捷克

互动

阅读原始引用

其中一个例子是我们的患者组织参与了一种用于治疗ATTR（转甲状腺素蛋白）淀粉样变性药物的注册过程，该药物正通过所谓的第三孤儿药途径进入捷克共和国。患者在此基于具体案例研究对治疗效果发表评论。

One of several examples is the participation of our patient organization in the registration process for a medicinal product intended for the treatment of ATTR amyloidosis, which is entering the Czech Republic via the so-called third orphan route—patients here comment on the benefits of therapy based on specific case studies.

互动

阅读原始引用

我们依法参与确定医疗用品报销的行政程序。我们为患者提供社会和法律咨询，同时确保提供适当的援助、护理和治疗。

We participate in administrative proceedings to determine the reimbursement of medical supplies in accordance with the law. We provide social and legal consultations to patients while ensuring appropriate assistance, care, and treatment.

行动与倡导

阅读原始引用

我们服务的患者中有很大一部分存在经济困难，因此他们经常提出此类询问。

We work with patients where a big amount of them have financial problems, so they ask quite frequently.

行动与倡导

阅读原始引用

我们依法参与确定医疗用品报销的行政程序。我们为患者提供社会和法律咨询，同时确保提供适当的援助、护理和治疗。

We participate in administrative proceedings to determine the reimbursement of medical supplies in accordance with the law. We provide social and legal consultations to patients while ensuring appropriate assistance, care, and treatment.