| INFARMED [Autoridade Nacional do Medicamento e Produtos de Saúde, I.P. – National Authority of Medicines and Health Products]. | 신경학적
> 다발성 경화증 | 규제 파트너십
> 규제 기관과의 협력 | 1,000 | National | Regularly | 115015053859 |
| We are partners in the Projeto Incluir [Inclusion Project] led by Infarmed [Autoridade Nacional do Medicamento e Produtos de Saúde, I.P. – National Authority of Medicines and Health Products]. | 암
> 암: 유방 | 규제 파트너십
> 규제 기관과의 협력 | 1,000 | Regional | Regularly | 115017018417 |
| We would, however, welcome a closer relationship with the regulatory authorities. We have already sought to engage with the European medicines regulatory body. | 청력 손실
> 청력 손실 | 규제 파트너십
> 규제 기관과의 협력 | 100 | National | No | 115029020137 |
| Member of an Infarmed [Autoridade Nacional do Medicamento e Produtos de Saúde, I.P. – National Authority of Medicines and Health Products] panel. | 뇌혈관
> 획 | 규제 파트너십
> 규제 기관과의 협력 | 5,000 | National | Regularly | 115032426383 |
| Involvement in the Incluir project of Infarmed [Autoridade Nacional do Medicamento e Produtos de Saúde, I.P. – National Authority of Medicines and Health Products, Portugal], and participation on one occasion in the evaluation of a new medicine. [The Incluir project a strategic initiative designed to formalise and elevate the voice of patients and their representative associations in health-related decision-making and the lifecycle of medicines.] | 환자 권익 옹호
> 환자 권익 옹호 | 규제 파트너십
> 규제 기관과의 협력 | 5,000 | National | Rarely | 115033491291 |
| FamiliarMente sits on the following advisory boards and committees: the National Council for Mental Health and the Regional Councils for Mental Health; the Infarmed [Instituto Nacional de Autoridade do Medicamento e Produtos de Saúde, I.P. – National Authority of Medicines and Health Products] Medicines Availability Management Monitoring Committee; and the Monitoring Committee for the Implementation of the Legal Framework for Involuntary Treatment (Mental Health Act), among others. | 정신 건강
> 정신 건강: 대부분의 상태 | 규제 파트너십
> 규제 기관과의 협력 | 10,000 | National | Regularly | 115056273634 |
| Involvement in the Incluir project of Infarmed [Autoridade Nacional do Medicamento e Produtos de Saúde, I.P. – National Authority of Medicines and Health Products, Portugal], and participation on one occasion in the evaluation of a new medicine. [The Incluir project a strategic initiative designed to formalise and elevate the voice of patients and their representative associations in health-related decision-making and the lifecycle of medicines.] | 환자 권익 옹호
> 환자 권익 옹호 | 규제 파트너십
> 건강기술평가(HTA) 및 급여 검토에 참여 | 5,000 | National | Rarely | 115033491291 |
| We occasionally receive a form through which we are invited to submit written contributions to HTA [Avaliação de Tecnologias de Saúde – Health Technology Assessment] processes. | 류마티스성
> 류마티스 질환: 대부분의 유형 | 규제 파트너십
> 건강기술평가(HTA) 및 급여 검토에 참여 | 100 | National | Sometimes | 115060632863 |
| We participate in the medicines evaluation process at the request of INFARMED [Instituto Nacional da Farmácia e do Medicamento – National Authority of Medicines and Health Products]. | 신경학적
> 다발성 경화증 | 규제 파트너십
> 건강기술평가(HTA) 및 급여 검토에 참여 | 5,000 | National | Regularly | 115060898897 |
| Involvement in the Incluir project of Infarmed [Autoridade Nacional do Medicamento e Produtos de Saúde, I.P. – National Authority of Medicines and Health Products, Portugal], and participation on one occasion in the evaluation of a new medicine. [The Incluir project a strategic initiative designed to formalise and elevate the voice of patients and their representative associations in health-related decision-making and the lifecycle of medicines.] | 환자 권익 옹호
> 환자 권익 옹호 | 규제 파트너십
> 마케팅 허가 제출에 기여 | 5,000 | National | Rarely | 115033491291 |
| We would, however, welcome a closer relationship with the regulatory authorities. We have already sought to engage with the European medicines regulatory body. | 청력 손실
> 청력 손실 | 규제 파트너십
> 정책 입안자/규제 기관과의 회의 참석/진행 | 100 | National | No | 115029020137 |
| Involvement in the Incluir project of Infarmed [Autoridade Nacional do Medicamento e Produtos de Saúde, I.P. – National Authority of Medicines and Health Products, Portugal], and participation on one occasion in the evaluation of a new medicine. [The Incluir project a strategic initiative designed to formalise and elevate the voice of patients and their representative associations in health-related decision-making and the lifecycle of medicines.] | 환자 권익 옹호
> 환자 권익 옹호 | 규제 파트너십
> 정책 입안자/규제 기관과의 회의 참석/진행 | 5,000 | National | Rarely | 115033491291 |
