| Politicians, regulatory authorities, and collaboration with industry. | Endocrine
> Growth disorders | Regulatory partnership
> Working with regulatory bodies | 1,000 | National | Regularly | 119027172028 |
| We are represented on the patient council of the NT/MTP-rådet [rådet för nya terapier/medicintekniska produkter – New Therapies/Medical Technology Products Council]. | Endocrine
> Thyroid conditions | Regulatory partnership
> Working with regulatory bodies | 100,000 | National | Sometimes | 119035997555 |
| TLV [Tandvårds- och läkemedelsförmånsverket – Dental and Pharmaceutical Benefits Agency], NT-rådet [Nya terapier-rådet – New Therapies Council], LV [Läkemedelsverket – Medical Products Agency], Socialstyrelsen [National Board of Health and Welfare], etc. | Mental health
> Schizophrenia | Regulatory partnership
> Working with regulatory bodies | 5,000 | National | Regularly | 119054525537 |
| We sit on the patient council of TLV [Tandvårds- och läkemedelsförmånsverket – Dental and Pharmaceutical Benefits Agency] contributed to the expert group for the principal responsibility inquiry (huvudmannaskapsutredningen), and serve on working groups for various national clinical guidelines, among other activities. | Rheumatic
> Rheumatic diseases: most types | Regulatory partnership
> Participate in Health Technology Assessment (HTA) and reimbursement reviews | 100,000 | National | Regularly | 119012976039 |
| We participate in TLV [Tandvårds- och läkemedelsförmånsverket – Dental and Pharmaceutical Benefits Agency] assessments relating to bleeding disorders. | Bleeding
> Bleeding disorders: most types | Regulatory partnership
> Participate in Health Technology Assessment (HTA) and reimbursement reviews | 100 | National | Regularly | 119013112468 |
| Meetings with companies prior to reimbursement applications. | Endocrine
> Growth disorders | Regulatory partnership
> Participate in Health Technology Assessment (HTA) and reimbursement reviews | 1,000 | National | Regularly | 119027170967 |
| Meetings with companies prior to reimbursement applications. Meetings with TLV [Tandvårds- och läkemedelsförmånsverket – Dental and Pharmaceutical Benefits Agency] to improve the process at a national level. Meetings with policymakers for the same purpose. | Endocrine
> Growth disorders | Regulatory partnership
> Participate in Health Technology Assessment (HTA) and reimbursement reviews | 1,000 | National | Regularly | 119027170967 |
| TLV [Tandvårds- och läkemedelsförmånsverket – Dental and Pharmaceutical Benefits Agency]. | Mental health
> Schizophrenia | Regulatory partnership
> Participate in Health Technology Assessment (HTA) and reimbursement reviews | 1,000 | National | Sometimes | 119035155217 |
| We participate in the patient council of the NT/MTP Council [NT-rådet (Rådet för nya terapier)/MTP-rådet (Medicintekniska produktrådet) - the Swedish national body issuing recommendations on new therapies and medicinal products]. In individual cases, we have been in contact with TLV [Tandvårds- och läkemedelsförmånsverket – Dental and Pharmaceutical Benefits Agency] ahead of pricing decisions for medicines. | Endocrine
> Thyroid conditions | Regulatory partnership
> Participate in Health Technology Assessment (HTA) and reimbursement reviews | 100,000 | National | Sometimes | 119035997555 |
| TLV [Tandvårds- och läkemedelsförmånsverket – Dental and Pharmaceutical Benefits Agency], NT-rådet [Nya terapier-rådet – New Therapies Council], LV [Läkemedelsverket – Medical Products Agency], Socialstyrelsen [National Board of Health and Welfare], etc. | Mental health
> Schizophrenia | Regulatory partnership
> Participate in Health Technology Assessment (HTA) and reimbursement reviews | 5,000 | National | Regularly | 119054525537 |
| TLV [Tandvårds- och läkemedelsförmånsverket – Dental and Pharmaceutical Benefits Agency], for example. | Cancer
> Cancer: most types | Regulatory partnership
> Participate in Health Technology Assessment (HTA) and reimbursement reviews | 100,000 | National | Regularly | 119054604148 |
| EMA [European Medicines Agency]. | Liver
> Hepatitis | Regulatory partnership
> Contribute to Marketing Authorisation submissions | 1,000 | National | Regularly | 119036786869 |
| We sit on the patient council of TLV [Tandvårds- och läkemedelsförmånsverket – Dental and Pharmaceutical Benefits Agency] contributed to the expert group for the principal responsibility inquiry (huvudmannaskapsutredningen - looking at municipal versus national healthcare responsbilities), and serve on working groups for various national clinical guidelines, among other activities. | Rheumatic
> Rheumatic diseases: most types | Regulatory partnership
> Involvement with clinical guideline-setting bodies | 100,000 | National | Regularly | 119012976039 |
| Collaboration with the medicines committee. | Bone
> Osteoporosis | Regulatory partnership
> Involvement with clinical guideline-setting bodies | 10,000 | National | Sometimes | 119012989318 |
| We have participated in the development of national clinical guidelines. | Neurological
