| INFARMED [Autoridade Nacional do Medicamento e Produtos de Saúde, I.P. – National Authority of Medicines and Health Products]. | 神经系统
> 多发性硬化症 | 监管合作伙伴关系
> 与监管机构合作 | 1,000 | National | Regularly | 115015053859 |
| We are partners in the Projeto Incluir [Inclusion Project] led by Infarmed [Autoridade Nacional do Medicamento e Produtos de Saúde, I.P. – National Authority of Medicines and Health Products]. | 癌症
> 癌症：乳腺癌 | 监管合作伙伴关系
> 与监管机构合作 | 1,000 | Regional | Regularly | 115017018417 |
| We would, however, welcome a closer relationship with the regulatory authorities. We have already sought to engage with the European medicines regulatory body. | 听力损失
> 听力损失 | 监管合作伙伴关系
> 与监管机构合作 | 100 | National | No | 115029020137 |
| Member of an Infarmed [Autoridade Nacional do Medicamento e Produtos de Saúde, I.P. – National Authority of Medicines and Health Products] panel. | 脑血管
> 描边 | 监管合作伙伴关系
> 与监管机构合作 | 5,000 | National | Regularly | 115032426383 |
| Involvement in the Incluir project of Infarmed [Autoridade Nacional do Medicamento e Produtos de Saúde, I.P. – National Authority of Medicines and Health Products, Portugal], and participation on one occasion in the evaluation of a new medicine. [The Incluir project a strategic initiative designed to formalise and elevate the voice of patients and their representative associations in health-related decision-making and the lifecycle of medicines.] | 患者权益倡导
> 患者权益倡导 | 监管合作伙伴关系
> 与监管机构合作 | 5,000 | National | Rarely | 115033491291 |
| FamiliarMente sits on the following advisory boards and committees: the National Council for Mental Health and the Regional Councils for Mental Health; the Infarmed [Instituto Nacional de Autoridade do Medicamento e Produtos de Saúde, I.P. – National Authority of Medicines and Health Products] Medicines Availability Management Monitoring Committee; and the Monitoring Committee for the Implementation of the Legal Framework for Involuntary Treatment (Mental Health Act), among others. | 心理健康
> 心理健康：大多数状况 | 监管合作伙伴关系
> 与监管机构合作 | 10,000 | National | Regularly | 115056273634 |
| Involvement in the Incluir project of Infarmed [Autoridade Nacional do Medicamento e Produtos de Saúde, I.P. – National Authority of Medicines and Health Products, Portugal], and participation on one occasion in the evaluation of a new medicine. [The Incluir project a strategic initiative designed to formalise and elevate the voice of patients and their representative associations in health-related decision-making and the lifecycle of medicines.] | 患者权益倡导
> 患者权益倡导 | 监管合作伙伴关系
> 参与卫生技术评估（HTA）和报销审查 | 5,000 | National | Rarely | 115033491291 |
| We occasionally receive a form through which we are invited to submit written contributions to HTA [Avaliação de Tecnologias de Saúde – Health Technology Assessment] processes. | 风湿性
> 风湿性疾病：大多数类型 | 监管合作伙伴关系
> 参与卫生技术评估（HTA）和报销审查 | 100 | National | Sometimes | 115060632863 |
| We participate in the medicines evaluation process at the request of INFARMED [Instituto Nacional da Farmácia e do Medicamento – National Authority of Medicines and Health Products]. | 神经系统
> 多发性硬化症 | 监管合作伙伴关系
> 参与卫生技术评估（HTA）和报销审查 | 5,000 | National | Regularly | 115060898897 |
| Involvement in the Incluir project of Infarmed [Autoridade Nacional do Medicamento e Produtos de Saúde, I.P. – National Authority of Medicines and Health Products, Portugal], and participation on one occasion in the evaluation of a new medicine. [The Incluir project a strategic initiative designed to formalise and elevate the voice of patients and their representative associations in health-related decision-making and the lifecycle of medicines.] | 患者权益倡导
> 患者权益倡导 | 监管合作伙伴关系
> 为营销授权申报做出贡献 | 5,000 | National | Rarely | 115033491291 |
| We would, however, welcome a closer relationship with the regulatory authorities. We have already sought to engage with the European medicines regulatory body. | 听力损失
> 听力损失 | 监管合作伙伴关系
> 参加/主持与政策制定者/监管机构的会议 | 100 | National | No | 115029020137 |
| Involvement in the Incluir project of Infarmed [Autoridade Nacional do Medicamento e Produtos de Saúde, I.P. – National Authority of Medicines and Health Products, Portugal], and participation on one occasion in the evaluation of a new medicine. [The Incluir project a strategic initiative designed to formalise and elevate the voice of patients and their representative associations in health-related decision-making and the lifecycle of medicines.] | 患者权益倡导
> 患者权益倡导 | 监管合作伙伴关系
> 参加/主持与政策制定者/监管机构的会议 | 5,000 | National | Rarely | 115033491291 |
