| Ministry of Health, AOTMiT [Agencja Oceny Technologii Medycznych i Taryfikacji – Agency for Health Technology Assessment and Tariff Setting]. | Cancro
> Cancro: a maioria dos tipos | Parceria regulatória
> A trabalhar com organismos reguladores | 100 000 | National | Regularly | 114997934765 |
| Collaboration with AOTMiT [Agencja Oceny Technologii Medycznych i Taryfikacji – Agency for Health Technology Assessment and Tariff System], RPP [Rzecznik Praw Pacjenta – Patient Rights Ombudsman], and MZ [Ministerstwo Zdrowia – Ministry of Health]. | Reumático
> Doenças reumáticas: a maioria dos tipos | Parceria regulatória
> A trabalhar com organismos reguladores | Do not know | National | Sometimes | 115034231072 |
| The Ministry of Health, the Parliamentary Bureau for Rare Diseases, and the Agency for Health Technology Assessment [in Poland]. | Neurodegenerativa
> Doença de Huntington | Parceria regulatória
> Participar em avaliações de Avaliação de Tecnologias de Saúde (ATS) e de reembolso | 10 000 | National | Regularly | 114998054778 |
| Patients have one reimbursed therapy; she has therefore participated in AOTMiT [Agencja Oceny Technologii Medycznych i Taryfikacji – Agency for Health Technology Assessment and Tariff Setting] consultations on that single occasion. | Neurológico
> Neurofibromatose (NF) | Parceria regulatória
> Participar em avaliações de Avaliação de Tecnologias de Saúde (ATS) e de reembolso | 10 000 | National | Rarely | 115001091579 |
| Opinions solicited by AOTMiT [Agencja Oceny Technologii Medycznych i Taryfikacji – Agency for Health Technology Assessment and Tariff System]. | Sangue
> Doenças do sangue: a maioria dos tipos | Parceria regulatória
> Participar em avaliações de Avaliação de Tecnologias de Saúde (ATS) e de reembolso | 10 000 | National | Sometimes | 115012243141 |
| Participation in subcommittees of the Sejm [lower house of the bicameral parliament of Poland] and at AOTMiT [Agencja Oceny Technologii Medycznych i Taryfikacji – Agency for Health Technology Assessment and Tariff Setting]. | Neuromuscular
> Doenças neuromusculares: a maioria dos tipos | Parceria regulatória
> Participar em avaliações de Avaliação de Tecnologias de Saúde (ATS) e de reembolso | 100 | National | Regularly | 115016498985 |
| AOTM [Agencja Oceny Technologii Medycznych – Agency for Health Technology Assessment], MZ [Ministerstwo Zdrowia – Ministry of Health], and NFZ [Narodowy Fundusz Zdrowia – National Health Fund] — meetings. | Neurológico
> Esclerose múltipla | Parceria regulatória
> Participar em avaliações de Avaliação de Tecnologias de Saúde (ATS) e de reembolso | 10 000 | National | Regularly | 115020534401 |
| Participation in meetings of the AOTMiT [Agencja Oceny Technologii Medycznych i Taryfikacji – Agency for Health Technology Assessment and Tariff System] Transparency Council, as well as meetings at the Ministry of Health, including with the Department of Medicines Policy and Pharmacy. | Crónico
> Grupo de autoajuda | Parceria regulatória
> Participar em avaliações de Avaliação de Tecnologias de Saúde (ATS) e de reembolso | 5000 | National | Regularly | 115028436607 |
| AOTMiT [Agencja Oceny Technologii Medycznych i Taryfikacji – Agency for Health Technology Assessment and Tariff System]; drug programmes. | Rim
> Doenças renais | Parceria regulatória
> Participar em avaliações de Avaliação de Tecnologias de Saúde (ATS) e de reembolso | 10 000 | National | Regularly | 115028692487 |
| ... Direct meetings with representatives of the Ministry of Health [in Poland] and NFZ [Narodowy Fundusz Zdrowia – National Health Fund]; participation in conferences and debates involving the MZ [Ministerstwo Zdrowia – Ministry of Health], NFZ, and AOTMiT [Agencja Oceny Technologii Medycznych i Taryfikacji – Agency for Health Technology Assessment and Tariff System]. | Saúde geral
> Obesidade | Parceria regulatória
> Participar em avaliações de Avaliação de Tecnologias de Saúde (ATS) e de reembolso | 100 000 | National | Regularly | 115034209832 |