> Migraine | Regulatory partnership
> Involvement with clinical guideline-setting bodies | 100 | National | Sometimes | 119021956027 |
| Politicians, regulatory authorities, and collaboration with industry. | Endocrine
> Growth disorders | Regulatory partnership
> Attend/facilitate meetings with policymakers/regulators | 1,000 | National | Regularly | 119027172028 |
| Through EAPN [European Anti-Poverty Network] in the Riksdag [Swedish Parliament]. | Mental health
> Mental health: most conditions | Regulatory partnership
> With other healthcare advocates | 1,000 | Local | Rarely | 119012977988 |
| Meetings with companies prior to reimbursement applications. Meetings with TLV [Tandvårds- och läkemedelsförmånsverket – Dental and Pharmaceutical Benefits Agency] to improve the process at a national level. Meetings with policymakers for the same purpose. | Endocrine
> Growth disorders | Impacting policy and legislation
> Influence healthcare policy and legislation | 1,000 | National | Regularly | 119027170967 |
| Primarily in political contexts, through advisory councils and similar bodies, in response to political indifference. | Mental health
> Mental health: most conditions | Impacting policy and legislation
> Influence healthcare policy and legislation | 100 | Local | Regularly | 119054580960 |
| We have met with regional politicians and provided information about the disease. | Cancer
> Cancer: prostate | Impacting policy and legislation
> Mobilise parliamentarians and political leaders | 1,000 | Regional | Sometimes | 119014676970 |
| We participate in the patient council of the NT/MTP Council [NT-rådet (Rådet för nya terapier)/MTP-rådet (Medicintekniska produktrådet) - the Swedish national body issuing recommendations on new therapies and medicinal products]. In individual cases, we have been in contact with TLV [Tandvårds- och läkemedelsförmånsverket – Dental and Pharmaceutical Benefits Agency] ahead of pricing decisions for medicines. | Endocrine
> Thyroid conditions | Pricing and affordability advocacy
> Engage in price-review board negotiations | 100,000 | National | Sometimes | 119035997555 |
| We have previously been involved when a specific dressing was replaced with something “equivalent.” If contacting the hospital does not help, we have sometimes taken it further with the support of the company whose dressing we are trying to obtain. | Rare
> Rare diseases: EB | Pricing and affordability advocacy
> Monitoring product substitution | 1,000 | National | Rarely | 119062893384 |
| We have previously been involved when a specific dressing was replaced with something “equivalent.” If contacting the hospital does not help, we have sometimes taken it further with the support of the company whose dressing we are trying to obtain. | Rare
> Rare diseases: EB | Diagnosis and medicines delivery
> Ensure safe and effective medicine use | 1,000 | National | Rarely | 119062893384 |
| We have participated in the development of national clinical guidelines. | Neurological
> Migraine | Diagnosis and medicines delivery
> Participate in developing clinical guidelines | 100 | National | Sometimes | 119021956027 |
| We sit on the patient council of TLV [Tandvårds- och läkemedelsförmånsverket – Dental and Pharmaceutical Benefits Agency] contributed to the expert group for the principal responsibility inquiry (huvudmannaskapsutredningen), and serve on working groups for various national clinical guidelines, among other activities. | Rheumatic
> Rheumatic diseases: most types | Institutional governance
> Ensure representation within governmental advisory bodies | 100,000 | National | Regularly | 119012976039 |
| We have a dedicated advocacy representative who monitors developments and safeguards our interests. | Mental health
> Mental health: most conditions | Institutional governance
> Ensure representation within governmental advisory bodies | 100 | Local | Rarely | 119022071652 |
| We are represented on the patient council of the NT/MTP-rådet [rådet för nya terapier/medicintekniska produkter – New Therapies/Medical Technology Products Council]. | Endocrine
> Thyroid conditions | Institutional governance
> Ensure representation within governmental advisory bodies | 100,000 | National | Sometimes | 119035997555 |
| TLV [Tandvårds- och läkemedelsförmånsverket – Dental and Pharmaceutical Benefits Agency], NT-rådet [Nya terapier-rådet – New Therapies Council], LV [Läkemedelsverket – Medical Products Agency], Socialstyrelsen [National Board of Health and Welfare], etc. | Mental health
> Schizophrenia | Institutional governance
> Ensure representation within governmental advisory bodies | 5,000 | National | Regularly | 119054525537 |
| Primarily in political contexts, through advisory councils and similar bodies, in response to political indifference. | Mental health
> Mental health: most conditions | Institutional governance
> Ensure representation within governmental advisory bodies | 100 | Local | Regularly | 119054580960 |
interactions
actions & advocacy
16 mentions
