Flemish Patient Platform]. | Allergia
> Asma, allergia, dermatite atopica, eczema | Partenariato normativo
> Con altri sostenitori della salute | Do not know | National | Sometimes | 115043032741 |
| Through our association OntmoetPijn, we are members of the Vlaamse Pijnliga [Flemish Pain League] and use that platform to advocate on behalf of people living with chronic pain. | Neurologico
> Dolore | Partenariato normativo
> Con altri sostenitori della salute | 100 | Regional | Sometimes | 115046494165 |
| We are a member of VPP [Vlaams Patiëntenplatform – Flemish Patients' Platform]. They advocate on our behalf. | Neuromuscolare
> Malattie neuromuscolari: la maggior parte dei tipi | Partenariato normativo
> Con altri sostenitori della salute | 1000 | Regional | No | 115055397447 |
| EMA [European Medicines Agency] PCWP [Patients' and Consumers' Working Party] Forum at EU Parliament activities in our members' countries. | Immune
> Immunocompromesso | Partenariato normativo
> Con altri sostenitori della salute | Over 100,000 | International | Regularly | 119074504996 |
| Affiliated with the Vlaams Patiëntenplatform [Flemish Patients' Platform] and Kom op Tegen Kanker [Stand Up to Cancer]. | Cancro
> Cancro: seno | Partenariato normativo
> Con altri sostenitori della salute | 1000 | Regional | Rarely | 115020713219 |
| Advisory board member at Kom op tegen Kanker [Kom op tegen Kanker – Fight Against Cancer]. | Cancro
> Cancro: seno | Partenariato normativo
> Con altri sostenitori della salute | 100 | Regional | Rarely | 115036847346 |
| Providing advisory input on legislative work concerning involuntary psychiatric admissions [Belgium]. | Salute mentale
> Salute mentale: assistenti, familiari, amici | Influenzare le politiche e la legislazione
> Influenzare le politiche sanitarie e la legislazione | 1000 | Regional | Regularly | 115056630689 |
| Regional discussion on the cardiovascular prevention plan, with outreach to municipalities and CPAS [Centre Public d'Action Sociale – Public Centre for Social Welfare]. | Cardiovascolare
> Cardiovascolare: la maggior parte dei tipi | Influenzare le politiche e la legislazione
> Partecipa alle audizioni pubbliche e alle consultazioni | 100.000 | National | Regularly | 115042996911 |
| Roundtable discussions in parliament and visits to ministers’ offices. | Cancro
> Cancro: ginecologico | Influenzare le politiche e la legislazione
> Partecipa alle audizioni pubbliche e alle consultazioni | 1000 | National | Rarely | 115045208576 |
| EMA [European Medicines Agency] PCWP [Patients' and Consumers' Working Party] Forum at EU Parliament activities in our members' countries. | Immune
> Immunocompromesso | Influenzare le politiche e la legislazione
> Partecipa alle audizioni pubbliche e alle consultazioni | Over 100,000 | International | Regularly | 119074504996 |
| Hearing before the Belgian Senate – 24 November 2023. | Sangue
> Malattia falciforme | Influenzare le politiche e la legislazione
> Mobilitare parlamentari e leader politici | Do not know | National | Sometimes | 115035784218 |
| Providing advisory input on legislative work concerning involuntary psychiatric admissions. | Salute mentale
> Salute mentale: assistenti, familiari, amici | Influenzare le politiche e la legislazione
> Sostenere le leggi e i diritti per la protezione dei pazienti | 1000 | Regional | Regularly | 115056630689 |
| In its newsletter No. 71 of November 2024, BCC [Belgian Brain Council - Conseil Belge du Cerveau] expressed its support for the statement issued by the Alzheimer Europe association in response to the EMA [European Medicines Agency]'s refusal to grant a marketing authorisation for Leqembi (lecanemab) for the treatment of mild cognitive impairment (memory and thinking disorders). | Salute mentale
> Salute mentale: la maggior parte delle condizioni | Influenzare le politiche e la legislazione
