PatientView | Czech Republic insights from Patient Groups: A seat at the pricing table

Patient group voices

interactions

One of several examples is the participation of our patient organization in the registration process for a medicinal product intended for the treatment of ATTR [Transthyretin] amyloidosis, which is entering the Czech Republic via the so-called third orphan route. Patients here comment on the benefits of therapy based on specific case studies.

National cardiovascular patient group

interactions

We participate in administrative proceedings to determine the reimbursement of medical supplies in accordance with the law. We provide social and legal consultations to patients while ensuring appropriate assistance, care, and treatment.

National neuromuscular-conditions patient group

actions & advocacy

We work with patients where a big amount of them have financial problems, so they ask quite frequently.

National infectious-diseases patient group

actions & advocacy

We participate in administrative proceedings to determine the reimbursement of medical supplies in accordance with the law. We provide social and legal consultations to patients while ensuring appropriate assistance, care, and treatment.

National neuromuscular-conditions patient group

Patient group goals

The percentages below highlight how the 8 patient groups interact with regulators and advocate for patient interests. As respondents may be represented in more than one area, percentages may not total 100%.

interactions

How patient groups interact with drug regulators

Find out what the goals mean

4 mentions

3 mentions

1 mention

actions & advocacy

How patient groups get access to medicines

Find out what the goals mean

2 mentions

1 mention

English text	Therapy area	Category	Patients reached	Geo reach	Regulatory engagement	Respondent
We participate in administrative proceedings to determine the reimbursement of medical supplies in accordance with the law.	Neuromuscular > Muscular dystrophy	Regulatory partnership > Participate in Health Technology Assessment (HTA) and reimbursement reviews	1,000	National	Sometimes	119012939366
One of several examples is the participation of our patient organisation in the registration process for a medicinal product intended for the treatment of ATTR [Transthyretin] amyloidosis, which is entering the Czech Republic via the so-called third orphan route.	Cardiovascular > Cardiovascular: most types	Regulatory partnership > Contribute to Marketing Authorisation submissions	100	National	Regularly	119049774965
… We are a member of the group "Platforma" [umbrella patient group] in the Czech Republic.	Mental health > Mental health: most conditions	Regulatory partnership > With other healthcare advocates	100	Regional	Regularly	119046016408
We participate in administrative proceedings to determine the reimbursement of medical supplies in accordance with the law.	Neuromuscular > Muscular dystrophy	Pricing and affordability advocacy > Engage in price-review board negotiations	1,000	National	Sometimes	119012939366
We work with patients where a big amount of them have financial problems, so they ask quite frequently.	Infectious > Infectious disease: other	Pricing and affordability advocacy > Address cost barriers for low-income and vulnerable people	5,000	National	Sometimes	119013725797
One of several examples is the participation of our patient organisation in the registration process for a medicinal product intended for the treatment of ATTR [Transthyretin] amyloidosis, which is entering the Czech Republic via the so-called third orphan route.	Cardiovascular > Cardiovascular: most types	Improving access pathways > Improving access to rare/ultra-rare therapies	100	National	Regularly	119049774965
The organization conducts qualitative interviews with patients and prepares statements for administrative proceedings on orphans [drugs].	Cancer > Cancer: other	Improving access pathways > Improving access to rare/ultra-rare therapies	1,000	National	Regularly	119069539565
Patient statements, PED [Patient Experience Data] reports, etc.	Cancer > Cancer: most types	Evidence-based patient input > Use patient insights to inform decisions	1,000	National	Sometimes	119051267743
One of several examples is the participation of our patient organization in the registration process for a medicinal product intended for the treatment of ATTR [Transthyretin] amyloidosis, which is entering the Czech Republic via the so-called third orphan route. Patients here comment on the benefits of therapy based on specific case studies.	Cardiovascular > Cardiovascular: most types	Evidence-based patient input > Provide Real-World Evidence (RWE) to regulatory agencies	100	National	Regularly	119049774965
… patients here comment on the benefits of therapy based on specific case studies.	Cardiovascular > Cardiovascular: most types	Evidence-based patient input > Leverage patient stories and lived-experience narratives	100	National	Regularly	119049774965
The organization conducts qualitative interviews with patients and prepares statements for administrative proceedings on orphans [drugs].	Cancer > Cancer: other	Evidence-based patient input > Leverage patient stories and lived-experience narratives	1,000	National	Regularly	119069539565
The organization conducts qualitative interviews with patients and prepares statements for administrative proceedings on orphans [drugs].	Cancer > Cancer: other	Evidence-based patient input > Conduct surveys/research to generate data	1,000	National	Regularly	119069539565
The organization conducts qualitative interviews with patients and prepares statements for administrative proceedings on orphans [drugs].	Cancer > Cancer: other	Evidence-based patient input > Conduct surveys/research to generate data	1,000	National	Regularly	119069539565
... We provide social and legal consultations to patients while ensuring appropriate assistance, care, and treatment.	Neuromuscular > Muscular dystrophy	Upholding patient rights/improving quality of life > Protecting/improving the patient experience	1,000	National	Sometimes	119012939366
We participate in administrative proceedings to determine the reimbursement of medical supplies in accordance with the law. We provide social and legal consultations to patients while ensuring appropriate assistance, care, and treatment.	Neuromuscular > Muscular dystrophy	Upholding patient rights/improving quality of life > Support in treatment-related legal actions	1,000	National	Sometimes	119012939366

Czech Republic

Survey insights

Patient group voices

Patient group goals

How patient groups interact with drug regulators

How patient groups get access to medicines

Access the full findings

Download sample reports