| We participate in administrative proceedings to determine the reimbursement of medical supplies in accordance with the law. | 神經肌肉
> 肌肉萎縮症 | 監管合作夥伴關係
> 參與健康技術評估(HTA)及報銷審查 | 1,000 | National | Sometimes | 119012939366 |
| One of several examples is the participation of our patient organisation in the registration process for a medicinal product intended for the treatment of ATTR [Transthyretin] amyloidosis, which is entering the Czech Republic via the so-called third orphan route. | 心血管
> 心血管:大多數類型 | 監管合作夥伴關係
> 為市場授權申請作出貢獻 | 100 | National | Regularly | 119049774965 |
| … We are a member of the group "Platforma" [umbrella patient group] in the Czech Republic. | 心理健康
> 精神健康:大多數狀況 | 監管合作夥伴關係
> 與其他醫療倡導者 | 100 | Regional | Regularly | 119046016408 |
| We participate in administrative proceedings to determine the reimbursement of medical supplies in accordance with the law. | 神經肌肉
> 肌肉萎縮症 | 定價及可負擔性倡議
> 參與價格審查委員會談判 | 1,000 | National | Sometimes | 119012939366 |
| We work with patients where a big amount of them have financial problems, so they ask quite frequently. | 傳染性
> 傳染病:其他 | 定價及可負擔性倡議
> 解決低收入及弱勢群體的費用負擔問題 | 5,000 | National | Sometimes | 119013725797 |
| One of several examples is the participation of our patient organisation in the registration process for a medicinal product intended for the treatment of ATTR [Transthyretin] amyloidosis, which is entering the Czech Republic via the so-called third orphan route. | 心血管
> 心血管:大多數類型 | 改善存取途徑
> 改善罕見/極罕見療法的獲取途徑 | 100 | National | Regularly | 119049774965 |
| The organization conducts qualitative interviews with patients and prepares statements for administrative proceedings on orphans [drugs]. | 癌症
> 癌症:其他 | 改善存取途徑
> 改善罕見/極罕見療法的獲取途徑 | 1,000 | National | Regularly | 119069539565 |
| Patient statements, PED [Patient Experience Data] reports, etc. | 癌症
> 癌症:大多數類型 | 以實證為基礎的患者意見
> 利用患者洞察來輔助決策 | 1,000 | National | Sometimes | 119051267743 |
| One of several examples is the participation of our patient organization in the registration process for a medicinal product intended for the treatment of ATTR [Transthyretin] amyloidosis, which is entering the Czech Republic via the so-called third orphan route. Patients here comment on the benefits of therapy based on specific case studies. | 心血管
> 心血管:大多數類型 | 以實證為基礎的患者意見
> 向監管機構提供真實世界證據(RWE) | 100 | National | Regularly | 119049774965 |
| … patients here comment on the benefits of therapy based on specific case studies. | 心血管
> 心血管:大多數類型 | 以實證為基礎的患者意見
> 善用患者故事及親身經歷敘述 | 100 | National | Regularly | 119049774965 |
| The organization conducts qualitative interviews with patients and prepares statements for administrative proceedings on orphans [drugs]. | 癌症
> 癌症:其他 | 以實證為基礎的患者意見
> 善用患者故事及親身經歷敘述 | 1,000 | National | Regularly | 119069539565 |
| The organization conducts qualitative interviews with patients and prepares statements for administrative proceedings on orphans [drugs]. | 癌症
> 癌症:其他 | 以實證為基礎的患者意見
> 進行調查/研究以產生數據 | 1,000 | National | Regularly | 119069539565 |
| The organization conducts qualitative interviews with patients and prepares statements for administrative proceedings on orphans [drugs]. | 癌症
> 癌症:其他 | 以實證為基礎的患者意見
> 進行調查/研究以產生數據 | 1,000 | National | Regularly | 119069539565 |
| ... We provide social and legal consultations to patients while ensuring appropriate assistance, care, and treatment. | 神經肌肉
> 肌肉萎縮症 | 維護病人權益/提升生活質素
> 保護/改善患者體驗 | 1,000 | National | Sometimes | 119012939366 |
| We participate in administrative proceedings to determine the reimbursement of medical supplies in accordance with the law. We provide social and legal consultations to patients while ensuring appropriate assistance, care, and treatment. | 神經肌肉
> 肌肉萎縮症 | 維護病人權益/提升生活質素
> 支援與治療相關的法律行動 | 1,000 | National | Sometimes | 119012939366 |