> Affrontare barriere/anomalie nell'assistenza medica | 1000 | International | Sometimes | 115006691079 |
| A legislative anomaly exists with regard to the funding of self-catheterisation for individuals residing in a residential care facility. | Neurologico
> Sclerosi multipla | Influenzare le politiche e la legislazione
> Affrontare barriere/anomalie nell'assistenza medica | 5000 | Regional | Rarely | 115028407747 |
| … certain medications are reimbursed for women with breast cancer but not for men with the same condition. | Cancro
> Cancro (maschio): seno | Influenzare le politiche e la legislazione
> Affrontare barriere/anomalie nell'assistenza medica | 100 | Regional | Sometimes | 115031895194 |
| We are calling for improved reimbursement of our medications. | Gastrointestinale
> IBD | Advocacy per prezzi e accessibilità economica
> Sostenere prezzi equi dei farmaci | 100.000 | Regional | Sometimes | 115020038862 |
| Ensuring reimbursement for specific medicines. | Respiratorio
> BPCO | Advocacy per prezzi e accessibilità economica
> Sostenere prezzi equi dei farmaci | 5000 | Regional | Sometimes | 115029939063 |
| Through our association OntmoetPijn, we are a member of the Flemish Pain League, where we actively advocate on behalf of people living with chronic pain — including, for example, issues relating to the cost of medication. | Neurologico
> Dolore | Advocacy per prezzi e accessibilità economica
> Sostenere prezzi equi dei farmaci | 100 | Regional | Sometimes | 115046494165 |
| VPP [Vlaams Patiëntenplatform - Flemish Patients’ Platform] participates as a patient organisation in consultative platforms addressing key bottlenecks, such as reimbursement and temporary unavailability of medicines. Pricing policy is also covered within this remit. Through the ELZ [Eerstelijnszone – Primary Care Zone] P-Zon [Personen met een Zorg- en OndersteuningsNood - People with a Care and Support Need], we additionally ensure the patient voice is represented within the P-Zon cluster. | Rene
> Malattie renali | Advocacy per prezzi e accessibilità economica
> Sostenere prezzi equi dei farmaci | 100 | Regional | Sometimes | 115055534359 |
| Request for medication reimbursement. | Cancro
> Cancro: sangue | Advocacy per prezzi e accessibilità economica
> Sostenere prezzi equi dei farmaci | 1000 | Regional | Sometimes | 115057073683 |
| Completing the RIZIV [Rijksinstituut voor ziekte- en invaliditeitsverzekering – National Institute for Health and Disability Insurance] questionnaire in order to obtain reimbursement for medicines. | Respiratorio
> BPCO | Advocacy per prezzi e accessibilità economica
> Partecipare alle negoziazioni del comitato di revisione dei prezzi | 5000 | Regional | Sometimes | 114997831407 |
| An intervention was made in 2015 through the mutual health insurers at INAMI [Institut national d'assurance maladie-invalidité – National Institute for Health and Disability Insurance] to amend the reimbursement conditions for Imitrex SC [subcutaneous injection - used to quickly treat acute migraine attacks and cluster headaches in adults]. | Neurologico
> Emicrania | Advocacy per prezzi e accessibilità economica
> Partecipare alle negoziazioni del comitato di revisione dei prezzi | 100 | National | Rarely | 115006822909 |
| Reimbursement applications for certain medicines through INAMI [Institut National d'Assurance Maladie-Invalidité – National Institute for Health and Disability Insurance]. | Reumatico
> Lupus | Advocacy per prezzi e accessibilità economica
> Partecipare alle negoziazioni del comitato di revisione dei prezzi | 100 | National | Regularly | 115029783188 |
| Advisory board of RIZIV [Rijksinstituut voor Ziekte- en Invaliditeitsverzekering – National Institute for Health and Disability Insurance] in connection with applications for reimbursement modalities for new medicines. | Sanguinamento
> Disturbi emorragici: la maggior parte dei tipi | Advocacy per prezzi e accessibilità economica
