| We participate in administrative proceedings to determine the reimbursement of medical supplies in accordance with the law. | Neuromuskulær
> Muskeldystrofi | Regulatorisk partnerskab
> Deltag i Health Technology Assessment (HTA) og refusionsgennemgange | 1.000 | National | Sometimes | 119012939366 |
| One of several examples is the participation of our patient organisation in the registration process for a medicinal product intended for the treatment of ATTR [Transthyretin] amyloidosis, which is entering the Czech Republic via the so-called third orphan route. | Kardiovaskulær
> Kardiovaskulær: de fleste typer | Regulatorisk partnerskab
> Bidrag til ansøgninger om markedsføringstilladelse | 100 | National | Regularly | 119049774965 |
| … We are a member of the group "Platforma" [umbrella patient group] in the Czech Republic. | Mental sundhed
> Psykisk helbred: de fleste tilstande | Regulatorisk partnerskab
> Med andre sundhedsforkæmpere | 100 | Regional | Regularly | 119046016408 |
| We participate in administrative proceedings to determine the reimbursement of medical supplies in accordance with the law. | Neuromuskulær
> Muskeldystrofi | Prisfastsættelse og overkommelighed
> Deltag i forhandlinger med prisrevisionsnævnet | 1.000 | National | Sometimes | 119012939366 |
| We work with patients where a big amount of them have financial problems, so they ask quite frequently. | Smitsom
> Infektionssygdom: anden | Prisfastsættelse og overkommelighed
> Adresser omkostningsbarrierer for lavindkomst- og sårbare personer | 5.000 | National | Sometimes | 119013725797 |
| One of several examples is the participation of our patient organisation in the registration process for a medicinal product intended for the treatment of ATTR [Transthyretin] amyloidosis, which is entering the Czech Republic via the so-called third orphan route. | Kardiovaskulær
> Kardiovaskulær: de fleste typer | Forbedring af adgangsveje
> Forbedring af adgangen til sjældne/ultrasjældne behandlinger | 100 | National | Regularly | 119049774965 |
| The organization conducts qualitative interviews with patients and prepares statements for administrative proceedings on orphans [drugs]. | Kræft
> Kræft: andet | Forbedring af adgangsveje
> Forbedring af adgangen til sjældne/ultrasjældne behandlinger | 1.000 | National | Regularly | 119069539565 |
| Patient statements, PED [Patient Experience Data] reports, etc. | Kræft
> Kræft: de fleste typer | Evidensbaseret patientinput
> Brug patientindsigt til at informere beslutninger | 1.000 | National | Sometimes | 119051267743 |
| One of several examples is the participation of our patient organization in the registration process for a medicinal product intended for the treatment of ATTR [Transthyretin] amyloidosis, which is entering the Czech Republic via the so-called third orphan route. Patients here comment on the benefits of therapy based on specific case studies. | Kardiovaskulær
> Kardiovaskulær: de fleste typer | Evidensbaseret patientinput
> Lever Real-World Evidence (RWE) til regulatoriske myndigheder | 100 | National | Regularly | 119049774965 |
| … patients here comment on the benefits of therapy based on specific case studies. | Kardiovaskulær
> Kardiovaskulær: de fleste typer | Evidensbaseret patientinput
> Udnyt patienthistorier og fortællinger om levede erfaringer | 100 | National | Regularly | 119049774965 |
| The organization conducts qualitative interviews with patients and prepares statements for administrative proceedings on orphans [drugs]. | Kræft
> Kræft: andet | Evidensbaseret patientinput
> Udnyt patienthistorier og fortællinger om levede erfaringer | 1.000 | National | Regularly | 119069539565 |
| The organization conducts qualitative interviews with patients and prepares statements for administrative proceedings on orphans [drugs]. | Kræft
> Kræft: andet | Evidensbaseret patientinput
> Gennemfør undersøgelser/forskning for at generere data | 1.000 | National | Regularly | 119069539565 |
| The organization conducts qualitative interviews with patients and prepares statements for administrative proceedings on orphans [drugs]. | Kræft
> Kræft: andet | Evidensbaseret patientinput
> Gennemfør undersøgelser/forskning for at generere data | 1.000 | National | Regularly | 119069539565 |
| ... We provide social and legal consultations to patients while ensuring appropriate assistance, care, and treatment. | Neuromuskulær
> Muskeldystrofi | Opretholdelse af patientrettigheder/forbedring af livskvalitet
> Beskyttelse/forbedring af patientoplevelsen | 1.000 | National | Sometimes | 119012939366 |
| We participate in administrative proceedings to determine the reimbursement of medical supplies in accordance with the law. We provide social and legal consultations to patients while ensuring appropriate assistance, care, and treatment. | Neuromuskulær
> Muskeldystrofi | Opretholdelse af patientrettigheder/forbedring af livskvalitet
> Støtte i behandlingsrelaterede retssager | 1.000 | National | Sometimes | 119012939366 |