| Ministry of Health, AOTMiT [Agencja Oceny Technologii Medycznych i Taryfikacji – Agency for Health Technology Assessment and Tariff Setting]. | Kræft
> Kræft: de fleste typer | Regulatorisk partnerskab
> Arbejde med regulerende myndigheder | 100.000 | National | Regularly | 114997934765 |
| Collaboration with AOTMiT [Agencja Oceny Technologii Medycznych i Taryfikacji – Agency for Health Technology Assessment and Tariff System], RPP [Rzecznik Praw Pacjenta – Patient Rights Ombudsman], and MZ [Ministerstwo Zdrowia – Ministry of Health]. | Reumatisk
> Reumatiske sygdomme: de fleste typer | Regulatorisk partnerskab
> Arbejde med regulerende myndigheder | Do not know | National | Sometimes | 115034231072 |
| The Ministry of Health, the Parliamentary Bureau for Rare Diseases, and the Agency for Health Technology Assessment [in Poland]. | Neurodegenerativ
> Huntingtons sygdom | Regulatorisk partnerskab
> Deltag i Health Technology Assessment (HTA) og refusionsgennemgange | 10.000 | National | Regularly | 114998054778 |
| Patients have one reimbursed therapy; she has therefore participated in AOTMiT [Agencja Oceny Technologii Medycznych i Taryfikacji – Agency for Health Technology Assessment and Tariff Setting] consultations on that single occasion. | Neurologisk
> Neurofibromatose (NF) | Regulatorisk partnerskab
> Deltag i Health Technology Assessment (HTA) og refusionsgennemgange | 10.000 | National | Rarely | 115001091579 |
| Opinions solicited by AOTMiT [Agencja Oceny Technologii Medycznych i Taryfikacji – Agency for Health Technology Assessment and Tariff System]. | Blod
> Blodlidelser: de fleste typer | Regulatorisk partnerskab
> Deltag i Health Technology Assessment (HTA) og refusionsgennemgange | 10.000 | National | Sometimes | 115012243141 |
| Participation in subcommittees of the Sejm [lower house of the bicameral parliament of Poland] and at AOTMiT [Agencja Oceny Technologii Medycznych i Taryfikacji – Agency for Health Technology Assessment and Tariff Setting]. | Neuromuskulær
> Neuromuskulære sygdomme: de fleste typer | Regulatorisk partnerskab
> Deltag i Health Technology Assessment (HTA) og refusionsgennemgange | 100 | National | Regularly | 115016498985 |
| AOTM [Agencja Oceny Technologii Medycznych – Agency for Health Technology Assessment], MZ [Ministerstwo Zdrowia – Ministry of Health], and NFZ [Narodowy Fundusz Zdrowia – National Health Fund] — meetings. | Neurologisk
> Multipel sklerose | Regulatorisk partnerskab
> Deltag i Health Technology Assessment (HTA) og refusionsgennemgange | 10.000 | National | Regularly | 115020534401 |
| Participation in meetings of the AOTMiT [Agencja Oceny Technologii Medycznych i Taryfikacji – Agency for Health Technology Assessment and Tariff System] Transparency Council, as well as meetings at the Ministry of Health, including with the Department of Medicines Policy and Pharmacy. | Kronisk
> Selvhjælpsgruppe | Regulatorisk partnerskab
> Deltag i Health Technology Assessment (HTA) og refusionsgennemgange | 5.000 | National | Regularly | 115028436607 |
| AOTMiT [Agencja Oceny Technologii Medycznych i Taryfikacji – Agency for Health Technology Assessment and Tariff System]; drug programmes. | Nyre
> Nyresygdomme | Regulatorisk partnerskab
> Deltag i Health Technology Assessment (HTA) og refusionsgennemgange | 10.000 | National | Regularly | 115028692487 |
| ... Direct meetings with representatives of the Ministry of Health [in Poland] and NFZ [Narodowy Fundusz Zdrowia – National Health Fund]; participation in conferences and debates involving the MZ [Ministerstwo Zdrowia – Ministry of Health], NFZ, and AOTMiT [Agencja Oceny Technologii Medycznych i Taryfikacji – Agency for Health Technology Assessment and Tariff System]. | Generelt helbred
> Fedme | Regulatorisk partnerskab
> Deltag i Health Technology Assessment (HTA) og refusionsgennemgange | 100.000 | National | Regularly | 115034209832 |
| Collaboration with AOTMiT [Agencja Oceny Technologii Medycznych i Taryfikacji – Agency for Health Technology Assessment and Tariff System], RPP [Rzecznik Praw Pacjenta – Patient Rights Ombudsman], and MZ [Ministerstwo Zdrowia – Ministry of Health]. | Reumatisk
