| We participate in administrative proceedings to determine the reimbursement of medical supplies in accordance with the law. | 神経筋
> 筋ジストロフィー | 規制上のパートナーシップ
> 医療技術評価(HTA)および償還審査への参加 | 1,000 | National | Sometimes | 119012939366 |
| One of several examples is the participation of our patient organisation in the registration process for a medicinal product intended for the treatment of ATTR [Transthyretin] amyloidosis, which is entering the Czech Republic via the so-called third orphan route. | 心臓血管
> 心臓血管系:ほとんどの種類 | 規制上のパートナーシップ
> マーケティング承認申請への貢献 | 100 | National | Regularly | 119049774965 |
| … We are a member of the group "Platforma" [umbrella patient group] in the Czech Republic. | メンタルヘルス
> メンタルヘルス:ほとんどの状態 | 規制上のパートナーシップ
> 他の医療擁護者と | 100 | Regional | Regularly | 119046016408 |
| We participate in administrative proceedings to determine the reimbursement of medical supplies in accordance with the law. | 神経筋
> 筋ジストロフィー | 価格設定と手頃な価格の擁護
> 価格審査委員会の交渉に参加する | 1,000 | National | Sometimes | 119012939366 |
| We work with patients where a big amount of them have financial problems, so they ask quite frequently. | 感染性
> 感染症:その他 | 価格設定と手頃な価格の擁護
> 低所得者や脆弱な立場にある人々のコスト面での障壁に対処する | 5,000 | National | Sometimes | 119013725797 |
| One of several examples is the participation of our patient organisation in the registration process for a medicinal product intended for the treatment of ATTR [Transthyretin] amyloidosis, which is entering the Czech Republic via the so-called third orphan route. | 心臓血管
> 心臓血管系:ほとんどの種類 | アクセス経路の改善
> 希少・超希少疾患治療へのアクセス改善 | 100 | National | Regularly | 119049774965 |
| The organization conducts qualitative interviews with patients and prepares statements for administrative proceedings on orphans [drugs]. | がん
> がん:その他 | アクセス経路の改善
> 希少・超希少疾患治療へのアクセス改善 | 1,000 | National | Regularly | 119069539565 |
| Patient statements, PED [Patient Experience Data] reports, etc. | がん
> がん:ほとんどの種類 | エビデンスに基づく患者の意見
> 患者のインサイトを活用して意思決定に役立てる | 1,000 | National | Sometimes | 119051267743 |
| One of several examples is the participation of our patient organization in the registration process for a medicinal product intended for the treatment of ATTR [Transthyretin] amyloidosis, which is entering the Czech Republic via the so-called third orphan route. Patients here comment on the benefits of therapy based on specific case studies. | 心臓血管
> 心臓血管系:ほとんどの種類 | エビデンスに基づく患者の意見
> 規制当局にリアルワールドエビデンス(RWE)を提供する | 100 | National | Regularly | 119049774965 |
| … patients here comment on the benefits of therapy based on specific case studies. | 心臓血管
> 心臓血管系:ほとんどの種類 | エビデンスに基づく患者の意見
> 患者の体験談や生きた経験のナラティブを活用する | 100 | National | Regularly | 119049774965 |
| The organization conducts qualitative interviews with patients and prepares statements for administrative proceedings on orphans [drugs]. | がん
> がん:その他 | エビデンスに基づく患者の意見
> 患者の体験談や生きた経験のナラティブを活用する | 1,000 | National | Regularly | 119069539565 |
| The organization conducts qualitative interviews with patients and prepares statements for administrative proceedings on orphans [drugs]. | がん
> がん:その他 | エビデンスに基づく患者の意見
> 調査/研究を実施してデータを生成する | 1,000 | National | Regularly | 119069539565 |
| The organization conducts qualitative interviews with patients and prepares statements for administrative proceedings on orphans [drugs]. | がん
> がん:その他 | エビデンスに基づく患者の意見
> 調査/研究を実施してデータを生成する | 1,000 | National | Regularly | 119069539565 |
| ... We provide social and legal consultations to patients while ensuring appropriate assistance, care, and treatment. | 神経筋
> 筋ジストロフィー | 患者の権利の擁護/生活の質の向上
> 患者体験の保護・改善 | 1,000 | National | Sometimes | 119012939366 |
| We participate in administrative proceedings to determine the reimbursement of medical supplies in accordance with the law. We provide social and legal consultations to patients while ensuring appropriate assistance, care, and treatment. | 神経筋
> 筋ジストロフィー | 患者の権利の擁護/生活の質の向上
> 治療関連の法的措置におけるサポート | 1,000 | National | Sometimes | 119012939366 |