Of the 19 immune disorder patient groups, 58% represent patient interests to regulators, commonly through meetings with policymakers/regulators (25%). Advocacy is divided evenly between monitoring drug pricing and shortages, securing inclusion in reimbursement lists and supporting screening/early detection (each 13%).
58% of respondents from Immune disorders ‘Regularly’ or ‘Sometimes’ represent patient interests to drug regulators
Patient groups representing each Immune disorders sub-type
19 patient groups across 3 sub-types
interactions
We have submitted to the PMPRB [Patented Medicine Prices Review Board], taken part in two PPRP RFPs [Requests for Proposal], have conversations with formulary managers at provincial Ministries of Health, and the pCPA [pan-Canadian Pharmaceutical Alliance].
We have submitted to the PMPRB, taken part in two PPRP RFPs, have conversations with formulary managers at provincial Ministries of Health, and the pCPA.
National immune-disorders patient group, Canada
interactions
We lead the national coalition EACH [Ensuring Access through Collaborative Health]/PIC [Patient Inclusion Council] coalition, working on government drug affordability reviews.
We lead the national coalition EACH/PIC coalition, working on government drug affordability reviews.
International autoimmune-conditions patient group, USA
actions & advocacy
Introduction of newborn screening.
Einführung eines Neugeborenenscreenings.
National immune-disorders patient group, Germany
actions & advocacy
Adrenaline auto-injector funding and access.
Adrenaline auto-injector funding and access. Food labeling for allergens.
National allergy patient group, New Zealand
The percentages below highlight how the 8 patient groups interact with regulators and advocate for patient interests. As respondents may be represented in more than one area, percentages may not total 100%.
interactions
4 mentions
2 mentions
1 mention
1 mention
1 mention
1 mention
1 mention
1 mention
1 mention
1 mention
1 mention
1 mention
actions & advocacy
2 mentions
1 mention
1 mention
1 mention
1 mention
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Our research covers 2,262 patient groups representing 100 countries and 45 therapy areas. The sample report shows you the depth of analysis for a single country or therapy area. To access any other reports, please get in touch.
Visit patient-view.com to gather more information or email: Alex Wyke, alexwyke@patient-view.com
