| INFARMED [Autoridade Nacional do Medicamento e Produtos de Saúde, I.P. – National Authority of Medicines and Health Products]. | Neurologisch
> Multiple sclerose | Regelgevend partnerschap
> Werken met regelgevende instanties | 1.000 | National | Regularly | 115015053859 |
| We are partners in the Projeto Incluir [Inclusion Project] led by Infarmed [Autoridade Nacional do Medicamento e Produtos de Saúde, I.P. – National Authority of Medicines and Health Products]. | Kanker
> Kanker: borst | Regelgevend partnerschap
> Werken met regelgevende instanties | 1.000 | Regional | Regularly | 115017018417 |
| We would, however, welcome a closer relationship with the regulatory authorities. We have already sought to engage with the European medicines regulatory body. | Gehoorverlies
> Gehoorverlies | Regelgevend partnerschap
> Werken met regelgevende instanties | 100 | National | No | 115029020137 |
| Member of an Infarmed [Autoridade Nacional do Medicamento e Produtos de Saúde, I.P. – National Authority of Medicines and Health Products] panel. | Cerebrovasculair
> Lijn | Regelgevend partnerschap
> Werken met regelgevende instanties | 5.000 | National | Regularly | 115032426383 |
| Involvement in the Incluir project of Infarmed [Autoridade Nacional do Medicamento e Produtos de Saúde, I.P. – National Authority of Medicines and Health Products, Portugal], and participation on one occasion in the evaluation of a new medicine. [The Incluir project a strategic initiative designed to formalise and elevate the voice of patients and their representative associations in health-related decision-making and the lifecycle of medicines.] | Patiëntenbelangenbehartiging
> Patiëntenbelangenbehartiging | Regelgevend partnerschap
> Werken met regelgevende instanties | 5.000 | National | Rarely | 115033491291 |
| FamiliarMente sits on the following advisory boards and committees: the National Council for Mental Health and the Regional Councils for Mental Health; the Infarmed [Instituto Nacional de Autoridade do Medicamento e Produtos de Saúde, I.P. – National Authority of Medicines and Health Products] Medicines Availability Management Monitoring Committee; and the Monitoring Committee for the Implementation of the Legal Framework for Involuntary Treatment (Mental Health Act), among others. | Geestelijke gezondheid
> Geestelijke gezondheid: de meeste aandoeningen | Regelgevend partnerschap
> Werken met regelgevende instanties | 10.000 | National | Regularly | 115056273634 |
| Involvement in the Incluir project of Infarmed [Autoridade Nacional do Medicamento e Produtos de Saúde, I.P. – National Authority of Medicines and Health Products, Portugal], and participation on one occasion in the evaluation of a new medicine. [The Incluir project a strategic initiative designed to formalise and elevate the voice of patients and their representative associations in health-related decision-making and the lifecycle of medicines.] | Patiëntenbelangenbehartiging
> Patiëntenbelangenbehartiging | Regelgevend partnerschap
> Deelnemen aan Health Technology Assessment (HTA) en vergoedingsbeoordelingen | 5.000 | National | Rarely | 115033491291 |
| We occasionally receive a form through which we are invited to submit written contributions to HTA [Avaliação de Tecnologias de Saúde – Health Technology Assessment] processes. | Reumatisch
> Reumatische aandoeningen: de meeste typen | Regelgevend partnerschap
> Deelnemen aan Health Technology Assessment (HTA) en vergoedingsbeoordelingen | 100 | National | Sometimes | 115060632863 |
| We participate in the medicines evaluation process at the request of INFARMED [Instituto Nacional da Farmácia e do Medicamento – National Authority of Medicines and Health Products]. | Neurologisch
> Multiple sclerose | Regelgevend partnerschap
> Deelnemen aan Health Technology Assessment (HTA) en vergoedingsbeoordelingen | 5.000 | National | Regularly | 115060898897 |
| Involvement in the Incluir project of Infarmed [Autoridade Nacional do Medicamento e Produtos de Saúde, I.P. – National Authority of Medicines and Health Products, Portugal], and participation on one occasion in the evaluation of a new medicine. [The Incluir project a strategic initiative designed to formalise and elevate the voice of patients and their representative associations in health-related decision-making and the lifecycle of medicines.] | Patiëntenbelangenbehartiging
> Patiëntenbelangenbehartiging | Regelgevend partnerschap
> Bijdragen aan indieningen voor Handelsvergunningen | 5.000 | National | Rarely | 115033491291 |
| We would, however, welcome a closer relationship with the regulatory authorities. We have already sought to engage with the European medicines regulatory body. | Gehoorverlies
> Gehoorverlies | Regelgevend partnerschap
> Bijwonen/faciliteren van vergaderingen met beleidsmakers/regelgevers | 100 | National | No | 115029020137 |
| Involvement in the Incluir project of Infarmed [Autoridade Nacional do Medicamento e Produtos de Saúde, I.P. – National Authority of Medicines and Health Products, Portugal], and participation on one occasion in the evaluation of a new medicine. [The Incluir project a strategic initiative designed to formalise and elevate the voice of patients and their representative associations in health-related decision-making and the lifecycle of medicines.] | Patiëntenbelangenbehartiging
> Patiëntenbelangenbehartiging | Regelgevend partnerschap
> Bijwonen/faciliteren van vergaderingen met beleidsmakers/regelgevers | 5.000 | National | Rarely | 115033491291 |
| We participate in the medicines evaluation process at the request of INFARMED [Instituto Nacional da Farmácia e do Medicamento – National Authority of Medicines and Health Products]. | Neurologisch
> Multiple sclerose | Regelgevend partnerschap
> Bijwonen/faciliteren van vergaderingen met beleidsmakers/regelgevers | 5.000 | National | Regularly | 115060898897 |
