| Politicians, regulatory authorities, and collaboration with industry. | Endocrino
> Trastornos del crecimiento | Asociación regulatoria
> Trabajando con organismos reguladores | 1,000 | National | Regularly | 119027172028 |
| We are represented on the patient council of the NT/MTP-rådet [rådet för nya terapier/medicintekniska produkter – New Therapies/Medical Technology Products Council]. | Endocrino
> Condiciones de tiroides | Asociación regulatoria
> Trabajando con organismos reguladores | 100,000 | National | Sometimes | 119035997555 |
| TLV [Tandvårds- och läkemedelsförmånsverket – Dental and Pharmaceutical Benefits Agency], NT-rådet [Nya terapier-rådet – New Therapies Council], LV [Läkemedelsverket – Medical Products Agency], Socialstyrelsen [National Board of Health and Welfare], etc. | Salud mental
> Esquizofrenia | Asociación regulatoria
> Trabajando con organismos reguladores | 5,000 | National | Regularly | 119054525537 |
| We sit on the patient council of TLV [Tandvårds- och läkemedelsförmånsverket – Dental and Pharmaceutical Benefits Agency] contributed to the expert group for the principal responsibility inquiry (huvudmannaskapsutredningen), and serve on working groups for various national clinical guidelines, among other activities. | Reumático
> Enfermedades reumáticas: la mayoría de los tipos | Asociación regulatoria
> Participar en evaluaciones de Evaluación de Tecnología Sanitaria (ETS) y reembolso | 100,000 | National | Regularly | 119012976039 |
| We participate in TLV [Tandvårds- och läkemedelsförmånsverket – Dental and Pharmaceutical Benefits Agency] assessments relating to bleeding disorders. | Sangrado
> Trastornos hemorrágicos: la mayoría de los tipos | Asociación regulatoria
> Participar en evaluaciones de Evaluación de Tecnología Sanitaria (ETS) y reembolso | 100 | National | Regularly | 119013112468 |
| Meetings with companies prior to reimbursement applications. | Endocrino
> Trastornos del crecimiento | Asociación regulatoria
> Participar en evaluaciones de Evaluación de Tecnología Sanitaria (ETS) y reembolso | 1,000 | National | Regularly | 119027170967 |
| Meetings with companies prior to reimbursement applications. Meetings with TLV [Tandvårds- och läkemedelsförmånsverket – Dental and Pharmaceutical Benefits Agency] to improve the process at a national level. Meetings with policymakers for the same purpose. | Endocrino
> Trastornos del crecimiento | Asociación regulatoria
> Participar en evaluaciones de Evaluación de Tecnología Sanitaria (ETS) y reembolso | 1,000 | National | Regularly | 119027170967 |
| TLV [Tandvårds- och läkemedelsförmånsverket – Dental and Pharmaceutical Benefits Agency]. | Salud mental
> Esquizofrenia | Asociación regulatoria
> Participar en evaluaciones de Evaluación de Tecnología Sanitaria (ETS) y reembolso | 1,000 | National | Sometimes | 119035155217 |
| We participate in the patient council of the NT/MTP Council [NT-rådet (Rådet för nya terapier)/MTP-rådet (Medicintekniska produktrådet) - the Swedish national body issuing recommendations on new therapies and medicinal products]. In individual cases, we have been in contact with TLV [Tandvårds- och läkemedelsförmånsverket – Dental and Pharmaceutical Benefits Agency] ahead of pricing decisions for medicines. | Endocrino
> Condiciones de tiroides | Asociación regulatoria
> Participar en evaluaciones de Evaluación de Tecnología Sanitaria (ETS) y reembolso | 100,000 | National | Sometimes | 119035997555 |
| TLV [Tandvårds- och läkemedelsförmånsverket – Dental and Pharmaceutical Benefits Agency], NT-rådet [Nya terapier-rådet – New Therapies Council], LV [Läkemedelsverket – Medical Products Agency], Socialstyrelsen [National Board of Health and Welfare], etc. | Salud mental
> Esquizofrenia | Asociación regulatoria
> Participar en evaluaciones de Evaluación de Tecnología Sanitaria (ETS) y reembolso | 5,000 | National | Regularly | 119054525537 |
| TLV [Tandvårds- och läkemedelsförmånsverket – Dental and Pharmaceutical Benefits Agency], for example. | Cáncer
> Cáncer: la mayoría de los tipos | Asociación regulatoria
> Participar en evaluaciones de Evaluación de Tecnología Sanitaria (ETS) y reembolso | 100,000 | National | Regularly | 119054604148 |
| EMA [European Medicines Agency]. | Hígado
> Hepatitis | Asociación regulatoria
> Contribuir a las presentaciones de Autorización de Comercialización | 1,000 | National | Regularly | 119036786869 |
| We sit on the patient council of TLV [Tandvårds- och läkemedelsförmånsverket – Dental and Pharmaceutical Benefits Agency] contributed to the expert group for the principal responsibility inquiry (huvudmannaskapsutredningen - looking at municipal versus national healthcare responsbilities), and serve on working groups for various national clinical guidelines, among other activities. | Reumático
> Enfermedades reumáticas: la mayoría de los tipos | Asociación regulatoria
> Participación en organismos de elaboración de guías clínicas | 100,000 | National | Regularly | 119012976039 |
| Collaboration with the medicines committee. | Hueso
> Osteoporosis | Asociación regulatoria
> Participación en organismos de elaboración de guías clínicas | 10,000 | National | Sometimes | 119012989318 |
| We have participated in the development of national clinical guidelines. | Neurológico