| We participate in the medicines evaluation process at the request of INFARMED [Instituto Nacional da Farmácia e do Medicamento – National Authority of Medicines and Health Products]. | 神经系统
> 多发性硬化症 | 监管合作伙伴关系
> 参加/主持与政策制定者/监管机构的会议 | 5,000 | National | Regularly | 115060898897 |
| Negotiation with the government or with parliamentary groups. | 总体健康
> 肥胖症 | 影响政策和立法
> 影响医疗保健政策和立法 | 1,000 | National | Regularly | 115006675660 |
| Engagement activities have included hearings with parliamentary groups, open letters, press releases, and participation in the organisation of research studies. | 呼吸系统
> 哮喘 | 影响政策和立法
> 参与公众听证会和咨询 | Do not know | National | Sometimes | 115032964525 |
| Engagement activities have included hearings with parliamentary groups, open letters, press releases, and participation in the organisation of research studies. | 呼吸系统
> 哮喘 | 影响政策和立法
> 参与公众听证会和咨询 | Do not know | National | Sometimes | 115032964525 |
| 2023: meeting with the Parliamentary Health Group at the AR [Assembleia da República – Assembly of the Republic]. | 心血管
> 心血管和心脏疾病 | 影响政策和立法
> 参与公众听证会和咨询 | 1,000 | National | Sometimes | 115054128784 |
| Negotiation with the government or with parliamentary groups. | 总体健康
> 肥胖症 | 影响政策和立法
> 动员议员和政治领导人 | 1,000 | National | Regularly | 115006675660 |
| Each year, we submit our advocacy document to the parliamentary groups. | 残疾
> 残疾：大多数类型 | 影响政策和立法
> 动员议员和政治领导人 | We do not communicate with patients directly | National | Regularly | 115006736449 |
| Through the Parliamentary Health Group. | 心血管
> 心血管和心脏疾病 | 影响政策和立法
> 动员议员和政治领导人 | 100 | National | Regularly | 115033109950 |
| Each year, we submit our advocacy memorandum to the parliamentary groups. This year's submission included a call for the free-of-charge provision of medicines and medical devices for persons with disabilities. | 残疾
> 残疾：大多数类型 | 定价与可负担性倡导
> 倡导公平的药品定价 | We do not communicate with patients directly | National | Regularly | 115006736449 |
| Each year, we submit our advocacy memorandum to the parliamentary groups. This year's submission included a call for the free-of-charge provision of medicines and medical devices for persons with disabilities. | 残疾
> 残疾：大多数类型 | 定价与可负担性倡导
> 解决低收入和弱势群体面临的费用障碍 | We do not communicate with patients directly | National | Regularly | 115006736449 |
| Active participation in discussions on access to PAP [Programas de Acesso Precoce – Early Access Programmes] and in the centralised funding of medicines intended for rare diseases. | 神经肌肉
> 神经肌肉疾病：大多数类型 | 改善访问路径
> 改善罕见/超罕见疗法的获取途径 | 1,000 | National | Regularly | 115022855373 |
| Questionnaire for the collection of contributions from patient associations in the context of Health Technology Assessment [in Portugal]. | 胃肠道
> 胃肠道：其他 | 循证患者意见
> 开展调查/研究以生成数据 | 1,000 | National | Sometimes | 114997613546 |
| Engagement activities have included hearings with parliamentary groups, open letters, press releases, and participation in the organisation of research studies. | 呼吸系统
> 哮喘 | 循证患者意见
> 开展调查/研究以生成数据 | Do not know | National | Sometimes | 115032964525 |
| Member of an Infarmed [Autoridade Nacional do Medicamento e Produtos de Saúde, I.P. – National Authority of Medicines and Health Products] panel. | 脑血管
> 描边 | 机构治理
> 确保在政府咨询机构中的代表性 | 5,000 | National | Regularly | 115032426383 |
| Projeto Incluir [The project establishes a formal mechanism for patient rights and civic participation in Portugal. It allows patients and their advocacy organizations to have an active voice in Health Technology Assessment (HTA), Medicine Shortages & Safety and Policy Representation: Acting as a bridge between policymakers and citizens, ensuring that healthcare decisions account for patient values and experiences.] | 患者权益倡导
> 患者权利 | 机构治理
> 确保在政府咨询机构中的代表性 | 5,000 | National | Regularly | 115042989304 |
| FamiliarMente sits on the following advisory boards and committees: the National Council for Mental Health and the Regional Councils for Mental Health; the Infarmed [Instituto Nacional de Autoridade do Medicamento e Produtos de Saúde, I.P. – National Authority of Medicines and Health Products] Medicines Availability Management Monitoring Committee; and the Monitoring Committee for the Implementation of the Legal Framework for Involuntary Treatment (Mental Health Act), among others. | 心理健康
> 心理健康：大多数状况 | 机构治理
> 确保在政府咨询机构中的代表性 | 10,000 | National | Regularly | 115056273634 |
| Through the Parliamentary Health Group. | 心血管
> 心血管和心脏疾病 | 机构治理
> 在多利益相关方网络中高效协作 | 100 | National | Regularly | 115033109950 |
互动
行动与倡导
13 提及