> Partecipare alle negoziazioni del comitato di revisione dei prezzi | 5000 | National | Rarely | 115049435993 |
| VPP [Vlaams Patiëntenplatform - Flemish Patients’ Platform] participates as a patient organisation in consultative platforms addressing key bottlenecks, such as reimbursement and temporary unavailability of medicines. Pricing policy is also covered within this remit. Through the ELZ [Eerstelijnszone – Primary Care Zone] P-Zon [Personen met een Zorg- en OndersteuningsNood - People with a Care and Support Need], we additionally ensure the patient voice is represented within the P-Zon cluster [atient participation cluster within a Flemish primary-care network]. | Rene
> Malattie renali | Advocacy per prezzi e accessibilità economica
> Partecipare alle negoziazioni del comitato di revisione dei prezzi | 100 | Regional | Sometimes | 115055534359 |
| Recommendation submitted to the CTG [Commissie Tegemoetkoming Geneesmiddelen – Drug Reimbursement Committee] via a completed questionnaire: reimbursement of Buccolam for individuals with epilepsy aged 18 years and over. | Neurologico
> Epilessia | Advocacy per prezzi e accessibilità economica
> Partecipare alle negoziazioni del comitato di revisione dei prezzi | 1000 | Regional | Sometimes | 115057861541 |
| Completing the RIZIV [Rijksinstituut voor ziekte- en invaliditeitsverzekering – National Institute for Health and Disability Insurance] questionnaire in order to obtain reimbursement for medicines. | Respiratorio
> BPCO | Advocacy per prezzi e accessibilità economica
> Sostenere l'inclusione del prodotto negli elenchi di rimborso/formulari nazionali | 5000 | Regional | Sometimes | 114997831407 |
| Medications that are essential for the provision of quality palliative care are reviewed by us and designated for mandatory availability in local pharmacies. | Cronico
> Palliativo | Advocacy per prezzi e accessibilità economica
> Sostenere l'inclusione del prodotto negli elenchi di rimborso/formulari nazionali | 1000 | Regional | Sometimes | 115002049927 |
| Reimbursement applications for certain medicines through INAMI [Institut National d'Assurance Maladie-Invalidité – National Institute for Health and Disability Insurance]. | Reumatico
> Lupus | Advocacy per prezzi e accessibilità economica
> Sostenere l'inclusione del prodotto negli elenchi di rimborso/formulari nazionali | 100 | National | Regularly | 115029783188 |
| Ensuring reimbursement for specific medicines. | Respiratorio
> BPCO | Advocacy per prezzi e accessibilità economica
> Sostenere l'inclusione del prodotto negli elenchi di rimborso/formulari nazionali | 5000 | Regional | Sometimes | 115029939063 |
| Equal treatment for women and men with breast cancer. Certain medications are reimbursed for women with breast cancer but not for men with the same condition. | Cancro
> Cancro (maschio): seno | Advocacy per prezzi e accessibilità economica
> Sostenere l'inclusione del prodotto negli elenchi di rimborso/formulari nazionali | 100 | Regional | Sometimes | 115031895194 |
| HPV [Human Papillomavirus] vaccination reimbursed for boys up to the age of 18. | Cancro
> Cancro: HPV | Advocacy per prezzi e accessibilità economica
> Sostenere l'inclusione del prodotto negli elenchi di rimborso/formulari nazionali | 1000 | National | Sometimes | 115051943511 |
| VPP [Vlaams Patiëntenplatform - Flemish Patients’ Platform] participates as a patient organisation in consultative platforms addressing key bottlenecks, such as reimbursement and temporary unavailability of medicines. Pricing policy is also covered within this remit. Through the ELZ [Eerstelijnszone – Primary Care Zone] P-Zon [Personen met een Zorg- en OndersteuningsNood - People with a Care and Support Need], we additionally ensure the patient voice is represented within the P-Zon cluster. | Rene
> Malattie renali | Advocacy per prezzi e accessibilità economica
