| Lived experience submissions on new treatments and medicines, part of national working group looking at HTA reform, part of industry campaign to improve timeliness of HTA approval [Australia]. | Respiratorio
> Malattie polmonari | Partenariato normativo
> Partecipare alle valutazioni di Health Technology Assessment (HTA) e alle revisioni dei rimborsi | Over 100,000 | National | Regularly | 119011106646 |
| Work with PBAC [Pharmaceutical Benefits Advisory Committee], HTA [Health Technology Assessment], TGA [Therapeutic Goods Administration], and MSAC [Medical Services Advisory Committee], as well as patient groups and Medicines Australia Australia to advocate for access and equity for treatments and care. | Neuromuscolare
> Distrofia muscolare | Partenariato normativo
> Partecipare alle valutazioni di Health Technology Assessment (HTA) e alle revisioni dei rimborsi | 1000 | National | Regularly | 119021570524 |
| We support and advocate for enhancement of the involvement of patients/carers in Health Technology. We have been involved in the Co design group Enhancing Consumer involvement in Australian Health technology assessment and in the HTA Review process. | Cancro
> Cancro: la maggior parte dei tipi | Partenariato normativo
> Partecipare alle valutazioni di Health Technology Assessment (HTA) e alle revisioni dei rimborsi | We do not communicate with patients directly | Regional | Sometimes | 119031444677 |
| Consumer feedback to PBAC [Pharmaceutical Benefits Advisory Committee], MSAC [Medical Services Advisory Committee], government consultations, and other organisations on behalf of those with kidney disease. | Rene
> Malattie renali | Partenariato normativo
> Partecipare alle valutazioni di Health Technology Assessment (HTA) e alle revisioni dei rimborsi | Do not know | National | Regularly | 119051003447 |
| We provide public comment to the Pharmaceutical Benefits Advisory Committee [PBAC] for the reimbursement of medicines relating to asthma, including some vaccines. | Respiratorio
> Asma | Partenariato normativo
> Partecipare alle valutazioni di Health Technology Assessment (HTA) e alle revisioni dei rimborsi | Over 100,000 | National | Regularly | 119051065145 |
| PBAC [Pharmaceutical Benefits Advisory Committee] comments. | Pelle
> Dermatite atopica/eczema | Partenariato normativo
> Partecipare alle valutazioni di Health Technology Assessment (HTA) e alle revisioni dei rimborsi | Over 100,000 | National | Regularly | 119051082840 |
| HTA [Health Technology Assessment] — lived experience. | Respiratorio
> Malattie polmonari | Partenariato normativo
> Partecipare alle valutazioni di Health Technology Assessment (HTA) e alle revisioni dei rimborsi | Over 100,000 | National | Regularly | 119051865995 |
| We provide expertise to regulatory and funding decision-makers on topics like newborn screening, medicine listing, and model of care funding. | Raro
> Malattie rare: genetiche | Partenariato normativo
> Partecipare alle valutazioni di Health Technology Assessment (HTA) e alle revisioni dei rimborsi | 1000 | National | Sometimes | 119054286714 |
| Involved in government [Australia] policy reviews - HTA review and Chronic Disease - submit responses to TGA [Therapeutic Goods Administration], MSAC [Medical Services Advisory Committee], and PBAC [Pharmaceutical Benefits Advisory Committee] in relation to sponsor requests. | Gastrointestinale
> IBD | Partenariato normativo
> Partecipare alle valutazioni di Health Technology Assessment (HTA) e alle revisioni dei rimborsi | Over 100,000 | National | Regularly | 119058351283 |
| PBAC [Pharmaceutical Benefits Advisory Committee], MSAC [Medical Services Advisory Committee], PL [Prostheses List]. | Cardiovascolare
> Condizioni cardiovascolari e cardiache | Partenariato normativo
> Partecipare alle valutazioni di Health Technology Assessment (HTA) e alle revisioni dei rimborsi | Do not know | International | Regularly | 119061299937 |
| Our organisation exists to represent the interests of both community-led mental health service organisations and also the lived experience consumer community. A recent example of our work representing patient interests to regulators that are responsible for deciding drug pricing was recent correspondence we issued to the Australian Pharmaceutical Benefits Advisory Committee, requesting that a drug for the treatment of schizophrenia be listed on the Pharmaceutical Benefits Scheme. In this correspondence, we directly represented the views of patients and family and carers. | Salute mentale
> Salute mentale: la maggior parte delle condizioni | Partenariato normativo
> Partecipare alle valutazioni di Health Technology Assessment (HTA) e alle revisioni dei rimborsi | 10.000 | National | Sometimes | 119074282308 |