> Migraña | Asociación regulatoria
> Participación en organismos de elaboración de guías clínicas | 100 | National | Sometimes | 119021956027 |
| Politicians, regulatory authorities, and collaboration with industry. | Endocrino
> Trastornos del crecimiento | Asociación regulatoria
> Asistir/facilitar reuniones con responsables de políticas/reguladores | 1,000 | National | Regularly | 119027172028 |
| Through EAPN [European Anti-Poverty Network] in the Riksdag [Swedish Parliament]. | Salud mental
> Salud mental: la mayoría de las condiciones | Asociación regulatoria
> Con otros defensores de la salud | 1,000 | Local | Rarely | 119012977988 |
| Meetings with companies prior to reimbursement applications. Meetings with TLV [Tandvårds- och läkemedelsförmånsverket – Dental and Pharmaceutical Benefits Agency] to improve the process at a national level. Meetings with policymakers for the same purpose. | Endocrino
> Trastornos del crecimiento | Impactando políticas y legislación
> Influir en la política y legislación de salud | 1,000 | National | Regularly | 119027170967 |
| Primarily in political contexts, through advisory councils and similar bodies, in response to political indifference. | Salud mental
> Salud mental: la mayoría de las condiciones | Impactando políticas y legislación
> Influir en la política y legislación de salud | 100 | Local | Regularly | 119054580960 |
| We have met with regional politicians and provided information about the disease. | Cáncer
> Cáncer: próstata | Impactando políticas y legislación
> Movilizar parlamentarios y líderes políticos | 1,000 | Regional | Sometimes | 119014676970 |
| We participate in the patient council of the NT/MTP Council [NT-rådet (Rådet för nya terapier)/MTP-rådet (Medicintekniska produktrådet) - the Swedish national body issuing recommendations on new therapies and medicinal products]. In individual cases, we have been in contact with TLV [Tandvårds- och läkemedelsförmånsverket – Dental and Pharmaceutical Benefits Agency] ahead of pricing decisions for medicines. | Endocrino
> Condiciones de tiroides | Defensa de precios y asequibilidad
> Participar en negociaciones de la junta de revisión de precios | 100,000 | National | Sometimes | 119035997555 |
| We have previously been involved when a specific dressing was replaced with something “equivalent.” If contacting the hospital does not help, we have sometimes taken it further with the support of the company whose dressing we are trying to obtain. | Raro
> Enfermedades raras: EB | Defensa de precios y asequibilidad
> Monitoreo de sustitución de productos | 1,000 | National | Rarely | 119062893384 |
| We have previously been involved when a specific dressing was replaced with something “equivalent.” If contacting the hospital does not help, we have sometimes taken it further with the support of the company whose dressing we are trying to obtain. | Raro
> Enfermedades raras: EB | Diagnóstico y entrega de medicamentos
> Garantizar el uso seguro y eficaz de los medicamentos | 1,000 | National | Rarely | 119062893384 |
| We have participated in the development of national clinical guidelines. | Neurológico
> Migraña | Diagnóstico y entrega de medicamentos
> Participar en el desarrollo de guías clínicas | 100 | National | Sometimes | 119021956027 |
| We sit on the patient council of TLV [Tandvårds- och läkemedelsförmånsverket – Dental and Pharmaceutical Benefits Agency] contributed to the expert group for the principal responsibility inquiry (huvudmannaskapsutredningen), and serve on working groups for various national clinical guidelines, among other activities. | Reumático
> Enfermedades reumáticas: la mayoría de los tipos | Gobernanza institucional
> Garantizar la representación en los organismos asesores gubernamentales | 100,000 | National | Regularly | 119012976039 |
| We have a dedicated advocacy representative who monitors developments and safeguards our interests. | Salud mental
> Salud mental: la mayoría de las condiciones | Gobernanza institucional
> Garantizar la representación en los organismos asesores gubernamentales | 100 | Local | Rarely | 119022071652 |
| We are represented on the patient council of the NT/MTP-rådet [rådet för nya terapier/medicintekniska produkter – New Therapies/Medical Technology Products Council]. | Endocrino
> Condiciones de tiroides | Gobernanza institucional
> Garantizar la representación en los organismos asesores gubernamentales | 100,000 | National | Sometimes | 119035997555 |
| TLV [Tandvårds- och läkemedelsförmånsverket – Dental and Pharmaceutical Benefits Agency], NT-rådet [Nya terapier-rådet – New Therapies Council], LV [Läkemedelsverket – Medical Products Agency], Socialstyrelsen [National Board of Health and Welfare], etc. | Salud mental
> Esquizofrenia | Gobernanza institucional
> Garantizar la representación en los organismos asesores gubernamentales | 5,000 | National | Regularly | 119054525537 |
| Primarily in political contexts, through advisory councils and similar bodies, in response to political indifference. | Salud mental
> Salud mental: la mayoría de las condiciones | Gobernanza institucional
> Garantizar la representación en los organismos asesores gubernamentales | 100 | Local | Regularly | 119054580960 |
interacciones
acciones y defensa
16 menciones