| Collaboration with AOTMiT [Agencja Oceny Technologii Medycznych i Taryfikacji – Agency for Health Technology Assessment and Tariff System], RPP [Rzecznik Praw Pacjenta – Patient Rights Ombudsman], and MZ [Ministerstwo Zdrowia – Ministry of Health]. | Reumático
> Doenças reumáticas: a maioria dos tipos | Parceria regulatória
> Participar em avaliações de Avaliação de Tecnologias de Saúde (ATS) e de reembolso | Do not know | National | Sometimes | 115034231072 |
| AOTMiT [Agencja Oceny Technologii Medycznych i Taryfikacji – Agency for Health Technology Assessment and Tariff Setting] consultations concerning an innovative therapy for paediatric patients with NF [Neurofibromatosis]. | Neurológico
> Neurofibromatose (NF) | Parceria regulatória
> Participar em avaliações de Avaliação de Tecnologias de Saúde (ATS) e de reembolso | 1000 | National | Rarely | 115040684008 |
| Participation in meetings of the Transparency Council of AOTMiT [Agencja Oceny Technologii Medycznych i Taryfikacji – Agency for Health Technology Assessment and Tariff System]. | Respiratório
> Fibrose pulmonar | Parceria regulatória
> Participar em avaliações de Avaliação de Tecnologias de Saúde (ATS) e de reembolso | 100 | National | Rarely | 115044635845 |
| Meetings at the MZ [Ministerstwo Zdrowia – Ministry of Health]. | Sangramento
> Perturbações hemorrágicas: a maioria dos tipos | Parceria regulatória
> Participar/facilitar reuniões com decisores políticos/reguladores | 100 | National | Regularly | 115017164453 |
| AOTM [Agencja Oceny Technologii Medycznych – Agency for Health Technology Assessment], MZ [Ministerstwo Zdrowia – Ministry of Health], and NFZ [Narodowy Fundusz Zdrowia – National Health Fund] — meetings. | Neurológico
> Esclerose múltipla | Parceria regulatória
> Participar/facilitar reuniões com decisores políticos/reguladores | 10 000 | National | Regularly | 115020534401 |
| Participation in meetings of the AOTMiT [Agencja Oceny Technologii Medycznych i Taryfikacji – Agency for Health Technology Assessment and Tariff System] Transparency Council, as well as meetings at the Ministry of Health, including with the Department of Medicines Policy and Pharmacy. | Crónico
> Grupo de autoajuda | Parceria regulatória
> Participar/facilitar reuniões com decisores políticos/reguladores | 5000 | National | Regularly | 115028436607 |
| ... Direct meetings with representatives of the Ministry of Health [in Poland] and NFZ [Narodowy Fundusz Zdrowia – National Health Fund]; participation in conferences and debates involving the MZ [Ministerstwo Zdrowia – Ministry of Health], NFZ, and AOTMiT [Agencja Oceny Technologii Medycznych i Taryfikacji – Agency for Health Technology Assessment and Tariff System]. | Saúde geral
> Obesidade | Parceria regulatória
> Participar/facilitar reuniões com decisores políticos/reguladores | 100 000 | National | Regularly | 115034209832 |
| Participation in meetings of the Transparency Council of AOTMiT [Agencja Oceny Technologii Medycznych i Taryfikacji – Agency for Health Technology Assessment and Tariff System]. | Respiratório
> Fibrose pulmonar | Parceria regulatória
> Participar/facilitar reuniões com decisores políticos/reguladores | 100 | National | Rarely | 115044635845 |
| … convening meetings in the Sejm [lower house of the bicameral parliament of Poland] and the Senate. | Raro
> Doenças raras: a maioria dos tipos | Parceria regulatória
> Participar/facilitar reuniões com decisores políticos/reguladores | 100 000 | National | Regularly | 115051819029 |
| Our activities include organising discussion panels with representatives of regulatory authorities. | Raro
> Doenças raras: a maioria dos tipos | Parceria regulatória
> Participar/facilitar reuniões com decisores políticos/reguladores | 100 000 | National | Regularly | 115051819029 |
| The Sejm [lower house of the bicameral parliament of Poland] and the Senate. | Cancro
> Cancro: sangue | Parceria regulatória
> Participar/facilitar reuniões com decisores políticos/reguladores | 100 | National | Rarely | 115055421449 |
| Petitions, meetings, position statements, and ministerial engagements. | Sangue
> Doenças do sangue: a maioria dos tipos | Impacto nas políticas e legislação