| We provide public comment to the Pharmaceutical Benefits Advisory Committee for the reimbursement of medicines relating to asthma, including some vaccines. We write and support submissions to the Therapeutic Goods Administration for changes to medicines. Asthma Australia will lobby government if a change that is made is not in the best interest of people with asthma. | Respiratorio
> Asma | Partenariato normativo
> Contribuire alle presentazioni per l'Autorizzazione all'Immissione in Commercio | Over 100,000 | National | Regularly | 119051065145 |
| Work with PBAC [Pharmaceutical Benefits Advisory Committee], HTA [Health Technology Assessment], TGA [Therapeutic Goods Administration], and MSAC [Medical Services Advisory Committee], as well as patient groups and Medicines Australia Australia to advocate for access and equity for treatments and care. | Neuromuscolare
> Distrofia muscolare | Partenariato normativo
> Partecipare/facilitare riunioni con responsabili politici/regolatori | 1000 | National | Regularly | 119021570524 |
| Our organisation exists to represent the interests of both community-led mental health service organisations and also the lived experience consumer community. | Salute mentale
> Salute mentale: la maggior parte delle condizioni | Partenariato normativo
> Con altri sostenitori della salute | 10.000 | National | Sometimes | 119074282308 |
| Regular advocacy and lobbying to all levels of government on new and current diabetes medications and technology. | Endocrino
> Diabete (sia di tipo 1 che di tipo 2) | Influenzare le politiche e la legislazione
> Influenzare le politiche sanitarie e la legislazione | Over 100,000 | National | Regularly | 119023443093 |
| We provide public comment to the Pharmaceutical Benefits Advisory Committee for the reimbursement of medicines relating to asthma, including some vaccines. We write and support submissions to the Therapeutic Goods Administration for changes to medicines. Asthma Australia will lobby government if a change that is made is not in the best interest of people with asthma. | Respiratorio
> Asma | Influenzare le politiche e la legislazione
> Influenzare le politiche sanitarie e la legislazione | Over 100,000 | National | Regularly | 119051065145 |
| Involved in government [Australia] policy reviews - HTA review and Chronic Disease - submit responses to TGA [Therapeutic Goods Administration], MSAC [Medical Services Advisory Committee], and PBAC [Pharmaceutical Benefits Advisory Committee] in relation to sponsor requests. | Gastrointestinale
> IBD | Influenzare le politiche e la legislazione
> Influenzare le politiche sanitarie e la legislazione | Over 100,000 | National | Regularly | 119058351283 |
| Where possible, we add our advocacy voice to decision-makers. | Neuromuscolare
> Distrofia muscolare | Influenzare le politiche e la legislazione
> Influenzare le politiche sanitarie e la legislazione | 1000 | National | Rarely | 119070072574 |
| Consumer feedback to PBAC [Pharmaceutical Benefits Advisory Committee], MSAC [Medical Services Advisory Committee], government consultations, and other organisations on behalf of those with kidney disease. | Rene
> Malattie renali | Influenzare le politiche e la legislazione
> Partecipa alle audizioni pubbliche e alle consultazioni | Do not know | National | Regularly | 119051003447 |
| Public submissions. | Ricerca medica
> Ricerca medica | Influenzare le politiche e la legislazione
> Partecipa alle audizioni pubbliche e alle consultazioni | 100 | National | Sometimes | 119075599019 |
| Pre-Budget Submissions, Advocacy activities, Meetings. | Reumatico
> Malattie reumatiche: la maggior parte dei tipi | Influenzare le politiche e la legislazione
> Mobilitare parlamentari e leader politici | Over 100,000 | National | Regularly | 119017682842 |
| Weight loss drugs, general medicine costs. | Difesa del paziente
> Diritti del paziente | Advocacy per prezzi e accessibilità economica
> Sostenere prezzi equi dei farmaci | 100.000 | National | Sometimes | 119055318270 |
| Involved in government [Australia] policy reviews - HTA review and Chronic Disease - submit responses to TGA [Therapeutic Goods Administration], MSAC [Medical Services Advisory Committee], and PBAC [Pharmaceutical Benefits Advisory Committee] in relation to sponsor requests. | Gastrointestinale
> IBD | Advocacy per prezzi e accessibilità economica
> Sostenere prezzi equi dei farmaci | Over 100,000 | National | Regularly | 119058351283 |
| Pricing. | Reumatico
> Lupus | Advocacy per prezzi e accessibilità economica
> Sostenere prezzi equi dei farmaci | 5000 | International | Regularly | 119058972997 |
| Through an HTA [Health Technology Assessment] implementation review, direct advocacy around drug access and pricing, part of roundtables to more effectively advocate patient interests for change. | Neurologico
