Forty-four per cent of transplant patient groups represent patient interests to regulators. Meetings with policymakers and regulators are most common (45%), while 9% influence healthcare policy and legislation and/or advocate for formulary inclusion.
44% of respondents from Transplants ‘Regularly’ or ‘Sometimes’ represent patient interests to drug regulators
Patient groups representing each Transplants sub-type
18 patient groups across 3 sub-types
interactions
We submit a formal petition to the [Japanese] Ministry of Health, Labour and Welfare (MHLW) once a year and conduct a follow-up meeting.
厚生労働省に年1回要望書を提出し面談を行なっている.
National transplant patient group, Japan
interactions
I personally have testified before the FDA [Food and Drug Administration] and CMS [Centers for Medicare & Medicaid Services].
I personally have testified before the FDA and CMS.
Regional transplant patient group, USA
actions & advocacy
On more than one occasion over the past year, recommendations have been submitted to the regulatory authority responsible for pharmaceutical pricing in Hong Kong, proposing that medicines with existing approved indications be permitted to register new indications under a special licensing arrangement.
過去一年不止一次向香港藥品定價的監管機構提出建議，已註冊適應症藥物可以特許新適應症註冊。
Regional transplant patient group, Hong Kong
actions & advocacy
We represent patients at the Ministry of Health, the State Health Insurance Fund, the State Medicines Control Agency, the National Transplant Bureau, the Seimas of the Republic of Lithuania, the Health Affairs Committee of the Seimas, the Government of the Republic of Lithuania, the Office of the President of the Republic of Lithuania, the Ministry of Social Security and Labor and its subordinate institutions.
We represent patients at the Ministry of Health, the State Health Insurance Fund, the State Medicines Control Agency, the National Transplant Bureau, the Seimas of the Republic of Lithuania, the Health Affairs Committee of the Seimas, the Government of the Republic of Lithuania, the Office of the President of the Republic of Lithuania, the Ministry of Social Security and Labor and its subordinate institutions.
National transplant patient group, Lithuania
The percentages below highlight how the 11 patient groups interact with regulators and advocate for patient interests. As respondents may be represented in more than one area, percentages may not total 100%.
interactions
8 mentions
5 mentions
2 mentions
1 mention
2 mentions
2 mentions
1 mention
1 mention
actions & advocacy
1 mention
1 mention
1 mention
1 mention
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Our research covers 2,262 patient groups representing 100 countries and 45 therapy areas. The sample report shows you the depth of analysis for a single country or therapy area. To access any other reports, please get in touch.
Visit patient-view.com to gather more information or email: Alex Wyke, alexwyke@patient-view.com
