神经系统

互动

尽管ABEM（Associação Brasileira de Esclerose Múltipla——巴西多发性硬化症协会）并不直接参与药品定价决策——在巴西，这一职能由CMED（Câmara de Regulação do Mercado de Medicamentos——药品市场监管委员会）负责——但该组织积极参与有关治疗可及性、可获得性和可持续性的公共及机构讨论，代表多发性硬化症患者及其……

互动

阅读原始引用

南非多发性硬化症协会（MSSA）通过倡导获得负担得起的有效多发性硬化症治疗方案，并在政策、准入和报销讨论中传递患者声音，从而代表患者利益。尽管MSSA不制定或谈判药品价格，但我们与监管机构、政策制定者和咨询机构合作，重点关注定价和准入决策对多发性硬化症患者的实际影响，尤其是在南非及更广泛的非洲背景下。

Multiple Sclerosis South Africa (MSSA) represents patient interests by advocating for access to affordable, effective MS treatments and by contributing the patient voice to policy, access, and reimbursement discussions. While MSSA does not set or negotiate drug prices, we engage with regulators, policymakers, and advisory bodies to highlight the real-world impact of pricing and access decisions on people living with MS, particularly in a South African and broader African context. Our input is informed by lived experience, patient-reported challenges, and international collaboration through global MS networks, ensuring that patient needs, equity, and sustainability are considered in decision-making processes.

行动与倡导

阅读原始引用

当出现ASM（抗癫痫药物）短缺时，我们会动员社区力量，并支持为癫痫患者制定药物价格法规。

We rally our community when there are ASM shortages and to support price regulations for medication for patients with epilepsy.

行动与倡导

阅读原始引用

在智利，多发性硬化症（MS）[Esclerosis Múltiple – Multiple Sclerosis]的药物通过GES [Garantías Explícitas en Salud – 明确健康保障计划]发放，该计划规定了福利包的价值。

En Chile, los medicamentos de la EM se entregan a través del GES, el cual define un valor de las canastas.