> Sostenere l'inclusione del prodotto negli elenchi di rimborso/formulari nazionali | 100 | Regional | Sometimes | 115055534359 |
| Request for medication reimbursement. | Cancro
> Cancro: sangue | Advocacy per prezzi e accessibilità economica
> Sostenere l'inclusione del prodotto negli elenchi di rimborso/formulari nazionali | 1000 | Regional | Sometimes | 115057073683 |
| Recommendation submitted to the CTG [Commissie Tegemoetkoming Geneesmiddelen – Drug Reimbursement Committee] via a completed questionnaire: reimbursement of Buccolam for individuals with epilepsy aged 18 years and over. | Neurologico
> Epilessia | Advocacy per prezzi e accessibilità economica
> Sostenere l'inclusione del prodotto negli elenchi di rimborso/formulari nazionali | 1000 | Regional | Sometimes | 115057861541 |
| [Advocate] for greater availability of well-maintained public restroom facilities, and for the establishment of a national Inflammatory Bowel Disease (IBD) awareness day. | Gastrointestinale
> IBD | Advocacy per prezzi e accessibilità economica
> Partecipare a campagne di sensibilizzazione | 100.000 | Regional | Sometimes | 115020038862 |
| Medications that are essential for the provision of quality palliative care are reviewed by us and designated for mandatory availability in local pharmacies. | Cronico
> Palliativo | Miglioramento dei percorsi di accesso
> Facilitare l'accesso equo ai medicinali/all'assistenza sanitaria | 1000 | Regional | Sometimes | 115002049927 |
| [Advocate] for greater availability of well-maintained public restroom facilities, and for the establishment of a national Inflammatory Bowel Disease (IBD) awareness day. | Gastrointestinale
> IBD | Miglioramento dei percorsi di accesso
> Facilitare l'accesso equo ai medicinali/all'assistenza sanitaria | 100.000 | Regional | Sometimes | 115020038862 |
| Reimbursement of PrEP [Pre-Exposure Prophylaxis] for community-based organisations. | Salute generale
> Salute sessuale: altro | Miglioramento dei percorsi di accesso
> Facilitare l'accesso equo ai medicinali/all'assistenza sanitaria | 100 | Regional | Sometimes | 115046432045 |
| HPV [Human Papillomavirus] vaccination reimbursed for boys up to the age of 18. | Cancro
> Cancro: HPV | Miglioramento dei percorsi di accesso
> Sostenere un accesso più ampio ai vaccini | 1000 | National | Sometimes | 115051943511 |
| Our association is an active member of various associations and organisations that regularly participate in advisory committees on this topic [drug pricing] (e.g. RaDiOrg, Rare Disorders Belgium & ERN [European Reference Network] Transplantchild). | Raro
> Malattie rare: bambini/giovani | Miglioramento dei percorsi di accesso
> Miglioramento dell'accesso alle terapie rare/ultra-rare | 100 | International | Sometimes | 115037392949 |
| Since the introduction of a patient advisory process for the CTG [College Tarieven Gezondheidszorg - Healthcare Tariffs Authority] procedure in early 2025, we have compiled a submission dossier on two occasions. | Raro
> Fibrosi cistica | Contributo del paziente basato sull'evidenza
> Utilizza le informazioni sui pazienti per prendere decisioni informate | 1000 | National | Sometimes | 115005093988 |
| [Patient] expert assessments in support of drug reimbursement decisions. | Neurodegenerativo
> Demenza | Contributo del paziente basato sull'evidenza
> Utilizza le informazioni sui pazienti per prendere decisioni informate | Do not know | Regional | Sometimes | 115043013133 |
| We represent the patient voice to mutual health insurance funds and within European consortia. | Ricerca medica
> Ricerca Medica | Contributo del paziente basato sull'evidenza
> Utilizza le informazioni sui pazienti per prendere decisioni informate | 100 | National | Rarely | 115057856231 |
| Input from the patient organisation on reimbursement dossiers for new medications (via an extensive questionnaire). | Cancro