> Neurologico: altro | Advocacy per prezzi e accessibilità economica
> Sostenere prezzi equi dei farmaci | We do not communicate with patients directly | National | Regularly | 119069368666 |
| We will sometimes complete Consumer Comments for the Pharmaceutical Benefits Advisory Committee if we feel that an immunization should be federally funded on the National Immunization Program. | Infettivo
> Immunizzazione | Advocacy per prezzi e accessibilità economica
> Sostenere l'inclusione del prodotto negli elenchi di rimborso/formulari nazionali | Over 100,000 | National | Sometimes | 119022383972 |
| Access to Palovarotene [to reduce the formation of abnomal bone tissue in people with It is indicated for patients with the ultra-rare genetic disorder Fibrodysplasia Ossificans Progressiva (FOP)] via the PBS [Pharmaceutical Benefits Scheme] listing. | Osso
> Fibrodisplasia ossificante progressiva (FOP) | Advocacy per prezzi e accessibilità economica
> Sostenere l'inclusione del prodotto negli elenchi di rimborso/formulari nazionali | 100 | National | Rarely | 119044789085 |
| Australia's PBS [Pharmaceutical Benefits Scheme] listings as an example. | Rene
> Malattie renali | Advocacy per prezzi e accessibilità economica
> Sostenere l'inclusione del prodotto negli elenchi di rimborso/formulari nazionali | 5000 | National | Regularly | 119050789619 |
| We provide expertise to regulatory and funding decision-makers on topics like newborn screening, medicine listing, and model of care funding. | Raro
> Malattie rare: genetiche | Advocacy per prezzi e accessibilità economica
> Sostenere l'inclusione del prodotto negli elenchi di rimborso/formulari nazionali | 1000 | National | Sometimes | 119054286714 |
| Our organisation exists to represent the interests of both community-led mental health service organisations and also the lived experience consumer community. A recent example of our work representing patient interests to regulators that are responsible for deciding drug pricing was recent correspondence we issued to the Australian Pharmaceutical Benefits Advisory Committee, requesting that a drug for the treatment of schizophrenia be listed on the Pharmaceutical Benefits Scheme. In this correspondence, we directly represented the views of patients and family and carers. | Salute mentale
> Salute mentale: la maggior parte delle condizioni | Advocacy per prezzi e accessibilità economica
> Sostenere l'inclusione del prodotto negli elenchi di rimborso/formulari nazionali | 10.000 | National | Sometimes | 119074282308 |
| Work with PBAC [Pharmaceutical Benefits Advisory Committee], HTA [Health Technology Assessment], TGA [Therapeutic Goods Administration], and MSAC [Medical Services Advisory Committee], as well as patient groups and Medicines Australia Australia to advocate for access and equity for treatments and care. | Neuromuscolare
> Distrofia muscolare | Miglioramento dei percorsi di accesso
> Facilitare l'accesso equo ai medicinali/all'assistenza sanitaria | 1000 | National | Regularly | 119021570524 |
| Weight loss drugs, general medicine costs. | Difesa del paziente
> Diritti del paziente | Miglioramento dei percorsi di accesso
> Facilitare l'accesso equo ai medicinali/all'assistenza sanitaria | 100.000 | National | Sometimes | 119055318270 |
| Regulations and restrictions regarding prescribing of antivirals for COVID to our patient cohort [neurological conditions]. | Neurologico
> Neurologico: altro | Miglioramento dei percorsi di accesso
> Facilitare l'accesso equo ai medicinali/all'assistenza sanitaria | 5000 | National | Rarely | 119056702514 |
| PBAC [Pharmaceutical Benefits Advisory Committee], MSAC [Medical Services Advisory Committee], PL [Prostheses List]. | Cardiovascolare
> Condizioni cardiovascolari e cardiache | Miglioramento dei percorsi di accesso
> Facilitare l'accesso equo ai medicinali/all'assistenza sanitaria | Do not know | International | Regularly | 119061299937 |
| Through an HTA [Health Technology Assessment] implementation review, direct advocacy around drug access and pricing, part of roundtables to more effectively advocate patient interests for change. | Neurologico
> Neurologico: altro | Miglioramento dei percorsi di accesso
> Facilitare l'accesso equo ai medicinali/all'assistenza sanitaria | We do not communicate with patients directly | National | Regularly | 119069368666 |
| Through an HTA [Health Technology Assessment] implementation review. | Neurologico
> Neurologico: altro | Miglioramento dei percorsi di accesso
> Facilitare l'accesso equo ai medicinali/all'assistenza sanitaria | We do not communicate with patients directly | National | Regularly | 119069368666 |