> Reumatiske sygdomme: de fleste typer | Regulatorisk partnerskab
> Deltag i Health Technology Assessment (HTA) og refusionsgennemgange | Do not know | National | Sometimes | 115034231072 |
| AOTMiT [Agencja Oceny Technologii Medycznych i Taryfikacji – Agency for Health Technology Assessment and Tariff Setting] consultations concerning an innovative therapy for paediatric patients with NF [Neurofibromatosis]. | Neurologisk
> Neurofibromatose (NF) | Regulatorisk partnerskab
> Deltag i Health Technology Assessment (HTA) og refusionsgennemgange | 1.000 | National | Rarely | 115040684008 |
| Participation in meetings of the Transparency Council of AOTMiT [Agencja Oceny Technologii Medycznych i Taryfikacji – Agency for Health Technology Assessment and Tariff System]. | Respiratorisk
> Lungefibrose | Regulatorisk partnerskab
> Deltag i Health Technology Assessment (HTA) og refusionsgennemgange | 100 | National | Rarely | 115044635845 |
| Meetings at the MZ [Ministerstwo Zdrowia – Ministry of Health]. | Blødning
> Blødningsforstyrrelser: de fleste typer | Regulatorisk partnerskab
> Deltag i/faciliter møder med politiske beslutningstagere/regulatorer | 100 | National | Regularly | 115017164453 |
| AOTM [Agencja Oceny Technologii Medycznych – Agency for Health Technology Assessment], MZ [Ministerstwo Zdrowia – Ministry of Health], and NFZ [Narodowy Fundusz Zdrowia – National Health Fund] — meetings. | Neurologisk
> Multipel sklerose | Regulatorisk partnerskab
> Deltag i/faciliter møder med politiske beslutningstagere/regulatorer | 10.000 | National | Regularly | 115020534401 |
| Participation in meetings of the AOTMiT [Agencja Oceny Technologii Medycznych i Taryfikacji – Agency for Health Technology Assessment and Tariff System] Transparency Council, as well as meetings at the Ministry of Health, including with the Department of Medicines Policy and Pharmacy. | Kronisk
> Selvhjælpsgruppe | Regulatorisk partnerskab
> Deltag i/faciliter møder med politiske beslutningstagere/regulatorer | 5.000 | National | Regularly | 115028436607 |
| ... Direct meetings with representatives of the Ministry of Health [in Poland] and NFZ [Narodowy Fundusz Zdrowia – National Health Fund]; participation in conferences and debates involving the MZ [Ministerstwo Zdrowia – Ministry of Health], NFZ, and AOTMiT [Agencja Oceny Technologii Medycznych i Taryfikacji – Agency for Health Technology Assessment and Tariff System]. | Generelt helbred
> Fedme | Regulatorisk partnerskab
> Deltag i/faciliter møder med politiske beslutningstagere/regulatorer | 100.000 | National | Regularly | 115034209832 |
| Participation in meetings of the Transparency Council of AOTMiT [Agencja Oceny Technologii Medycznych i Taryfikacji – Agency for Health Technology Assessment and Tariff System]. | Respiratorisk
> Lungefibrose | Regulatorisk partnerskab
> Deltag i/faciliter møder med politiske beslutningstagere/regulatorer | 100 | National | Rarely | 115044635845 |
| … convening meetings in the Sejm [lower house of the bicameral parliament of Poland] and the Senate. | Sjælden
> Sjældne sygdomme: de fleste typer | Regulatorisk partnerskab
> Deltag i/faciliter møder med politiske beslutningstagere/regulatorer | 100.000 | National | Regularly | 115051819029 |
| Our activities include organising discussion panels with representatives of regulatory authorities. | Sjælden
> Sjældne sygdomme: de fleste typer | Regulatorisk partnerskab
> Deltag i/faciliter møder med politiske beslutningstagere/regulatorer | 100.000 | National | Regularly | 115051819029 |
| The Sejm [lower house of the bicameral parliament of Poland] and the Senate. | Kræft
> Kræft: blod | Regulatorisk partnerskab
> Deltag i/faciliter møder med politiske beslutningstagere/regulatorer | 100 | National | Rarely | 115055421449 |
| Petitions, meetings, position statements, and ministerial engagements. | Blod
> Blodlidelser: de fleste typer | Indflydelse på politik og lovgivning