> Cancro: polmone | Contributo del paziente basato sull'evidenza
> Condurre sondaggi/ricerche per generare dati | 1000 | Regional | Sometimes | 115039053506 |
| Since the introduction of a patient advisory process for the CTG [College Tarieven Gezondheidszorg - Healthcare Tariffs Authority] procedure in early 2025, we have compiled a submission dossier on two occasions. | Raro
> Fibrosi cistica | Contributo del paziente basato sull'evidenza
> Tradurre prove e approfondimenti in contributi politici | 1000 | National | Sometimes | 115005093988 |
| Regional discussion on the cardiovascular prevention plan, with outreach to municipalities and CPAS [Centre Public d'Action Sociale – Public Centre for Social Welfare]. | Cardiovascolare
> Cardiovascolare: la maggior parte dei tipi | Diagnosi e consegna dei medicinali
> Supporto allo screening e alla diagnosi precoce | 100.000 | National | Regularly | 115042996911 |
| Working group on the new rare diseases plan, and various other working groups, committees, and similar bodies. | Raro
> Malattie rare: la maggior parte dei tipi | Governance istituzionale
> Garantire la rappresentanza negli organi consultivi governativi | We do not communicate with patients directly | National | Regularly | 115005882213 |
| At RIZIV [Rijksinstituut voor Ziekte- en Invaliditeitsverzekering – National Institute for Health and Disability Insurance], among other bodies. | Cancro
> Cancro: sangue | Governance istituzionale
> Garantire la rappresentanza negli organi consultivi governativi | 1000 | Regional | Regularly | 115010762888 |
| Through the Luss [Ligue des Usagers des Services de Santé – League of Health Service Users], which brings together several patient associations and has a member sitting on the Drug Reimbursement Committee at the INAMI [Institut National d'Assurance Maladie-Invalidité – National Institute for Health and Disability Insurance]. | Sangue
> Malattia falciforme | Governance istituzionale
> Garantire la rappresentanza negli organi consultivi governativi | Do not know | National | Rarely | 115028443749 |
| Our association is an active member of various associations and organisations that regularly participate in advisory committees on this topic [drug pricing] (e.g. RaDiOrg, Rare Disorders Belgium & ERN [European Reference Network] Transplantchild). | Raro
> Malattie rare: bambini/giovani | Governance istituzionale
> Garantire la rappresentanza negli organi consultivi governativi | 100 | International | Sometimes | 115037392949 |
| Member of the steering committee for the national and regional plan. | HIV
> HIV e salute sessuale | Governance istituzionale
> Garantire la rappresentanza negli organi consultivi governativi | 100.000 | Regional | Sometimes | 115048515283 |
| On occasion, a subject-matter expert contributes through our overarching collaborative platform. | Reumatico
> Artrite reumatoide | Governance istituzionale
> Lavorare efficacemente all'interno di reti multi-stakeholder | 1000 | Regional | Sometimes | 114998593281 |
| Working group on the new rare diseases plan, and various other working groups, committees, and similar bodies. | Raro
> Malattie rare: la maggior parte dei tipi | Governance istituzionale
> Lavorare efficacemente all'interno di reti multi-stakeholder | We do not communicate with patients directly | National | Regularly | 115005882213 |
| I participate in the Observatoire des Maladies Chroniques [Observatory for Chronic Diseases] and in the work of the LUSS [Ligue des Usagers des Services de Santé – League of Health Service Users] (the umbrella body for patient associations), both of which address these subject areas. | Neurodegenerativo
> Malattia di Huntington | Governance istituzionale
> Lavorare efficacemente all'interno di reti multi-stakeholder | 1000 | National | Regularly | 115007525885 |
