| INFARMED [Autoridade Nacional do Medicamento e Produtos de Saúde, I.P. – National Authority of Medicines and Health Products]. | Neurologisch
> Multiple Sklerose | Regulatorische Partnerschaft
> Zusammenarbeit mit Regulierungsbehörden | 1.000 | National | Regularly | 115015053859 |
| We are partners in the Projeto Incluir [Inclusion Project] led by Infarmed [Autoridade Nacional do Medicamento e Produtos de Saúde, I.P. – National Authority of Medicines and Health Products]. | Krebs
> Krebs: Brust | Regulatorische Partnerschaft
> Zusammenarbeit mit Regulierungsbehörden | 1.000 | Regional | Regularly | 115017018417 |
| We would, however, welcome a closer relationship with the regulatory authorities. We have already sought to engage with the European medicines regulatory body. | Hörverlust
> Hörverlust | Regulatorische Partnerschaft
> Zusammenarbeit mit Regulierungsbehörden | 100 | National | No | 115029020137 |
| Member of an Infarmed [Autoridade Nacional do Medicamento e Produtos de Saúde, I.P. – National Authority of Medicines and Health Products] panel. | Zerebrovaskulär
> Kontur | Regulatorische Partnerschaft
> Zusammenarbeit mit Regulierungsbehörden | 5.000 | National | Regularly | 115032426383 |
| Involvement in the Incluir project of Infarmed [Autoridade Nacional do Medicamento e Produtos de Saúde, I.P. – National Authority of Medicines and Health Products, Portugal], and participation on one occasion in the evaluation of a new medicine. [The Incluir project a strategic initiative designed to formalise and elevate the voice of patients and their representative associations in health-related decision-making and the lifecycle of medicines.] | Patientenvertretung
> Patientenvertretung | Regulatorische Partnerschaft
> Zusammenarbeit mit Regulierungsbehörden | 5.000 | National | Rarely | 115033491291 |
| FamiliarMente sits on the following advisory boards and committees: the National Council for Mental Health and the Regional Councils for Mental Health; the Infarmed [Instituto Nacional de Autoridade do Medicamento e Produtos de Saúde, I.P. – National Authority of Medicines and Health Products] Medicines Availability Management Monitoring Committee; and the Monitoring Committee for the Implementation of the Legal Framework for Involuntary Treatment (Mental Health Act), among others. | Psychische Gesundheit
> Psychische Gesundheit: die meisten Erkrankungen | Regulatorische Partnerschaft
> Zusammenarbeit mit Regulierungsbehörden | 10.000 | National | Regularly | 115056273634 |
| Involvement in the Incluir project of Infarmed [Autoridade Nacional do Medicamento e Produtos de Saúde, I.P. – National Authority of Medicines and Health Products, Portugal], and participation on one occasion in the evaluation of a new medicine. [The Incluir project a strategic initiative designed to formalise and elevate the voice of patients and their representative associations in health-related decision-making and the lifecycle of medicines.] | Patientenvertretung
> Patientenvertretung | Regulatorische Partnerschaft
> Teilnahme an Health Technology Assessment (HTA) und Erstattungsprüfungen | 5.000 | National | Rarely | 115033491291 |
| We occasionally receive a form through which we are invited to submit written contributions to HTA [Avaliação de Tecnologias de Saúde – Health Technology Assessment] processes. | Rheumatisch
> Rheumatische Erkrankungen: die meisten Arten | Regulatorische Partnerschaft
> Teilnahme an Health Technology Assessment (HTA) und Erstattungsprüfungen | 100 | National | Sometimes | 115060632863 |
| We participate in the medicines evaluation process at the request of INFARMED [Instituto Nacional da Farmácia e do Medicamento – National Authority of Medicines and Health Products]. | Neurologisch
> Multiple Sklerose | Regulatorische Partnerschaft
> Teilnahme an Health Technology Assessment (HTA) und Erstattungsprüfungen | 5.000 | National | Regularly | 115060898897 |