| We will sometimes complete Consumer Comments for the Pharmaceutical Benefits Advisory Committee if we feel that an immunization should be federally funded on the National Immunization Program. | Infettivo
> Immunizzazione | Miglioramento dei percorsi di accesso
> Sostenere un accesso più ampio ai vaccini | Over 100,000 | National | Sometimes | 119022383972 |
| Access to Palovarotene [to reduce the formation of abnomal bone tissue in people with It is indicated for patients with the ultra-rare genetic disorder Fibrodysplasia Ossificans Progressiva (FOP)] via the PBS [Pharmaceutical Benefits Scheme] listing. | Osso
> Fibrodisplasia ossificante progressiva (FOP) | Miglioramento dei percorsi di accesso
> Miglioramento dell'accesso alle terapie rare/ultra-rare | 100 | National | Rarely | 119044789085 |
| Consumer feedback to PBAC [Pharmaceutical Benefits Advisory Committee], MSAC [Medical Services Advisory Committee], government consultations, and other organisations on behalf of those with kidney disease. | Rene
> Malattie renali | Contributo del paziente basato sull'evidenza
> Utilizza le informazioni sui pazienti per prendere decisioni informate | Do not know | National | Regularly | 119051003447 |
| Lived experience submissions on new treatments and medicines, part of national working group looking at HTA reform, part of industry campaign to improve timeliness of HTA approval [Australia]. | Respiratorio
> Malattie polmonari | Contributo del paziente basato sull'evidenza
> Sfrutta le storie dei pazienti e le narrazioni basate sull'esperienza vissuta | Over 100,000 | National | Regularly | 119011106646 |
| We support and advocate for enhancement of the involvement of patients/carers in Health Technology. We have been involved in the Co design group Enhancing Consumer involvement in Australian Health technology assessment and in the HTA Review process. | Cancro
> Cancro: la maggior parte dei tipi | Contributo del paziente basato sull'evidenza
> Sfrutta le storie dei pazienti e le narrazioni basate sull'esperienza vissuta | We do not communicate with patients directly | Regional | Sometimes | 119031444677 |
| HTA [Health Technology Assessment] — lived experience. | Respiratorio
> Malattie polmonari | Contributo del paziente basato sull'evidenza
> Sfrutta le storie dei pazienti e le narrazioni basate sull'esperienza vissuta | Over 100,000 | National | Regularly | 119051865995 |
| Our organisation exists to represent the interests of both community-led mental health service organisations and also the lived experience consumer community. A recent example of our work representing patient interests to regulators that are responsible for deciding drug pricing was recent correspondence we issued to the Australian Pharmaceutical Benefits Advisory Committee, requesting that a drug for the treatment of schizophrenia be listed on the Pharmaceutical Benefits Scheme. In this correspondence, we directly represented the views of patients and family and carers. | Salute mentale
> Salute mentale: la maggior parte delle condizioni | Contributo del paziente basato sull'evidenza
> Sfrutta le storie dei pazienti e le narrazioni basate sull'esperienza vissuta | 10.000 | National | Sometimes | 119074282308 |
| Pricing, clinical trials. | Reumatico
> Lupus | Diagnosi e consegna dei medicinali
> Collaborare alla progettazione di studi clinici | 5000 | International | Regularly | 119058972997 |
| We provide expertise to regulatory and funding decision-makers on topics like newborn screening, medicine listing, and model of care funding. | Raro
> Malattie rare: genetiche | Diagnosi e consegna dei medicinali
> Supporto allo screening e alla diagnosi precoce | 1000 | National | Sometimes | 119054286714 |
| We provide expertise to regulatory and funding decision-makers on topics like newborn screening, medicine listing, and model of care funding. | Raro
> Malattie rare: genetiche | Governance istituzionale
> Garantire la rappresentanza negli organi consultivi governativi | 1000 | National | Sometimes | 119054286714 |
| Preterm Infants Parents Association [PIPA] has representatives on numerous hospital and Queensland Health Department committees. | Salute dei bambini
> Neonatale | Governance istituzionale
> Garantire la rappresentanza negli organi consultivi governativi | 5000 | Regional | Regularly | 119074312093 |
| Through an HTA [Health Technology Assessment] implementation review, direct advocacy around drug access and pricing, part of roundtables to more effectively advocate patient interests for change. | Neurologico
> Neurologico: altro | Governance istituzionale
> Lavorare efficacemente all'interno di reti multi-stakeholder | We do not communicate with patients directly | National | Regularly | 119069368666 |
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