> Påvirk sundhedspolitik og lovgivning | 100 | Not specified | Regularly | 115004706817 |
| Organising discussion panels with the participation of regulatory authority representatives; holding meetings in the Sejm (lower house of parliament) and the Senate; engaging with parliamentary working groups, committees, and councils operating under the Minister of Health and the Patient Rights Ombudsman. | Sjælden
> Sjældne sygdomme: de fleste typer | Indflydelse på politik og lovgivning
> Påvirk sundhedspolitik og lovgivning | 100.000 | National | Regularly | 115051819029 |
| Petitions, meetings, position statements, and ministerial engagements. | Blod
> Blodlidelser: de fleste typer | Indflydelse på politik og lovgivning
> Deltag i offentlige høringer og konsultationer | 100 | Not specified | Regularly | 115004706817 |
| Consultations concerning the Governmental Legislative Process and, for example, draft directives issued by the President of the NFZ [Narodowy Fundusz Zdrowia – National Health Fund] regarding the terms and conditions for entering into and implementing contracts in the area of hospital treatment within the scope of chemotherapy. | Kræft
> Kræft: blod | Indflydelse på politik og lovgivning
> Deltag i offentlige høringer og konsultationer | 1.000 | National | Sometimes | 115006821188 |
| Petitions, position statements, and public speaking engagements. | Kræft
> Kræft: blod | Indflydelse på politik og lovgivning
> Deltag i offentlige høringer og konsultationer | We do not communicate with patients directly | National | Regularly | 115008148315 |
| The Sejm [lower house of the bicameral parliament of Poland], parliamentary committees, and the Patient Rights Ombudsman. | Kræft
> Kræft: blod | Indflydelse på politik og lovgivning
> Deltag i offentlige høringer og konsultationer | 1.000 | National | Sometimes | 115009429955 |
| Parliamentary committee sessions, and presentations delivered within national panel discussions at conferences. | Nyre
> Nyresygdomme | Indflydelse på politik og lovgivning
> Deltag i offentlige høringer og konsultationer | 100.000 | National | Regularly | 115055443581 |
| Petitions, meetings, position statements, and ministerial engagements. | Blod
> Blodlidelser: de fleste typer | Indflydelse på politik og lovgivning
> Mobiliser parlamentarikere og politiske ledere | 100 | Not specified | Regularly | 115004706817 |
| AOTMiT [Agencja Oceny Technologii Medycznych i Taryfikacji – Agency for Health Technology Assessment and Tariff Setting] consultations concerning an innovative therapy for paediatric patients with NF [Neurofibromatosis]. | Neurologisk
> Neurofibromatose (NF) | Indflydelse på politik og lovgivning
> Håndtering af barrierer/anomalier i medicinsk behandling | 1.000 | National | Rarely | 115040684008 |
| Consultations concerning the Governmental Legislative Process and, for example, draft directives issued by the President of the NFZ [Narodowy Fundusz Zdrowia – National Health Fund] regarding the terms and conditions for entering into and implementing contracts in the area of hospital treatment within the scope of chemotherapy. | Kræft
> Kræft: blod | Prisfastsættelse og overkommelighed
> Deltag i forhandlinger med prisrevisionsnævnet | 1.000 | National | Sometimes | 115006821188 |
| Participation in subcommittees of the Sejm [lower house of the bicameral parliament of Poland] and at AOTMiT [Agencja Oceny Technologii Medycznych i Taryfikacji – Agency for Health Technology Assessment and Tariff Setting]. | Neuromuskulær
> Neuromuskulære sygdomme: de fleste typer | Prisfastsættelse og overkommelighed
> Deltag i forhandlinger med prisrevisionsnævnet | 100 | National | Regularly | 115016498985 |
| Patients have one reimbursed therapy; we therefore participated in AOTMiT [Agencja Oceny Technologii Medycznych i Taryfikacji – Agency for Health Technology Assessment and Tariff Setting] consultations on that single occasion [in Poland]. | Neurologisk
> Neurofibromatose (NF) | Prisfastsættelse og overkommelighed