> Influenciar a política e legislação de saúde | 100 | Not specified | Regularly | 115004706817 |
| Organising discussion panels with the participation of regulatory authority representatives; holding meetings in the Sejm (lower house of parliament) and the Senate; engaging with parliamentary working groups, committees, and councils operating under the Minister of Health and the Patient Rights Ombudsman. | Raro
> Doenças raras: a maioria dos tipos | Impacto nas políticas e legislação
> Influenciar a política e legislação de saúde | 100 000 | National | Regularly | 115051819029 |
| Petitions, meetings, position statements, and ministerial engagements. | Sangue
> Doenças do sangue: a maioria dos tipos | Impacto nas políticas e legislação
> Participar em audiências públicas e consultas | 100 | Not specified | Regularly | 115004706817 |
| Consultations concerning the Governmental Legislative Process and, for example, draft directives issued by the President of the NFZ [Narodowy Fundusz Zdrowia – National Health Fund] regarding the terms and conditions for entering into and implementing contracts in the area of hospital treatment within the scope of chemotherapy. | Cancro
> Cancro: sangue | Impacto nas políticas e legislação
> Participar em audiências públicas e consultas | 1000 | National | Sometimes | 115006821188 |
| Petitions, position statements, and public speaking engagements. | Cancro
> Cancro: sangue | Impacto nas políticas e legislação
> Participar em audiências públicas e consultas | We do not communicate with patients directly | National | Regularly | 115008148315 |
| The Sejm [lower house of the bicameral parliament of Poland], parliamentary committees, and the Patient Rights Ombudsman. | Cancro
> Cancro: sangue | Impacto nas políticas e legislação
> Participar em audiências públicas e consultas | 1000 | National | Sometimes | 115009429955 |
| Parliamentary committee sessions, and presentations delivered within national panel discussions at conferences. | Rim
> Doenças renais | Impacto nas políticas e legislação
> Participar em audiências públicas e consultas | 100 000 | National | Regularly | 115055443581 |
| Petitions, meetings, position statements, and ministerial engagements. | Sangue
> Doenças do sangue: a maioria dos tipos | Impacto nas políticas e legislação
> Mobilizar parlamentares e líderes políticos | 100 | Not specified | Regularly | 115004706817 |
| AOTMiT [Agencja Oceny Technologii Medycznych i Taryfikacji – Agency for Health Technology Assessment and Tariff Setting] consultations concerning an innovative therapy for paediatric patients with NF [Neurofibromatosis]. | Neurológico
> Neurofibromatose (NF) | Impacto nas políticas e legislação
> Abordar barreiras/anomalias nos cuidados médicos | 1000 | National | Rarely | 115040684008 |
| Consultations concerning the Governmental Legislative Process and, for example, draft directives issued by the President of the NFZ [Narodowy Fundusz Zdrowia – National Health Fund] regarding the terms and conditions for entering into and implementing contracts in the area of hospital treatment within the scope of chemotherapy. | Cancro
> Cancro: sangue | Defesa de preços e acessibilidade financeira
> Participar em negociações do conselho de revisão de preços | 1000 | National | Sometimes | 115006821188 |
| Participation in subcommittees of the Sejm [lower house of the bicameral parliament of Poland] and at AOTMiT [Agencja Oceny Technologii Medycznych i Taryfikacji – Agency for Health Technology Assessment and Tariff Setting]. | Neuromuscular
> Doenças neuromusculares: a maioria dos tipos | Defesa de preços e acessibilidade financeira
> Participar em negociações do conselho de revisão de preços | 100 | National | Regularly | 115016498985 |
| Patients have one reimbursed therapy; we therefore participated in AOTMiT [Agencja Oceny Technologii Medycznych i Taryfikacji – Agency for Health Technology Assessment and Tariff Setting] consultations on that single occasion [in Poland]. | Neurológico
> Neurofibromatose (NF) | Defesa de preços e acessibilidade financeira
> Defender a inclusão do produto em listas de reembolso/formulários nacionais | 10 000 | National | Rarely | 115001091579 |