| Involvement in the Incluir project of Infarmed [Autoridade Nacional do Medicamento e Produtos de Saúde, I.P. – National Authority of Medicines and Health Products, Portugal], and participation on one occasion in the evaluation of a new medicine. [The Incluir project a strategic initiative designed to formalise and elevate the voice of patients and their representative associations in health-related decision-making and the lifecycle of medicines.] | Patientenvertretung
> Patientenvertretung | Regulatorische Partnerschaft
> Beitrag zu Zulassungsanträgen leisten | 5.000 | National | Rarely | 115033491291 |
| We would, however, welcome a closer relationship with the regulatory authorities. We have already sought to engage with the European medicines regulatory body. | Hörverlust
> Hörverlust | Regulatorische Partnerschaft
> Teilnahme an/Durchführung von Treffen mit politischen Entscheidungsträgern/Regulierungsbehörden | 100 | National | No | 115029020137 |
| Involvement in the Incluir project of Infarmed [Autoridade Nacional do Medicamento e Produtos de Saúde, I.P. – National Authority of Medicines and Health Products, Portugal], and participation on one occasion in the evaluation of a new medicine. [The Incluir project a strategic initiative designed to formalise and elevate the voice of patients and their representative associations in health-related decision-making and the lifecycle of medicines.] | Patientenvertretung
> Patientenvertretung | Regulatorische Partnerschaft
> Teilnahme an/Durchführung von Treffen mit politischen Entscheidungsträgern/Regulierungsbehörden | 5.000 | National | Rarely | 115033491291 |
| We participate in the medicines evaluation process at the request of INFARMED [Instituto Nacional da Farmácia e do Medicamento – National Authority of Medicines and Health Products]. | Neurologisch
> Multiple Sklerose | Regulatorische Partnerschaft
> Teilnahme an/Durchführung von Treffen mit politischen Entscheidungsträgern/Regulierungsbehörden | 5.000 | National | Regularly | 115060898897 |
| Negotiation with the government or with parliamentary groups. | Allgemeine Gesundheit
> Fettleibigkeit | Einfluss auf Politik und Gesetzgebung
> Gesundheitspolitik und Gesetzgebung beeinflussen | 1.000 | National | Regularly | 115006675660 |
| Engagement activities have included hearings with parliamentary groups, open letters, press releases, and participation in the organisation of research studies. | Atemwege
> Asthma | Einfluss auf Politik und Gesetzgebung
> An öffentlichen Anhörungen und Konsultationen teilnehmen | Do not know | National | Sometimes | 115032964525 |
| Engagement activities have included hearings with parliamentary groups, open letters, press releases, and participation in the organisation of research studies. | Atemwege
> Asthma | Einfluss auf Politik und Gesetzgebung
> An öffentlichen Anhörungen und Konsultationen teilnehmen | Do not know | National | Sometimes | 115032964525 |
| 2023: meeting with the Parliamentary Health Group at the AR [Assembleia da República – Assembly of the Republic]. | Kardiovaskulär
> Herz-Kreislauf- & Herzerkrankungen | Einfluss auf Politik und Gesetzgebung
> An öffentlichen Anhörungen und Konsultationen teilnehmen | 1.000 | National | Sometimes | 115054128784 |
| Negotiation with the government or with parliamentary groups. | Allgemeine Gesundheit
> Fettleibigkeit | Einfluss auf Politik und Gesetzgebung
> Parlamentarier und politische Führungspersönlichkeiten mobilisieren | 1.000 | National | Regularly | 115006675660 |
| Each year, we submit our advocacy document to the parliamentary groups. | Behinderung
> Behinderung: die meisten Arten | Einfluss auf Politik und Gesetzgebung
> Parlamentarier und politische Führungspersönlichkeiten mobilisieren | We do not communicate with patients directly | National | Regularly | 115006736449 |
| Through the Parliamentary Health Group. | Kardiovaskulär
> Herz-Kreislauf- & Herzerkrankungen | Einfluss auf Politik und Gesetzgebung