| Negotiation with the government or with parliamentary groups. | Algemene gezondheid
> Obesitas | Beleid en wetgeving beïnvloeden
> Beïnvloed het gezondheidsbeleid en de wetgeving | 1.000 | National | Regularly | 115006675660 |
| Engagement activities have included hearings with parliamentary groups, open letters, press releases, and participation in the organisation of research studies. | Respiratoir
> Astma | Beleid en wetgeving beïnvloeden
> Deelnemen aan openbare hoorzittingen en raadplegingen | Do not know | National | Sometimes | 115032964525 |
| Engagement activities have included hearings with parliamentary groups, open letters, press releases, and participation in the organisation of research studies. | Respiratoir
> Astma | Beleid en wetgeving beïnvloeden
> Deelnemen aan openbare hoorzittingen en raadplegingen | Do not know | National | Sometimes | 115032964525 |
| 2023: meeting with the Parliamentary Health Group at the AR [Assembleia da República – Assembly of the Republic]. | Cardiovasculair
> Hart- en vaatziekten | Beleid en wetgeving beïnvloeden
> Deelnemen aan openbare hoorzittingen en raadplegingen | 1.000 | National | Sometimes | 115054128784 |
| Negotiation with the government or with parliamentary groups. | Algemene gezondheid
> Obesitas | Beleid en wetgeving beïnvloeden
> Parlementariërs en politieke leiders mobiliseren | 1.000 | National | Regularly | 115006675660 |
| Each year, we submit our advocacy document to the parliamentary groups. | Handicap
> Handicap: de meeste soorten | Beleid en wetgeving beïnvloeden
> Parlementariërs en politieke leiders mobiliseren | We do not communicate with patients directly | National | Regularly | 115006736449 |
| Through the Parliamentary Health Group. | Cardiovasculair
> Hart- en vaatziekten | Beleid en wetgeving beïnvloeden
> Parlementariërs en politieke leiders mobiliseren | 100 | National | Regularly | 115033109950 |
| Each year, we submit our advocacy memorandum to the parliamentary groups. This year's submission included a call for the free-of-charge provision of medicines and medical devices for persons with disabilities. | Handicap
> Handicap: de meeste soorten | Pleitbezorging voor prijsstelling en betaalbaarheid
> Pleit voor eerlijke medicijnprijzen | We do not communicate with patients directly | National | Regularly | 115006736449 |
| Each year, we submit our advocacy memorandum to the parliamentary groups. This year's submission included a call for the free-of-charge provision of medicines and medical devices for persons with disabilities. | Handicap
> Handicap: de meeste soorten | Pleitbezorging voor prijsstelling en betaalbaarheid
> Pak kostendrempels aan voor mensen met een laag inkomen en kwetsbare mensen | We do not communicate with patients directly | National | Regularly | 115006736449 |
| Active participation in discussions on access to PAP [Programas de Acesso Precoce – Early Access Programmes] and in the centralised funding of medicines intended for rare diseases. | Neuromusculair
> Neuromusculaire aandoeningen: de meeste typen | Toegangspaden verbeteren
> Verbetering van de toegang tot zeldzame/ultrazeldzame therapieën | 1.000 | National | Regularly | 115022855373 |
| Questionnaire for the collection of contributions from patient associations in the context of Health Technology Assessment [in Portugal]. | Maagdarmkanaal
> Maagdarmkanaal: overig | Op bewijs gebaseerde patiëntinbreng
> Enquêtes/onderzoek uitvoeren om gegevens te genereren | 1.000 | National | Sometimes | 114997613546 |
| Engagement activities have included hearings with parliamentary groups, open letters, press releases, and participation in the organisation of research studies. | Respiratoir
> Astma | Op bewijs gebaseerde patiëntinbreng
> Enquêtes/onderzoek uitvoeren om gegevens te genereren | Do not know | National | Sometimes | 115032964525 |
| Member of an Infarmed [Autoridade Nacional do Medicamento e Produtos de Saúde, I.P. – National Authority of Medicines and Health Products] panel. | Cerebrovasculair
> Lijn | Institutioneel bestuur
> Zorg voor vertegenwoordiging binnen gouvernementele adviesorganen | 5.000 | National | Regularly | 115032426383 |
| Projeto Incluir [The project establishes a formal mechanism for patient rights and civic participation in Portugal. It allows patients and their advocacy organizations to have an active voice in Health Technology Assessment (HTA), Medicine Shortages & Safety and Policy Representation: Acting as a bridge between policymakers and citizens, ensuring that healthcare decisions account for patient values and experiences.] | Patiëntenbelangenbehartiging
> Patiëntenrechten | Institutioneel bestuur
> Zorg voor vertegenwoordiging binnen gouvernementele adviesorganen | 5.000 | National | Regularly | 115042989304 |
| FamiliarMente sits on the following advisory boards and committees: the National Council for Mental Health and the Regional Councils for Mental Health; the Infarmed [Instituto Nacional de Autoridade do Medicamento e Produtos de Saúde, I.P. – National Authority of Medicines and Health Products] Medicines Availability Management Monitoring Committee; and the Monitoring Committee for the Implementation of the Legal Framework for Involuntary Treatment (Mental Health Act), among others. | Geestelijke gezondheid
> Geestelijke gezondheid: de meeste aandoeningen | Institutioneel bestuur
> Zorg voor vertegenwoordiging binnen gouvernementele adviesorganen | 10.000 | National | Regularly | 115056273634 |
| Through the Parliamentary Health Group. | Cardiovasculair
> Hart- en vaatziekten | Institutioneel bestuur
> Effectief werken binnen netwerken met meerdere belanghebbenden | 100 | National | Regularly | 115033109950 |
interacties
acties & belangenbehartiging
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