| INFARMED [Autoridade Nacional do Medicamento e Produtos de Saúde, I.P. – National Authority of Medicines and Health Products]. | 神經系統
> 多發性硬化症 | 監管合作夥伴關係
> 與監管機構合作 | 1,000 | National | Regularly | 115015053859 |
| We are partners in the Projeto Incluir [Inclusion Project] led by Infarmed [Autoridade Nacional do Medicamento e Produtos de Saúde, I.P. – National Authority of Medicines and Health Products]. | 癌症
> 癌症：乳腺癌 | 監管合作夥伴關係
> 與監管機構合作 | 1,000 | Regional | Regularly | 115017018417 |
| We would, however, welcome a closer relationship with the regulatory authorities. We have already sought to engage with the European medicines regulatory body. | 聽力損失
> 聽力損失 | 監管合作夥伴關係
> 與監管機構合作 | 100 | National | No | 115029020137 |
| Member of an Infarmed [Autoridade Nacional do Medicamento e Produtos de Saúde, I.P. – National Authority of Medicines and Health Products] panel. | 腦血管
> 筆觸 | 監管合作夥伴關係
> 與監管機構合作 | 5,000 | National | Regularly | 115032426383 |
| Involvement in the Incluir project of Infarmed [Autoridade Nacional do Medicamento e Produtos de Saúde, I.P. – National Authority of Medicines and Health Products, Portugal], and participation on one occasion in the evaluation of a new medicine. [The Incluir project a strategic initiative designed to formalise and elevate the voice of patients and their representative associations in health-related decision-making and the lifecycle of medicines.] | 患者倡議
> 患者倡議 | 監管合作夥伴關係
> 與監管機構合作 | 5,000 | National | Rarely | 115033491291 |
| FamiliarMente sits on the following advisory boards and committees: the National Council for Mental Health and the Regional Councils for Mental Health; the Infarmed [Instituto Nacional de Autoridade do Medicamento e Produtos de Saúde, I.P. – National Authority of Medicines and Health Products] Medicines Availability Management Monitoring Committee; and the Monitoring Committee for the Implementation of the Legal Framework for Involuntary Treatment (Mental Health Act), among others. | 心理健康
> 精神健康：大多數狀況 | 監管合作夥伴關係
> 與監管機構合作 | 10,000 | National | Regularly | 115056273634 |
| Involvement in the Incluir project of Infarmed [Autoridade Nacional do Medicamento e Produtos de Saúde, I.P. – National Authority of Medicines and Health Products, Portugal], and participation on one occasion in the evaluation of a new medicine. [The Incluir project a strategic initiative designed to formalise and elevate the voice of patients and their representative associations in health-related decision-making and the lifecycle of medicines.] | 患者倡議
> 患者倡議 | 監管合作夥伴關係
> 參與健康技術評估（HTA）及報銷審查 | 5,000 | National | Rarely | 115033491291 |
| We occasionally receive a form through which we are invited to submit written contributions to HTA [Avaliação de Tecnologias de Saúde – Health Technology Assessment] processes. | 風濕性
> 風濕病：大多數類型 | 監管合作夥伴關係
> 參與健康技術評估（HTA）及報銷審查 | 100 | National | Sometimes | 115060632863 |
| We participate in the medicines evaluation process at the request of INFARMED [Instituto Nacional da Farmácia e do Medicamento – National Authority of Medicines and Health Products]. | 神經系統
> 多發性硬化症 | 監管合作夥伴關係
> 參與健康技術評估（HTA）及報銷審查 | 5,000 | National | Regularly | 115060898897 |
| Involvement in the Incluir project of Infarmed [Autoridade Nacional do Medicamento e Produtos de Saúde, I.P. – National Authority of Medicines and Health Products, Portugal], and participation on one occasion in the evaluation of a new medicine. [The Incluir project a strategic initiative designed to formalise and elevate the voice of patients and their representative associations in health-related decision-making and the lifecycle of medicines.] | 患者倡議
> 患者倡議 | 監管合作夥伴關係
> 為市場授權申請作出貢獻 | 5,000 | National | Rarely | 115033491291 |
| We would, however, welcome a closer relationship with the regulatory authorities. We have already sought to engage with the European medicines regulatory body. | 聽力損失
> 聽力損失 | 監管合作夥伴關係
> 出席/主持與政策制定者/監管機構的會議 | 100 | National | No | 115029020137 |
| Involvement in the Incluir project of Infarmed [Autoridade Nacional do Medicamento e Produtos de Saúde, I.P. – National Authority of Medicines and Health Products, Portugal], and participation on one occasion in the evaluation of a new medicine. [The Incluir project a strategic initiative designed to formalise and elevate the voice of patients and their representative associations in health-related decision-making and the lifecycle of medicines.] | 患者倡議
> 患者倡議 | 監管合作夥伴關係
> 出席/主持與政策制定者/監管機構的會議 | 5,000 | National | Rarely | 115033491291 |
