PatientView | New Zealand insights from Patient Groups: A seat at the pricing table

Patient group goals

The percentages below highlight how the 10 patient groups interact with regulators and advocate for patient interests. As respondents may be represented in more than one area, percentages may not total 100%.

interactions

How patient groups interact with drug regulators

Find out what the goals mean

2 mentions

1 mention

actions & advocacy

How patient groups get access to medicines

Find out what the goals mean

7 mentions

5 mentions

1 mention

English text	Therapy area	Category	Patients reached	Geo reach	Regulatory engagement	Respondent
We participate in monthly meetings with the New Zealand drug buying agency (Pharmac) and regularly make submissions to public consultations for funding new medicines.	Cancer > Cancer: brain	Regulatory partnership > Participate in Health Technology Assessment (HTA) and reimbursement reviews	1,000	National	Regularly	119074381152
We participate in monthly meetings with the New Zealand drug buying agency (Pharmac [Pharmaceutical Management Agency]).	Cancer > Cancer: brain	Regulatory partnership > Attend/facilitate meetings with policymakers/regulators	1,000	National	Regularly	119074381152
Successfully advocating for expanding public funding for medications. Advocating for a national heart health action plan.	Cardiovascular > Cardiovascular & heart conditions	Impacting policy and legislation > Influence healthcare policy and legislation	Over 100,000	National	Sometimes	119074209421
We participate in monthly meetings with the New Zealand drug buying agency (Pharmac) and regularly make submissions to public consultations for funding new medicines.	Cancer > Cancer: brain	Impacting policy and legislation > Participate in public hearings and consultations	1,000	National	Regularly	119074381152
Drug funding.	Visual impairment > Visual impairment	Pricing and affordability advocacy > Advocate for fair medicine pricing	100	National	Sometimes	119014805420
Successfully advocating for expanding public funding for medications. Advocating for a national heart health action plan.	Cardiovascular > Cardiovascular & heart conditions	Pricing and affordability advocacy > Advocate for fair medicine pricing	Over 100,000	National	Sometimes	119074209421
Adrenaline auto-injector funding and access.	Allergy > Allergy	Pricing and affordability advocacy > Advocate for fair medicine pricing	100,000	National	Sometimes	119078662066
Cost and quantity of condoms available to sex workers.	General health > Sexual health: other	Pricing and affordability advocacy > Address cost barriers for low-income and vulnerable people	10,000	National	Rarely	119021604845
Adrenaline auto-injector funding and access.	Allergy > Allergy	Pricing and affordability advocacy > Advocating for inclusion of product in reimbursement lists/national formularies	100,000	National	Sometimes	119078662066
We have been advocating for 4 treatments in this past year.	Neurological > Multiple sclerosis	Improving access pathways > Facilitate equitable access to medicines/healthcare	5,000	National	Regularly	119011716987
Cost and quantity of condoms available to sex workers.	General health > Sexual health: other	Improving access pathways > Facilitate equitable access to medicines/healthcare	10,000	National	Rarely	119021604845
Requested to comment on and invited to groups regarding medicine access.	Cancer > Cancer: most types	Improving access pathways > Facilitate equitable access to medicines/healthcare	5,000	National	Sometimes	119044670501
Successfully advocating for expanding public funding for medications. Advocating for a national heart health action plan.	Cardiovascular > Cardiovascular & heart conditions	Improving access pathways > Facilitate equitable access to medicines/healthcare	Over 100,000	National	Sometimes	119074209421
Heavily advocated for access to treatment ....still advocate for adult access, but there has been less opportunity.	Neuromuscular > Spinal muscular atrophy (SMA)	Improving access pathways > Facilitate equitable access to medicines/healthcare	100	National	Sometimes	119078095383
Adrenaline auto-injector funding and access.	Allergy > Allergy	Improving access pathways > Facilitate equitable access to medicines/healthcare	100,000	National	Sometimes	119078662066
Always advocating for wider vaccine access.	Infectious > Meningitis	Improving access pathways > Advocate for wider vaccine access	1,000	National	Regularly	119044852425
Heavily advocated for access to treatment and then for SMA [Spinal Muscular Atrophy] to be added to the Newborn Screening Panel.	Neuromuscular > Spinal muscular atrophy (SMA)	Diagnosis and medicines delivery > Support screening and early detection	100	National	Sometimes	119078095383
... Food labeling for allergens.	Allergy > Allergy	Upholding patient rights/improving quality of life > Protecting/improving the patient experience	100,000	National	Sometimes	119078662066

New Zealand

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Patient group goals

How patient groups interact with drug regulators

How patient groups get access to medicines

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