| We participate in the medicines evaluation process at the request of INFARMED [Instituto Nacional da Farmácia e do Medicamento – National Authority of Medicines and Health Products]. | 신경학적
> 다발성 경화증 | 규제 파트너십
> 정책 입안자/규제 기관과의 회의 참석/진행 | 5,000 | National | Regularly | 115060898897 |
| Negotiation with the government or with parliamentary groups. | 일반 건강
> 비만 | 정책 및 법률에 영향 미치기
> 의료 정책 및 법률에 영향력 행사 | 1,000 | National | Regularly | 115006675660 |
| Engagement activities have included hearings with parliamentary groups, open letters, press releases, and participation in the organisation of research studies. | 호흡기
> 천식 | 정책 및 법률에 영향 미치기
> 공청회 및 협의에 참여하기 | Do not know | National | Sometimes | 115032964525 |
| Engagement activities have included hearings with parliamentary groups, open letters, press releases, and participation in the organisation of research studies. | 호흡기
> 천식 | 정책 및 법률에 영향 미치기
> 공청회 및 협의에 참여하기 | Do not know | National | Sometimes | 115032964525 |
| 2023: meeting with the Parliamentary Health Group at the AR [Assembleia da República – Assembly of the Republic]. | 심혈관
> 심혈관 및 심장 질환 | 정책 및 법률에 영향 미치기
> 공청회 및 협의에 참여하기 | 1,000 | National | Sometimes | 115054128784 |
| Negotiation with the government or with parliamentary groups. | 일반 건강
> 비만 | 정책 및 법률에 영향 미치기
> 의회 의원 및 정치 지도자 동원 | 1,000 | National | Regularly | 115006675660 |
| Each year, we submit our advocacy document to the parliamentary groups. | 장애
> 장애: 대부분의 유형 | 정책 및 법률에 영향 미치기
> 의회 의원 및 정치 지도자 동원 | We do not communicate with patients directly | National | Regularly | 115006736449 |
| Through the Parliamentary Health Group. | 심혈관
> 심혈관 및 심장 질환 | 정책 및 법률에 영향 미치기
> 의회 의원 및 정치 지도자 동원 | 100 | National | Regularly | 115033109950 |
| Each year, we submit our advocacy memorandum to the parliamentary groups. This year's submission included a call for the free-of-charge provision of medicines and medical devices for persons with disabilities. | 장애
> 장애: 대부분의 유형 | 가격 책정 및 affordability 옹호
> 공정한 의약품 가격 책정 옹호 | We do not communicate with patients directly | National | Regularly | 115006736449 |
| Each year, we submit our advocacy memorandum to the parliamentary groups. This year's submission included a call for the free-of-charge provision of medicines and medical devices for persons with disabilities. | 장애
> 장애: 대부분의 유형 | 가격 책정 및 affordability 옹호
> 저소득층 및 취약계층의 비용 장벽 해소 | We do not communicate with patients directly | National | Regularly | 115006736449 |
| Active participation in discussions on access to PAP [Programas de Acesso Precoce – Early Access Programmes] and in the centralised funding of medicines intended for rare diseases. | 신경근
> 신경근육 질환: 대부분의 유형 | 접근 경로 개선
> 희귀/초희귀 치료제 접근성 개선 | 1,000 | National | Regularly | 115022855373 |
| Questionnaire for the collection of contributions from patient associations in the context of Health Technology Assessment [in Portugal]. | 위장관
> 위장관: 기타 | 근거 기반 환자 의견
> 데이터 생성을 위한 설문조사/연구 수행 | 1,000 | National | Sometimes | 114997613546 |
| Engagement activities have included hearings with parliamentary groups, open letters, press releases, and participation in the organisation of research studies. | 호흡기
> 천식 | 근거 기반 환자 의견
> 데이터 생성을 위한 설문조사/연구 수행 | Do not know | National | Sometimes | 115032964525 |
| Member of an Infarmed [Autoridade Nacional do Medicamento e Produtos de Saúde, I.P. – National Authority of Medicines and Health Products] panel. | 뇌혈관
> 획 | 기관 거버넌스
> 정부 자문 기구 내 대표성 확보 | 5,000 | National | Regularly | 115032426383 |
| Projeto Incluir [The project establishes a formal mechanism for patient rights and civic participation in Portugal. It allows patients and their advocacy organizations to have an active voice in Health Technology Assessment (HTA), Medicine Shortages & Safety and Policy Representation: Acting as a bridge between policymakers and citizens, ensuring that healthcare decisions account for patient values and experiences.] | 환자 권익 옹호
> 환자 권리 | 기관 거버넌스
> 정부 자문 기구 내 대표성 확보 | 5,000 | National | Regularly | 115042989304 |
| FamiliarMente sits on the following advisory boards and committees: the National Council for Mental Health and the Regional Councils for Mental Health; the Infarmed [Instituto Nacional de Autoridade do Medicamento e Produtos de Saúde, I.P. – National Authority of Medicines and Health Products] Medicines Availability Management Monitoring Committee; and the Monitoring Committee for the Implementation of the Legal Framework for Involuntary Treatment (Mental Health Act), among others. | 정신 건강
> 정신 건강: 대부분의 상태 | 기관 거버넌스
> 정부 자문 기구 내 대표성 확보 | 10,000 | National | Regularly | 115056273634 |
| Through the Parliamentary Health Group. | 심혈관
> 심혈관 및 심장 질환 | 기관 거버넌스
> 다중 이해관계자 네트워크 내에서 효과적으로 협력하기 | 100 | National | Regularly | 115033109950 |
상호작용
활동 및 옹호
13 멘션