| We participate in the medicines evaluation process at the request of INFARMED [Instituto Nacional da Farmácia e do Medicamento – National Authority of Medicines and Health Products]. | 神經系統
> 多發性硬化症 | 監管合作夥伴關係
> 出席/主持與政策制定者/監管機構的會議 | 5,000 | National | Regularly | 115060898897 |
| Negotiation with the government or with parliamentary groups. | 一般健康
> 肥胖症 | 影響政策及立法
> 影響醫療保健政策及立法 | 1,000 | National | Regularly | 115006675660 |
| Engagement activities have included hearings with parliamentary groups, open letters, press releases, and participation in the organisation of research studies. | 呼吸系統
> 哮喘 | 影響政策及立法
> 參與公眾聆訊及諮詢 | Do not know | National | Sometimes | 115032964525 |
| Engagement activities have included hearings with parliamentary groups, open letters, press releases, and participation in the organisation of research studies. | 呼吸系統
> 哮喘 | 影響政策及立法
> 參與公眾聆訊及諮詢 | Do not know | National | Sometimes | 115032964525 |
| 2023: meeting with the Parliamentary Health Group at the AR [Assembleia da República – Assembly of the Republic]. | 心血管
> 心血管及心臟疾病 | 影響政策及立法
> 參與公眾聆訊及諮詢 | 1,000 | National | Sometimes | 115054128784 |
| Negotiation with the government or with parliamentary groups. | 一般健康
> 肥胖症 | 影響政策及立法
> 動員議員及政治領袖 | 1,000 | National | Regularly | 115006675660 |
| Each year, we submit our advocacy document to the parliamentary groups. | 殘疾
> 殘疾：大多數類型 | 影響政策及立法
> 動員議員及政治領袖 | We do not communicate with patients directly | National | Regularly | 115006736449 |
| Through the Parliamentary Health Group. | 心血管
> 心血管及心臟疾病 | 影響政策及立法
> 動員議員及政治領袖 | 100 | National | Regularly | 115033109950 |
| Each year, we submit our advocacy memorandum to the parliamentary groups. This year's submission included a call for the free-of-charge provision of medicines and medical devices for persons with disabilities. | 殘疾
> 殘疾：大多數類型 | 定價及可負擔性倡議
> 倡導公平藥品定價 | We do not communicate with patients directly | National | Regularly | 115006736449 |
| Each year, we submit our advocacy memorandum to the parliamentary groups. This year's submission included a call for the free-of-charge provision of medicines and medical devices for persons with disabilities. | 殘疾
> 殘疾：大多數類型 | 定價及可負擔性倡議
> 解決低收入及弱勢群體的費用負擔問題 | We do not communicate with patients directly | National | Regularly | 115006736449 |
| Active participation in discussions on access to PAP [Programas de Acesso Precoce – Early Access Programmes] and in the centralised funding of medicines intended for rare diseases. | 神經肌肉
> 神經肌肉疾病：大多數類型 | 改善存取途徑
> 改善罕見/極罕見療法的獲取途徑 | 1,000 | National | Regularly | 115022855373 |
| Questionnaire for the collection of contributions from patient associations in the context of Health Technology Assessment [in Portugal]. | 腸胃
> 腸胃：其他 | 以實證為基礎的患者意見
> 進行調查/研究以產生數據 | 1,000 | National | Sometimes | 114997613546 |
| Engagement activities have included hearings with parliamentary groups, open letters, press releases, and participation in the organisation of research studies. | 呼吸系統
> 哮喘 | 以實證為基礎的患者意見
> 進行調查/研究以產生數據 | Do not know | National | Sometimes | 115032964525 |
| Member of an Infarmed [Autoridade Nacional do Medicamento e Produtos de Saúde, I.P. – National Authority of Medicines and Health Products] panel. | 腦血管
> 筆觸 | 機構管治
> 確保在政府諮詢機構中獲得代表席位 | 5,000 | National | Regularly | 115032426383 |
| Projeto Incluir [The project establishes a formal mechanism for patient rights and civic participation in Portugal. It allows patients and their advocacy organizations to have an active voice in Health Technology Assessment (HTA), Medicine Shortages & Safety and Policy Representation: Acting as a bridge between policymakers and citizens, ensuring that healthcare decisions account for patient values and experiences.] | 患者倡議
> 病人權利 | 機構管治
> 確保在政府諮詢機構中獲得代表席位 | 5,000 | National | Regularly | 115042989304 |
| FamiliarMente sits on the following advisory boards and committees: the National Council for Mental Health and the Regional Councils for Mental Health; the Infarmed [Instituto Nacional de Autoridade do Medicamento e Produtos de Saúde, I.P. – National Authority of Medicines and Health Products] Medicines Availability Management Monitoring Committee; and the Monitoring Committee for the Implementation of the Legal Framework for Involuntary Treatment (Mental Health Act), among others. | 心理健康
> 精神健康：大多數狀況 | 機構管治
> 確保在政府諮詢機構中獲得代表席位 | 10,000 | National | Regularly | 115056273634 |
| Through the Parliamentary Health Group. | 心血管
> 心血管及心臟疾病 | 機構管治
> 在多方持份者網絡中有效運作 | 100 | National | Regularly | 115033109950 |
互動
行動與倡議
13 提及