| Consultations concerning the Governmental Legislative Process and, for example, draft directives issued by the President of the NFZ [Narodowy Fundusz Zdrowia – National Health Fund] regarding the terms and conditions for entering into and implementing contracts in the area of hospital treatment within the scope of chemotherapy. | Cancro
> Cancro: sangue | Defesa de preços e acessibilidade financeira
> Defender a inclusão do produto em listas de reembolso/formulários nacionais | 1000 | National | Sometimes | 115006821188 |
| Several years ago, we were consulted on an anti-epileptic medicine with regard to its inclusion on the list of medicines available free of charge. | Neurológico
> Epilepsia | Defesa de preços e acessibilidade financeira
> Defender a inclusão do produto em listas de reembolso/formulários nacionais | 1000 | National | Rarely | 115060454872 |
| We identify areas in which access to innovative therapies is restricted relative to international guidelines. | Cancro
> Cancro: a maioria dos tipos | Melhorar os caminhos de acesso
> Facilitar o acesso equitativo a medicamentos/cuidados de saúde | 100 000 | National | Sometimes | 115016953105 |
| ... Submission of formal written communications addressing patient needs. | Saúde geral
> Obesidade | Contribuição do doente baseada em evidências
> Utilize os insights dos pacientes para informar decisões | 100 000 | National | Regularly | 115034209832 |
| Several years ago, we were consulted on an anti-epileptic medicine with regard to its inclusion on the list of medicines available free of charge. | Neurológico
> Epilepsia | Contribuição do doente baseada em evidências
> Utilize os insights dos pacientes para informar decisões | 1000 | National | Rarely | 115060454872 |
| The Sejm [lower house of the bicameral parliament of Poland], parliamentary committees, and the Patient Rights Ombudsman. | Cancro
> Cancro: sangue | Governação institucional
> Garantir representação nos órgãos consultivos governamentais | 1000 | National | Sometimes | 115009429955 |
| Participation in subcommittees of the Sejm [lower house of the bicameral parliament of Poland] and at AOTMiT [Agencja Oceny Technologii Medycznych i Taryfikacji – Agency for Health Technology Assessment and Tariff Setting]. | Neuromuscular
> Doenças neuromusculares: a maioria dos tipos | Governação institucional
> Garantir representação nos órgãos consultivos governamentais | 100 | National | Regularly | 115016498985 |
| Permanent membership of the Expert Team on Obesity Prevention, attached to the Public Health Council [in Poland]. | Saúde geral
> Obesidade | Governação institucional
> Garantir representação nos órgãos consultivos governamentais | 100 000 | National | Regularly | 115034209832 |
| The Sejm [lower house of the bicameral parliament of Poland], the Senate, MZ [Ministerstwo Zdrowia – Ministry of Health], NFZ [Narodowy Fundusz Zdrowia – National Health Fund], RPP [Rada Przejrzystości – Transparency Council]. | Cancro
> Cancro: a maioria dos tipos | Governação institucional
> Garantir representação nos órgãos consultivos governamentais | 10 000 | National | Regularly | 115035934051 |
| Organising discussion panels with the participation of regulatory authority representatives; holding meetings in the Sejm (lower house of parliament) and the Senate; engaging with parliamentary working groups, committees, and councils operating under the Minister of Health and the Patient Rights Ombudsman. | Raro
> Doenças raras: a maioria dos tipos | Governação institucional
> Garantir representação nos órgãos consultivos governamentais | 100 000 | National | Regularly | 115051819029 |
| The Sejm [lower house of the bicameral parliament of Poland], the Senate, MZ [Ministerstwo Zdrowia – Ministry of Health], NFZ [Narodowy Fundusz Zdrowia – National Health Fund], RPP [Rada Przejrzystości – Transparency Council]. | Cancro
> Cancro: a maioria dos tipos | Governação institucional
> Trabalhar eficazmente em redes com múltiplos intervenientes | 10 000 | National | Regularly | 115035934051 |
interações
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