> Fortalelse af optagelse af produktet på refusionslister/nationale formularer | 10.000 | National | Rarely | 115001091579 |
| Consultations concerning the Governmental Legislative Process and, for example, draft directives issued by the President of the NFZ [Narodowy Fundusz Zdrowia – National Health Fund] regarding the terms and conditions for entering into and implementing contracts in the area of hospital treatment within the scope of chemotherapy. | Kræft
> Kræft: blod | Prisfastsættelse og overkommelighed
> Fortalelse af optagelse af produktet på refusionslister/nationale formularer | 1.000 | National | Sometimes | 115006821188 |
| Several years ago, we were consulted on an anti-epileptic medicine with regard to its inclusion on the list of medicines available free of charge. | Neurologisk
> Epilepsi | Prisfastsættelse og overkommelighed
> Fortalelse af optagelse af produktet på refusionslister/nationale formularer | 1.000 | National | Rarely | 115060454872 |
| We identify areas in which access to innovative therapies is restricted relative to international guidelines. | Kræft
> Kræft: de fleste typer | Forbedring af adgangsveje
> Fremme retfærdig adgang til medicin/sundhedspleje | 100.000 | National | Sometimes | 115016953105 |
| ... Submission of formal written communications addressing patient needs. | Generelt helbred
> Fedme | Evidensbaseret patientinput
> Brug patientindsigt til at informere beslutninger | 100.000 | National | Regularly | 115034209832 |
| Several years ago, we were consulted on an anti-epileptic medicine with regard to its inclusion on the list of medicines available free of charge. | Neurologisk
> Epilepsi | Evidensbaseret patientinput
> Brug patientindsigt til at informere beslutninger | 1.000 | National | Rarely | 115060454872 |
| The Sejm [lower house of the bicameral parliament of Poland], parliamentary committees, and the Patient Rights Ombudsman. | Kræft
> Kræft: blod | Institutionel styring
> Sikre repræsentation i statslige rådgivende organer | 1.000 | National | Sometimes | 115009429955 |
| Participation in subcommittees of the Sejm [lower house of the bicameral parliament of Poland] and at AOTMiT [Agencja Oceny Technologii Medycznych i Taryfikacji – Agency for Health Technology Assessment and Tariff Setting]. | Neuromuskulær
> Neuromuskulære sygdomme: de fleste typer | Institutionel styring
> Sikre repræsentation i statslige rådgivende organer | 100 | National | Regularly | 115016498985 |
| Permanent membership of the Expert Team on Obesity Prevention, attached to the Public Health Council [in Poland]. | Generelt helbred
> Fedme | Institutionel styring
> Sikre repræsentation i statslige rådgivende organer | 100.000 | National | Regularly | 115034209832 |
| The Sejm [lower house of the bicameral parliament of Poland], the Senate, MZ [Ministerstwo Zdrowia – Ministry of Health], NFZ [Narodowy Fundusz Zdrowia – National Health Fund], RPP [Rada Przejrzystości – Transparency Council]. | Kræft
> Kræft: de fleste typer | Institutionel styring
> Sikre repræsentation i statslige rådgivende organer | 10.000 | National | Regularly | 115035934051 |
| Organising discussion panels with the participation of regulatory authority representatives; holding meetings in the Sejm (lower house of parliament) and the Senate; engaging with parliamentary working groups, committees, and councils operating under the Minister of Health and the Patient Rights Ombudsman. | Sjælden
> Sjældne sygdomme: de fleste typer | Institutionel styring
> Sikre repræsentation i statslige rådgivende organer | 100.000 | National | Regularly | 115051819029 |
| The Sejm [lower house of the bicameral parliament of Poland], the Senate, MZ [Ministerstwo Zdrowia – Ministry of Health], NFZ [Narodowy Fundusz Zdrowia – National Health Fund], RPP [Rada Przejrzystości – Transparency Council]. | Kræft
> Kræft: de fleste typer | Institutionel styring
> Effektivt arbejde i netværk med flere interessenter | 10.000 | National | Regularly | 115035934051 |
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