> Parlamentarier und politische Führungspersönlichkeiten mobilisieren | 100 | National | Regularly | 115033109950 |
| Each year, we submit our advocacy memorandum to the parliamentary groups. This year's submission included a call for the free-of-charge provision of medicines and medical devices for persons with disabilities. | Behinderung
> Behinderung: die meisten Arten | Preisgestaltung und Erschwinglichkeitsförderung
> Für faire Medikamentenpreise eintreten | We do not communicate with patients directly | National | Regularly | 115006736449 |
| Each year, we submit our advocacy memorandum to the parliamentary groups. This year's submission included a call for the free-of-charge provision of medicines and medical devices for persons with disabilities. | Behinderung
> Behinderung: die meisten Arten | Preisgestaltung und Erschwinglichkeitsförderung
> Kostenhürden für einkommensschwache und vulnerable Personen abbauen | We do not communicate with patients directly | National | Regularly | 115006736449 |
| Active participation in discussions on access to PAP [Programas de Acesso Precoce – Early Access Programmes] and in the centralised funding of medicines intended for rare diseases. | Neuromuskulär
> Neuromuskuläre Erkrankungen: die meisten Typen | Verbesserung der Zugangswege
> Verbesserung des Zugangs zu seltenen/extrem seltenen Therapien | 1.000 | National | Regularly | 115022855373 |
| Questionnaire for the collection of contributions from patient associations in the context of Health Technology Assessment [in Portugal]. | Gastrointestinal
> Gastrointestinal: Sonstiges | Evidenzbasierter Patientenbeitrag
> Umfragen/Forschungen durchführen, um Daten zu generieren | 1.000 | National | Sometimes | 114997613546 |
| Engagement activities have included hearings with parliamentary groups, open letters, press releases, and participation in the organisation of research studies. | Atemwege
> Asthma | Evidenzbasierter Patientenbeitrag
> Umfragen/Forschungen durchführen, um Daten zu generieren | Do not know | National | Sometimes | 115032964525 |
| Member of an Infarmed [Autoridade Nacional do Medicamento e Produtos de Saúde, I.P. – National Authority of Medicines and Health Products] panel. | Zerebrovaskulär
> Kontur | Institutionelle Governance
> Sicherstellen der Vertretung in staatlichen Beratungsgremien | 5.000 | National | Regularly | 115032426383 |
| Projeto Incluir [The project establishes a formal mechanism for patient rights and civic participation in Portugal. It allows patients and their advocacy organizations to have an active voice in Health Technology Assessment (HTA), Medicine Shortages & Safety and Policy Representation: Acting as a bridge between policymakers and citizens, ensuring that healthcare decisions account for patient values and experiences.] | Patientenvertretung
> Patientenrechte | Institutionelle Governance
> Sicherstellen der Vertretung in staatlichen Beratungsgremien | 5.000 | National | Regularly | 115042989304 |
| FamiliarMente sits on the following advisory boards and committees: the National Council for Mental Health and the Regional Councils for Mental Health; the Infarmed [Instituto Nacional de Autoridade do Medicamento e Produtos de Saúde, I.P. – National Authority of Medicines and Health Products] Medicines Availability Management Monitoring Committee; and the Monitoring Committee for the Implementation of the Legal Framework for Involuntary Treatment (Mental Health Act), among others. | Psychische Gesundheit
> Psychische Gesundheit: die meisten Erkrankungen | Institutionelle Governance
> Sicherstellen der Vertretung in staatlichen Beratungsgremien | 10.000 | National | Regularly | 115056273634 |
| Through the Parliamentary Health Group. | Kardiovaskulär
> Herz-Kreislauf- & Herzerkrankungen | Institutionelle Governance
> Effektiv in Netzwerken mit mehreren Interessengruppen arbeiten | 100 | National | Regularly | 115033109950 |
Interaktionen
Aktionen & Interessenvertretung
13 Erwähnungen