| We participate in stakeholder engagement sessions organised by Pharma.be and FAGG [Federaal Agentschap voor Geneesmiddelen en Gezondheidsproducten – Federal Agency for Medicines and Health Products]. | Sangue
> Disturbi del sangue: PTI | Governance istituzionale
> Lavorare efficacemente all'interno di reti multi-stakeholder | 100 | National | Sometimes | 115021567311 |
| Through the Luss [Ligue des Usagers des Services de Santé – League of Health Service Users], which brings together several patient associations and has a member sitting on the Drug Reimbursement Committee at the INAMI [Institut National d'Assurance Maladie-Invalidité – National Institute for Health and Disability Insurance]. | Sangue
> Malattia falciforme | Governance istituzionale
> Lavorare efficacemente all'interno di reti multi-stakeholder | Do not know | National | Rarely | 115028443749 |
| [Working with] LUSS [Ligue des usagers des services de santé – League of Healthcare Service Users]. | Neurologico
> Fibromialgia | Governance istituzionale
> Lavorare efficacemente all'interno di reti multi-stakeholder | 100 | National | Sometimes | 115028484320 |
| Patient expert for rare diseases, pharmaceutical companies, and other associations. | Raro
> Malattie rare: rene | Governance istituzionale
> Lavorare efficacemente all'interno di reti multi-stakeholder | 100 | National | Regularly | 115028704257 |
| Our association is an active member of various associations and organisations that regularly participate in advisory committees on this topic (e.g. RaDiOrg, Rare Disorders Belgium & ERN [European Reference Network] Transplantchild). | Raro
> Malattie rare: bambini/giovani | Governance istituzionale
> Lavorare efficacemente all'interno di reti multi-stakeholder | 100 | International | Sometimes | 115037392949 |
| VPP [Vlaams Patiëntenplatform - Flemish Patients’ Platform] participates as a patient organisation in consultative platforms addressing key bottlenecks, such as reimbursement and temporary unavailability of medicines. Pricing policy is also covered within this remit. Through the ELZ [Eerstelijnszone – Primary Care Zone] P-Zon [Personen met een Zorg- en OndersteuningsNood - People with a Care and Support Need], we additionally ensure the patient voice is represented within the P-Zon cluster. | Rene
> Malattie renali | Governance istituzionale
> Lavorare efficacemente all'interno di reti multi-stakeholder | 100 | Regional | Sometimes | 115055534359 |
| Patient consultation at AstraZeneca. | Cancro
> Cancro (maschio): seno | Governance istituzionale
> Lavorare efficacemente all'interno di reti multi-stakeholder | 100 | Regional | Rarely | 115058978325 |
| Eligible to the EMA [European Medicines Agency] and invited to meetings and events, been part of regulatory evaluations. Member of EU HTA [Health Technology Assessment] stakeholder forum. | Neurodegenerativo
> Malattia di Huntington | Governance istituzionale
> Lavorare efficacemente all'interno di reti multi-stakeholder | Do not know | International | Sometimes | 119075658991 |
| I am currently in the process of re-establishing the association, and once it is fully operational, that is the objective. | Pelle
> Angioedema | Governance istituzionale
> Mantenere lo status formale di ente di interesse pubblico o di beneficenza | 100 | National | Sometimes | 115043847394 |
| Equal treatment for women and men with breast cancer. | Cancro
> Cancro (maschio): seno | Tutela dei diritti dei pazienti/miglioramento della qualità della vita
> Proteggere/migliorare l'esperienza del paziente | 100 | Regional | Sometimes | 115031895194 |
| Medications that are essential for the provision of quality palliative care are reviewed by us and designated for mandatory availability in local pharmacies. | Cronico
> Palliativo | Tutela dei diritti dei pazienti/miglioramento della qualità della vita
> Promuovere un'enfasi sulla qualità della vita | 1000 | Regional | Sometimes | 115002049927 |